Ten Things I’ve Learned About Child Loss

I’ve had awhile to think about this. Six years is a long time to live with loss, to live without the child I carried, raised and sent off in the world.

So I’ve considered carefully what my “top ten” might be.

Here’s MY list (yours might be very different):

There is absolutely no way to prepare your heart for the death of a child. I have always been an avid reader. Over the years I’ve read dozens of accounts both real and imagined centered around child loss. I’ve seen well-scripted movies and television shows depicting it as well. And, like many parents, I had my moments when I imagined what it might be like for one of my children to leave the house and not return. But nothing-NOTHINGI read, saw or imagined was remotely as devastating as the experience of child loss. In the space of a few words, a few seconds, a single awful door knock, my world was utterly and completely shattered. It’s really no wonder that it takes a lifetime to even begin to put the pieces together.

Most people are doing the best they can to respond to our pain. When Dominic first left us, I was a walking nerve. Anything someone said or didn’t say, a look, a social media post or dozens of other things provoked a reaction: “How could they!?” But eventually, when I was able to think more clearly I recognized they were wrapped in the same protective bubble of “hasn’t experienced child loss” I once enjoyed. How could I expect them to know what to say or do when truth is, I still (to this day) stumble over my tongue when confronted with a parent who joins our ranks. Now I try to receive even the most bumbling efforts as grace gifts offered in hope of encouraging my heart.

Grief lasts longer than sympathy. I’ve written before about the cost of compassion. It’s so much easier to send a card, send a meal, show up at the house or funeral than to walk beside someone for a month or year as they try to pick up and reassemble the fragments of a shattered heart and life. Grief is not the same as mourning. Mourning is a shorter period with lots of outward symbols and rituals that warn others of our broken hearts. Grief is the burden of loss, sorrow, missing and pain that is left behind after everyone else goes home. Grief is lonely.

The circle that will walk with you for the long haul is going to be smaller than you expect and will be comprised of some folks you’d never have imagined. We all have an image of which people will run toward us instead of running away should disaster strike. I did. And some of those folks were there. But others weren’t. After decades of pouring our time, energy, effort, love and lives into more than one church family, I was surprised at who showed up, who stayed away and who was willing to go the extra mile. Of course at the beginning there were hordes of folks and we were very appreciative. But one by one or in groups they quit calling, coming or even texting. The tiny band that has stuck it out is precious. I am so, so thankful for them.

Life goes on without our permission. At first, I just wanted the world to STOP. I wanted every single soul on this planet to realize-at least for a second-that my son was no longer among the living. But of course it didn’t. Not only did the world not stop, it seemed to race ahead. I’ve written before about our family’s busy, busy two months (Graduations and Weddings and Trips, Oh My!) after Dom ran ahead to Heaven. That was just the beginning. In the six years since he’s been gone, there have been all kinds of large and small crises that have rocked our world. I don’t have a pass to slip through my remaining years without trouble or trial.

Loss keeps happening and comes in many forms. Life is risky. If you dare to love, you risk loss. I made a decision early on that I would not cut myself off from those I love in hopes of saving my heart more sorrow. Friendships melt away under the burden of grief. Life circumstances change in unpleasant and unexpected ways. Health deteriorates. Loved ones die. I’ve experienced all these things in the last six years and will experience them until I join Dominic in Heaven. I won’t rail against every one as an injustice or act surprised.

Laughter and joy return if you make space for them. I remember the first time a small chuckle escaped my lips after Dominic left us. It felt like betrayal. How could I laugh when my heart was utterly shattered? Where did that come from? But I learned, over time, that laughing was not dishonoring my son. Laughter is a gift. It’s a way of knitting together some of those broken pieces. It’s a means of allowing light back into a darkened soul. I also learned that joy and sorrow are not opposing feelings. You don’t have to shove one aside to feel the other. You simply have to expand your heart to make room for both. But it IS a choice. I can refuse laughter, joy and light and hunker down with my sadness, sorrow and despair. I have to decide.

The missing never ends. You never reach a moment (as shared by many bereaved parents further along this path than me!) when you won’t miss your child. A parent’s heart carries his or her child as long as it’s still beating. It takes time to learn to live with the ache. It was several years before I could see past Dominic’s absence. When the family gathered the gaping hole where he SHOULD be but WASN’T filled my vision and made it hard to focus on who and what I still possessed. Over time the missing has grown softer. Now, missing Dominic is the background music to everything.  A quiet tune I hum in my head that keeps me company all day and invades my dreams at night. .

You will survive if you keep taking the next breath and making the next step. That first day when the house filled with people coming to support our family after the awful news, I kept asking the women sitting with me, “Am I breathing?”. It felt as if the breath had left my body when the life-shattering words fell on my ears and I couldn’t get it back. But I soon learned that broken hearts still beat. The first anniversary of his death I was horrified to realize I had survived 365 days when I was certain I wouldn’t survive the first 24 hours.

Grief  is work. But if you choose to face the feelings, spend time dealing with them and allow your heart space and grace to begin putting the pieces back together you will make progress. I have. It has often been slower and more painstaking than I like, but it’s happened.

I’m still learning.

Almost every day I find another place grief is changing my life, my family’s life and my heart ever so slightly. In a few more years this list may be different.

For now, it’s my top ten.

I hope it helps another parent who might be wondering what to expect in this Life [We] Didn’t Choose.

It’s a Process, Not a State of Being

I wrote this last year about this time. As I approach the six anniversary of Dom’s leaving, it still describes my journey.

We want grief to be something we can work through, get over, move past, neatly incorporate into our present life without untidy ends poking out all over.

But it’s not.

It’s an ongoing process that sometimes takes more energy and effort and sometimes less but always drawing away some resources from the here and now.

Melanie ❤

C. S. Lewis gave voice to so much of human experience in ways that help us understand ourselves and one another.

His book, Mere Christianity, began as a series of radio talks that were later compiled, published and sold millions and millions of copies.

I think Lewis managed to use a conversational, inviting voice in all his works.

When I read them I feel like I’m chatting with a friend (granted, an extremely erudite friend!).  He and I are discussing a thing, reasoning through it together.

He’s not teaching me something, he’s guiding me to learn it for myself.

Read the rest here: https://thelifeididntchoose.com/2019/04/05/not-a-state-but-a-process/

What, Exactly, IS “Grief Work”?

I have used the term for years and only recently has someone asked me to define it.

I guess I never realized that in all the writing about it, I’d never really explained what it meant.

So here goes.

The term was coined by psychiatrist Erich Lindemann in the 1940s. He worked with survivors of the Cocoanut Grove tragedy and observed that grievers experienced common symptoms, feelings and faced similar challenges. Through his work, he developed a theory of grief incorporating his observations and his technique for walking grievers through these common issues.

Image result for six stages of grief erich lindeman

Today the term has been expanded and is used widely to describe almost any approach to grief that includes specific techniques for helping someone walk the path of loss.

I use “grief work” to mean all the ways I (and others) must actively seek to identify, face, process, and ultimately incorporate the feelings, trauma and changes loss force upon us.

Grief work (in no particular order) can include but is not limited to:

  • Attending sessions with a professional, spiritual or lay counselor. Some people find it helpful to have a safe person outside the immediate grief circle to discuss feelings, concerns and relationship challenges that are generated by loss or exacerbated by loss. It’s best to find a counselor who specializes in grief, preferably child loss and/or traumatic loss (all child loss can be classed as traumatic loss). Other counselors may be too quick to label a bereaved parent’s grief as “abnormal” or “too lengthy” or “complicated” when it is, in fact, closely following observed timelines for dealing with child loss. If the first counselor you find isn’t a fit, try another. It’s OK to insist that you are heard, your feelings respected and your loss recognized for the life-shattering event that it is.
  • Finding, joining and participating in online or in person support groups. There are literally dozens of online support groups for bereaved parents. Some are designed to meet the needs surrounding specific types of loss such as sudden death, suicide, drug overdoses or loss to cancer or another disease or condition. Some are organized around certain faiths. Others may be rooted in geographic proximity and the online group might have a monthly or quarterly face-to-face meeting in the area. While it can sometimes be overwhelming to see the number of parents in such a group, it’s also extremely helpful to have a safe space to share things only another bereaved parent can understand.
  • Setting aside quiet time to think, process and possibly journal feelings. So much grief work must be done alone. Counselors can equip me with tools, support groups can give me real-life examples and encouragement but only I can do the nitty-gritty labor of teasing apart all the feelings and change grief brings with it. Journaling has been very helpful for me in putting words to what can sometimes be rather nebulous thoughts swirling around in my head. When I name what I’m feeling or experiencing, I can better construct a strategy for processing and living with it.
  • Walking back through memories, noting regrets, forgiving yourself and making peace with the past. We ALL have things we would have done differently. Death, being final, forces a heart to face that there is no chance to atone for past behavior. Words unsaid, things undone, opportunities missed are carved in the stone of yesterday. I spent many nights recounting my shortcomings as a mother, berating myself for what I didn’t do. Eventually I was able to rest on the simple fact that one thing I DID do was make sure Dominic knew he was loved.
  • Setting boundaries to give yourself and your family space and time to do grief work as well as to conserve emotional, relational and physical energy that’s in limited supply after child loss. So many of us live with few or no boundaries-responding to every request with a “yes”, adding things to the calendar without a thought to how exhausted we might be at the end of a day or week. Some of us are overtaxed at work or school. Some of us are hyper-involved in our churches, civic organizations or local politics. There are dozens of ways to be extended and just as many ways to live with that constant drain. Child loss forced me to recognize that I could no longer BE that person. I couldn’t afford the time, energy, mental space and emotional burden of saying “yes” anymore. I learned that “NO” is a complete sentence and began using it.
  • Practical considerations regarding your child’s belongings and other personal property. Many people might not consider this part of grief but it is. So many details to take care of, so many times I had to repeat the words, “My son was killed in an accident. I need to close this account.” So many copies of his death certificate mailed out to different agencies or companies, documenting the awful reality that he was never coming home again. Then there are questions of what to keep, what to store, what to give away. Should a room remain untouched if your child still lived at home? We had to clean out Dominic’s apartment only a few days after his funeral. It felt like I was boxing up everything beautiful about my boy.
  • Learning how to do holidays, birthdays, family gatherings, vacations and other gatherings. The empty chair looms larger when all the others are filled. If you have been the primary organizer of such events, it might surprise you to find the rest of the family still expecting you to be that person. Even if you aren’t the host for holidays, you will need to communicate to others if or how you feel comfortable participating.
  • Maintaining or regaining health after loss. Stress is one of the greatest contributors to so many health issues. Child loss is an unbelievably stressful experience. So it’s no wonder that many parents find themselves post loss with new or aggravated health problems. I had an appointment with my rheumatologist just one month after Dominic ran ahead to Heaven. It was critical that I tell her of my loss because in addition to whatever medical interventions she was prepared to prescribe, she needed to know I would be experiencing an extended period of intense stress that might necessitate closer observation and follow-up. As difficult as it may be to talk about, it’s important to inform your healthcare providers of your loss and to be absolutely honest about changes you’ve noticed in your body as a result.

There are probably a dozen or more subcategories of grief work I could list and some of you might think of ones I wouldn’t.

Grief IS work.

It is important, necessary and exhausting WORK.

It requires time, resources, effort and energy and cannot be hurried along.

But it is the only way a heart can begin to put the pieces back together.