Strong or Weak? How Labels Harm the Hurting

Labels and categories can be helpful.  When cruising the grocery aisles I’m thankful for the signs that point the way to “vegetables” or “baking needs”.

But labels can be harmful when applied to people.

label-jars-not-people

Thankfully public discussion rarely includes some of the ugly words  I heard growing up.

And that’s a good thing.

It means we are free to talk about the things that really matter without having to clear the hurdle of offense.

This trend has yet to take hold in wider circles when speaking about or speaking to bereaved parents and other hurting people.

From the outside looking in, we tend to classify struggling hearts as either “strong” or “weak”.  We apply standards based on our own experience and background to determine whether or not a particular soul is “handling it well” or “crumbling under the stress”.

The problem with labels for hurting people is that it puts extra pressure on them and lets those around them off the hook.

heard-stories-but-not-know-heart

You probably mean it as a compliment when you say, “You are so strong”.

But I know it’s not true-I’ve gotten very good at holding it together in public and at saying all the right things when I meet folks on the street.

I can look you in the eye, recite answers to the question of , “How are you doing?” by focusing on the current status of my surviving adult children. What you probably won’t notice among the well-rehearsed lines is I never share my heart-I never tell you how I FEEL.

If I opened that vault there’s no telling what might spill out.

You walk away confirmed in your opinion that I am doing well, that I no longer need any active encouragement or ongoing prayer.  I’m off the “ministry list” because I am past the point of crisis and doing just fine.

Or you may see me at a vulnerable moment and think, “She’s weak” or “She’s really struggling”.

I AM weak and I DO struggle.

If you are tired of hearing about the ongoing struggle, how tired do you imagine I am living it?

If you wish I would “get over it”-how much more do you think I wish it never happened?

You may give up because it’s too much trouble to keep reaching out.  You may tuck me in the basket of lost causes because you think I’m not committed to keep trying.

It’s easy to draw a line in the sand and decide that you will go thus far and no farther in extending help or encouragement or grace because you CAN walk away.

But I am not a lost cause.

Each day Jesus meets me in my weakness and brokenness and gives me the strength I need to carry on.

And He often does this through people-people who choose to walk alongside and not label me or my journey.  People who are committed to continue even when they are tired of helping carry the burden and sick of hearing my story.

Graceabundant grace-given and received is what makes life livable.

Love, not labels is what I need.  

It’s what everyone needs.

never-forget-the-ones-who-helped-me-through-grief

 

 

Accommodating Grief

The doctor I see every six months or so for my rheumatoid arthritis always fusses at me.

One of the routine questions is, “How’s your pain level?”

I usually say, “About a three.”

And then she looks at my hands and my feet-at the swollen joints and twisted toes-and shakes her head.

But here’s the deal:  sure they hurt, sure I can’t do all the things I used to do, sure I have to do many things differently than I did them when my hands and feet were unaffected by this disease-but I’m STILL moving and doing what needs to be done.

I don’t really know how to do anything else.

And that’s how it is with this grief I lug around-it’s heavier some days than others-but I’m STILL moving and doing what needs to be done.

fall still moving.jpg

This is not the life I thought I would be living, but it’s the life I have.

So I make accommodations for my sorrow just like I make accommodations for my hurting hands and crooked toes.

  • I try not to over-schedule my days.  If I have an appointment I mark it on the calendar and refuse to pile other commitments on top of it.  That way if I’m wiped out I have some built in down time.
  • I prioritize what needs to be done.  Whether it is for a week or a day, I jot down a list (still using paper-but a phone would work) and then decide what are the two or three MOST important tasks that must be done in that time frame.  If I find myself running behind because it’s a hard grief day (or week), I can quickly make choices that ensure the needful things are done and the others laid aside for when I have more energy to do them.  I’m less anxious about what I don’t get finished because I know I did the most important things first.
  • I build rest into my days.  When I’m overtired, I’m more susceptible to grief attacks. I pause every now and then to sit or take a quick walk outside or simply change my work from detail-oriented to broad strokes.  I have more flexibility because I work at home but even in an office it’s possible.  My husband walks every day on his lunch hour-sunshine and physical activity make his afternoons easier to bear.
  • I ask for help. When I’m drowning in grief, I reach out for a lifeline.  There’s no shame in asking for help.  I have a good friend that I can text or call anytime I need to and ask for prayer or a listening ear.  I belong to a couple of online grief groups and they are full of people who understand my pain and will lift me up in prayer and encourage my heart when it feels especially broken.
  • I accept my limitations.  My toes don’t allow me to wear beautiful shoes anymore so I’ve learned to wear what fits instead of what’s in fashion.  I am not the same person I was before I buried a child so I’m learning to live with the new me.  I don’t like crowds.  I don’t like unexpected change.  I feel anxious in unfamiliar places and around strangers.  I make choices that limit my exposure to those things when possible.
  • I shake off the really awful day.  I can’t help that some days take a nosedive into terrible as soon as I leave the bed. I admit that grieving is hard, that it will continue to be hard.  But I won’t let my worst days be my only days.

I am not in control of everything, but I can control some things.

I would not have chosen this life for myself, but I can make choices that help make it bearable.

losses-and-choices-nouwn

 

 

 

Relentlessly Forward

The sharp shard stabs deep when I’m unprepared.

Drifting off to sleep

Driving down the road

Doing the laundry.

He’s not here.

He’s not coming back.

His living presence is taken from me.

His smile,

Unseen.

His voice,

Unheard.

His arms,

Out of reach.

Untouchable.

And the gap widens every day

Between the last time and this moment.

No way to slow it down.

No path to go back.

pencil-drawing-bereaved-mother

 

 

Repost: There’s a Hole in my Bucket

 

I was talking to my husband the other day about how hard it is to describe the ongoing difficulty of living with child loss.

And this song popped into my head….

There’s a Hole in My Bucket

Confluence

Like most parents who have buried a child, a line is drawn through my life.

April 12, 2014 changed everything.

Whenever I hear a date or a memory drifts across my mind, I think, “that was so many days, months or years BEFORE or AFTER Dominic left us”.  I can plot events on a calendar like I’m making a history timeline.

Put this one here and that one there. It seems so simple and straightforward 

But daily life is much more complex.  

I live in a world where “before” and “after” run together in a mighty torrent.  And I can’t control the way they mix and churn.

river-rapids

These past few days I’ve been pet sitting for my eldest son, James Michael,  and my daughter-in-law while both are out of town for work training.

They just moved from North Carolina to Florida and are still unpacking.

packing-boxes

So while I’m here I’ve been helping to put things away and clear the boxes.  I decided that working in the office was a good place to start-I figured I couldn’t do much damage by putting books on shelves and pens in cups.

None of these things belonged to Dominic.

But as I opened the boxes I was flooded with memories.  

I found a scrapbook my daughter made for JM’s high school graduation-filled with photos of my three boys-years upon years of adventures, goofy faces, travel and achievement.

Another box held my son’s old Bible with a couple of church bulletins tucked inside.  I was tossed back to the time when we all sat in the same pew, strong voices blending in worship, hands together in service-when I could not have imagined we would be one less-I only dreamed then of adding to the family, not taking away.

There was the graduation program from Auburn School of Veterinary Medicine.

james-michael-grad-auburn

Just weeks after burying Dominic we were celebrating the culmination of four years’ hard work.  It was supposed to be a rip-roaring party, but it was a quiet dinner instead.  

And then onto the mementos marking James Michael’s transitions since then:  from single to married; from sheriff’s deputy to Air Force captain; from West Virginia to North Carolina to Florida.

All important events that were missing Dominic.

Celebrations and achievements that were a bit smaller because we are fewer.

Even as nostalgia swept over me, excitement also filled my heart because James Michael and his wife were beginning a new chapter.

I was happy to be helpful.  

Encouraged that I could be of use in this season where many times I feel useless.

And I thought about rivers-rivers of time, of memories, of experience and of dreams.

Confluence:   a coming or flowing together, meeting, or gathering at one point, especially of two rivers of equal strength.

This is where I find myself right now-swimming, drifting, sometimes drowning in the rivers

of “what was”

and “what is yet to be”

as they join in the “right now”.

 

 

 

Subtitles

My husband is the child of immigrants.  And even thirty years after coming to America, my in-laws preferred their native Italian to English.

italian-village

So when we would be in a crowded room, comments flying, I struggled to keep up with what was being said because I didn’t speak the same language.

As the years went by and our relationship deepened, I realized they had the same struggle when I would try to communicate complex truth in English.  It wasn’t their heart language and some things just didn’t translate well.

Sometimes feelings got hurt because what one of us thought we were saying was not what the other person heard.

Subtitles would have been useful.

The other day in an attempt to keep my unwell body in a chair, I pulled up Amazon and picked a movie.  It was in French with subtitles.

I thought, “I’ll try it.”

But as the movie went on, I realized that I was unable to give full attention to either the action of the movie or the subtitles that interpreted the dialogue.

It took way more effort than I was willing to commit to what was supposed to be a relaxing couple of hours.

So I turned it off.

Today someone in a bereaved parents group to which I belong asked if anyone else found holidays exhausting.

The comments were a resounding “yes”!

The more I thought about it the more I realized that a big part of what makes it so exhausting is a communication gap.

1538R-61348

I am not the same as I was before burying a child.  

My family is not the same.  

Nothing is the same.

Some of the “not the same” is the gap between my understanding of how I have changed and the lack of understanding by others about how I have changed.

Many friends, extended family members and acquaintances continue to relate to me as if I’m the “old” me. That creates tension and requires energy to deal with-I either have to overlook it, try to help them understand or figure out how to deal with it some other way.

We’re just not speaking the same language anymore.

Sometimes I think subtitles would be helpful.

But even then it would still be exhausting.   

 

 

 

No More “Smile and Wave”!

We live in a world of fake smiles, plastic body parts and cheap knock-offs.  We’re so used to it that sometimes we can’t tell the difference anymore.

It’s part of our relationship patterns too.

We see someone we know out shopping and toss, “How are you?” at them anticipating the obligatory reply:

“I’m just FINE!  How are YOU?”  (Said with a deep southern accent and wide, lipsticked smile.)

shopping-cart-medium

But then something unexpected happens.

She says, “I’m having a hard time.  I’m struggling.  This week has been really stressful.  (Spoken in a whisper, through tears.)

weakness1

And I’m faced with a choice:  

Do I shut her down or draw her out?  Do I recognize the courage it took to be honest or do I dismiss her openness as inconvenient and inconsequential?

 

Me, I’ll take genuine, every time.

I will stop, find a quiet corner and allow her to share as long as it takes.  I will pray or listen or hug or console until the storm passes.

Because that has been, and still is, ME sometimes.

Before Dominic left us, if you saw me in the grocery store you would have gotten the answer you expected.  My eyes on my list, my head filled with the next thing I was going to do when I left with my buggy full, my heart unbroken and whole-who’s got time for chit-chat?

Smile and wave was standard practice as I moseyed on down the aisle.

Not anymore.

There is nothing, NOTHING, more important than people in this life.

compassion and stay with you

If you want proof, ask a bereaved mama.

Because no one knows with more certainty, with more clarity and will tell you with more conviction that MORE TIME  with someone you love is the ONE thing you would give EVERYTHING for-in a heartbeat. 

So I will lay aside things and chores and to do lists.  

I will give up entertainment and ignore the urge to check Facebook or Twitter.

Because the person in front of me is a gift.

And I want to unwrap that gift and be present for every moment.

kindness

Grief and Grace:What I Need from Friends and Family

You cannot possibly know that scented soap takes me back to my son’s apartment in an instant.

You weren’t there when I cleaned it for the last time, boxed up the contents under the sink and wiped the beautiful, greasy hand prints off the shower wall.  He had worked on a friend’s car that night, jumped in to clean up and was off.

He never made it home.

So when I come out of the room red-eyed, teary and quiet, please don’t look at me like I’m a freak.

Please don’t corner me and ask, “What’s wrong?” Or worse-please, please, please don’t suggest I should be “over it by now”.

If you were reading a novel or watching a movie, you’d show more grace.

You would nod in understanding as the main character made choices that reflected the pain of his past.  You would find his behavior perfectly predictable in the context of a life lived with a broken heart.

I can’t control what makes me cry.  I can’t stop the memories flooding my mind or the pain seizing my heart.

I might be OK one minute and the next a blubbering mess. Grief doesn’t mind a schedule.

But there are some things you can do to help:

  • If you are aware of the circumstances around my child’s death, be thoughtful when highlighting similar situations in conversation, in movie choice, in recommending books or news stories.  I bump into reminders all the time, I don’t need to have them forced upon me.
  • It can be particularly hard to celebrate milestones in another child’s life when that child is about the same age as the one I buried.  Feel free to invite me, but give grace if I choose not to attend a birthday, graduation or wedding.  I’m doing the best I can and I don’t want to detract from the celebration so sometimes I bow out.
  • Ask me if, or how,  I would like my missing child included in family gatherings. Sometimes I want his memory highlighted and sometimes I want to hold it close like a personal treasure.  It might be different one year to the next. Just ask.
  • Be sensitive to the calendar.  Make a note of my child’s birthday, heaven day, date of the funeral or memorial service-these are important dates for me and they will be as long as I live.  In the first months, maybe for years, each month is a reminder that I am that much further from the last time I heard his voice, hugged his neck or saw his living face.  Those days are especially hard.
  • Don’t pressure me to move faster in my grief journey.  And don’t interpret a single encounter as the measure of how I’m doing.  Be aware that it is often a two-steps-forward-one-step-back kind of experience.  It is MY experience and will go as fast or as slow as it does.  I can’t even hurry it along even though sometimes I am desperate to do so.
  • Understand that the things I may share don’t paint a total picture.  There are pains too deep, thoughts too tortuous, experiences surrounding my son’s death and burial too hurtful for me to speak aloud.

I admit that I never thought of any of these things until it was MY son missing.

But now I think about them all the timenot only for my sake, but for the sake of others like me. I try to walk gently and kindly, extending grace and love.

And honestly, that’s really all I want from anyone else-grace, abundant grace.

I will be weepy when it’s inconvenient.  I will react when you can’t fathom why.  I will stay away when you want me to come near.  I will make choices you don’t understand.

I am truly sorry.

But child loss is not something I chose for myself, it was thrust upon me.

I am walking this path the best I know how.

When you extend grace and love me through the roughest places it makes all the difference.

heart and wood

Courage is a Heart Word

Courage is a heart word. The root of the word courage is cor – the Latin word for heart. In one of its earliest forms, the word courage meant “To speak one’s mind by telling all one’s heart.” Over time, this definition has changed, and today, we typically associate courage with heroic and brave deeds. But in my opinion, this definition fails to recognize the inner strength and level of commitment required for us to actually speak honestly and openly about who we are and about our experiences — good and bad.

~Brene Brown

I grew up in the Deep South where ladies were supposed to keep silent about anything “unmentionable”.

Problem is, that included many things that SHOULD be spoken aloud.

Because a conspiracy of silence forces those who are suffering to hide.  It creates huge gaps between what goes on behind closed doors and public image.

And it causes those who are wounded to question the authenticity of their own experience.

In recent years we have dragged many topics into the light.  We’ve made space in the public square for discussion of things we used to pretend didn’t exist.

But life after child loss is still a hushed topic.

The long road to healing after burying a child is rarely acknowledged outside the community of bereaved parents.

The FACT that as long as I live, my son’s absence will be a shadow trailing me, the burden of sorrow will slow my steps, the heartache of missing will shape my world is glossed over and set aside.

I understand why.

It is scary to speak aloud what you hope will never happen to you.  It’s unbelievably frightening to admit that we really have no control over whether, or when, we or the ones we love might leave this world.

But I am not going to keep silent.

Not because I want pity or special treatment, but because I want that parent who just buried his or her child to know that you. are. not. alone.

I want you to know that what you are experiencing is not unusual.

I want you to understand that the horrible pain you feel is absolutely normal.

And I want you to be assured that you are NOT Crazy!

I will tell my story because even though it is hard, it matters.  And even though it hurts, it can help heal another.  And even though it isn’t finished, it can blaze a trail for others to follow.

Join me, be BRAVE, tell yours.

 

 

It Takes a Lifetime

I was reminded once again this week how the events surrounding death and burial are inadequate indicators of the profound change that has taken place in the lives of those left behind.

Standing at the graveside of a precious friend’s father, I remembered watching Dominic’s earthly shell lowered beneath the ground.

I was wholly unprepared for the days and weeks and months that followed.

No one had told me it was only a beginningLoving Well: Transitioning From “Good-bye” to Grief