Bereaved Parents Month Post: The Missing Never Ends

I’ve learned that there are new things to miss even five years down this road of child loss.  

I’ve learned that any odd moment, random smell, taste,touch, or occasion can pierce that place in my heart that screams, “Dominic should be here!”.  

I’m also learning additional ways his absence continues to shape the family we have NOW.   Dom’s absence continues to impact decisions, expectations, hopes and dreams TODAY.

I miss family photos when I don’t count heads and note unfilled spaces.  It’s not just Dom I’m yearning for.  I long for us to all be together-no one missing.  It’s a little easier (sometimes) when one or more of us aren’t able to make a particular trip or event because then it’s not ONLY Dominic gone from the frame.

But truth be told, I can’t stop my heart from looking and hoping that this time, it’ll be different. 

This time, we’ll be whole. 

extended-desimone_hart-family-thanksgiving-2010

I miss the ease with which I used to toss together family meals, social occasions and holiday gatherings.  I’ve always LOVED making things special and never minded cooking buckets of food.  I used to plan weeks in advance-gathering recipes, ideas, decorative items and sometimes little gifts or favors for those who attended.  I checked with folks for dietary preferences or allergies.  It was a joy even when it exhausted me because I loved shaping spaces and experiences to strengthen family ties.

I miss waking up and facing a new day without reservation or trepidation.  I’m a sunrise kind of gal.  I used to turn my face toward the big picture window in our living room waiting for first light to dawn and the day to get going.  Fresh start.  New opportunities.

It took awhile but some days I can do that.

Still there are many days I watch the trees come into focus knowing daylight can’t always lift the darkness in my heart.  

winter sunrise pines and zeke filter

I miss turning corners in my house or walking on my land encountering only good memories, happy reverie and hope that tomorrow would bring more of the same.  When we moved here over twenty years ago, it felt like home.  Plenty of space for children to run, exciting adventures discovering woods, water and animal life abounded.  There are so, so many memories everywhere I turn.  Memories used to spark hope for more.  Now they are silent witness to the line that demarcates our lives into BEFORE and AFTER.

I miss the certain assurance when someone doesn’t pick up the phone or answer a text that “all is well”.  We have always been a family on the move.  It sounds ridiculous today, but a driver’s license was the ticket to a personal cell phone when my kids were growing up.  As each one gained the privilege of driving away alone, we made sure they had a way to call and let us know they arrived safely.  If I called them and there was no answer, it was a good hour or two before my heart went into overdrive and my mind imagined all the horrible possibilities.

Now I make that trip in seconds or minutes despite any logic that can easily explain it away.  

cell phone in hand huffpost

I miss having energy to spare.  I know part of my energy drain is simply age.  I’m not so cocky as to assume the years don’t play a role in slowing me down.  But I know that’s only half (or less!) of it.  The constant effort to edit, direct, control and contain my words, thoughts and emotions sucks the life right out of me.  What used to easily be a one hour job takes two.  And projects I could whip together in a day require a week or more.  Discouragement makes me sad and tired.  So the cycle continues.

sleep doesnt help if your soul is tired

I miss sound sleep and good dreams.  Right after Dominic ran ahead to Heaven I could barely sleep at all.  There was no escaping awful scenes playing across my closed eyelids.  Eventually I was able to lull my mind into a kind of calm and sleep a little.  Five years later I rarely sleep more than two hours at a stretch without waking.  While I usually roll over and doze off again, I never get the kind of restorative rest I really need.

Dreams are another matter altogether. 

They are often full of jumbled bits that leave me unsettled and full of dread.  

I miss making plans for next month or next year without the silent caveat that we just can’t be sure they will come to pass.  A large calendar hanging prominently in our kitchen was my go-to for keeping track of crazy family schedules and commitments for decades.  I took it down a day after Dominic died and didn’t hang another for over two years.  I couldn’t bear to turn page after page knowing Dominic’s name would never show up again except in reference to him being gone.  I have one now.  But while I still write things in different colored pen (easier to see and track) my mind knows every single plan is really just penciled in.

Until the day comes or the moment arrives, my heart holds it lightly.  

calendar

I miss saying innocent good-byes.  I was never the crying mom waving a handkerchief as my kids made their way down the long driveway to the larger world.  I always missed them, of course.  But the goal was to raise independent persons capable of doing things, going places and living their own lives.  So a good strong hug, a kiss on the cheek, “I love you” and they were off leaving a smiling mama behind.  It never occurred to me that THIS time could be the LAST time I touched or talked to them.

Now, every good-bye is sacred.  Every hug a prayer.  

I miss hearing Dominic’s name in casual conversation.  Oh, we still talk about him.  But it’s not the same.  Sometimes it’s awkward and leads to odd pauses.  Most times it’s more natural.  Always it’s with sad recognition that instead of memories we should be sharing fresh stories of adventure.

rememberers

I appreciate each new day I’m given. 

I take nothing for granted because I know how quickly and easily it can be snatched away.

But my heart can’t help but long for the way things used to be and yearn for the way things would be if Dominic were still here.  

fiona and brandon wedding memorial flowers
In memory of Dominic from an anonymous friend for Fiona’s wedding. Photo by Katie Jewell Photography

Crossroads: Celebrations After Child Loss

I want to be everything my living children need me to be.  

I try hard to celebrate them, be available, listen closely and love them well.  

I never, ever want them to feel they are competing with their missing brother for my affection or my attention.  

But I’d be lying if I said it was always easy.  

Sometimes the happy moment so closely resembles a shared memory that includes Dominic, my heart takes my head in directions I wish it wouldn’t go.  Sometimes it’s a long awaited once-in-a-lifetime occasion and Dom’s absence is a giant, gaping hole everywhere I look.

It’s really hard to be stuck at the crossroad of being happy for a child still here while mourning and missing the child that’s gone.

I’ve had to do that many, many times in the five years since Dominic ran ahead to Heaven and I’ve found a couple of things that help.  

I put something in my pocket or wear a piece of jewelry that is a token of my love for Dominic. 

IMG_1815

It helps me feel as if he’s represented even if no one else knows about it.  Then I lean in and take hold of the celebration as best as I can. When I feel overwhelmed, I touch my little token and/or escape to a quiet corner or bathroom for a minute or two and collect myself.

I also try to do something called “pre-grieving”. 

coffee and journal morning

I allow myself time early in the morning of an event to be alone and cry if I need to.  If the tears won’t come, I listen to music that helps my heart reach that place of release.  I journal my feelings.  I walk through the day and admit where it might be especially challenging.  I think through how I can deal with that and make a plan.

It makes a difference.  

So much has been stolen from my surviving children. 

I don’t want them robbed of their mama too.  

beach-and-family-better

Child Loss: Missing The Family I Thought I’d Have

I miss a lot of things since Dominic ran ahead to Heaven.  

I miss HIM-his deep voice, his perspective and his thump-thump-thumping down the stairs and the rhythm of who he is.

And I miss how his absence has reshaped the family I thought I’d have.  

Raising four children, investing my time, heart and energy into who they were turning out to be, I naturally projected into the years ahead.  All that love poured into them would create a legacy we’d all enjoy.  Marriages, careers, grandchildren and experience would blend together into a (if not perfectly harmonious) at least a shared future.

desimones uab family

I never imagined turning a calendar page without one of my children to turn it with me.  

Dominic’s death has touched each one of us.  His missing is as powerful a force as his presence.  We are absolutely NOT THE SAME as we would have been if he were still here nor as we were when he was still here.

When Dom first left us, I was primarily mourning HIM.  I still miss him like crazy.  

But a lot of my mourning during the past twelve months has been for the family I thought I would have.  I see each of my surviving children are processing Dominic’s absence in ways that influence their decisions.

In some ways it’s beautiful-I see twenty-somethings and thirty-somethings making choices with wisdom way beyond their years.  In some ways it’s brutal-they set up safeguards because they know by experience that leaving the house doesn’t always mean you return. 

They have back up plans for everything.

Which wasn’t something I even thought about when I was their age.  

My husband and I expected to drift into retirement years full of energy and vigor.  Much of that has been stolen from us by child loss too.  Oh, how we long to be the fun grandparents, the traveling duo, the footloose crazy pair but it’s much more effort than we anticipated.

Sometimes we can’t muster that energy at all.  

I know some changes were inevitable. 

Dominic’s death coincided with a natural progression toward an empty nest.  I’m not a helicopter mama and I’ve always said my goal was to raise children who could function well without me so I think that as much as possible, I prepared my heart for them to grow up and grow apart.

But in addition to normal changes, there’s an utterly unnatural and unwelcome transformation from nuclear family to brokenhearted family.

I am so, so thankful that we have chosen the hard path of running toward one another instead of running away.  

I’m grateful that we have grown from five left behind to a table for seven-a new spouse and a precious grandchild. 

I do not take a single second for granted because I know that seconds are not guaranteed.  

But I sure wish Dominic were here to share it with us.  

dominic at olive garden

Grief is a Family Affair

Child loss is also often sibling loss.  

In addition to their own heartache, bereaved parents carry the heartache of their surviving children.  

The family everyone once knew is now a family no one recognizes.  Hurting hearts huddle together-or run and hide-and it is so, so hard to find a way to talk about that pain. 

There is definitely a time and place for professional counseling.  Many, many families benefit from having a trained individual, outside the immediate grief circle, guide them in exploring feelings, developing coping strategies and learning to live life this side of loss.

But there is also something to be said for arranging casual open-ended activities with surviving siblings, parents and even grandparents where space and a more relaxed atmosphere often leads to honest sharing.

This graphic has lots of excellent suggestions for how to craft such a space.

Not all will be suitable for every family, but every family should be able to find a few that fit.

I’ll add these guidelines that may help your family make the best choice for YOU:

  • Don’t force it.  If you make an offer of an activity and it drops with a thud to the ground, let it go.  You might be able to do it another time.
  • Don’t make it (what my kids like to say!) a “mandatory option”.  There must be no guilt or coercion invading this space.  If one or more of your family members consistently refuse to join in, consider asking a close family friend to take that individual out alone and see what might be going on.
  • If you choose a movie or other story-themed activity, LOOK UP THE PLOT!  I can’t tell you how many times we were sideswiped by a death scene or some other heavy emotional plot twist.  There may be a time when your family is prepared to experience those things together (we can now) but it may not be yet.
  • Mix and match more structured activities with open-ended ones like walks outside, watching the sunset, sitting on the beach, hanging at the pool, playing a game (not too competitive-that will sometimes bring out hidden anger).
  • If you have a family with a broad range of ages you might have to do some things with the littles and some with the older kids.  You can always add one or two activities a month or quarter where everyone (or as many as are available) gets together.
  • If your children, spouse, parent or other close griever begins to talk-let them.  If tears flow-that’s progress!  If ugly feelings are expressed, listen.  Try not to be defensive.  Try to hear the hurt behind the words.  It’s OK to set ground rules like using “I” statements and not blaming.  But don’t shut them out or shut them down.  

These are just ideas.  

Google is your friend and your phone is probably already in your hand or pocket-use it.

Find things that fit YOUR family. 

The only way through is through.  

You have to feel and deal to heal. 

selfcare for families

Please Don’t Ask My Kids How I Am Doing

It may seem like the easiest way to get an inside scoop on how I’m REALLY doing-but don’t do it.

Please don’t ask my kids how I’m doing.

Respect the fact that they have their own grief burden.  Respect family privacy and understand you are putting them in an impossible position.

If you want to know-to REALLY know-how I’m doing, ask me.

Life for us is no different than life for you except every decision, every event, every single thing requires more effort and energy because we carry the additional burden of death and loss.

It’s easy to assume children and young people-even adults in their 20’s and 30’s-are somehow more resilient than they really might be. 

They are often in seasons of activity that serve as cover for deeper, more difficult feelings.  Many beautiful celebrations typically mark these years.  Graduations, weddings, births are wonderful!   But they are complicated for grieving siblings as well as grieving parents.

So be a friend to my kids.  Love them.  Celebrate them.  

And please, please, please treat them as fellow grievers and not simply bystanders to their parents’ grief.

If you want to know about me, just ask.  

Me. 

Not them.  

Child Loss: Setting Aside Time To Grieve Helps My Heart Hold On

One of the commitments I made out loud and in my heart the day Dominic left us was this:  I was not going to let his death tear my family apart.  

I was not going to let him become the sainted brother that stood apart and above his siblings.  

I was going to continue to give as much of my time, effort, love and presence to each of the three I had left as I had done when there were four on earth beside me.

I’ve been more or less successful in keeping this promise.

I have no doubt that if you asked my living children, they could give you examples when I’ve failed.  Some days are just too much.  Some events are too hard to attend.

Some moments I am overwhelmed

and undone

and there’s no way to hide it.  

But I’ve learned a few things that help me be present, attentive and joyful for the beautiful things that are happening around me.

One of those is to set aside time whenever possible to “pre-grieve” an upcoming celebration or gathering.

hand-coffee-roosevelt

I allow my heart to feel all the things it needs to feel.  I journal the questions and comments and (sometimes) anger that would otherwise overflow and ruin a moment.  I write to Dominic and tell him how much I miss him, how much I wish he were here and how very hard it is to mark another happy occasion without him.

I mentally rehearse walking in, greeting people, making small talk. 

I think ahead to any big moments that might tap emotions I need to hold in check.  I even plan an “escape route” should I need it. Just knowing it exists has always been enough so far. 

Sometimes I find a song that suits my mood.  

I cry.  

And then I choose a token I can wear or slip in my pocket to remind me that I’ve got this.

I can show up and smile (honestly) because I’ve already loosed the dam of grief and let the stored up torrent flow over the spillway.

I’ve learned the hard way that memories are precious.  I don’t want the ones I’m making now to always be tainted by sorrow and loss.  

Dominic is never far from my thoughts and always in my heart.  

I’m not abandoning nor forgetting him.

I honor him by honoring his siblings.  

Love lives.  

happy birthday balloons no words

Child Loss: A Letter to My Living Children

I never thought it possible to love you more than I already did.

But I do.

photo (20)

Your brother’s untimely departure has opened my heart in a whole new way to the glory that is your presence.  It has made me drink you in like water in the desert.

No more do I take even a moment for granted.  Never again will I be “too busy” to listen to you, to hug you, to greet you on the porch when you decide to make your way back home.

Read the rest here:  A Letter To My Living Children*

Should I Let My Young Children See Me Cry?

This was not my experience-all my children were adults when Dominic ran ahead to Heaven-but so many grieving parents want to know:  Should I let my younger children see me cry?

How much is too much for them to witness, process and hear?

Do I need to shield them from the awful truth of how much this hurts?  CAN I shield them?

It depends.

May I first say that there is NO way to shield even an infant from the overflowing emotions, stress and strain of child loss in his or her family.  If we stop and think about it, we know this.  And older children may look like they aren’t paying attention, but they are.

mother and child painting

So the question is not really, “Can I shield them” but is instead, “How do I help them understand what’s happening”?

Grief in this life is inevitable. 

Allowing our children to watch us grieve helps them understand how it’s done.  When we share openly, we give them tools and models for sharing too.

I think it’s important to be honest with even the youngest among us. 

When a parent speaks of the deep pain of loss, expresses love for the missing ones and looks longingly at photos and mementos, he or she is saying to the watching child: “Love lives.  Love is important.  Love lasts even when our bodies don’t.  I will always love you just like I love your brother (or sister).”

grief only exists where love lived first

Young children will create their own script if adults don’t help them write one.

Because their minds are not fully developed, they will often connect odd bits into an unhealthy whole.  Just as some children decide they are responsible for their parents’ divorce, some surviving siblings think that a random act of disobedience resulted in the death of a sister or brother.

And if a parent is modeling secrecy or a stiff upper lip, that child may never reveal her dark and weighty secret.

We can help our children by providing a safe space where they can express themselves freely without fear of correction or being silenced.  It might get ugly.  Our grief gets ugly.  It’s part of the process.

But children should never become the burden bearers for adults.

Crying in front of your child is OK.  Screaming, yelling, blaming and violence is not. 

No child should feel threatened or unsafe in his own home.  If you are out of control, THAT is the time to go to a room and close the door.  Or call a friend to come get the kids so you have a few hours alone.  Or send them outside to play.  It is NOT the time to unload on your surviving child(ren).

I wish that grief was not part of life.

But it is.  

How I deal with it, what I say about it, when and how I express it will impact my children for good or ill.  

I want to offer them tools they can use and build resilience for what they may face in the future.  

Letting them see me-especially the grieving me-is an important part of that process.  

ann voskamp love will always cost you grief

 

I Don’t Have to Choose Between Sorrow and Celebration

Our family is looking forward to Spring and also dreading it.  

This year we will welcome a new baby (my first grandchild) and also celebrate my daughter’s wedding to a wonderful man. 

Our family is growing again!

brandon and fiona engagement

But we will also mark the fifth year anniversary of Dominic leaving for Heaven and another birthday that he won’t be here to greet.

dom on mountaintop

I’m pretty sure tears will be shed on each of these days and they will be salty-sweet, sad and happy, sorrowful and celebratory-all at once.  

There are no more hard lines in my life that separate events into distinct categories where only a single set of emotions is appropriate.  Instead my heart’s a watercolor mosaic where one feeling washes into another, darker colors make the lighter ones brighter.

My daughter recently wrote her own blog post, Guest Books & Memory Tables: A Sibling’s Perspective on Love and Loss.

Here’s an excerpt:

“Even Hobby Lobby reminds me that if I’m remembering anyone at my wedding it should be the family legends of generations past, not current. Somewhere in my carefully- packed boxes of wedding decorations, sits frames and mementos for mine and my fiance’s grandparents and my forever-frozen-in-time 23 year old brother.

I highly recommend you read the whole thing.  She’s done a beautiful job sharing from a sibling’s perspective.

Her wedding day will be full of great joy and celebration and also some sorrow as we take pictures of the whole family minus one.

 

you should be here

I might be laughing one minute and crying the next.  

And that’s OK.  

No need to fake it.  

It’s ALL part of life. 

sorrow and celebration can coexist authentically

Repost: Grief and Family

One of the things I absolutely LOVED about having four kids was the way they pinged off one another.  There were evenings when the comments were flying so fast I could barely keep up.  Sly looks, secret texts, funny faces and friendly punches made up most of our times together.

That’s how families are-each person is just a little “more” when surrounded by folks that love and understand him or her.  

When Dominic left us, we didn’t only lose HIS companionship, we also lost the part of each of us that was reflected back from him.

Read the rest here:  Grief and Family