When days become months and months become years it’s hard to explain to others how grief is both always present but not always in focus.
I’ve struggled to help those outside the loss community understand that the absolute weight of the burden is precisely the same as when it fell on me without warning that dark morning.
Dominic’s absence, if anything, has seeped into more places, changed more relationships and influences more choices than it did eleven years ago when I was only just beginning to comprehend what a world without him would look like.
But I, and my family, have continued to live.
We’ve added family members through marriage and birth. We’ve gone places, made memories and made career moves. We’ve gotten older. My husband retired. Children moved away.
All these things and more mean that life is simply bigger than it was when Dom left us.
I really like this graphic that puts this in perspective.
It’s a slow, gradual process.And for some hearts who are forced to endure multiple losses in a short time the circle may never get very large because the grief is so great.
I remember when I realized that sorrow was not ALL I felt nor Dominic’s absenceALLI saw.It was a bit frightening to be honest.
Did that mean my love for him was waning or that his importance in our family was forgotten? Was I a bad mother because I no longer cried every day for the child not here? Had my heart grown cold?
But then I realized none of those things were true. What allowed me to feel joy again, to participate fully in family outings or gatherings, to plan holidays and birthdays once more was instead that my heart had found a way to hold both sorrow and gladness at the same time.
There are still days when grief looms large and my world seems too small to contain it. But those don’t come as often as they once did.
Life will march on, regardless of how hard we might wishit wouldn’t.
And, in large measure, life after loss is what we choose to make of it.
Sometimes I’m envious of folks hobbling along in those plastic boots designed to support an injured leg or ankle and aid healing.
Not because of the injury–I’m thankful I’ve never broken a bone-but because it’s an outward warning to anyone who might otherwise be impatient or insensitive that they just can’t go any faster.
I think there ought to be a t-shirt, pin or banner that gives the same kind of warning for those of us walking around with broken hearts and broken lives.
But there isn’t.
Except for the first shell-shocked days immediately following Dominic’s death, I look pretty much the same as I always have.
Most of us do.
If you lined up a hundred parents and scattered ten in the group who had suffered child loss, very few people would be able to single them out.
The giant heart wound we bear is barely noticeable to the uninitiated.
Yet even years later, we need extra support, extra care, extra grace to help us continue to heal.
There’s no plastic boot to fit around a broken heart. But there are things friends and family can do to create safe spaces that protect it.
Remember my heart is tender and easily bruised.
Speak about my child in Heaven. When I hear his name it is music to my ears.
Allow me to graciously bow out of activities or gatherings that are noisy, busy or filled with people I don’t know.
Don’t change the subject when I become emotional because you are uncomfortable-acknowledge my pain as a perfectly acceptable response to an unfathomable loss or just hug me.
Help me carry the light and life of my missing child by sharing memories, photographs or mementos. It’s a great gift to know that my child is spoken about, remembered and loved by others.
Recognize that while I am stronger, the absolute weight of my burden isn’t lighter. On some days it’s heavier than others so don’t be surprised by tears that seem out of place or out of time.
Remember important dates like my child’s birthday or memorial service day or even when he or she would have graduated high school or college if denied that opportunity. My heart mark all those silent grief anniversaries even when no one else recognizes them. It can be awfully lonely. Compassionate companionship expressed in a note, text or call helps so very much.
Please don’t give up on me! There may be seasons when i isolate in an effort to protect my heart. I know it’s hard to continue to reach out to someone who won’t reach back, but sometimes I just don’t have the strength to do it even when the distance is short. Try again in a little while.
If you know someone whose child has run ahead to Heaven, don’t ignore the wound.
Reach out.
Don’t insist that they walk as fast or as unencumbered as you might.
My hardest grief season begins in November and runs to the end of May. Thanksgiving through Dominic’s birthday on (or near) Memorial Day are days full of triggers, memories and stark reminders that one of us is missing.
If I could fall asleep November first and wake up in June I’d do it.
But I can’t so I have to employ all the tricks I’ve learned in the over twelve years since Dominic ran ahead to heaven to survive those particularly challenging months.
Here are ten ways I survive hard grief days:
1. I make lists of things to do. I’ve found that if I don’t make a plan for each day it’s far too easy to just lie around and feel sorry for myself. I use index cards but whatever works for you is fine. I list household chores, phone calls to make or notes to write, exercise, errands or whatever. And then I consider them non-negotiable. These are my marching orders and after my morning coffee I start down the list.
2. I do something creative. I crochet or arrange flowers or sew a little. Taking just five or ten minutes to make something beautiful changes my perspective. I have a can opener that takes the lids off without sharp edges and I make magnets for friends and family members or just to have on hand for a little gift.
3. I take a walk. I am thankful I can go outside on my own property and enjoy fresh air and country sunshine. I know not everyone has that option. But even a walk inside your office building or up and down a couple flights of stairs gets the blood pumping and releases endorphins. If I can’t walk, then I at least change my physical position-from sitting to standing, from standing to moving. Body position impacts my emotions.
4. I find something to make me smile. There is scientific evidence to back our common sense experience that smiling lightens our mood and helps our hearts. I read jokes or check out some of my Facebook friends that tend to post funny memes or stories. Sometimes I just “practice” a smile and even that can send feel-good hormones surging through my system.
“Don’t try to win over the haters, you are not a jackass whisperer.” ~ Brene Brown
5. I call or text a friend. Sometimes I just need to know that someone else is aware of my hard day. No one can undo my grief but when I feel there is a witness, it lightens the load somehow.
6. I stay off Facebook and other social media platforms. I love that I’m able to keep in touch with friends and family via social media. But it can be full of drama and negativity as well. So if I’m having a tough day, I remove the potential for it to be made harder due to random comments, posts or photographs.
7. I pet my cats. I have always been an animal lover. But I truly do not know how I could have survived these past four years without the companionship of my cats and other furry friends. Study after study confirms that being in the presence of pets lowers blood pressure and calms nerves.
8. I go with my feelings. There is no rule book that says I have to be tough and hide my tears. If I’m having a hard grief day it is perfectly acceptable to let the sorrow wash over me and let the tears fall. Sometimes fighting the feelings only prolongs my pain. Often a good cry is cleansing and I am much better afterwards.
9. I journal. There are things I need to “say” that are better kept between me, God and my notebook. I have kept a journal for nearly three decades. Many times just writing out my feelings, my fears, my thoughts and my frustrations is enough to take the sting out. There’s something about not keeping it all bottled up inside-even if no other soul reads it-that acts as a catharsis.
10. I copy encouraging quotes or Scripture and hang them prominent places throughout the house. I have notes tacked to my bed post, on my bathroom mirror, taped to the cabinet next to my stove, stuck on the fridge, slid into my wallet in my purse-absolutely everywhere. Because when my heart is hanging on by a thread, the smallest bit of encouragement is often enough to help me hold onto hope.
None of these things undo my grief in the most basic sense.
Dominic is gone, gone, gone and I will not see him or hear his voice until we are reunited in the Presence of our Savior.
But they DO help.
One of the most devastating aspects of child loss is the overwhelming sense that NOTHINGmakes sense anymore and that I have absolutelyNOcontrol.
Choosing helpful habits and actions gives me a way to regain dominion over a tiny corner of my world.
And that little bit of action strengthens my spirit and helps my heart hold on.
Another bereaved mom wrote that she was better able to cope now than she had been a year ago.
And thanks to Facebook memories she had proof.
Several comments down a second mom wrote something that got me thinking-when, exactly, did Dominic’s loss move from the forefront to the background?
I’m not sure I can pinpoint a day or moment when I realized that sorrow was no longer ALL I feel and Dominic’s absence no longer ALL I see.
I remember when more experienced loss moms posted and talked about grief being gentler and quieter I thought that they were out of their minds.
How in the world would this breath-robbing, heart-stopping, crippling pain ever be anything close to “gentle”?
How could the pulsating, blasting, all-consuming noise of loss become softer?
In the first days, months and even years, everything about loss was so loud it was all I could hear.
Rock concert, standing-next-to-the-giant-speakers-loud.
So loud it shook my body and made me want to cover my ears. There was no way to block the sound, no silent corner where I could retreat and hide. Just relentless pounding noise and pain.
But little by little, in imperceptible increments the volume decreased.
Now, missing Dominic is the background music to everything. A quiet tune I hum in my head that keeps me company all day and invades my dreams at night.
If I take a moment and pay attention or when other things quiet down, it moves again to the forefront.
My head and heart are never free of the music Dominic brings to my life. He is the soundtrack to my days, the lullaby as I fall asleep.
No longer an ear-piercing scream demanding attention, grief is now mostly a quiet song in a minor key.
I want him to watch me grow old, to watch him get married and have children and to hear his voice mingled with his siblings at my table.
I’ve tried dozens of times to write a post that describes the abyss that divides the life I thought I would live and what it’s turned out to be.
I can’t do it.
A twenty-three year old isn’t planning his legacy. A mom of a twenty-three year old isn’t carefully preserving daily moments in the event he suddenly disappears.
Whatever legacy Dominic has left behind is a function of his huge personality rather than careful planning. And all I have left of his life are bits and pieces I’m trying to string together so he’s not forgotten.
I was not prepared to wake up one morning and learn that his earthly story ended.
I didn’t get to say good-bye, didn’t get to look him in the eye and tell him how very much I love him, didn’t even get to hold his hand as he left this life and entered Heaven.
I know he is just fine. He’s full of joy and perfectly content.
I wrote this post December, 2015. It hadn’t been long since I joined an online community of bereaved parents and began to see that I wasn’t the only one who had friends and family that misunderstood child loss.
I was spending a lot of time in my life trying to help others comprehend, just a little, what it felt like to bury a child.
Trying to give them a tiny taste of how this pain is so, so different than any other I had experienced. Begging them to toss the popular ideas bandied around that grief followed “stages” and was “predictable”.
I re-share every so often because it seems to help, a little.
I’m re-sharing today in honor of Bereaved Parents Month.
People say, “I can’t imagine.“
But then they do.
They think that missing a dead child is like missing your kid at college or on the mission field but harder and longer.
That’s not it at all.
It isn’t nostalgia for a time when things were different or better or you talked more: it’s a gut-wrenching, breath-robbing, knee-buckling, aching groan that lives inside you begging to be released.
There is no smooth transition up the ladder of grief recovery so that you emerge at the top, better for the experience and able to put it behind you.
We’ve all heard the much touted theory that grief proceeds in the following stages:
denial
anger
bargaining
depression
acceptance
And people (who haven’t experienced grief) tend to think it’s a straight line from one stage to another, gradually going from bottom to top and then on with life.
But it just isn’t true.
Reality is, these “stages” coexist and fluctuate back and forth from day to day and even hour to hour.
Grief remakes you from the inside out.
Losing a child has made me rethink everything I believe and everything I am. It has changed and is changing my relationship with myself and with others in ways I couldn’t imagine and often don’t anticipate.
And it is hard, hard work.
Life around us doesn’t stop. Grieving parents return to work, continue to nurture their surviving children, keep getting up in the morning and taking care of daily details.
We are doing all the things others do, but we are doing them with an added weight of sorrow and pain that makes each step feel like wading through quicksand.
We want you to know we are doing the best we can.
Life without my child is like having a leg amputated–I am forced to learn to manage without it, but everything will always be harder and different.
And it will be this way for the rest of my life.
The one thing a grieving parent DOESN’T want you to know is how it feels to bury your child.
I don’t want anyone else to know what it means to leave part of your heart and a chunk of your life beneath the ground.
“But please: Don’t say it’s not really so bad. Because it is. Death is awful, demonic. If you think your task as a comforter is to tell me that really, all things considered, it’s not so bad, you do not sit with me in my grief but place yourself off in the distance away from me. Over there, you are of no help. What I need to hear from you is that you recognize how painful it is. I need to hear from you that you are with me in my desperation. To comfort me, you have to come close. Come sit beside me on my mourning bench.”
It happens in all kinds of ways. One friend just slowly backs off from liking posts on Facebook, waves at a distance from across the sanctuary, stops texting to check up on me.
Another observes complete radio silence as soon as she walks away from the graveside.
Still another hangs in for a few weeks-calls, texts, even invites me to lunch until I can see in her eyes that my lack of “progress” is making her uneasy. Then she, too, falls off the grid.
Why do people do that?
Why is it, when we need them most, many friends-and I mean really, truly FRIENDS–just can’t hang in and hold on?
I admit in the early days I didn’t care WHY they did it.
It broke my heart and enraged me all at the same time. I felt abandoned, judged, forgotten, pressured to conform to some unwritten standard of how I was “supposed” to do grief and utterly, completely forsaken.
It took me months to begin to even consider their perspective and years to come to a place where I could forgive them.
Here’s what I’ve figured out this side of devastating, overwhelming, heart-shattering pain about why some friends run away:
I represent their greatest fear. I am a billboard for loss. My life screams, “We are NOT in control!” And that is scary. Most folks run away from scary if they can.
I remind them that faith is a living thing, tender and vulnerable to trials and testing. We love to tout Sunday School answers that follow like the tag lines on Aesop’s fables when asked about anything to do with Jesus or how God works in the world. But it’s just not that simple. The Bible is full (FULL!) of untidy stories where even the giants of faith got it wrong for a season. I think people are afraid that if they follow me down the rabbit hole of questions they might never come back out. Better to stand outside and hope I emerge safe and sound without risking themselves.
My situation is messy and they don’t want to get involved. I will need ongoing, intense investments of emotional energy and time. Who knows where it might lead? Who knows how many hours might have to be given to come alongside and support someone whose journey looks more like slogging through a swamp than a walk in the park? These folks are just not going to risk entanglement.
Some friends and family are genuinely afraid of doing harm. They feel my pain so deeply that they are frozen, unable to do or say anything because they fear they will make things worse. These are the hearts most easy to forgive and the ones most likely to jump back in when I assure them they cannot make it worse but their support can make it better.
Some people were going to disappear anyway. We don’t like to admit it but many friendships are only for a season-we go to the same church, live in the same neighborhood, our kids go to the same school-and as soon as circumstances change these people fade away. Well, circumstances certainly changed! They leave because our differences outweigh our similarities and it requires too much effort to maintain the friendship.
Understanding why people run away has helped my heart.
It doesn’t undo the pain inflicted by abandonment of those I felt sure would stay close by my side, but it puts it in perspective.
Truth is, I’m not sure how many people I would have stalwartly supported for the long haul either before Dominic ran ahead to heaven.
None of us possess infinite emotional, mental, physical and relational resources. It’s only natural that we portion them out according to our own priorities-even when that means abandoning friends who really need us.
Rehearsing offense only ties me in knots.
It changes nothing.
I have limits as well.
Forgiving those that chose to walk away frees me to use my resources in more fruitful ways that help me heal.
A tender broken heart can make all kinds of excuses for less-than-gracious behavior or words.
I know that often we grievers bear the brunt of others’ well-meaning but misplaced and sometimes downright painful advice, remarks, looks and gossip and that makes it easy to rationalize returning like for like.
But I’m not responsible for THEM, I’m responsible for ME.
❤ Melanie
Oh, how I need to learn to practice the pause!
I’m getting better, but still react when I should reflect.
I need to do thisEVERYtime.
Lord,
Help my stubborn heart slow down and give me grace to yield and allow You to melt it, mold it and make it more like Your own!
It would be lovely if life were neatly divided into seasons or sections.
But like so many things, there are no clean lines between now and what used to be.
Who I am today is shaped by who I was the day before.
I think that’s one of the things I enjoy most about fiction-authors are free to wander back and forth among character’s thoughts, past experiences and present reality.
It makes for a more complete story.
Each year about this time (in the waning days of my Season of Sorrow) I usually stop and take stock of how far I’ve come and how grief continues to shape my life.
There are many, many ways I’ve healed and am healing:
I no longer cry every day.
I feel true joy!
The pain of losing Dominic doesn’t dominate me although it plays like Background Music-not always demanding my attention.
I celebrate my family and my family’s milestones with genuine excitement and once again enjoy planning get togethers, birthdays and (most!) holidays.
I function at a higher level and am able to rejoin some groups and participate in some activities I just couldn’t manage in the early years.
I’ve made peace with the questions that won’t be answered this side of eternity.
I’ve incorporated traumatic loss into my understanding of Who God is and how He may work in world while accepting I don’t always like it.
I attend baby showers, weddings and even funerals without bringing all my lost dreams or personal sadness to the event.
I laugh-a lot. It feels good again to belly laugh at family memories or new jokes.
I can extend hospitality once more. That was a core component of my pre-loss life and personality and I missed it.
But there are many ways in which grief and loss continues to inform how I walk in the world:
I absolutely, positively cannot multitask! I have to break daily chores into single actions so I can focus and accomplish one thing at a time. I used to be able to cook, talk on the phone, bend over and motion to a child needing help with school all at once. Not anymore! Just recently I lost an important piece of mail most likely because I was looking at it while chatting to a family member. I put it down and cannot for the life of me remember where it is.
I become anxious when around too many people-especially if they are people I don’t know or the venue is one with which I’m unfamiliar. This even happens in the car driving in new places. I was never an anxious person before. In fact, I was typically the voice of calm in a group of friends panicking over some small detail that went awry. I try not to share my anxiety, but it’s there and it takes a huge amount of energy to corral it and keep it from escaping into wild demonstrations like running from a room. (I do a lot of counting/visualizing/breathing and self-soothing.)
I don’t like noise. To be fair, I never really did but now it’s exacerbated. Shopping can be a real trial when stores insist on blasting music in hopes it makes patrons feel like spending more money. I, for one, just want to get what’s on my list and get the heck out of Dodge! I love children but I can’t tolerate the incessant chatter little ones bring to a Sunday School classroom or a Vacation Bible School craft table. I used to be the first one to volunteer for those posts but I just. can’t. do. it. anymore.
I crave predictability. I know, I know, of all people I should understand control is an illusion. I do. But the tiny details of life-like planning meals, choosing clothes, cleaning routines and evening quiet times- are things I want to be able to count on. Routine is my friend. It helps my mind (such as it is) operate on reliable pathways. I’ve never been a big fan of random, but now it’s something I try to avoid at all costs.
I need solitude. I’m still processing some things. I imagine I’ll be doing that the rest of my life as different experiences from NOW interact with my loss. I cannot do that in the presence of others. I need to think, reflect, write, read and walk it out. That means I have to devote time and space to being alone. If circumstances prevent me from quiet solitude for too long my blood pressure climbs, my patience disappears and little things grow large.
I don’t sweat the small stuff (usually-see above!). If time, effort or money can remedy it then it’s just. not. a. problem. I’ve learned the hard way that life and love are the most important things in life. Everything else might be nice but it’s not essential. I’m not minimizing the stress and strain of broken pipes, wrecked cars or lost jobs. It’s just that eventually those are situations that can be fixed. And lest you think I’ve not experienced any of those, I have. My first thought whenever anything happens I once perceived as “the worst thing that could happen” is, “It’s absolutely, positively NOT the worst thing that can happen”.
I need to observe a careful rhythm of commitment and freedom on a daily, weekly and monthly basis. I always kept my big calendars each year and tossed them into a box of “if I ever need to know these things”. When I look back on how busy we were as a young family I’m astounded at the pace we kept, the places we went, the hours I was frantically working to fulfill all our obligations along with the things we just wanted to do. I’m sure some of this is a function of age-I’m no spring chicken any more-but I know in my bones it’s also a function of the ongoing toll grief takes on my body, mind and soul. I can only manage a few days of busyness in a row until I need a complete shut-down for at least twenty-four hours or more. I refuse to schedule any but the most difficult to get appointments in a week where I’ve already inked in other commitments.
Sleep, regular exercise and good food are necessary for me to face life with a good attitude. This is probably true of most folks but just a day or two of fast food, no outdoor walks or interrupted nights and I’m toast. I’m not a whole foods, organic everything kind of gal but I try to eat a variety of fresh and less-processed meals. When I’m home I have an almost two mile path through woods and up gentle inclines that builds muscle, exercises my lungs and body and gives me ample time to drink in the beauty of birds, wildflowers and leafy trees. If you’ve ever been to my home you know that the rest of the crowd can stay up as long as they want to but I’m headed upstairs between eight and nine. Of course I get up before the sun, so my total hours are roughly the same but there’s something about that pre-midnight sleep that restores me like no other.
I could probably list dozens more, less obvious, ways grief still shapes the me of today. But it no longer binds me like it did in the early days. I’m better able to work around the difficult bits and still make a meaningful life with the people I love.
I think I counted months for nearly three years after Dominic ran ahead to Heaven.
Just like when he was an infant and toddler.
When he was living and growing I celebrated each milestone. But after he left, I cringed when the twelfth rolled around again.
Every time I folded the calendar back to reveal another four weeks had passed, I felt my heart flip flop in response to time’s unstoppable progression.
The months roll by, the calendar pages turn, soon school will be back in session and you are still not here.
Sometimes I think I have figured out how to do these days that remain between now and when we will be together again.
And sometimes I realize that I haven’t.
Today is one of those days.
I miss you.
I love you.
I can’t round a corner without thinking of you and wishing this was not my life.
But it is.
So I’ll keep on keeping on. Just like you would want me to.
thelifeididntchoose 