Pregnancy and Infant Loss Awareness Day 2019

It happens in all kinds of ways.

For one reason or another, the tiny life budding in a belly never gets to see the light of day. Never takes a first breath. Never cries. Never opens his or her eyes to the mama waiting to meet her precious one.

So many mamas have experienced the excitement of watching the pregnancy test show positive only to endure days, weeks or months later, the sadness of saying good-bye to a little one they never got to meet.

Statistics tell us that one in four women will become part of this group during their lifetime.

But what statistics can never tell you about anything is why so, so many of the women who survive pregnancy and infant loss don’t talk about it.

Many think they can’t talk about it or shouldn’t talk about it because often the experience is so very personal.

It may be the pregnancy was never announced. It could be that the culture in which a mama lives doesn’t recognize life at conception so, really, what was lost? Perhaps many women in her family have had similar experiences and THEY didn’t “make a big deal” out of it, so why should she?

Then there’s guilt.

So, so much information is shoved into mothers’ faces about what they should and shouldn’t do to promote a healthy pregnancy and birth. Eat this, don’t eat that. Take this, don’t take that. Exercise-but not too strenuously. Drink water. Don’t drink alcohol or too much caffeine.

It’s easy to blame yourself when a baby stops growing.

Some brave mamas carry a baby for months and to the point of birth-see that precious bundle on an ultrasound, hear the heartbeat, watch and feel those legs kick-yet never hear a cry or hold a warm infant in their arms.

That’s a kind of awful no heart should have to bear.

And yet, that loss too is often unacknowledged.

How do you celebrate a life that was lived only inside the comfort and safety of the womb? How do you share a photo of your precious baby when the only one you have (if you have any) is of him wrapped in a blanket, eyes closed, your eyes crying?

If a second pregnancy follows any kind of pregnancy or infant loss, friends and family almost always pounce on the opportunity to push a mama’s heart forward fast and furious to the future of her “rainbow child” making it even less likely her missing baby is acknowledged or remembered.

But she never forgets.

A mama’s heart never lets go of the life that lived inside her.

That tiny baby-one week, one month, full term-is her son or daughter.

Counted among the others.

Just as precious.

Always.

I’m remembering with you, my sweet friends. Tonight I will light a candle along with millions who also remember, to honor the baby I never held. May the multiplied voices and hearts joined together help others hear the message that our child matters.

Every child matters. ❤

I Want You To Know How My Son LIVED Not Only How He Died

As happens often, multiple conversations, experiences and random social media posts rattle around in my brain and then sort themselves out into a brand new thought.

I realized (maybe for the first time with genuine feeling!) that I want people to know how my son lived and not only how or even that he died.

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It was probably almost three years before I could mention Dominic’s name without also adding, “he was killed in a motorcycle accident” to anyone who didn’t already know that.

It wasn’t because I wanted sympathy or special consideration but because I honestly could not think about Dominic without placing every thought in the context of his death. I was so aware of his absence that it pushed everything else about him into the background.

I was also horribly jealous of what I had lost.

I needed to express how desperately I longed to have him back so tended to share details about his personality, accomplishments and pet peeves from my own perspective.

I was mainly looking at him through my eyes instead of seeing him as a whole person distinct from myself.

I wanted to curate his image in the eyes of others.

But Dominic had been his own man for a long time when he left this earth for Heaven. He made his own choices, had friends I never knew, read things and saw places beyond my experience.

When I insist on introducing him first as Dominic the missing member of the family instead of Dominic the man he had become, I make him smaller than he was (than he is!).

I don’t want to do that.

Even though I rarely insist on mentioning his death anymore in casual conversation unless asked directly, I realize that I want to do more than just NOT mention his death.

I want to comment on his life.

I want to tell folks that Dominic was one of the most talented drummers I’ve ever heard. I want them to know about his quirky sense of humor, his insistence on super soft clothing and irritation with people who took two parking spaces in crowded lots. I want to share how even though you’d swear he was never afraid, he often felt like maybe he wouldn’t measure up somehow.

I want you to know that he was adventurous, athletic, addicted to coffee and adrenaline and a fierce lover of justice and his family.

Yes, Dominic died.

But he lived, too.

And that’s really what I want people to know. ❤

If you are a fellow bereaved parent, please share something about what makes your child(ren) unique. What do you want others to know about him or her?

Most Shared Posts: Grief Brain-It’s A Real Thing!


I’m looking right at her.

know her.  In fact, I’ve known her for years.  But please don’t ask me her name.

I have no idea.

Read the rest here: https://thelifeididntchoose.com/2017/02/22/grief-brain-its-a-real-thing/

Repost: “Don’t Dwell On That!

Why is it “dwelling” in one instance and “remembering” in another?

Who gets to decide whether I’m taking out a cherished memory, holding it, stroking it and reliving it because it’s all I have left or I’m clutching the past, refusing to let go?

I will be the first to admit that mulling over past offenses is probably the last thing I need to do.  Especially if I’m trying to forgive them.  That’s not helpful nor is it healthy.

But there’s a difference between THAT kind of thinking and the kind of thinking every bereaved parent does about his or her missing child.

Read the rest here:  “Don’t Dwell on That!”

I Don’t Want To Remember My Son

I don’t want to remember my son. 

I want to make memories with him.  

I want him to watch me grow old, to watch him get married and have children and to hear his voice mingled with his siblings at my table.

I’ve tried dozens of times to write a post that describes the abyss that divides the life I thought I would live and what it’s turned out to be.

I can’t do it.  

A twenty-three year old isn’t planning his legacy.  A mom of a twenty-three year old isn’t carefully preserving daily moments in the event he suddenly disappears.

Whatever legacy Dominic has left behind is a function of his huge personality rather than careful planning.  And all I have left of his life are bits and pieces I’m trying to string together so he’s not forgotten.

I was not prepared to wake up one morning and learn that his earthly story ended.  

I didn’t get to say good-bye, didn’t get to look him in the eye and tell him how very much I love him, didn’t even get to hold his hand as he left this life and entered Heaven.

I know he is just fine.  He’s full of joy and perfectly content.  

But I’m not.  

I don’t want Dominic to be a memory.  

I want him to be here.  

 

The Healing Power of Fellowship

I spent last weekend with eleven other bereaved moms.

And lest you think, “How sad!”, let me just tell you we had a beautiful time together.

Sure there were tears-how can there not be when talking about the precious children we miss-but there was fun too.

Of course we had somber moments. 

Especially as we lit candles in honor of each child whose light lives on even as their physical presence is denied us.

anchor retreat lit candle

In between Bible study sessions we ate, talked, walked outside and got to know one another.

A game of “Two Truths and a Lie” revealed all kinds of surprises that had us practically falling off our chairs with uproarious laughter.

Even though most of us had never met before, knowing we shared the heartache of child loss drew us together and opened the door to meaningful conversation.

anchor retreat hope

For 72 hours we didn’t have to put our masks on or walk with one foot in the world of the spared and one foot in the world of the deeply wounded. 

We were free-gloriously free-to be real and unguarded.

One of the fun things we did was have a Mary Kay consultant come and do facials and makeup.  I think we kind of shocked her when she went around the circle asking, “So what are you primary make up concerns?” and over half of us said, “I don’t wear make up.”

Poor woman.

anchor retreat mary kay lady (2)

She had no idea that we had long passed the point of faking feelings or saying what someone expects just because they expect it.

I know it was a stretch for some of the moms to make their way to this place they’d never been to and walk into a room full of women they’d never met.

It was a stretch for me to facilitate discussions when I felt I had reached my limit for anything besides staying home for the rest of this year.

But it was worth it.

There is nothing as beautiful as broken hearts gathering together to love, uplift, encourage and listen to one another.

If you have the opportunity and are afraid, please step out. 

Take a chance and link arms with fellow grievers.

I promise you will be glad you did.

circle-of-women

 

Repost: Today’s Gift

I wrote this less than six months after Dominic ran ahead to heaven.  

My heart had not yet fully grasped his absence and there was a lovely moment each morning when my sleepy eyes opened to a world where he was still in it.  

Read the rest here:  Today’s Gift

Why Can’t I Remember? It’s Grief Brain.

I repost this every so often because nearly every bereaved parent I know wonders, at some point, if they are going crazy.

Things that used to be second nature escape us. We can’t remember words, names, dates, how to write a check or address an envelope. Sometimes we get lost in our own neighborhood. 

It’s not early-onset dementia (for the majority of us, anyway)-it’s grief brain.  

Read the rest here:  Grief Brain: It’s a Real Thing!

“Don’t Dwell on That!”

Why is it “dwelling” in one instance and “remembering” in another?

Who gets to decide whether I’m taking out a cherished memory, holding it, stroking it and reliving it because it’s all I have left or I’m clutching the past, refusing to let go?

I will be the first to admit that mulling over past offenses is probably the last thing I need to do.  Especially if I’m trying to forgive them.  That’s not helpful nor is it healthy.

But there’s a difference between THAT kind of thinking and the kind of thinking every bereaved parent does about his or her missing child.

When Dominic ran ahead to heaven, there was a sudden, horrible and unchangeable end to new experiences, to making any more memories, to another conversation, picture or text.

All I have of my son is whatever I had saved up to the moment of his accident.  

And it is not enough. 

It will never be enough to fill up the spaces of what my heart wishes I had.

He lived for nearly 24 years.  But I can’t withdraw those memories like cash and “spend” them, day for day, for the next 24 years.

It doesn’t work that way.

So I have favorite moments, like we all do, that I pull out over and over.  I cherish them like precious stones or rare coins.  I hold them, stroke them, tell the stories behind them and hug them close.

Not because I can’t “move forward”.

Goodness! 

Here I am nearly seven years later living, breathing and fully connected to the people and events in my present!

I do it because memories are a way to remain connected to Dominic.  

He is as much a part of my life-unseen by others, unheard by others, often forgotten by others-as the living, breathing children that are still here with me.  

So I am not DWELLING on these memories.

I am hanging on with both hands because I refuse to let one-quarter of my heart be relegated to darkness and silence because of other people’s discomfort.  

I will remember.  

As long as I have breath I will speak my remembrance.

I will never, ever, ever let go.  

handprint on my heart

Love in Action: Just Say His Name

I’m convinced that many of our friends and family DO want to talk about our missing child but they need permission to do so.

They just aren’t sure if it will make things better or worse.

And if we cry, they feel responsible.  They don’t realize that many times they are tears of joy that our precious child is still remembered. ❤

I know you are afraid.

You think that speaking his name or sharing a memory or sending me a photo will add to my sorrow.

I understand.

But even when it costs me a split second of sharp pain, it is truly a gift to know that Dominic lives on in the hearts and minds of others.  It gives me courage to speak too.  It creates space where I can honor my son.

It helps keep him alive.

Read the rest here:  Loving Well: Just Say His Name