Grief Work 2026: What Exactly IS Grief Work?

A few years ago I was encouraged to assemble some of my posts into a series I titled “Grief Work”.

They definitely do NOT cover everything I would want to share with a bereaved parent but they are a place to start if you are early on this journey and you can explore any topic further by using the search bar any time you’d like.

I’m sharing again for those who may need them now or may want to pass these on to someone else who needs them.

❤ Melanie

I have used the term for years and only recently has someone asked me to define it.

I guess I never realized that in all the writing about it, I’d never really explained what it meant.

So here goes.

The term was coined by psychiatrist Erich Lindemann in the 1940s. He worked with survivors of the Cocoanut Grove tragedy and observed that grievers experienced common symptoms, feelings and faced similar challenges. Through his work, he developed a theory of grief incorporating his observations and his technique for walking grievers through these common issues.

Image result for six stages of grief erich lindeman

Today the term has been expanded and is used widely to describe almost any approach to grief that includes specific techniques for helping someone walk the path of loss.

I use “grief work” to mean all the ways I (and others) must actively seek to identify, face, process, and ultimately incorporate the feelings, trauma and changes loss force upon us.

Grief work (in no particular order) can include but is not limited to:

  • Attending sessions with a professional, spiritual or lay counselor. Some people find it helpful to have a safe person outside the immediate grief circle to discuss feelings, concerns and relationship challenges that are generated by loss or exacerbated by loss. It’s best to find a counselor who specializes in grief, preferably child loss and/or traumatic loss (all child loss can be classed as traumatic loss). Other counselors may be too quick to label a bereaved parent’s grief as “abnormal” or “too lengthy” or “complicated” when it is, in fact, closely following observed timelines for dealing with child loss. If the first counselor you find isn’t a fit, try another. It’s OK to insist that you are heard, your feelings respected and your loss recognized for the life-shattering event that it is.
  • Finding, joining and participating in online or in person support groups. There are literally dozens of online support groups for bereaved parents. Some are designed to meet the needs surrounding specific types of loss such as sudden death, suicide, drug overdoses or loss to cancer or another disease or condition. Some are organized around certain faiths. Others may be rooted in geographic proximity and the online group might have a monthly or quarterly face-to-face meeting in the area. While it can sometimes be overwhelming to see the number of parents in such a group, it’s also extremely helpful to have a safe space to share things only another bereaved parent can understand.
  • Setting aside quiet time to think, process and possibly journal feelings. So much grief work must be done alone. Counselors can equip me with tools, support groups can give me real-life examples and encouragement but only I can do the nitty-gritty labor of teasing apart all the feelings and change grief brings with it. Journaling has been very helpful for me in putting words to what can sometimes be rather nebulous thoughts swirling around in my head. When I name what I’m feeling or experiencing, I can better construct a strategy for processing and living with it.
  • Walking back through memories, noting regrets, forgiving yourself and making peace with the past. We ALL have things we would have done differently. Death, being final, forces a heart to face that there is no chance to atone for past behavior. Words unsaid, things undone, opportunities missed are carved in the stone of yesterday. I spent many nights recounting my shortcomings as a mother, berating myself for what I didn’t do. Eventually I was able to rest on the simple fact that one thing I DID do was make sure Dominic knew he was loved.
  • Setting boundaries to give yourself and your family space and time to do grief work as well as to conserve emotional, relational and physical energy that’s in limited supply after child loss. So many of us live with few or no boundaries-responding to every request with a “yes”, adding things to the calendar without a thought to how exhausted we might be at the end of a day or week. Some of us are overtaxed at work or school. Some of us are hyper-involved in our churches, civic organizations or local politics. There are dozens of ways to be extended and just as many ways to live with that constant drain. Child loss forced me to recognize that I could no longer BE that person. I couldn’t afford the time, energy, mental space and emotional burden of saying “yes” anymore. I learned that “NO” is a complete sentence and began using it.
  • Practical considerations regarding your child’s belongings and other personal property. Many people might not consider this part of grief but it is. So many details to take care of, so many times I had to repeat the words, “My son was killed in an accident. I need to close this account.” So many copies of his death certificate mailed out to different agencies or companies, documenting the awful reality that he was never coming home again. Then there are questions of what to keep, what to store, what to give away. Should a room remain untouched if your child still lived at home? We had to clean out Dominic’s apartment only a few days after his funeral. It felt like I was boxing up everything beautiful about my boy.
  • Learning how to do holidays, birthdays, family gatherings, vacations and other gatherings. The empty chair looms larger when all the others are filled. If you have been the primary organizer of such events, it might surprise you to find the rest of the family still expecting you to be that person. Even if you aren’t the host for holidays, you will need to communicate to others if or how you feel comfortable participating.
  • Maintaining or regaining health after loss. Stress is one of the greatest contributors to so many health issues. Child loss is an unbelievably stressful experience. So it’s no wonder that many parents find themselves post loss with new or aggravated health problems. I had an appointment with my rheumatologist just one month after Dominic ran ahead to Heaven. It was critical that I tell her of my loss because in addition to whatever medical interventions she was prepared to prescribe, she needed to know I would be experiencing an extended period of intense stress that might necessitate closer observation and follow-up. As difficult as it may be to talk about, it’s important to inform your healthcare providers of your loss and to be absolutely honest about changes you’ve noticed in your body as a result.

There are probably a dozen or more subcategories of grief work I could list and some of you might think of ones I wouldn’t.

Grief IS work.

It is important, necessary and exhausting WORK.

It requires time, resources, effort and energy and cannot be hurried along.

But it is the only way a heart can begin to put the pieces back together.

❤

Navigating Grief: What’s Normal?

Every time I come home from a retreat, a conference or a bereaved parent support group meeting I am reminded again that the range of “normal” in grief-especially child loss-is so very wide.

Still crying after a decade? Absolutely normal.

Trouble getting dinner on the table or remembering your child’s school schedule? Yep. That’s normal.

Struggling with crowds, back-peddling on commitments, feeling trapped by phone conversations, shopping when you are least likely to run into someone you know? Perfectly normal.

Our losses range from very recent to decades old and we all acknowledge that our behavior, our feelings, our ability to handle change, nearly every aspect of our lives is impacted by the death of our child.

So if you are wondering if your expression of grief is normal, it is.

Our lives were shattered.

Our hearts were broken.

Picking up the pieces, whatever that looks like, is absolutely, positively normal.

Empty Chair Endeavor Podcast: Insights from Melanie DeSimone, Dominic’s Mom

I recorded this conversation with Greg Buffkin from the Empty Chair Endeavor before my life was turned upside down by my dad’s stroke in September.

I had honestly forgotten exactly what we talked about so I was pleasantly surprised when I listened to it last week after it was published.

We covered a lot of ground-what helps, what hurts and what and Who has sustained us both on this journey no parent chooses. We talked about sibling loss and about parenting a child who has lost a sibling. We shared how trauma reshapes our emotions and our bodies.

If you’re looking for a word of encouragement as we plunge into the hectic holiday season, take a few minutes to listen.

I want to edit one thing I shared in the podcast: I’m not sure just when I’ll be able to schedule the 2026 retreats but I pray it is soon!

❤️ Melanie

You can find it here: https://podcasts.apple.com/us/podcast/navigating-grief-insights-from-melanie-desimone-dominics/id1654053256?i=1000738301553

Worldwide Candle Lighting Service 2025

 I love candles-always have.

I especially love them as the days get shorter and we creep toward the longest night of the year.

I love them more since Dominic ran ahead to Heaven.

Every time I light a candle, I remind my heart that even the smallest light can chase the darkness.

When hundreds, thousands and even millions of candles are lighted together, it does more than chases darkness, it undoes it.

Sunday, December 14, 2025 is the Worldwide Candle Lighting Memorial Service (WCL) sponsored by The Compassionate Friends (TCF)

Millions of parents and others will light a candle at 7:00 PM local time for one hour to honor sons, daughters, brothers, sisters and grandchildren gone too soon.

As the earth turns, a wave of light will sweep across the globe one time zone after another.

It’s natural for parents, grandparents, sisters and brothers to mark the light and life of one they miss.

It’s less natural for friends and extended family members to do so.

One of the greatest fears of every bereaved parent is that his or her child will cease to be remembered or that the light and life of a son or daughter will simply fade as time goes on.

Year-end holidays accentuate the place where our children should be but aren’t. Merry making and picture taking emphasize the gap between grieving hearts and those untouched by death of a close loved one.

That’s why TCF has chosen THIS week for the annual WCL.

If you want a simple way to bless someone you know who lost a child, grandchild or sibling, a single candle and a quick picture or post on social media will do it.

My heart is always encouraged and strengthened when others take time to remember Dominic.

Buy a candle.

Set an alarm on your phone.

Light up the night with us.

Together we will remember. Together we will chase the darkness. Together we will declare that our children are out of reach but not forgotten.

Never, ever forgotten. ❤

Giving Tuesday 2025: You Can Make a Difference

I’m a shepherd, not a promoter.

But one thing I’m learning in this new and sometimes scary world of “official” ministry is this: People don’t know what you don’t share with them.

So today, in honor of Giving Tuesday, I’m sharing again both how the Lord led me to expand what I’ve been doing for the past nearly ten years into something bigger, more far reaching and definitely more challenging AND how you can be part of it.

If you would like to join me in reaching bereaved parents with the light, love and life of Christ, you can do so through this link:

https://square.link/u/cNen14Q1

Thank you to those who have already encouraged my heart by giving.

Your choice to invest in spreading hope and light to hurting parents will have eternal consequences. ❤️

If you missed the original post introducing the ministry back in August, here it is:

It’s still dark here.

The days are getting perceptibly shorter for those of us tuned in to the turning of the earth and the passing of the seasons.

But the light is coming. It always does.

And that is what I have clung to in these more-than-ten years since Dominic ran ahead to Heaven. That’s what compels me to write.

I want every hurting heart to know that the night doesn’t last forever.

It’s also why today I have something exciting (and scary, if I’m honest!) to tell you: I’ve created an official ministry for the work I do here and on Facebook through Heartache and Hope (https://www.facebook.com/heartacheandhope/).

The Lord planted a vision in my heart awhile ago to expand into new territory.

I am a quiet person who longs only to stay (mostly) in my home and surrounding area. I once loved traveling but now only really enjoy it in the company of family to low-key destinations that afford plenty of space and natural beauty.

But I am stepping out into uncomfortable places and trusting my Shepherd King to provide the means and direction to journey on.

I’m not one to appropriate Old Testament verses to justify current choices but I do absolutely believe that He nudges us to spread out and to reach further than we might choose to do in our flesh.

So, like Jabez, I pray:

Oh that You would bless me indeed and enlarge my territory! Let Your hand be with me, and keep me from the evil one.”

And God granted his request.

I Chronicles 4: 9, 10

Read the rest here: Stepping Out in Trust: Heartache and Hope

Stories of Loss and Hope: A Journey Through Grief

I was asked awhile back to be part of a project shepherded by fellow parents-in-loss, Laura and Gary House (https://ourheartsarehome.org/).

They wanted to gather and publish stories from other child loss survivors in hopes of encouraging hearts and strengthening the faith of parents facing the unimaginable.

I don’t mind saying that in spite of all I’ve written in this space for the past ten (!) years, it was challenging to distill my thoughts about that night, the days that followed and my own faith journey since into a single chapter.

But I, and a dozen other parents, did just that.

In our own words we tell our stories. We share our struggles and our triumphs.

Read the rest here: Until Then-Stories of Loss and Hope

Lessons from Geese: Finding Courage

Every autumn I hear the geese overhead and I think about how all that honking serves only a single purpose:  to remind the stragglers they are headed in the right direction.  

It speaks courage to my own heart as I remember that not only does the leader call out to those behind, but that each bird takes a turn at the head of the line so that the others can rest a bit.  

What  beautiful picture of how life SHOULD be.  

Read the rest here:  Of Flying Geese and Calling Courage!

Everyone’s Grief Journey is Unique

It’s a nearly universal human tendency to try to fit another’s experience into our own.

Even though I try hard not to, I still often find myself saying things like, “I know just how you feel” or, “This worked for me, it ought to work for you”.

Trouble is, grief is as individual as a fingerprint.

Read the rest here: Grief Is As Individual As A Fingerprint

A Beautiful Moment: The Light Finally Gets Through

A few years ago, I had a grace-filled, heartwarming visit with another bereaved mama who came all the way from Maine just to hang out with me. And that was so, so good.

As she and I shared over coffee and tea, shopping and meals, lounging and walking we found so many ways in which our journeys have been similar even though the details are really very different.

One is this: There was a distinct moment along the way when each of us began to see light and color again in the midst of our darkness and pain and it was a turning point.

Read the rest here: There’s A Moment When The Light Makes It Through Again

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Your Story-Someone Else’s Trail Guide

Hey-I get it.

Who wants to air the good, the bad and the ugly for everyone else to see?

In today’s world where photo filters on our cellphone cameras can turn a pretty rotten picture into a magazine worthy masterpiece no one is anxious to be seen as less than polished and put together.

The pressure is on to pretend that all is well even when all is, well, going quite the other direction.

If you are trudging through a tough patch, let folks know.

You might be surprised by who reaches out saying, “That was me just a while ago. Would you like to know how I made it through?”

If you’ve already walked the long and lonely road of grief, loss, trauma, depression or other difficult circumstance-share your story!

Don’t sugar coat it. Don’t clean up the messy bits. Don’t gloss over the hard spots.

How can anyone learn to walk the hard roads, the rocky paths, the treacherous terrain of life unless someone else is willing to be a guide? And who can trust a guide that hasn’t also made that journey?

Tell it like it was.

Then tell it like it is.

Map the path from there to here.

Shine a light for a soul that thinks darkness is all there is.

Reach back and take a hand.

Help a heart hold on to hope.