curating grief

Most of us have taken a class or two in literature–we read other people’s writing and sit around discussing “what it really means”.  My husband has always scoffed at the notion that anyone but the author knows that.

Me–I love books, plays and poetry so I’ve spent a lifetime reading and trying to interpret the meaning of others’ words.

But now I find I’m leaning more toward my husband’s point of view.

One of the challenges I face as a grieving parent is finding that other people want to interpret my experience for me.

They want to curate my mourning like a museum exhibit–arrange and highlight and sift through the days before and after burying my child and lay my experience out in some way that makes sense to them.

Sometimes it is subtle and involves mentioning memories that cast the missing child in a positive light–extolling his virtues and highlighting his achievements–as if noting how wonderful he was when walking this earth makes it easier to let him go.

Other times it is direct and forceful–“Everything happens for a reason.” Or, “He wouldn’t want you to be sad.”  Or, my personal favorite, “You know he’s safe with Jesus and you will be together again one day.”

While my theology rests firmly on the finished work of Christ, my heart longs for the physical presence of my son.  So none of these platitudes are helpful and they only draw a sharper contrast between my hope and my experience.

Let me just be blunt:  unless you have buried a child, you do not know how it feels. 

Full stop.

No debate.

I am grateful for your support, for your prayers, for your kindness, compassion and love.

But please do not tell me how this all makes sense or fits together in God’s plan or will someday “make a difference”.

I  invite you to travel with me, to share stories (good and bad) of my son with me, to sit with me and look at the memories, feel the sorrow and experience the missing.

And, if you are brave, you can ask me what it means.

 

 

No Perfect Formula

Everyone loves a formula.

We spend millions (billions?) of dollars seeking the perfect, easy way to whittle our waistlines.  We spend hours (days?) googling tips on reducing clutter, improving relationships, decorating our homes (Pinterest, anyone?).

Christian bookstores are filled with tantalizing titles that promise a quick and effortless method for happiness and holiness.

We just want someone to tell us what to do, when to do it and exactly how to do it–we want life to work like a math problem: 2+2=4.

Sometimes, for a season, it looks like a formula might work.

But there is nothing predictable about life. And as long as people are involved, there’s no reliable method to accurately predict outcomes.

It’s just not that simple.

Looking for the perfect equation to balance life’s challenges distracts me from the life I’m actually living.  It offers false hope that one day, some way and somewhere, things will be “perfect”.

It seduces me into thinking that people behave like numbers and that I can size them up, put them in the math machine and turn out identical and predictable products.

Burying a child rips that notion right out of your head.

Nothing predictable about that.

There are no shortcuts.  No pat answers.  No perfect formulas.

Life is relationship.

With God,

with people,

with ourselves.

In light of all this, here’s what I want you to do. While I’m locked up here, a prisoner for the Master, I want you to get out there and walk—better yet, run!—on the road God called you to travel. I don’t want any of you sitting around on your hands. I don’t want anyone strolling off, down some path that goes nowhere. And mark that you do this with humility and discipline—not in fits and starts, but steadily, pouring yourselves out for each other in acts of love, alert at noticing differences and quick at mending fences.

Ephesians 4:2-3 MSG

 

 

 

 

 

 

Faithful Waiting

I fell in love with Ron Dicianni’s painting,  “Simeon’s Moment” many years ago.  My husband bought and framed a print for me and I sit opposite it every morning as I drink my coffee.

It never fails to touch my heart.

There was a man in Jerusalem whose name was Simeon. This man was righteous and devout, looking forward to Israel’s consolation,and the Holy Spirit was on him.  It had been revealed to him by the Holy Spirit that he would not see death before he saw the Lord’s Messiah. Guided by the Spirit, he entered[b] the temple complex. When the parents brought in the child Jesus to perform for Him what was customary under the law, Simeon took Him up in his arms, praised God, and said:

Now, Master,
You can dismiss Your slave in peace,
as You promised.
 For my eyes have seen Your salvation.
You have prepared it
in the presence of all peoples—
 a light for revelation to the Gentiles[c]
and glory to Your people Israel.

Luke 2: 25-32 HCSB

We don’t know how long Simeon had waited, how many times he had looked at a male child brought for dedication only to realize that he must still wait–but we know that Simeon returned to the temple because he trusted God’s promise.

Then one day, perhaps a day he thought would be like any other, THERE HE WAS–Messiah had come.

As he cradled Jesus in his arms, spoke prophecy over his baby head, Simeon’s faithful waiting was rewarded.

Yet even at that moment, Simeon did not receive the fullness of the promise–Jesus was yet a tiny child.

But the foretaste of God’s trustworthy love flooded his soul and he was able to say,  “You can dismiss Your slave in peace,..for my eyes have seen Your salvation”.

Waiting is hard.  

I miss Dominic and I long for the time when my family circle will be restored.

Sometimes the days drag on and it seems as if the promised light and redemption is far away.

But one day, perhaps a day that begins like any other, CHRIST WILL COME.

So until then, I will rest in the foretaste of God’s trustworthy love and wait faithfully for His appearing.

 

What Really Matters

Every day we are bombarded by numbers.

We judge and are judged by how well we  “measure up”.

How much do I own?   How big is my house? How small is my waist?

But how do you measure the value of a life poured out for others?

As you gather with family (some more difficult than others) this Christmas think on this:

If you could pile regret- one missed moment, an unspoken word, a hasty retort, a too-busy-right-now-stacked akimbo tottering high above your head, it would never be tall enough or monumental enough to convey the heartbreak of not having a second chance to love the ones God has given you.

The only metric that matters in the end is how much and how well I love.

Your glory, LORD, lights up the world; where love is real, it shines.

 My beloved friends, let us continue to love each other since love comes from God. Everyone who loves is born of God and experiences a relationship with God. The person who refuses to love doesn’t know the first thing about God, because God is love—so you can’t know him if you don’t love. This is how God showed his love for us: God sent his only Son into the world so we might live through him. This is the kind of love we are talking about—not that we once upon a time loved God, but that he loved us and sent his Son as a sacrifice to clear away our sins and the damage they’ve done to our relationship with God.

My dear, dear friends, if God loved us like this, we certainly ought to love each other. No one has seen God, ever. But if we love one another, God dwells deeply within us, and his love becomes complete in us—perfect love!

I John 4:7-12 MSG

Making Room for Grief at the Christmas Table

Our family didn’t do Santa.

We started to with our first child, but when she asked, “How does Santa know everything and how does he live forever?” at two years old, we ditched him.

I realized that even her young mind had picked out the inconsistencies between Jolly Old Saint Nick and what we were teaching her about God and the human condition.

The path to joy is filled with pain.  The way to heaven is traveled through a world where children die and cruelty is common.  Not every good little boy or girl finds their wishes fulfilled on Christmas morning.

This is precisely the place where the grieving find Christmas difficult.

Even Christ followers tend to section off the celebration of Jesus’ birth from the agony and necessity of His death.  We welcome the Baby but disregard the crucified Savior.  We like to pretend that “all is calm, all is bright”.

The pressure to maintain the facade of jollity overwhelms my heart and makes me weary down to my bones.

Joy and sorrow both dwell in my soul and I cannot reveal one and hide the other.  I may laugh and cry in the same moment.

It is all too easy for others to welcome the laughter and to shut out the grief–to insist that those who gather pretend everyone gets what they want for Christmas.

No one can bring my son back to me.  No one can giftwrap a restored family and place it under the tree. 

But you can give me and other mourners space for our pain at the Christmas table.

You can honor those we miss by noting their absence–you can acknowledge that eternity is truly wonderful, but today is so very hard.

That is a gift we would treasure.

My Three Sons

My three sons–I still have three you know.

Two that travel the earth with me and one that dwells with Jesus.

My soul expanded with each birth–like pants stretched to make room for inches gained and there is no going back.

My heart will always bear the stretchmarks of my love.

LORD, I cannot thank You for allowing my son to be taken–I can thank You for Who You are and for not leaving me alone in my grief.

I won’t overlook the beauty in a sunrise, the gift of laughter or the welcome warmth of loving hugs.

I won’t allow bitterness to strip my life of kindness and compassion.  I will try to embrace the pain and let it work Your purpose in my heart.

When I can’t fight the battle myself, I will rest in the arms of the One Who fights for me.

 God is a safe place to hide,
    ready to help when we need him.
We stand fearless at the cliff-edge of doom,
    courageous in seastorm and earthquake,
Before the rush and roar of oceans,
    the tremors that shift mountains.

Jacob-wrestling God fights for us,
    God-of-Angel-Armies protects us.

Psalm 46:1-3 MSG

 

 

Loving the Grieving Heart

If you love someone who has lost a child, perhaps these thoughts might help you understand a bit of their pain and how completely it changes the way we who have encounter the world.

Please be patient.  Please don’t try to “fix” us.  Please be present and compassionate.  And if you don’t know what to say, feel free to say nothing–a hug, a smile, an understanding look–they mean so very much.

A bereaved parent’s grief doesn’t fit an easy-to-understand narrative. And it flies in the face of the American “pull yourself up by your bootstraps” mentality.

You can’t beat it–it’s not a football game-there is no winning team.

You can’t lose it–it’s not the extra 10 pounds you’ve been carrying since last Christmas.

You can’t get over it–it’s not a teenage love affair that will pale in comparison when the real thing comes along.

You can only survive it.  You can heal from it, but it will take a lifetime and require very special care.

I have a young friend whose first child was born with a life-threatening heart defect.  At just a few months of age, her little girl received a heart transplant.  Without it, she would have died.  With her new heart, this sweet baby will live-but her parents must observe careful protocols to protect that heart and she will never outgrow the scar from the surgery that saved her life.

Burying Dominic wounded my heart so deeply that while I know it will heal–it is beginning to, I think–it will bear the scars and require special handling as long as I walk this earth.

So when I thank you for an invitation, but choose not to go…I’m not rejecting you, I’m protecting my heart.  Please ask again–tomorrow might be a better day, and going somewhere or being with someone could be just what I need.

If you call and I don’t pick up…I might be crying, or about to, and I choose not to burden you with my grief.  Call in a day or two or next week–keep trying.

A text or email or card is so helpful.  I can read these when I’m ready and respond when it’s easier for me to think.

And please, please, please don’t look for the moment or day or year when I will be “back to my old self”.  My old self was buried with my son.  I am still “me”–but a different me than I would have chosen.

I know it makes you uncomfortable–it makes me uncomfortable too.

But because I trust in the finished work of Christ, I know that one day my heart will be completely healed.

I hurt but I have hope. This pain will be redeemed and my scars will be beautiful.

“For just as Christ’s sufferings are ours in abundance [as they overflow to His followers], so also our comfort [our reassurance, our encouragement, our consolation] is abundant through Christ [it is truly more than enough to endure what we must]”  2 Corinthians 1:5.

 

 

 

Graduation

Saturday, my daughter, my firstborn,  walked across the stage and recieved her diploma.  A teacher, a doula, an ER tech and now capped with her Masters of Public Health Education.

She is so accomplished.

And so full of grace.  

She manipulates her (very hectic and very full) schedule so that she can have coffee with struggling friends.  She opens her home to anyone in her circle that needs a meal or space to heal.  She speaks words of life and love and laughter to her coworkers and her family.

And she is so brave.

Because she had only begun this journey when Dominic was killed–right before finals of her first semester.  In spite of the inflexible and incomprehensible “official policies” of the university regarding even a parent’s or sibling’s death, she passed those finals WITH STRAIGHT A’s.

And she is doubly brave.

Just four years ago, this very weekend, Dominic sat on the stage she traversed, with the professors and deans and president of UAB.  He had been selected to present the Undergraduate Address.  Our family was included in a backstage reception and seated in the VIP section.

His memory echoed every footfall as she walked.

The death of a child is not only the sorrow of his or her parents.  It is especially the sorrow of his or her brothers and sisters.  Fiona was the first, she held each baby when we came home from the hospital.  She and her surviving brothers have suffered a great blow.

Yet they are marching on.

Bearing their wounds and making a difference.

I am so very proud of each of them.  

 

 

Practical Ways to Love Grieving Parents at Christmas

Bereaved parents feel increasing pressure as the days count down toward December 25th.

Everywhere we look families are celebrating togetherness and happy moments.  Our hearts rejoice for each home that has a full table and an unbroken circle.  But our own loss is magnified in comparison.

With Christmas less than two weeks away, I’m reblogging this post, with an addition or two.

If you know someone who has lost a child, here are some ways you can bless them this holiday season.

 

Most parents feel a little stressed during the holidays.

For bereaved parents, the rush toward the “Season of Joy” is doubly frightening.

Constant reminders that this is the “most wonderful time of the year” make our broken hearts just that much more out of place. Who cares what you get for Christmas when the one thing your heart desires–your child, alive and whole–is unavailable…

It is so hard to find a way to trudge through the tinsel when what you really want to do is climb into bed and wake up when it’s all over.

Here are some practical ways family and friends can help grieving parents during the holidays:

  1. Don’t resist or criticize arrangements a bereaved parent makes to help him or her get through this season.If they are brave enough to broach the subject, receive their suggestions with grace and encourage them with love.  Do your best to accommodate the request.
  2. If the bereaved parent doesn’t approach you–consider thoughtfully, gracefully approaching him or her about what might make the holidays more bearable.But don’t expect a well-laid plan-I didn’t get a “how-to” book when I buried my child…this is new to me and very, very painful.  I am doing the best I can to keep my head above the waves and I cannot be expected to captain the boat through these turbulant waters.
  3. Don’t be surprised if a bereaved parent doesn’t want to exchange gifts (or at least, not receive gifts). No one can rewind time or restore my family circle to wholeness and I just can’t think of anything else that I want or need.
  4. Don’t assume that the bereaved parent should be relieved of all meal duties around the holiday.For some of us, doing the routine things like baking and cooking are healing.  For others, there just isn’t energy for anything other than the most fundamental daily tasks. ASK if they want to contribute.
  5. Don’t corner surviving children for a private update on their parent’s state of mind.My children are grieving too.  When you expect them to give an update on me you diminish their pain and put them in a difficult position.  If you want to know, ask me.
  6. If there are young children in the family, it might be helpful to offer to take them to some of the parties/gatherings/church services that their parent may not be up to attending. Ask, but don’t be upset if they say “no”–it might still be too traumatic for either the child or the parent to be separated from one another.
  7. Ask them to share about the one they miss.  One of my greatest fears as a grieving parent is that my child will be forgotten.  But we might not speak up because we don’t want to make others feel uncomfortable.

I know that life goes on, the calendar pages keep turning and I can’t stop time in its tracks.  I greet each day with as much faith and courage as I can muster. This season requires a little more-and I will need help to make it through.

Chasing the Darkness

I live in a rural county.  You can travel for miles without seeing a street light or a house light or even the lights of an oncoming car. But the deep blue-black of a winter night can be pierced by the tiniest pinprick of light–even a pocket flashlight can chase away the darkness.

There are so many people struggling to find hope and light in this world.

Especially at this time of year, when it seems that everyone else is having a “holly jolly Christmas” those who can’t find even a spark of joy in their hearts feel abandoned and alone.

Walking this path of grief has made me so much more sensitive to people in pain.

My repeated prayer has been, “God, fill my broken heart with Your mercy, Your love, and Your grace.”  I want to shine light for those walking in darkness.

Even if it’s faint, and small and not very bright.

There are hurting people all around us and it is so easy to hurry past because their pain makes us uncomfortable.

Stop.

Look at them.

Ask the hard questions and LISTEN to the answers.

Hope is often only a tiny glimmer at first and each of us has the ability to shine that much love and light into someone else’s life.

“Here’s another way to put it: You’re here to be light, bringing out the God-colors in the world. God is not a secret to be kept. We’re going public with this, as public as a city on a hill. If I make you light-bearers, you don’t think I’m going to hide you under a bucket, do you? I’m putting you on a light stand. Now that I’ve put you there on a hilltop, on a light stand—shine! Keep open house; be generous with your lives. By opening up to others, you’ll prompt people to open up with God, this generous Father in heaven.”

Matthew 5:14-16 MSG