This list is adapted from a friend’s Facebook post (with permission) and a list published by Children’s Hospital of Colorado.
BEREAVED PARENT’S WISH LIST:
1. I wish my child hadn’t died. I wish I had my child back.
2. I wish you wouldn’t be afraid to speak my child’s name. My child lived and was very important to me. I need to hear that my child was important to you also.
Read the rest here: Bereaved Parent’s Wish List
“At least you had him for 23 years.”
Yes, but I thought I’d have him for my whole life!
“At least you still have three other children.”
Yes, but which one of yours would you choose to do without?
“At least you know he’s in Heaven.”
Of course that brings me comfort and hope, but it doesn’t take away my pain.
A wise friend once said that any comment to a griever that begins with “at least” needs to remain unsaid.
It’s especially true for those of us grieving our child.
Because there is no “at least” in child loss.
NONE.
Oh, how I need to learn to practice the pause!
I’m getting better, but still react when I should reflect.
I need to do this EVERY time.
Lord, help my stubborn heart slow down and give me grace to yield and allow You to melt it, mold it and make it more like Your own! ~ ❤
I wrote this post December, 2015. It hadn’t been long since I joined an online community of bereaved parents and began to see that I wasn’t the only one who had friends and family that misunderstood child loss.
I was spending a lot of time in my life trying to help others comprehend, just a little, what it felt like to bury a child.
Trying to give them a tiny taste of how this pain is so, so different than any other I had experienced. Begging them to toss the popular ideas bandied around that grief followed “stages” and was “predictable”.
I re-share every so often because it seems to help, a little. I’m re-sharing today in honor of Bereaved Parents Month. ❤
People say, “I can’t imagine.“
But then they do.
They think that missing a dead child is like missing your kid at college or on the mission field but harder and longer.
That’s not it at all.
What Grieving Parents Want Others to Know
There’s a saying in the South, “You’re making a mountain out of a mole hill”.
It’s supposed knock sense into someone who is overreacting to a small and easily resolved problem. Most of the time it works-stepping back and gaining perspective is a good thing.
But I find that this side of Dominic’s leaving, many, many things that were mole hills before are MOUNTAINS now. Because my faith in my own ability to handle things has become so very small, nearly any challenge feels like a never-ending ascent up the mountain.
I used to be the person who crossed “t’s” and dotted “i’s”.
Shoot-my whole wedding was organized on 3×5 index cards kept in a tiny filing cabinet (long before online wedding sites!). I still have that little metal box and can recite who received an invitation, who responded, who attended, what gift they gave us and when I wrote the “thank you” note.
Not anymore.
If I don’t put my truck keys in exactly the same spot, I will never find them. And panic sets in about 60 seconds after I realize I don’t know where they are.
Everyday hiccups are absolutely exhausting and larger issues are downright debilitating.
It reminds me of a move my family made from Atlanta, Georgia to Denver, Colorado when I was twelve.
Denver is known as the “Mile High City” because on the first step of the capital building it is 5,280 feet above sea level. My sea-level body had to work hard to live that much closer to the sun.
The first year was a real challenge because the red blood cells that had been sufficient to carry oxygen to my brain, vital organs and tissues at near sea-level, were woefully insufficient to carry enough oxygen to my extremities a mile closer to the sun. Eventually my body caught up to the new reality and made more corpuscles.
I’m afraid my mind, heart and spirit have yet to catch up to THIS new reality of life after child loss.
I am quickly struck down and discouraged when what SHOULD be a mole hill rapidly turns into a MOUNTAIN.
Regardless of what it looks like or feels like to anyone else, it IS a mountain to ME.
And that takes so much energy to scale. It requires so much discipline to face. It wears me out and uses up my resources so that I’m left depleted, panting and oh, so tired from the effort.
I wish I could help those outside the child loss community understand just how much it takes for me and everyone like me to do what has to be done.
We aren’t being lazy or overly emotional or “making too much of nothing”.
We live in a different world than the rest of you.
Our air has less oxygen.
Our bodies have to work harder to do what comes easily to the rest of you.
I promise we are trying. But willpower can’t make up for the resources we just don’t have.
I shared this post for the first time a year ago.
Before I was part of the community of loss parents, I had no idea how quickly we are expected to “move past”, “get over” or “deal” with the death of a child.
I was horrified to find out that even though most parents would say something like, “I just don’t know how I would survive if my child died” they were the very ones who thought I should sail past this life-shattering event after what they deemed an “appropriate” amount of grief and/or time.
So I’m sharing again in honor of Bereaved Parents Month. If these words speak to you or for you, please share them. We need to help others understand our lives this side of child loss. ❤ ~Melanie
It was just over a year after Dominic’s accident and a friend forwarded an article about odd behaviors of those who were “stuck’ in grief. Along with the forward was a little tag, “Reminds me of you.”
It hurt my feelings.
And it was inappropriate.
Read the rest here: I am NOT Crazy!
Before Dominic ran ahead to heaven I knew only a handful of bereaved parents, all of whom I met after their bereavement.
I had never walked with anyone through this Valley.
Now I am friends with dozens of them and there are hundreds more I “know” online through private groups and blogs.
Until this was MY life, I would have dismissed “Bereaved Parents Month” as another random and narrowly applicable declaration by some group trying to muster support for their own agenda.
I’m ashamed to say that, but it’s true.
Like most folks, I assumed my life would follow the typical trajectory of marriage, children, their marriages and grandchildren in an unbroken chain of generations-the younger burying the older.
That’s how it is supposed to be.
But that isn’t how it has turned out for me and so, so many others.
Now, “Bereaved Parents Month” is near and dear to my heart. I understand that we need to raise awareness of the ongoing challenges parents face in the wake of child loss.
I see clearly that those outside the child loss community really have no clue.
How could they?
So my challenge to readers for the remainder of this month is twofold:
Compassionate response is only possible when we begin to understand what another heart is facing.
This month is an opportunity to do that.
Let’s make the most of it.
The best way to help a struggling heart is to simply be available.
Anyone can choose to be a safe space for others to share their hearts.
Anyone can make room for honest conversation, welcoming another soul to unburden itself of whatever heaviness is weighing it down.
All it takes is a listening ear and time.
“Crying does not indicate that you are weak. Since birth it has always been a sign that you are alive.”
~ Charlotte Bronte
“There is a sacredness in tears, they are not the mark of weakness but of power. They are messengers of overwhelming grief and unspeakable love. “
~Washington Irving
“I will not say, do not weep, for not all tears are an evil.”
~ J.R.R. Tolkien
It didn’t take long after Dominic’s leaving for life to ramp up and obligations to pour in. We had two graduations and a wedding within two months of his funeral.
Then there were thank-you notes to write, dishes to return and every day chores necessary to manage a home and family.
No escaping what must be done.
It took me a little while to realize that if I was going to survive this lifelong journey I had to make some changes in how and when I responded to requests to do something, be somewhere or participate in outside events. Because no matter how worthy the request, there was only so much of me to go around and I was forced to spend nearly all my energy and time and effort on figuring out how this great wound was impacting me and my family.
I cannot overemphasize how much strength and energy is needed to do the work grief requires.
At first, turning down a request or asking someone to reschedule was relatively easy-the loss was fresh in their minds and they were gracious and understanding. As the weeks and months and now YEARS have passed, it is harder. Not always because they don’t understand but because I sometimes hold myself to an untenable standard that says I should be better by now. I should be able to do all that I could once do. I shouldn’t be so sensitive to the date on the calendar or the place we might meet for lunch or the rainy weather that brings my mood down.
But I’m not able to ignore all those things and sometimes I just can’t do what someone else would like me to be able to do.
So I keep repeating the mantra, “grace and space” to myself.
I need grace-from my own heart FOR my own heart– I must cut myself the slack I would be happy to extend to others.
I need grace from friends and family. I cannot help you understand exactly what it’s like to be me. You can never know all the ways I ache for the life I had before Dominic ran ahead to heaven. You could never imagine all the daily pinpricks my soul must suffer as I walk in this world and am reminded of what I’ve lost.
So you will have to take it on faith when I say, “I just can’t do that”.
I need space.
I need space between me and the noise of the world and the shouting urgency of “to do” lists and project deadlines. So much of the work I must do is silent, solitary work. It takes hours and hours of thinking, talking to God, reading Scripture, journaling and just being alone to sort this all out.
I’m not rejecting YOU-I’m trying to preserve ME.
It isn’t selfishness, it’s love for my family. I refuse to add to their burden by running myself into the ground. I won’t choose to make life harder for them by creating an unecessary crisis.
I don’t know when I might (or IF I might) return to the busy bee I once was. Right now I can’t even imagine it.
I think I will need grace and space for a very, very long time.
thelifeididntchoose 