[Context]

This picture was taken for a story in UAB Magazine featuring my husband and oldest son who graduated together in December 2009. You can read the original article here: Like Father, Like Son

It is one of my very favorites. I was surrounded by my family, filled with pride and promise.

This is how I like to think of us-together and strong. 

Our circle is broken now-it is a continuing struggle to figure out how to navigate life in the wake of our loss.

And some of the greatest challenges present themselves in unexpected ways.

Redefining how to think about and present my family to the world led me to the solution presented in this post:

[Context]

 

 

Child Loss: The Question of Photographs

When I shared this post awhile back, it sparked quite a discussion among friends and an online community of bereaved parents to which I belong.

Pictures are a mixed blessing to those of us who have buried a child:

We love to see our dear one’s face beaming back at us but we also long to touch and hold the one represented by the two-dimensional image.  And when others share a photo on Facebook or Instagram, we are sometimes caught off-guard as our newsfeed scrolls by–There he is!  Our hearts stop for a moment.

I love to get pictures of my son through email or in notes and letters-many are ones I would otherwise never know about.  So if you have photos that a bereaved parent might like to see, think about sharing them.  And write a line or two about how our child is still part of your life.

We miss our children and welcome ways to connect with them through others.

“Pictures are everywhere today–much different than when I was a child and you had to go down to the local studio to get a decent family photo. Poloroids were fun and fast, but the number of shots you could take was limited to the film in the packet.

One of the challenges facing bereaved parents is what to do about photographs–both the ones that exist and the ones yet to be taken.”

Read the rest: Bereaved Parents and The Question of Photographs

Taking a Breather

The sun is shining in Alabama and I’m going to try to plant a garden again this year for the first time since losing Dominic.  I haven’t had the energy to invest in tending to growing things before this Spring. I pray it is good therapy and that seeing things sprout and bloom will encourage my heart.

So I’m going to share again a couple of posts that were popular. Some of you may have read them but there are a number of new followers that might have missed them.

I hope you are enjoying the warming weather too.  New posts coming soon!

One day a few weeks ago, I decided to simply make a list of the things grief is teaching me. I think I could add a few lines to this post, because I am learning something new every day…

To read more:

Things I’m Learning

Another Confession

Emboldened by my confession of fearing the dark, I’m here to make another one:

I really want to finish well-and I’m afraid I might not.

Foolishly perhaps, I had imagined the years on the other side of the Great Divide of fifty to be ones in which I could coast a bit.  As one sweet lady I knew used to say, “It’s great to be over the hill-that means it’s all downhill from here!”

And in some ways I am coasting.

I no longer struggle with the angst of being comfortable in my own skin. Since I’m not in the market for cosmetic surgery I have made peace with the fact this body is the only one I’ll have (until that wonderful day when I get my glorified body!).

I’ve decided that as long as I am kind about it, I am entitled to express my own opinion, even if I’m the only one who holds it.  I don’t have to receive affirmation for my convictions to be true.

Doing the regular chores of life come naturally and I can accomplish them without toddlers or teenagers undoing my work in one room while I’m making progress in another.

But on the spiritual front…well, that’s another matter entirely.

Losing a child has forced me to re-engage questions I thought I had settled long ago.  It has made me less certain of some ideas I once held tightly with both hands.

And it has made plain that these last years are going to be just as hard as the early ones in which I dug deep in Scripture to sort through what I had heard or been taught and compare it with what the Word actually says.

I am learning that God is not as easy to comprehend as our Sunday School tag lines make Him seem.  I am coming to understand what Job declared:

“I had heard of You [only] by the hearing of the ear, But now my [spiritual] eye sees You.”

Job 42: 5 AMP

Knowing now, by experience, that the road ahead may be just as hard and just as bloody as the one I leave behind, it would be easy to give up.

In my family, quitting was never an option.  My dad used to say, “You can do anything you want to do if you want to do it badly enough.”

But in this battle to keep going, I am too weak to continue by myself-too beaten down to make it to the finish line in my own strength.

I want to be faithful until the end.

I am purposing to refuse simple explanations and easy answers that tickle my ears but may not reflect truth.  And I will admit that I often just don’t understand–that I am wholly dependent on the God Who made me to keep me.

I want to let God mold me and shape me until I am a prize He is pleased with.

I want to present Him to others as the One Who has upheld me and keeps upholding me, even in this struggle to finish well.

So I go directly to Him. I go straight to His Word.  I will lean on, rely in and place my full trust in Jehovah:

“I’m convinced: You can do anything and everything.
    Nothing and no one can upset your plans.
You asked, ‘Who is this muddying the water,
    ignorantly confusing the issue, second-guessing my purposes?’
I admit it. I was the one. I babbled on about things far beyond me,
    made small talk about wonders way over my head.
You told me, ‘Listen, and let me do the talking.
    Let me ask the questions. You give the answers.’
I admit I once lived by rumors of you;
    now I have it all firsthand—from my own eyes and ears!
I’m sorry—forgive me. I’ll never do that again, I promise!
    I’ll never again live on crusts of hearsay, crumbs of rumor.”

Job 42:1-6 MSG

What Fills Your Heart?

Jesus taught that “Where your treasure is, there your heart will be also.” What I value most is where my heart rests.

Burying a child has pushed that truth right in front of my eyes.  I am pouring my life into something–no way around it.

So two questions fill my mind most days:

What am I willing to die for?  What will I live for?

Dying for something or someone would be a moment in time, an unrepeatable and finished work.  A single act.  

It’s much more challenging to think about what I will live for.  

I have to decide and commit to THAT over and over.

My first journal entries after Dominic died were filled with prayers begging God to pour His love, mercy and grace into my broken heart and to make me a vessel of healing for othersto not allow me to become bitter or hard or uncaring–

It was the only good I could imagine coming from the horror of burying my child.

Years ago, my husband gifted me with the CD “Revival in Belfast” by Robin Mark.  And in these months after losing my son, it is the one soundtrack I can play over and over because it speaks to deep places in my heart and spirit.

One of the songs,  “When It’s All Been Said and Done” has become my anthem:

When it’s all been said and done
There is just one thing that matters
Did I do my best to live for truth?
Did I live my life for you?

When it’s all been said and done
All my treasures will mean nothing
Only what I have done
For love’s rewards
Will stand the test of time

Lord, your mercy is so great
That you look beyond our weakness
And find purest gold in miry clay
Turning sinners into saints

I will always sing your praise
Here on earth and heaven after
For you’ve joined me at my true home
When it’s all been said and done
You’re my life when life is gone…

When It’s All Been Said and Done (lyrics)

When It’s All Been Said and Done By Robin Mark

“Only what I’ve done for love’s rewards will stand the test of time.”

I want my heart to be filled with love.  

I want my treasure to be eternal.

But for right now, until that completeness, we have three things to do to lead us toward that consummation: Trust steadily in God, hope unswervingly, love extravagantly. And the best of the three is love.

I Corinthians 13:13 MSG

A Daily Struggle

I despise the platitude plastered across social media memes:  “Hard times either make you bitter or better”.

It makes it sound so simple.

As if all I have to do is make a single choice between two equally available paths.

Enduring deep pain and unchangeable circumstances requires continued commitment to face the fork in the road over and over, and to choose well each time.

Every day I am forced to confront my heart’s tendency to turn inward and embrace loneliness and isolation in an attempt to protect myself from further and perhaps greater pain.

Each moment I have to choose whether I will lean into despair or hold onto hope.

And I just don’t agree that there are only two possible outcomes of a life that endures hardship or grief.

Bitterness is certainly an option.

If I allow myself to rehearse the reasons why my son should not have died, why my family doesn’t deserve this grief, why my life is so much harder than it should be–then the case for bitterness grows strong and becomes attractive.  I can pack my briefcase full of evidence and pull it out at every opportunity when confronted with yet another “happy moment” splashed on Facebook.

Bitterness is always a temptation, and I must refuse it everyday.

But “better” implies that I lacked something that I have now gained.

Better diminishes my grief and gives the impression that I’d do it all over again because my painful experience has wrought amazing results.

Losing my son, regardless of what I have learned, is not the same as sticking to a diet or working up to a marathon run or getting a master’s degree.

The subtle danger in declaring myself “better” is that I can decide I’m a measuring rod for others to judge their grief journey.  Or I can become like the reformed smoker who forgets how many tries it took to quit or how hard it was to finally stop smoking and instead mocks those who are still struggling.

I am not “better”.

I am broken.  

I am bankrupt of any illusion that I am the captain of my ship.  I understand by very, very painful experience that there are no earthly guarantees life will turn out according to plan. I embrace with both hands the notion that the most precious gift is people we love and no matter how long we have with them, it will never be enough.

I can’t claim a final victory of faith over doubt, of good out of bad, of lessons learned from effort expended.

Instead I extend my empty hands and hurting heart to be filled with grace and mercy.

I choose love and refuse hate.

I continue to engage this broken world from my broken perspective and offer compassion and understanding to those who are broken too.

Blessed [be] the God and Father of our Lord Jesus Christ, the Father of compassions, and God of all encouragement; who encourages us in all our tribulation, that we may be able to encourage those who are in any tribulation whatever, through the encouragement with which we ourselves are encouraged of God.

2 Corinthians 1:3-4 DARBY

 

 

 

 

 

Not Quite So Dry Bones: Learning to Dance Again

I wrote this post several months ago–when falling autumn leaves turned my mind to how every living thing dies.  When the thought of another holiday season without a complete family circle pressed hard against my eyeballs and threatened to undo me.

I felt so very tired.  Some days I still do.  Some days are “dry bone” days.  But there are days when I hear laughter–look around and realize it flows from my own mouth.

I believe God is healing me.  He is restoring life to my bones.  He is redeeming my pain and resurrecting my hope.

It is a process.  So if you have only recently begun a grief journey, don’t despair.  It is hard and it is long.  But there is hope.

Grief has sapped the strength from my body and the life from my bones.  It has turned this forward-thinking planner into someone who rarely ponders even an hour from now.

I was a visionary.  

Now I’m a survivor.

I understand why Naomi changed her name to Mara-“bitter”.

When I read her story in the book of Ruth, I’m tempted to challenge her across time to “look on the bright side” and to “think of the future”.  But she felt her hope and her future had died and been buried with her husband and sons.  She was old.  She was spent.  She couldn’t understand what God was doing or imagine life beyond this moment or this day.

She was dried up all the way down to the bone.  

The breath of the promise of God had left her heart and she was barely there.

But God brought joy back into her life, He breathed life into her dry bones.

The book of Ezekiel records an amazing vision.  God shows the prophet a valley of dry bones.

Very dry bones.

No-life-even-in-the-marrow bones.  

And He challenges Ezekiel to prophesy to them:

Then he said to me, “Prophesy to these bones and say to them, ‘Dry bones, hear the word of the Lord!  This is what the Sovereign Lord says to these bones: I will make breath enter you, and you will come to life.  I will attach tendons to you and make flesh come upon you and cover you with skin; I will put breath in you, and you will come to life. Then you will know that I am the Lord.’” (Ezekiel 37: 4-6 NIV)

I long to have the LORD make His breath enter once again into my own dry bones, so I read His word and prophesy to my dry bones.

He is the God of the resurrection, and He will redeem my sorrow and pain.  

He IS the breath of life.   

I am clinging to His promises and trusting His heart.

One day, these dry bones will dance!

Loving Well: Understanding the Grieving Heart

In my last post I shared the difference between mourning and grief. While the outward ceremonies have long passed, the inward struggle to embrace and understand the pain and sorrow of losing my son continues.

If you love someone who has lost a child, perhaps these thoughts might help you understand a bit of their pain and how completely it changes the way bereaved parents encounter the world.

Please be patient.  Please don’t try to “fix” us.  Please be present and compassionate. And if you don’t know what to say, feel free to say nothing–a hug, a smile, an understanding look–they mean so very much.

A bereaved parent’s grief doesn’t fit an easy-to-understand narrative. And it flies in the face of the American “pull yourself up by your bootstraps” mentality.

You can’t beat it–it’s not a football game-there is no winning team.

You can’t lose it–it’s not the extra 10 pounds you’ve been carrying since last Christmas.

You can’t get over it–it’s not a teenage love affair that will pale in comparison when the real thing comes along.

You can only survive it.  You can heal from it, but it will take a lifetime and require very special care.

I have a young friend whose first child was born with a life-threatening heart defect.  At just a few months of age, her little girl received a heart transplant.  Without it, she would have died.  With her new heart, this sweet baby will live-but her parents must observe careful protocols to protect that heart and she will never outgrow the scar from the surgery that saved her life.

Burying Dominic wounded my heart so deeply that while I know it will heal–it is beginning to, I think–it will bear the scars and require special handling as long as I walk this earth.

So when I thank you for an invitation, but choose not to go…I’m not rejecting you, I’m protecting my heart.  Please ask again–tomorrow might be a better day, and going somewhere or being with someone could be just what I need.

If you call and I don’t pick up…I might be crying, or about to, and I choose not to burden you with my grief.  Call in a day or two or next week–keep trying.

A text or email or card is so helpful.  I can read these when I’m ready and respond when it’s easier for me to think.

And please, please, please don’t look for the moment or day or year when I will be “back to my old self”.  My old self was buried with my son.  I am still “me”–but a different me than I would have chosen.

I know it makes you uncomfortable–it makes me uncomfortable too.

But because I trust in the finished work of Christ, I know that one day my heart will be completely healed.

I hurt but I have hope. This pain will be redeemed and my scars will be beautiful.

“For just as Christ’s sufferings are ours in abundance [as they overflow to His followers], so also our comfort [our reassurance, our encouragement, our consolation] is abundant through Christ [it is truly more than enough to endure what we must]”  2 Corinthians 1:5.

 

Loving Well: Transitioning From “Good-bye” to Grief

A funeral or memorial service seems like a final chapter.  We close the coffin, close the doors and everyone goes home.

But for bereaved parents and their surviving children, it’s not an end, it is a beginning.

Much like a wedding or birth serves as the threshold to a new way of life, a new commitment, a new understanding of who you are, burying a child does the same.

I walked away from the cemetary overwhelmed by the finality of death–not in a theological sense–I believe firmly that my son lives with Jesus–but with the undeniable fact that he is no longer available to me on this earth.

And in the days afterward, I was struck by the inadequacy of a funeral or memorial service to make space for the deep and ongoing sense of loss and pain and sorrow.

There is a difference between mourning and grief.  Although before losing Dominic I never bothered to notice.

I think we confuse the two on a regular basis.  I know I did.

Mourning is defined as “the outward signs and rituals associated with sorrow for a person’s death.  It is usually limited in time by social conventions or community expectations”.   

Mourning is the more or less public (depending on the family’s choices) “Good-bye” to their loved one.  It’s a circumscribed set of things we do and time we spend welcoming others into the space where we remember, make final arrangements for a body and celebrate the life that has left us.

In most North American communities, we have dispensed with the tradition of draping pictures, windows and ourselves for six months to a year to mark the home and heart of someone who has suffered loss.

What used to be a longer span of time allowing for special accommodations due to grief has now been squeezed into about two weeks.

Our hyper-drive world insists that even parents who bury a child show up to work, begin to participate and act like they have it “together” in public much sooner than our frail human bodies and broken hearts can manage.

Grief is more than a feeling.  It invades your heart, your mind, your body and your soul

Grief is the deep and poignant distress caused by bereavement..

It cannot be circumscribed by time and refuses to limit itself according to the expectations of others or even myself.  It will last (though perhaps not with the same intensity) as long as I live.

Because unlike a funeral, missing my son will not come to an end until I am reunited with him in heaven.

And we need to talk about this.

We need to help ourselves and others understand that grief changes who we are.  It changes how we perceive the world.  It alters our sense of self and impacts our relationships with others.

I am not as fragile as I was just weeks or months after Dominic’s death.  I have learned to put on a smile and pass by his favorite food in the grocery store without crying.  I can remember funny things he said or did without simultaneously experiencing gut-wrenching pain that he is no longer here to do them.

But I am still grieving.  

I am still working out how this missing is weaving itself into the fabric of who I am.

And it is WORK.

Much of the work I have to do on my own–I have to think about and feel and embrace the changes that have been thrust upon me.  But for some of the work, I need the help of others.  I need to be able to speak aloud my thoughts and feelings and receive feedback so that I’m not stuck in unfruitful inner dialogue.

It requires energy and resources.

While I am doing this grief work, my physical, mental, emotional and spiritual energy is largely consumed by it.  I am unavailable more often.  I have a smaller capacity to absorb sudden change and unexpected events. I’m uncomfortable in crowds.  I tire more easily.

And it takes TIME.  

I have discovered that no matter how much I want to speed up this process, it will not be hurried along.  And it proceeds in a “two-steps-forward-one-step-back” fashion so even when I feel I am making progress, I discover I’m not as far along as I think I am or would like to be.

So how to love well at this stage in my grief journey?  When I’m transitioning from “good-bye” to grief?  When I’m trying to understand this new life I never expected to live?

  • Acknowledge my ongoing pain and struggle.
  • Encourage me by allowing me to share honestly.
  • Be patient.  I want to heal but I don’t have control over how long it will take.
  • Don’t shut me out or shut me down.  Grief is uncomfortable for both of us.
  • Remember my son.  I need to know that others miss him too.

Rejoice with those who rejoice [sharing others’ joy], and weep with those who weep [sharing others’ grief].

Romans 12:15 AMP

 

 

 

 

 

 

 

 

 

 

 

 

Loving Well: Some Things Hurt

Before I lost Dominic, I know that I, like others who had never experienced the death of a child, undoubtedly said and did things that were hurtful instead of helpful.

I painfully remember sharing at a Thanksgiving women’s gathering and, meaning to encourage the ladies, said something like, “I think we are able to better face the big disappointments or trials in life, but find the daily drip, drip, drip of unfulfilled expectations to be a greater challenge.”

 A bereaved mom in attendance set me straight (in a very kind and gracious manner!).

That exchange has come often to my mind in these months after burying my son. I wish I could go back and have a do-over.

I hope that my pain has made me more compassionate, more sensitive to those around me.  I pray that I will extend grace and mercy to everyone I meet.  I want to be a light, not a candle-snuffer!

I’m convinced that most people want to bless and not hurt.

So here is a list of things (from my own experience and from the experience of others) that can be particularly damaging to bereaved parents when dealing with their loss:

Offering platitudes and quoting Bible verses is unhelpful.

Don’t say, “At least you have your other children.”  Which of your own children are you willing to give up?

“God needed another angel!” This is just bad theology as well as unhelpful.  God doesn’t need anything and my child is not an angel.  He is a redeemed member of the Body of Christ and in heaven with Jesus.

“He or she isn’t suffering anymore.”  That may very well be true, but it’s not comforting to hear it.

“All things work together for good…” I may believe that in my heart of hearts, and may come to feel it again one day, but in the days immediately following my son’s death, I didn’t need to be reminded.

“He (or she) wouldn’t want you to be sad.”  How do you know what my child would want? Being sad and expressing my pain honors his or her memory.

“God will use your son’s death to bring people to Jesus.” Yes, He might.  But He did not need my son to die in order for anyone to receive Christ.  He may use my son’s death, but I will speak honestly and say that I would not have exchanged Dominic’s life for anyone.

“It could have been worse” or any sentence beginning with, “At least…”. My child is dead.  I cannot have him back.  I’m sure there are more painful ways to lose a child besides a motorcycle accident,but it is a matter of degree, not kind. Just please, don’t.

“Don’t try to make your grief ‘equal’ to the parents. Sometimes in an effort to comfort we might say things like “I understand how you feel. I was devastated when my grandfather, or aunt, or best friend died”.  My mom and sister proceeded my daughter in death and their loss, as difficult as it was, didn’t even come close to how difficult it has been to lose her.  And don’t compare the loss of your beloved pet to the loss of someone’s child. JUST DON’T! Almost everyone I know who has lost a child has had their loss compared to that of someone’s pet. My daughter’s death was compared to that of someone’s pet lizard.”

Asking for details of the cause of death or the conditions surrounding the death of any child is not helpful.  If a parent wants to talk about it, listen.  Otherwise, keep curiosity in check.

“I did not appreciate [a close family member] persisting to know why our son took his own life. I don’t want to tell her as she will dwell on that forever and I want to celebrate his life, not his death. I also didn’t appreciate those folks telling me to stay strong. I am strong, but if I wanted to be a puddle, I am allowed to do that too.”

Please don’t label us as “strong”–you may mean it as a compliment but we hear it in many ways.  One way might be that we are not honoring our child by grieving hard enough.  Another way might be that we are expected to act strong even when we don’t feel strong.  Trust me, you have no idea what it costs a bereaved mama to hold back the tears.

“I get so tired of people telling me I’m so strong also. I too am a puddle often but no one sees me during these days alone.”

It’s true that no one can fully comprehend our pain if they have not felt it.  But it is possible to educate yourself about ways to support grieving parents.

“I wish people were more understanding but the problem with that is about the only way to understand is to go through it and I don’t want that for anyone.”

Please don’t withdraw from us as if we have a communicable disease.  I know it makes you uncomfortable to be around me and my grief.  It makes me uncomfortable too.  But companionship and encouragement can mean the difference between grieving well and being overwhelmed by sorrow.

“I wish one of my good friends had reached out to me more. See we both work for the school system so we had the summer off. I never once heard from that friend all summer. It really hurt.”

“When I got home my church family was there then suddenly I was home alone. Everybody left me home ”

Show up to the funeral.  Put aside petty differences.  Extend grace.  It’s not about you.

“His father didn’t even come. Not even to the funeral. No one brought food or sent flowers. Not even after the funeral. I was left alone a lot frightened and confused. Within a few months I was homeless.”

Be the church.  Be the person that writes notes weeks and months after the funeral. Check in with grieving parents and keep checking in.  Even if they don’t return a phone call, the act of letting them know you care is meaningful.

“After the funeral, there was a huge sense of abandonment from everyone. I don’t think that was intentional by anyone (except my family members, lovely!) but yeah…..there were hundreds of people at his funeral, and I probably didn’t know half of them. I wanted to thank people, but didn’t know who to thank! Lot of support, but when it was over…….it was over.”

“[Some close family members] were total jerks about the entire ordeal, so if there were anything really, I wish they had sucked up their egos and petty jealousies, and been there more for my other kids. I no longer have ties with them.”

“One huge topic that is discussed in my bereaved parents Facebook group is the response from the church for grieving parents. Sadly, most churches just don’t know what to do so they do…..nothing. Some are great for the first couple of weeks after the death and then….nothing. A very few provide the needed support in the months after such a devastating loss.”

Please don’t rush us to meet your timetable of when our grief should subside.  It will take as long as it takes.  Sometimes we can participate in life and sometimes we can’t.  Sometimes we smile, sometimes we cry– but we will always miss our child.

“People, for different reasons, want you to get back to normal. We can’t even remember what normal was ”

One of the biggest fears of bereaved parents is that their child will be forgotten. Don’t forget. Speak to them about their child.  Share memories.  Say their name.  Be present (even with a text, call or card) on important dates.

“No one would come for my son’s first anniversary. I was left home alone…abandoned felt like.”

Loss will enter everyone’s life at some point–there is no escape.

We educate ourselves (as we should) on so many issues–work hard not to offend, to understand, to reach out. Bereaved parents don’t want pity, they would like to be better understood.  We did not choose this journey, it was thrust upon us.

A little bit of kindness goes a long way.