Why is Anxiety Part of Child Loss?

It surprised me when I felt anxious after Dominic ran ahead to Heaven.

Not that the doorbell startled me, or that passing the place of the accident was hard nor that hearing motorcycles made my skin crawl.

But that every single day for many, many months anxiety crept up my backbone and made a knot in my neck.

It surprised me that I felt like I was literally going to explode.  I would walk and walk and walk just to push the negative energy out of my body.

I was also surprised by what seemed to be random triggers-smells, sights, foods, voices, places-that could send me into a tailspin of rapid heartbeat, hurried breathing, sweaty palms and a feeling of abject terror.

I didn’t know it then, but my experience is common.

It shouldn’t be surprising, really.

We all operate in the world as if it is predictable, as if it follows rules.  It’s how we stay sane.

If our minds perceived that most of what we experience has at least a small element of the random, we would sit frozen, terrified to move.

Who can live in a world where you never know what to expect?

When Dominic left this life suddenly, unexpectedly and without warning, my sense of safety and order was violated.

The illusion of control was stripped away.  The grid through which I viewed the world was ripped to shreds.  What I thought I knew about how things worked was proven unreliable.

Truth is, I never really had all that much control, but burying Dominic made that undeniably obvious.

This brutal disruption in worldview created a kind of internal panic.

I wasn’t conciously aware of it at the time because I was overwhelmed with sorrow and the pain of loss.  But my mind was trying to wrap itself around a new understanding of how the world works.

I needed to learn to live in a world where I couldn’t predict outcomes, I couldn’t guarantee safety (even if I did everything “right”) and I couldn’t REALLY plan for tomorrow because tomorrow might very well never come.

I had to figure out how to get out of bed instead of cower under the covers. To get in the car instead of stay at home.  To continue to love the people God gave me even though they may be taken any time.

Anxiety is an outward expression of the inward reality of this disruptive process. My body was screaming what my mind was silently sorting out.

As I have worked on incorporating my experience of losing a child into my worldview, the anxiety has decreased.

I don’t expect to ever live free of anxiety again-how can I when I know by experience what most people only imagine?

But I’m learning ways to deal with it when it rears its ugly head.

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And I’m learning that every time I triumph over it, I’m stronger and better able to do it the next time.  

courage-dear-heart

 

 

 

Of Flying Geese and Calling Courage!

Geese flying over my place form a wobbly “V”.

They call out to one another as they go and remind me that we all need help to hold it together.

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I imagine that the stragglers in the flock want to give up.

Even instinct is not enough to overcome exhaustion.

I see it in my goat herd too.  Wandering from weed to weed one or two inevitably miss the cue to move forward because their heads are down when the rest move on.

My favorite doe looks up and realizes she is alone.  She bellows, begging the others to let her know which way to go.

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Alone is hard.

Alone is scary.

And alone leaves me vulnerable to attack.

Every one of us, even the introverts and the boldly solitary, need to know that we are not really alone.

Left to myself, I’d give up. But with help, I can go on.

I’m so thankful I am not alone in this journey.

Not thankful that others know the pain of burying a child, but thankful that in our mutual loss and sorrow, we come together and cry “Courage” to one another.

I know when my race is through the ones who journeyed with me will be a huge reason I made it across the  finish line.

That’s why I’m here.  

That’s why I keep showing up.  

Writing every day is a challenge.  Sometimes the words are hard to find.  But I’m committed to continue calling out as long as I have breath.

You. are. not. alone.  

courage-dear-heart

 

 

 

I’m Not, but He IS

Even when I can’t see Him, He is near.

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Even when I don’t feel it, He is loving me.

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Even when my strength is gone, He is sustaining me.

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I am not strong, or smart, or brave.

But He is Strength

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and Wisdom

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and Courage!

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Courage is a Heart Word

Courage is a heart word. The root of the word courage is cor – the Latin word for heart. In one of its earliest forms, the word courage meant “To speak one’s mind by telling all one’s heart.” Over time, this definition has changed, and today, we typically associate courage with heroic and brave deeds. But in my opinion, this definition fails to recognize the inner strength and level of commitment required for us to actually speak honestly and openly about who we are and about our experiences — good and bad.

~Brene Brown

I grew up in the Deep South where ladies were supposed to keep silent about anything “unmentionable”.

Problem is, that included many things that SHOULD be spoken aloud.

Because a conspiracy of silence forces those who are suffering to hide.  It creates huge gaps between what goes on behind closed doors and public image.

And it causes those who are wounded to question the authenticity of their own experience.

In recent years we have dragged many topics into the light.  We’ve made space in the public square for discussion of things we used to pretend didn’t exist.

But life after child loss is still a hushed topic.

The long road to healing after burying a child is rarely acknowledged outside the community of bereaved parents.

The FACT that as long as I live, my son’s absence will be a shadow trailing me, the burden of sorrow will slow my steps, the heartache of missing will shape my world is glossed over and set aside.

I understand why.

It is scary to speak aloud what you hope will never happen to you.  It’s unbelievably frightening to admit that we really have no control over whether, or when, we or the ones we love might leave this world.

But I am not going to keep silent.

Not because I want pity or special treatment, but because I want that parent who just buried his or her child to know that you. are. not. alone.

I want you to know that what you are experiencing is not unusual.

I want you to understand that the horrible pain you feel is absolutely normal.

And I want you to be assured that you are NOT Crazy!

I will tell my story because even though it is hard, it matters.  And even though it hurts, it can help heal another.  And even though it isn’t finished, it can blaze a trail for others to follow.

Join me, be BRAVE, tell yours.

 

 

More Grieving Hearts-What Grieving Parents Want You to Know

Two weeks.

Two families added to the roll call of those who have lost a child-suddenly, without warning.  

Two more sets of parents, grandparents, siblings, cousins plunged beneath the sea of sorrow.

And those are only the ones I know about-the ones whose lives touch my own.

Every day we are shoulder-to-shoulder with people carrying a load that threatens to undo them.  If you haven’t experienced child loss you probably think you can imagine how it feels.

I know I did.

But I was wrong.

THIS is what it feels like:  What Grieving Parents Want Others to Know

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Keep On Keeping On

The months roll by, the calendar pages turn, soon school will be back in session and you are still not here.

Sometimes I think I have figured out how to do these days that remain between now and when we will be together again.  

And sometimes I realize that I haven’t.

Today is one of those days.

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I miss you.

I love you.

 

 

I can’t round a corner without thinking of you and wishing this was not my life.

But it is.  

So I’ll keep on keeping on.  Just like you would want me to.

Just like you would do.

Even when it’s hard.  

And some days it is so very hard.

Monday Musings

It’s my habit to watch the sun rise.

Even on Monday mornings.

Even when I might rather stay in bed.  

Because every time the sky lightens from black night to bright day I’m reminded of two things:  

loved by the one in control

 

 

I am not in control.  

But God IS.

I can’t stop the world turning and I can’t make the sun rise.  

 

But I don’t have to-I am not responsible for the big picture.  I am not in charge of making all the pieces fit just-so.

My duty is to be the piece I was made to be.  

To go where God sends me.  

To do what God has for me to do.

 And to leave the rest in His hands.  

There are times I want to be in control, but it doesn’t last long.  I quickly realize that I can barely keep myself in line, much less anyone else.

you are more

 

And when I let go, I am free.  

I am free to be the me God has made me to be.

I free those around me to be the persons God has made them to be.  

And that’s worth waking up to.

Who’s Holding on to Whom?

I have three surviving children.

And every time I don’t hear from one of them when I expect to or I can’t reach them on their cell phone I have to take a deep breath and speak truth to my heart.

God began to do a good work in you. And I am sure that he will keep on doing it until he has finished it. He will keep on until the day Jesus Christ comes again. Philippians 1:6 WE

 

I have to talk myself out of plunging headlong off the precipice of dark “What ifs” that is always at the edge of my concious thought.

 I have to remember that even when I am right there with them, I am not in control.

I am not the one who orders their days and determines their steps.

You see all things; You saw me growing, changing in my mother’s womb; Every detail of my life was already written in Your book; You established the length of my life before I ever tasted the sweetness of it. Psalm 139:16 VOICE

all my days written

Losing Dominic suddenly, unexpectedly and violently has shaken my faith. All the verses I recited and underlined and “claimed” now bear witness against my doubting heart.

So I remind myself that God had a plan, He has a plan and that He worked His plan through Dominic and is now working it through me.

“Now when David had served God’s purpose in his own generation, he fell asleep; [and] he was buried with his ancestors” Acts 13:36 NIV

Here I am, a bit more than two years later, and I can say this:

If my grip on Jesus was the determining factor in staying connected, I would have fallen into the pit long ago.  If MY hold on hope decided whether or not the rope slipped through my hands, I would be lost.

But while I can muster the strength (sometimes) to grab desperately at a thread of His garment, I am not the one who holds Him.  He is the One who holds ME.

no one can snatch them

Jesus said:

“I give them eternal life, and they shall never lose it or perish throughout the ages. [To all eternity they shall never by any means be destroyed.] And no one is able to snatch them out of My hand.”

John 10:28 AMPC

I still have work to do, and I don’t want to be immobilized by fear of what might happen.  I don’t want to waste the days that I am given by worrying about the ones that might be taken away.

gods workmanship good works

For we are God’s [own] handiwork (His workmanship), recreated in Christ Jesus, [born anew] that we may do those good works which God predestined (planned beforehand) for us [taking paths which He prepared ahead of time], that we should walk in them [living the good life which He prearranged and made ready for us to live]. Ephesians 2:10 AMPC

So I recite truth to my heart.  

I sing courage to my spirit.

I remind myself that while  I am not in control, but I am loved by the One Who is.

loved by the one in control

 

It’s Complicated

One of the things I’ve been forced to embrace in the wake of child loss is that there are very few questions, experiences or feelings that are simple anymore.

“How many children do you have?”

A common, get-to-know-you question lobbed across tables, down pews and in the check-out line at the grocery store.  But for many bereaved parents, it can be a complex question that gets a different answer depending on who is asking and where we are.

I decided from the beginning that I would say, “four” in answer to that query.

But that doesn’t always get me off the hook.  A follow-up of, “Oh, what do they do?” means that I have to make a decision:  do I go down the line, including Dominic in any kind of detail or do I gloss over the fact that one of my children now lives in heaven?

I try to gauge whether or not the person is deeply interested or just being polite. No sense making them feel uncomfortable if they are really only making chitchat.

All of these calculations flash through my mind in an instant but they are distracting and draining.

“Want to go to a movie?”

Maybe.  

First I have to look up the plot (something I never did before because I didn’t want to ruin it).  I can’t be stuck in a dark theater in the middle of a row full of people with no way out if larger-than-life there will be anything that sends me back to Dominic’s accident.

Same standards for television shows or books-but it’s easier to turn those off or set them down.

Sitting in church can be excruciating.  

A hymn or chorus, a Bible text, a random statement from the pulpit-any or all of those things can lead my thoughts down a path that takes me to a dark place where sorrow is overwhelming.

No matter how much I long to listen and participate, I find myself literally biting my tongue so that I don’t burst into loud sobs.

It doesn’t happen every Sunday, but I never know when it might.

Social media is an emotional minefield.  

first world problems

 

I confess that in the first days after Dominic left us, I had to limit the posts that showed up in my Facebook newsfeed.  It was too difficult to see complaints about children growing up or graduating and how hard it was to “let them go”. I could not take whiny status updates that included having to wait in line for the new iPhone.

It’s easier now that my grief isn’t so raw but there are days…

Making a meal, I reach for his favorite ingredient or leave something out because “Dominic doesn’t like it that way” and then I remember he won’t be here to eat it.

waves of grief

 

Music can transport me to a moment of joy or pain with a single note.

Sometimes I walk in a store and smell coffee-he loved coffee-and I have to turn around and leave.  Other times the fragrance draws my mind to sweet memories of shared Starbucks runs for a caffeine infusion.

 

If you ask me to do something next week or next month, I might say, “yes” and then find on that day I just. can’t. go.  

I used to be a woman who lived by her calendar and commitments, but now I’m someone who never knows what a day will bring.

Learning to live with this changed me is an ongoing process and exhausting at times.

So much energy is used up negotiating what used to be simple things that there’s not enough left for pursuing new interests or delving deeper into old ones.

I’m trying to reach equilibrium.  

I long for a time when simple things are simple again.

But I don’t think it will be today.

courage doesn't always roar