Repost: No Words

Some days there are just no words for this journey.

Sometimes I can only feel what I feel

and do what I do

and cry when I cry.

Today is like that.

I cannot wrap my mind around the FACT that my son is dead.

Read the rest here:  No Words

Repost: Why I Say, “My Son Died.”

Died.  

It is a harsh word.

I understand completely that some parents don’t want to use it to describe their child and I respect that.

I have chosen to use it often (not always-sometimes I say “left” or “ran ahead to heaven”) because what happened IS harsh. I don’t want to soften it because there was nothing soft about it for me or my family.

It is heartbreaking, lonely, heavy, hard and utterly devastating. 

Read the rest here:  Why I Say, “My Son Died.”

I Know Why My Story Scares You

At first all I could feel was pain.

Pain of abandonment, of being misunderstood, of being pushed to the outside edges of groups that used to welcome me with open arms.

But as time passed, I began to understand.

My story scares you.  You are utterly afraid that if child loss can happen to ME, it can happen to YOU.

You’re right.

It CAN happen to you.

And no one wants to be reminded that the one thing every parent fears is not nearly as impossible nor as predictable as we would hope it is.

From the minute we take that baby home from the hospital, safely tucked in the approved and properly installed car seat, we assume we can control the future.  We think that if we eat right, get regular check ups, cover outlets and sharp corners, remove choking hazards and stuff that little mouth full of organic and healthful treats, it’s all good.

Except no one can account for random.  No one can see undetected and unsuspected genetic defects.  No one can predict or protect against every way a child might leave this life before his or her parents.

But we absolutely, positively do not want to think about that.

I don’t blame you.

I didn’t either.

So I understand why you distance yourself from me.  I get why even my presence in a room is sometimes uncomfortable.  I am not upset that you don’t add my name to the invitation list when the occasion is happy and you are afraid I might cast a shadow over the celebration.

I’m a walking advertisement for your worst nightmare.

You can afford to ignore it-and me.

I don’t have that luxury.

cant-fix-it-my-family-is-always-achingly-incomplete

 

How Can It Be Five Years??!!

We all experience it from time to time-that moment when your head comprehends that life has kept going but your heart refuses to keep pace.  

So today, I’m looking at a calendar that assures me it has been five years since that deputy knocked on my door. 

It’s a fact.  

My heart says, “It cannot be true.  It cannot be that long since I saw my living, breathing son cross the threshold of our family home.  It cannot be that long since I made the phone calls that still echo in my ears.  It can. not. possibly. be. that. long.”

And yet it is.  

If folks ask me how I’m doing, how my family is doing, I usually say we are OK.

Because, all things considered, we ARE. 

beach-and-family-better

None of us find daily life unmanageable.  None of us have fallen prey to addiction or unhealthy coping mechanisms.  None of us sit inside all day, moping and mourning the loss of a life we couldn’t hold onto even if we had seen it slipping away in time to take a firmer grip.

But we are absolutely, utterly, profoundly CHANGED.  

I often think back to old Star Trek episodes that showed crew members transporting to the surface of an unknown planet.  Their bodies were broken down into the tiniest component molecules and reassembled somewhere else.

I think that’s what this life is like. 

We’ve all been disassembled and reassembled. 

But instead of everything falling back into place, there are missing bits here and there, gaps too small for others to see but very, very real to us.  Connections lost.  Memories without proper context.

dont recognize myself without one of my sons

Feelings floating free of any anchor, bubbling up at the most inconvenient moments.  

And we all just plain MISS HIM.

We miss Hector Dominic DeSimone and who he is, what he brought to the table and car rides and family gatherings.

We miss who we were before we knew loss that burrows deep in your bones.  We miss the unmitigated joy and celebration we could toss around like confetti at the slightest provocation.

So today, unlike most days, we will give in to the sorrow.  We will remember that morning.  We won’t brush away the tears or the sad memories.  

He is worth every second and every heartache.

He is never forgotten.  

He is always, always on our minds.  

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For You, a Moment; For Me, a Lifetime

I used to look at tombstones in cemeteries and do the math between the dates. 

I was most focused on how long this person or that person walked the earth. 

I still do that sometimes.  But now I do something else as well. 

I look to the left and the right to see if the person who ran ahead left parents behind.  My eye is drawn to the solitary stones with the same last name next to a double monument clearly honoring a married pair.

grieving mother at grave

And then I do a different kind of math. 

I count the years between the last breath of the child and the last breath of his or her mama.

Because while that first date marked an end for everyone else, for the mama, it marked the beginning of the rest of her life- a life she never imagined nor would have chosen.  

I wonder how many lives have been cut short by the effects of grief.  I know some folks have tried to research it, but it’s so hard.  Because grief ends up doing things to bodies that look like aging or like other disease processes and it’s really difficult to tease it out.

But those of us who live this life know. 

We know.  

What’s a moment for everyone else, is a lifetime for us.  What is a date on the calendar, a trip to a funeral home, a casserole delivered to a door in hopes of lifting spirits for everyone else, is so much more for us.

grief as timeless as love

I don’t begrudge your ignorance. 

I celebrate it! 

My heart breaks every single time another name is added to the roles of “bereaved parent”.

I think a lot about the generations gone before.  Before vaccinations, before penicillin, before so many modern blessings that lengthen life and give hope where there used to be none.

I think about the families involved in WWI and WWII.  I understand the need to call the first war “The Great War” and assume such atrocities would stop mankind from falling headlong into them again.

But it didn’t.  

So, so many families that made the highest sacrifice. 

So, so many parents that hung that photo of their son or daughter on the wall and never moved it-because they were as frozen in time as their child.  

cant-fix-it-my-family-is-always-achingly-incomplete

I have a friend who does home-based physical therapy.  She often goes to the homes of elderly patients and lovingly and gracefully listens to their stories.  If it is part of their history, they almost always point out the child who never grew older and tell the tale of how much they miss him or her.

It’s so, so hard for others to understand how very different child loss and out-of-order death is from any other loss in this life.  

But it is not a moment.  

It is not even a week or month or years.  

It’s a lifetime. 

We miss them and mourn them for a lifetime.  

grief is a pain that cant be spoken goes on and on

 

Spring Isn’t All Sunshine And Flowers For Me

Like most of us I am enjoying the change from cold and wet to warm and sunny.  

Spring breezes and spring sunshine usher in fresh beauty and speak hope to a heart.  It reminds me that the earth will not always be locked in darkness nor be a frozen wasteland.  

But spring isn’t all sunshine and flowers for me.  

It’s death and dying and tears and heart wrenching reminders that no matter how hard we try to hold onto life in THIS life, we can’t.

Right now I’m holding my dying cat.  He’s been a faithful companion for thirteen years. 

I’ve had many, many wonderful animals in my life but none have come close to being the constant shadow and empathetic friend that Roosevelt is.  His warm body snuggled into my arms like an infant every morning has been a touchstone that kept me from floating away in grief’s inviting fog.

I will miss him.  

Death is awful. 

death matters lewis

I do not equate Roosevelt’s death with Dominic’s.  There isn’t a scale conceivable that would measure the distance between the two.

But one of the things I’m learning in this Valley is that every death taps the same wound.  Every death hurts my heart.  Every death reminds me that this life is not as it ought to be, not as God intended it to be when He placed Adam and Eve in the Garden.

how terrible it is to love something that death can touch

And every death reminds me that Christ came, Christ suffered, Christ conquered precisely BECAUSE death. is. awful.

Resurrection is coming.  

But it is not yet.  

So I wait.  

In hope.  

Clinging to the promises.  

life is eternal and death a horizon

 

**My faithful companion died in my arms- peacefully and without pain. ***

How Terrible It Is To Love Something That Death Can Touch

I know as a believer in Jesus I’m supposed to be able to look beyond “this mortal veil” and treat death as a mere “address change”.

Well, I can’t.

Death is the enemy and I do not experience it as simply a transition from one state to another.

The last enemy to be abolished and put to an end is death.

~I Corinthians 15:26 AMP

Death is a reminder of all that is wrong with this earth.  It’s a reminder that sin is costly.  It’s a reminder that this world is not my true home.

find in ourselves a longing c s lewis

It’s just plain wrong!

I hated death long before I counted my own son among the casualties.

Living on a farm, we have buried everything from domestic livestock to random wildlife that wandered up, wounded and we tried to save.  I have hatched eggs found in disturbed nests,  loved on baby rabbits, squirrels, deer and woodchucks, nursed abandoned kittens, lambs and goat kids.  Many of them didn’t survive and every one took a bit of my heart when they breathed their last.

how terrible it is to love somthing that death can touch memorial stone

I have said “good-bye” to my 99 year old aunt, my grandmothers, my grandfathers and my own son.

There is nothing pretty about death.  It wasn’t in God’s original plan and I hate it.

Lately, I’ve been worrying about my “therapy” cat-Roosevelt.  He’s aging.  And all things being equal, he won’t last much longer.

r and christmas

 

He sat in my lap as I recovered from numerous surgeries and hospitalizations.

And he stayed with me as I received concerned family and friends when Dominic ran ahead to Heaven.  I don’t know what I would have done without his warm weight holding me in the chair when all I wanted to do was run away and hide.

hand-coffee-roosevelt

He has been a compassionate companion in many sad and lonely moments-never asking for a thing and giving so much with his presence and unconditional love.

Every night he sleeps beside me, snuggled down tight against my neck, purring peacefully.

But he’s getting old and I am becoming fearful that I don’t have too many more years left with him.  I hate that most nights I drift off to sleep thinking he won’t be here much longer.

And then I feel guilty.

Because the death of my cat (when it happens) can’t begin to touch the depth of pain of the death of my son.  It seems, though, that every death taps that wounded spot in my soul.

dominic at olive garden

But every death-whether a person or an animal I love-opens the floodgate of sadness I work so very hard to keep behind the dam.

I know I’m not supposed to borrow trouble from tomorrow and I work hard not to do that. 

I’m working hard to cherish each moment with everyone I love without worrying that it may be one of the last. 

It’s a fine line I walk every day.  

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