Man Proposes, God Disposes

I learned this lesson years ago.  

As a matter of fact, I had a cute little picture on my fridge of a sinking ship that said. “Another day, another disaster”.  

That was before I had actually lived through disaster. 

Now it’s engraved on my heart as well as my mind.  

I think I’m in control.  I think my “to do” list determines a day.  I think I can set the alarm and set my agenda.

But I’m not.  It doesn’t and I can’t.  

loved by the one in control

Last week I was rocking and rolling, moving and grooving.  Making molehills out of mountains and working my list.

Today I’m sitting in my chair, heating pad on my back, barely able to move. 

My body hates me.  

This is the hardest part of chronic illness and lifelong grief-I want to be able to plan ahead, make progress, achieve momentum and finish tasks.  But I just can’t.  I can’t be sure when I go to bed that the next day is going to be anything like what I hope it will be.

If you think weather forecasts are unpredictable, they are solid compared to my life.

And while I absolutely, positively accede God is in control, is sovereign, does not answer to me or anyone else and can order my life and the world as He sees fit; I would love, love, love to have two days in a row that followed a pattern of positive progress.

dear stress lets break up

So I’m just a *little* bit frustrated.  

I know I need to adjust my expectations.  

I’m trying. 

Really.  

 

whenyoucan27tcontrolthewindadjustyoursails

Sleepless Nights

For the first couple of weeks after Dominic left us, I couldn’t fall asleep.  

It was impossible to close my eyes without a dozen awful scenes flashing behind the lids. 

Silent darkness was not my friend.  

Eventually exhaustion won and I could fall asleep but couldn’t stay asleep.  Two or three hours in and my body had just enough rest to shake slumber and force my heart to face another day (even if the sun wasn’t up yet).

Somewhere around year three I finally settled into a pretty regular pattern of between five and six hours of solid sleep.  

back-to-sleep

But for the past several months I’ve lost the rhythm and am once again struggling.

Lots of changes, lots of stress, lots of physical discomfort and lots of lists floating in my head have landed me back in sleepless territory.

to do list

I wish there was a switch I could flip that made it easy to fall and stay asleep.  I wish there was a way to stop stray thoughts from invading my consciousness and my dreams.  I wish I could have a solid week of solid sleep.

I know it would make everything so much easier to manage.

I’d be calmer, more focused, more energetic and more optimistic.

But it’s a vicious cycle.  

I’m hoping long days of hard work in the summer sun will shift my body back to a better rhythm.  

Maybe. 

Eventually.  

sands of time

 

 

 

What A Difference A Week Makes!

Last week at this time I was anxiously awaiting news that my daughter-in-law and just born grandson had made it through the night.

I was following my deployed son’s journey from half-way around the world as he tried hard to make it home.

I was planning and organizing so that the son who lives near, my daughter and I could leave early Monday morning to drive down and see all of them.

And I was praying:  “Grace and mercy and strength and life.  Please, please, please God!  We need them to be alright.”

ryker lillie touching for first time

I’m still praying.

But I’m also encouraged.

My son, the new father, made it home.  His wife, a new mama, is doing well.  Our sweet baby is holding his own and improving every day.  Uncle, aunt and Mama D were able to see, touch and make much over this new little life.

What a difference a week makes!

I wish Uncle Dominic were here too.  He would have loved that tiny baby and completed our circle of love around the incubator.

dominic at olive garden

 

It’s going to be a long and winding journey from this point forward.  I’m not naive.  I know we will have peaks and valleys, good days and more difficult ones.

But our family is united for the fight. 

We are knit together with bonds of love and steel and will do whatever it takes to support one another in this journey.

ryker and family around incubator

And we are oh, so blessed by the many, many people volunteering to come alongside!  People praying, sending cards, notes and encouraging messages.  Offers of meals, gas cards and preemie baby supplies and clothes.

encouragement is oxygen to the soulAll these help hearts hold onto hope.

Thank you!

 

what-will-survive-of-us-is-love

 

If you are interested in following our journey you may do so on Facebook:  PRAYERS FOR RYKER  ❤

 

Child Loss: Good Days, Bad Days-All Part Of The Journey

Will today be a good day or a bad day?

Not sure yet.

Mainly because what usually determines THAT is something that happens (or doesn’t happen) at some point after my morning quiet time.

But whether it’s a good day, a bad day or somewhere in between, it is absolutely, completely, utterly NORMAL for my emotions to change as I make my way down the path called “Child Loss”.

As long as I am doing the work grief requires I will continue to have some better days.  

But grief still comes in waves in response to triggers or in response to nothing at all and it may be a bad day.  

waves-of-greif

How well did I sleep, rest, eat or exercise? My body affects my emotions in ways I don’t fully understand but absolutely experience.

Stress can bring tears to the surface.  Even GOOD stress can do it.  Looking forward to things, planning a party, large meal, trip or event is stressful, even if it isn’t sad.  All stress weakens my defenses and makes it harder to employ the techniques I’ve mastered for diverting my thoughts or controlling my tears.

Sunshine or rain? I have learned to count the number of recent cloudy days if I wake one morning feeling bluer than normal.  I often realize that a week or more has passed since I’ve seen the sun.

Too much interaction or too little interaction with other humans makes a BIG difference. My introvert self loves long afternoons alone, sitting in silence with a book or crochet, quiet walks in the woods and chore-filled days without music blaring.  But healthy solitude can turn to withdrawal if I let it and sometimes I realize my sudden sense of overwhelming grief is, in part, due to lack of human company.

The list is endless.  

Thankfully, at nearly five years, the better days outnumber the worse ones for me. 

But  no matter what kind of day it may be, I no longer worry if it’s normal. 

Because it’s ALL normal. 

you will have good days bad days keep showing up

 

 

 

 

Repost: The Loudest Silence

No matter how busy or how noisy or how frantic, in the middle of my chest there is a quiet place that holds space for my missing child.

It was true last year in the craziness of my mother’s health crisis and it’s been so very, very true this past eight weeks full of anxiety, discomfort, challenge and unbelievable stress.  

Read the rest here:  The Loudest Silence

Discombobulated

Yep.  It’s a real word.  

And it sounds just like what it is-mixed up, disoriented and confused.  Like a kid spun around with a blindfold playing Pin the Tail on the Donkey at his five-year-old birthday party. 

That’s me.

I depend on routine, habit, regular workflow patterns to help me remember what I need to do and when.  So if something (or a bunch of somethings!) interrupt my tired old footpath through the day, it confuses me.

not to brag but i can forget what im doing

I’m confused.  

This summer has been full of random life events that guaranteed I couldn’t lean into my dependable routines for support and comfort.

So I’m winging it-more or less.  

Actually more of the time it IS less but who’s checking?

stressed is desserts spelled backwards

Anyway, it’s been a good reminder that I’m not in control and that what absolutely MUST be done always manages to get done.  And if the other stuff falls by the wayside, then it wasn’t nearly as important as I once thought it was.

I need to be reminded. 

Because it’s easy to be frustrated over things that aren’t worth the effort, to get my priorities mixed up and let myself fall prey to the tyranny of the urgent and ignore the supremacy of the important.  

tyranny of urgent sticky notes

Speaking of which, I think I’ll take a break, go outside and get some fresh air.  

The vacuuming can wait.

And the laundry,

and the dusting,

and the….

goat i must go my people need me

Christmas and Grief Brain

I wrote this post almost a year ago after a discussion in online grief groups about our common experience of forgetting things, having trouble concentrating and losing words.

“Grief brain” is a real thing!

Stress of any kind makes it worse.

I used to be caught off guard when I’d go to special events as I’d stand there, dumbfounded, when trying to recall the name of the person who just walked into the room-especially if I needed to introduce them!  Now I just ‘fess up and say, “I’m so sorry, my brain is on overload right now, could you tell me your name again?”

So for those among us who are wondering if they are going crazy, I’m posting this entry again.

I’m looking right at her.

know her.  In fact, I’ve known her for years.  But please don’t ask me her name.

I have no idea.

Read the rest here:  Grief Brain: It’s a Real Thing!