Child Loss: Missing The Family I Thought I’d Have

I miss a lot of things since Dominic ran ahead to Heaven.  

I miss HIM-his deep voice, his perspective and his thump-thump-thumping down the stairs and the rhythm of who he is.

And I miss how his absence has reshaped the family I thought I’d have.  

Raising four children, investing my time, heart and energy into who they were turning out to be, I naturally projected into the years ahead.  All that love poured into them would create a legacy we’d all enjoy.  Marriages, careers, grandchildren and experience would blend together into a (if not perfectly harmonious) at least a shared future.

desimones uab family

I never imagined turning a calendar page without one of my children to turn it with me.  

Dominic’s death has touched each one of us.  His missing is as powerful a force as his presence.  We are absolutely NOT THE SAME as we would have been if he were still here nor as we were when he was still here.

When Dom first left us, I was primarily mourning HIM.  I still miss him like crazy.  

But a lot of my mourning during the past twelve months has been for the family I thought I would have.  I see each of my surviving children are processing Dominic’s absence in ways that influence their decisions.

In some ways it’s beautiful-I see twenty-somethings and thirty-somethings making choices with wisdom way beyond their years.  In some ways it’s brutal-they set up safeguards because they know by experience that leaving the house doesn’t always mean you return. 

They have back up plans for everything.

Which wasn’t something I even thought about when I was their age.  

My husband and I expected to drift into retirement years full of energy and vigor.  Much of that has been stolen from us by child loss too.  Oh, how we long to be the fun grandparents, the traveling duo, the footloose crazy pair but it’s much more effort than we anticipated.

Sometimes we can’t muster that energy at all.  

I know some changes were inevitable. 

Dominic’s death coincided with a natural progression toward an empty nest.  I’m not a helicopter mama and I’ve always said my goal was to raise children who could function well without me so I think that as much as possible, I prepared my heart for them to grow up and grow apart.

But in addition to normal changes, there’s an utterly unnatural and unwelcome transformation from nuclear family to brokenhearted family.

I am so, so thankful that we have chosen the hard path of running toward one another instead of running away.  

I’m grateful that we have grown from five left behind to a table for seven-a new spouse and a precious grandchild. 

I do not take a single second for granted because I know that seconds are not guaranteed.  

But I sure wish Dominic were here to share it with us.  

dominic at olive garden

Priceless

Circumstances have made me thoughtful lately.  

My grandson’s premature birth, my daughter’s wedding and our personal season of unwelcome milestones have reminded me that life is short.  

And then a Facebook friend shared this meme:  

a rich life has nothing to do with money

My heart cried, “Yes!”

It’s so, so true.  

What we will value most in our vulnerable moments and in our last moments won’t be anything we bought at a store (or online).  

It will be relationships. 

The people we love and who love us are the true treasure of a life well-lived.  

They are priceless.  

life approved by others award

Twenty-Three Years, Ten Months, Fifteen Days and Holding

Today would be Dominic’s twenty-ninth birthday.  

Except it isn’t.  

Because I have absolutely NO IDEA if anyone is aware of the passage of time in Heaven or if birthdays are even a thing there.

So instead of celebrating another year with my third born, I’m celebrating the years I had with him-too few as far as my heart’s concerned.

I am oh, so thankful for the time I had.  

But my heart cries, “More! More!”

I’m no good at this “birthday in absentia” thing.  This is the sixth time May 28th has rolled around without Dominic here to eat cake, open presents or break his usually strict dieting rules and gobble down pasta.

IMG_2637 (1)

A couple of years I’ve purchased a cake in secret at a local bakery for a child that shares Dom’s birthday.

Most years I’ve quietly remembered the events leading to his birth including what now feels like a prescient experience:  my obstetrician’s nurse came into the room as I was waiting for a C-section delivery and whispered, “Dr. H is here, but his daughter completed suicide yesterday”.  *

When they brought Dom close to my head so I could kiss him before they whisked him away and sewed me up, tears streamed down my face.  I really had NO CLUE, but I realized (in a tiny way) that this man was here ushering life into the world as his own heart was breaking for a life that was no more.

All I could say was, “Thank you!  I am so, so sorry.”

And I meant it.  

Now I know what it cost him to be there.  What it cost him to see a family made larger at the moment his (earthly) family had been made smaller.

This year we are at my oldest son’s home savoring the first precious moments holding our grandson.  Born too early, his story could have ended badly.

It didn’t and for that I am thankful.  

Ryker’s original due date was May 27th-one day before Dominic’s birthday.

It’s fitting that we have a new life to celebrate even as we celebrate missing Dom.

I’ll be honest, I don’t know how to merge these two lives, these opposite feelings, this joy and sorrow meeting in my heart.  

I vacillate between overwhelming sadness and overwhelming gratitude that my grandson’s story is beautiful, remarkable, nearly miraculous.  

So today I will try to honor Dominic-who he was, who he still is (even more so and perfectly in Heaven!) and the precious gift of another generation to love, nurture and cherish.

I’ll try to lay aside the awful knowledge I carry in my heart that any day things can change.  What you never think can happen DOES happen.

I’ll celebrate love.  

Because love lives forever.  

Always. 

they know love lives william penn

*Dominic was killed instantly in a single vehicle motorcycle accident April 12, 2014.

Grief is a Family Affair

Child loss is also often sibling loss.  

In addition to their own heartache, bereaved parents carry the heartache of their surviving children.  

The family everyone once knew is now a family no one recognizes.  Hurting hearts huddle together-or run and hide-and it is so, so hard to find a way to talk about that pain. 

There is definitely a time and place for professional counseling.  Many, many families benefit from having a trained individual, outside the immediate grief circle, guide them in exploring feelings, developing coping strategies and learning to live life this side of loss.

But there is also something to be said for arranging casual open-ended activities with surviving siblings, parents and even grandparents where space and a more relaxed atmosphere often leads to honest sharing.

This graphic has lots of excellent suggestions for how to craft such a space.

Not all will be suitable for every family, but every family should be able to find a few that fit.

I’ll add these guidelines that may help your family make the best choice for YOU:

  • Don’t force it.  If you make an offer of an activity and it drops with a thud to the ground, let it go.  You might be able to do it another time.
  • Don’t make it (what my kids like to say!) a “mandatory option”.  There must be no guilt or coercion invading this space.  If one or more of your family members consistently refuse to join in, consider asking a close family friend to take that individual out alone and see what might be going on.
  • If you choose a movie or other story-themed activity, LOOK UP THE PLOT!  I can’t tell you how many times we were sideswiped by a death scene or some other heavy emotional plot twist.  There may be a time when your family is prepared to experience those things together (we can now) but it may not be yet.
  • Mix and match more structured activities with open-ended ones like walks outside, watching the sunset, sitting on the beach, hanging at the pool, playing a game (not too competitive-that will sometimes bring out hidden anger).
  • If you have a family with a broad range of ages you might have to do some things with the littles and some with the older kids.  You can always add one or two activities a month or quarter where everyone (or as many as are available) gets together.
  • If your children, spouse, parent or other close griever begins to talk-let them.  If tears flow-that’s progress!  If ugly feelings are expressed, listen.  Try not to be defensive.  Try to hear the hurt behind the words.  It’s OK to set ground rules like using “I” statements and not blaming.  But don’t shut them out or shut them down.  

These are just ideas.  

Google is your friend and your phone is probably already in your hand or pocket-use it.

Find things that fit YOUR family. 

The only way through is through.  

You have to feel and deal to heal. 

selfcare for families

Wedding Day!

Today is the day!

All the preparation and anticipation meet under a covered outdoor chapel as my daughter and her fiance exchange vows and become one.

By the end of the evening, we will have laughed (and cried!), danced and toasted our way through this very important event.

And they will leave changed in ways they can’t imagine nor fully understand.  It takes time to grow into lifelong commitment.

It takes years for singleness to be sanded down to a perfect fit one for the other.

Weddings are fun.  

Marriage is work.  

My parents have been married for 58 years.  My husband and I for nearly 35.  None of us has a magic formula for marital longevity.  Mostly it’s been leaning into the commitment we made at the altar so many years ago even when it seemed easier to give up and give in.

We’ve all faced so many challenges in our decades together.  Some we saw coming and some landed suddenly on top of us without warning.  Life, death, moving house, illness, accident, floods, hurricanes, and dozens of smaller crises have forced us to change course, adjust our sails and adapt to new and often unwelcome directions.   But we haven’t abandoned ship.

Sometimes it’s been pure grit and determination that see us through.  Other times it’s holding on to the good things we’ve shared together.  

I’m thankful we are celebrating today.  

I’ll be tucking this memory in a safe place where I can pull it out on days that aren’t so beautiful.  

It’s my prayer that Fiona and Brandon do the same.  

fiona and brandon at farm

When life gets hard (and it will!) may they remember the promises they made to one another and weather the storms together.

Now this is the reason a man leaves his father and his mother, and is united with his wife; and the two become one flesh.

Genesis 2:24 VOICE

 

 

Child Loss by Addiction

We talk about a lot of things as if they didn’t reflect a real person and a real life.  

Addiction is one of them.  And let me just tell you, every single number is a life and behind every single life is a family.  

Statistics are easy to toss around until one of those numbers represents YOUR child.

My son was killed in a single-vehicle motorcycle accident.  One of the 76 individuals who died on a motorcycle in Alabama in 2014.  If you look it up, you’ll find tables printed with clean edges and comparative data one year to the next.

But if you look at me-and hold up a photo from BEFORE-you’ll see grief etched into a mama’s face that can’t be measured, sifted or weighed.  

My son was not an addict.  He was a health nut.  But he liked his motorcycle and never saw the contradiction between spending hours at the gym then putting that beautiful body on a fast moving, unprotected engine-on-wheels.  A helmet was not enough to save him that night.  

Addicts don’t start out wanting the life so many of them end up living.  They take a puff or a pill or a drink and think it’s all in fun.  They have no way to know that the one moment of weakness or even purposeful exploration may result in a lifetime of struggle.

Once caught in the cycle of craving and crawling out and caving again they may or may not eventually find the light.  They may or may not become sober for the rest of their days.  They may or may not have the inner strength, the outside support, the medical intervention and inpatient treatment they need to conquer this demon.

And it is a demon.  

Addiction is never a choice even when the first indulgence into drugs or alcohol is.  

no idea of the battle addiction quote

Parents living with addicted children do everything they can to guide them to help.  They try tough love, abundant grace, boundaries, threats and rewards.  Some even move their families to try to escape habitual influences on their child-hoping against hope that a new place and new friends will create a safe space where addiction can’t flourish.

It rarely works.  In the end, addiction takes too many of our children.  Addiction kills.

And the wreckage left the other side of those deaths is enormous.  It’s messy and ugly and hard to sort through.  

The one thing NO parent of an addicted child needs is someone else’s misguided advice on how they could have “saved” his or her child.  They don’t need quips about “seeing it coming”.  They don’t need anyone to heap shame on them because of the choices their child made and the disease that robbed them of choice in the end.

So when we talk about addiction and numbers and treatment and responsibility and especially death, we need to remember that every single statistic is a person. 

Every single person has a family.

And that family is devastated.  

Speak gently.  Extend grace.  Offer love.  

They already know shame.  

shame for being human

I Know Why My Story Scares You

At first all I could feel was pain.

Pain of abandonment, of being misunderstood, of being pushed to the outside edges of groups that used to welcome me with open arms.

But as time passed, I began to understand.

My story scares you.  You are utterly afraid that if child loss can happen to ME, it can happen to YOU.

You’re right.

It CAN happen to you.

And no one wants to be reminded that the one thing every parent fears is not nearly as impossible nor as predictable as we would hope it is.

From the minute we take that baby home from the hospital, safely tucked in the approved and properly installed car seat, we assume we can control the future.  We think that if we eat right, get regular check ups, cover outlets and sharp corners, remove choking hazards and stuff that little mouth full of organic and healthful treats, it’s all good.

Except no one can account for random.  No one can see undetected and unsuspected genetic defects.  No one can predict or protect against every way a child might leave this life before his or her parents.

But we absolutely, positively do not want to think about that.

I don’t blame you.

I didn’t either.

So I understand why you distance yourself from me.  I get why even my presence in a room is sometimes uncomfortable.  I am not upset that you don’t add my name to the invitation list when the occasion is happy and you are afraid I might cast a shadow over the celebration.

I’m a walking advertisement for your worst nightmare.

You can afford to ignore it-and me.

I don’t have that luxury.

cant-fix-it-my-family-is-always-achingly-incomplete

 

Bitterness Is A Terrible Legacy

Oh, how easy it would be to become bitter!  

If I’m honest, part of me just wants to tell the world to “Get lost!”. 

But the wiser part of me knows that’s neither a helpful nor healthy response to even this most awful burden of child loss.  

Lament is how we bring our sorrow to God. Without lament, we won’t know how to process pain. Silence, bitterness, and even anger can dominate our spiritual lives instead.

~Mark Vroegop – Dark Clouds Deep Mercy

Because my bitter spirit wouldn’t stop with me.  It would spread like kudzu on an Alabama roadside.  

kudzu field huff post

The writer of Hebrews warns against this very thing:  

Be careful that none of you fails to respond to the grace which God gives, for if he does there can very easily spring up in him a bitter spirit which is not only bad in itself but can also poison the lives of many others.

Hebrews 12:15 PHILLIPS

There is sufficient grace for even this. 

But I can refuse it.  

It’s a choice every single day. 

Do I embrace the grace God freely offers or do I turn my back and embrace bitterness?  Do I lean in to every promise of God in Christ or do I listen to the enemy of my soul who whispers, “Did God REALLY say….?” 

Woman hands praying with a bible in a dark over wooden table

Bitterness never ends with one person.  It spreads.  It grows. 

It ruins lives and relationships and generations.  

We all know families where it has taken root.  We all know old folks whose faces are frozen in frowns and who rarely speak except to pass along their spiteful comments.

I may not get many things right.  I’m pretty sure I get quite a few things wrong.  

But I don’t want to mess this one up.  

Bitterness is a terrible legacy.  

I refuse to pass it on.  

lifetime of unexplored resentments brene brown

How Can It Be Five Years??!!

We all experience it from time to time-that moment when your head comprehends that life has kept going but your heart refuses to keep pace.  

So today, I’m looking at a calendar that assures me it has been five years since that deputy knocked on my door. 

It’s a fact.  

My heart says, “It cannot be true.  It cannot be that long since I saw my living, breathing son cross the threshold of our family home.  It cannot be that long since I made the phone calls that still echo in my ears.  It can. not. possibly. be. that. long.”

And yet it is.  

If folks ask me how I’m doing, how my family is doing, I usually say we are OK.

Because, all things considered, we ARE. 

beach-and-family-better

None of us find daily life unmanageable.  None of us have fallen prey to addiction or unhealthy coping mechanisms.  None of us sit inside all day, moping and mourning the loss of a life we couldn’t hold onto even if we had seen it slipping away in time to take a firmer grip.

But we are absolutely, utterly, profoundly CHANGED.  

I often think back to old Star Trek episodes that showed crew members transporting to the surface of an unknown planet.  Their bodies were broken down into the tiniest component molecules and reassembled somewhere else.

I think that’s what this life is like. 

We’ve all been disassembled and reassembled. 

But instead of everything falling back into place, there are missing bits here and there, gaps too small for others to see but very, very real to us.  Connections lost.  Memories without proper context.

dont recognize myself without one of my sons

Feelings floating free of any anchor, bubbling up at the most inconvenient moments.  

And we all just plain MISS HIM.

We miss Hector Dominic DeSimone and who he is, what he brought to the table and car rides and family gatherings.

We miss who we were before we knew loss that burrows deep in your bones.  We miss the unmitigated joy and celebration we could toss around like confetti at the slightest provocation.

So today, unlike most days, we will give in to the sorrow.  We will remember that morning.  We won’t brush away the tears or the sad memories.  

He is worth every second and every heartache.

He is never forgotten.  

He is always, always on our minds.  

IMG_1790

 

 

Life is a Gift-Celebrate! Every. Single. Day.

I have never been a crystal and china kind of gal.

I got a few special pieces when my husband and I married, but most of the things in my home are durable and useful.

So I don’t have many things tucked away for special occasions.

I’m glad that when my kids were young we made even ordinary days special by setting the table, using candles, cloth napkins, real plates and mugs for meals.

We foolish mortals sometimes live through years not realizing how short life is, and that TODAY is your life.
― Edith Schaeffer, The Hidden Art of Homemaking

I’m especially thankful this side of child loss that our memories include making many regular days wonderful by choosing to celebrate the smallest moments. 

I have an inexpensive set of Chinese plates, soup bowls and porcelain spoons I bought from a mail order catalog way before the Internet, much less Amazon.  It gave my homemade sweet and sour chicken an air of authenticity (and it was fun!).

When December rolled around, we ditched our everyday plates for Christmas ones we used for meals and festive coffee mugs that held everything from morning coffee to the evening’s soft drinks, tea and hot cocoa.

Birthdays, holidays and regular days were all reasons to make merry and make memories. 

I’m so glad we didn’t set things aside because they were too dear for everyday use.  

Life IS a gift. 

Celebrate it.

dont save for special occassion