When Your First Thought Is, “Oh No, Not Again!”

Last night I woke to my youngest son’s ringtone at nearly midnight.

I missed the call but when I looked, realized it was the third time he’d tried.  

My heart skipped several beats as I dialed him back only to have it go directly to voicemail.  I tried again and a second later, he answered.

“What’s wrong??!!!”

(Because he never calls me late at night unless something is wrong!)

Julian was downstairs at the front door and needed me to let him in because he’d received some odd texts from his dad- a series of random letters and emojis scrolled across his screen.

He’d tried to call him.  No answer. 

Tried texting him back.  No message except more of the same random letters and images.  

So he drove over from his house just a few miles away, the whole time running a dozen scenarios through his head.

  • “Is dad having a stroke? Mom is asleep upstairs and won’t know.”
  • “Is someone in the house and dad’s only able to randomly swipe his thumb on the screen trying to ask for help?”
  • “Why won’t mom answer her phone?  Do they have her too?”

Five miles and ten minutes is a lifetime when all you can think of is another family member needing help- or worse.  

As I was coming downstairs to let Julian inside, my husband woke up and asked me what was wrong.  We got to the door at the same moment and let our big, burly bear of a son inside.

It took him a split second to realize that all was well and then it poured outthe fear, the panic, the intense self-control necessary not to simply break down the door and barge in, the pent up grief that lives inside each one of us since Dominic left and is always about to spill out and over when we think of another loss.  

He melted into his dad’s arms.  

This is how our hearts are wired since that morning nearly five years ago. 

When the thing you never think will happen, happens, it becomes the first thing you think of when you can’t get in touch with someone. 

Panic is always a breath away.  

family never gets over the death of a loved one

 

Busy

My empty nest means I’m rarely crazy busy even around the holidays.  

I no longer have to fit in shopping whenever I can manage it because little eyes might be watching or Christmas choir performances and church programs fill the calendar.  

No.  

Most of my shopping is online and I don’t even have to worry about whisking gifts off the porch before anyone sees them.

I’m a different kind of busy now.  

I’m busy making sure I’m not overexposed to Christmas commercials, Christmas movies or Christmas carols because they are likely to open the floodgates of tears I keep behind a dam of determination.

I’m busy drawing deep breaths when I pick up the phone and it’s a relative that never calls but needs an address for a Christmas card and, since I’m apparently the Keeper of the Addresses, always calls me.

I’m busy looking away from the childhood photos lining my upstairs hallway so I can stay focused on the vacuuming that needs doing.

I’m busy pinning down fruitless thoughts of “what if” or “if only” or “I wish”.

I’m busy getting things ready for the brief time my remaining family will be gathered around the dining room table.  I’m trying hard to accommodate schedules and preferences and favorite foods and treasured traditions.

I’m busy pushing back sadness that threatens to overwhelm me in the dark of the year when clouds and rain make it even darker, even earlier.  I’m lighting candles, plugging in lights and adding cheerful touches here and there to drive out the shadows that come creeping.

From the outside looking in, I’m awash in free time and easy choices.  

And some folks wonder why I don’t answer the phone or join in the party.  

But I am very, very busy.  

I was busy

Wife, Mother, Daughter, Sister, Friend

It would be helpful if the world could just stop for a day or a week (or a year!) when your heart is shattered by the news that one of the children you birthed into this world has suddenly left it.

But it doesn’t.

And immediately all the roles I have played for decades are overlaid by a new role:  bereaved mother.  Except instead of being definitive or even descriptive, this role is more like a foggy blanket that obscures and disorients me as I struggle to fulfill all the roles to which I’ve become accustomed.

Now I’m a bereaved mother AND 

  • wife,
  • mother to surviving siblings,
  • daughter,
  • sister,
  • friend.

In addition to all the challenges those various roles represent, I have a new challenge: 

How can I be the person I need to be for the ones I love when I’m barely able to be any kind of person at all?  How do I encourage THEM when I have to give myself a pep talk just to get out of the bed?  How do I navigate my own emotional landmines and help them navigate theirs so we all arrive safely on the other side of birthdays, holidays and special occasions?

I have to admit that I have. absolutely. no. idea.

I’m trying.  I don’t give up (although I want to!).  I keep showing up and having conversations (even some that are one-sided as I take the brunt of another’s emotional explosion).  I try to be a middleman and get first one person’s perspective and then another’s-negotiating for common ground and some kind of compromise.

But it often backfires.

No matter how hard I work at it, I can’t please everyone.  And the problem with being seen as the negotiator is that if things don’t turn out well, you are the scapegoat too.

I’ll be honest.  There have been more than a few days this past month I wanted to crawl up in the bed, pull the covers over my head and not answer the door or the phone.

After nearly five years of this, I’m worn down, worn out, feeling sick, feeling incompetent and feeling like no matter how hard I try it really doesn’t matter. 

I know it’s not true.  

But it feels that way.  

And it takes another giant bolus of energy I don’t really have to drag my butt out of the bed, make a list, make phone calls, do the things that need doing and then show up, smiling, to whatever event is next. 

Because that’s what wives, mothers, daughters, sisters and friends do.  

hope whispers blinding light

Another Year, Another Christmas: 25 Practical Ways to Give Holiday Hope to the Grieving

This is the fifth Christmas without Dominic. There really are no words to describe the intersection of holiday cheer and another milestone in this journey of child loss.

I’m not sad all the time-far from it. Often I am very, very happy.

But I will never stop missing him, missing the family we used to be and missing our blissful ignorance of how quickly and utterly life can change in an instant.

And I will never outgrow the need to have others remember him as well, to encourage my heart and the hearts of my family members and to help us make it through another year, another Christmas.  ❤

Here are some great ways to do it:  25 Ways to Give Holiday Hope to the Grieving

Good Answers to Hard (Insensitive,Inappropriate) Questions

I was utterly amazed at the questions people plied me with not long after Dominic’s accident.

They ranged from digging for details about what happened (when we ourselves were still unsure) to ridiculous requests for when I’d be returning to my previous responsibilities in a local ministry.

Since then, many of my bereaved parent friends have shared even more questions that have been lobbed at them across tables, across rooms and in the grocery store.

Recently there was a post in our group that generated so many excellent answers to these kinds of questions, I asked permission to reprint them here (without names, of course!).

So here they are, good answers to hard (or inappropriate or just plain ridiculous) questions:

When asked to do something the week or month or even year after your child left:

  • No.  (It’s a complete sentence.  You do not have to give an explanation.)
  • Thank you for asking me.  I won’t be able to participate this time.
  • I’m so sorry.  This is a hard time of year for me and I just can’t do it.
  • Since my son’s accident, I don’t do well at holidays (or summer, or birthday month).  I can’t take on any extra responsibilities right now.
  • I’m sorry, we will be out of town. (If you really WILL be out of town.)

When asked about the details of your child’s death:

  • Why do you ask? (Stops them nearly every time.)
  • That’s an uncomfortable question that I’d rather not answer.
  • Does it matter?
  • We choose not to talk about his/her death and prefer to talk about his/her life.  Would you like to know something about him/her?
  • I prefer not to relive that trauma, thank you.

When asked, “How are you?”:

  • About as well as you would imagine given the circumstances.
  • Managing to do what must be done but very sad my son (or daughter) is no longer here with me.
  • Trying hard to put the pieces back together.  It’s a struggle every day.
  • Our family is loving one another through the hardest thing we’ve ever experienced.
  • How are YOU?  (Most won’t even notice you didn’t answer and will launch into their own discourse.)

When asked if you think you’re “back to normal” or “over it”:

  • No.  (It’s a complete sentence, see above.)
  • I’ll never be over my child. I’m not over any of my children.  How could I be?
  • My life has been shattered.  I can’t even find all the pieces much less assemble them into whatever normal used to be.
  • I don’t remember what “normal” is.
  • It’s a daily adjustment that I will be making for the rest of my life.

When asked anything at all that seems insensitive, inappropriate or just downright nosey:

  • I’m so sorry, I need to go.  Bye!
  • I can’t talk about that now.
  • Say nothing.  Absolutely nothing.  Until they change the subject for you.
  • How are you?  Your children?  (Or any other question back at them-ignoring theirs)

I am obligated (by my profession of faith) to be as kind and polite as I can be but I am not obligated to answer every question someone asks.  

I’ve found that having some of these pat answers in my pocket helps.  Many of them are good for just about any question that may come my way.  

I try to deflect, demur or redirect.  

But when that fails I’m just as likely to tell the truth, which is often not at all what the person really wants to hear.  

And then they are left scrambling for a way out of a conversation I never wanted to have in the first place. 

Which is fine with me.  

silent with heart

All The Glory on the Ground

Fall doesn’t last long here in Alabama.  

We have summer right through September most years and even into October on occasion.

This year was even shorter-hot, hot, hot, hot, cold!

But no matter how long or short the temperate days I have two or three trees I look for when the cold nights work their magic and the leaves turn bright.

I know I have to drink in their beauty as much as possible because it won’t last for more than a week.  And that makes it all the more precious to me.

So I don’t rush by as I’m wont to other times of year.  I slow down as I round the curve and gasp again at translucent gold lit bright against a pale blue sky. 

yellow ginkgo tree

One, two, three passes and then one day they’re gone. 

A windy rain knocked every one to the earth.  

All the glory on the ground.  

And my heart notes once again that nothing in this life is forever.

Even the most beautiful and highly treasured things will fade and fall.

People too. 

So don’t rush by. 

Slow down and drink in the glory of family around the table, coffee with a friend, walks in your neighborhood, cuddles with the kids, hot chocolate around a campfire or the kitchen stove.  

Nothing in this life is forever.  

time with those you love

Birthday Musings

Today I turn fifty-five. 

Not old (not yet!) but hardly young.  

My body sometimes tells me I’m older than dirt while my mind plays tricks and lures me into all kinds of childish pursuits.  

Mornings I creak down the stairs, holding tightly to the handrail lest I step wrong and end up in a tumble at the bottom

Midday I’m out in the woods picking up interesting bits of nature that I bring inside and set on a shelf-I still ooh and aah over empty cicada shells and help stranded earthworms back into moist soil.

Mostly I kind of plod through time taking it moment by moment except when forced to look ahead and plan for the big things like holidays.

But some days I stop and take stock of the years gone by, the things I’ve done or not done and the things I wish were different.  

Birthdays tend to make me do that.  And since my birthday always falls near Thanksgiving, I usually add a list of things for which I’m grateful.  

I will always be glad that I chose to pour my life into my family.  All grown, we still weave our lives together across the miles and in spite of crazy schedules. I have never regretted for a single moment that the one great achievement that will outlive me is my children.

desimones uab family

Except for the one I have outlived.  And that is my heart’s greatest burden.  

dominic at olive garden

I am so thankful for a husband who has graciously provided for our family.  I never wrangled a moment over grocery money or necessary homeschooling supplies.  That is a gift! (And for his unending support for my crazy livestock lifestyle-here’s this year’s birthday present.)

golf cart and roses

I have the great privilege of the ongoing companionship of my own parents.  We talk every. single. day.  even though we are miles apart.  These last months of health struggles and Hurricane Michael destruction have forged new links in the chain of love and compassion that bind us to one another.

I have a close circle of “I’ll come over in the middle of the night if you need me” friends.  I remember being on the outside looking in for most of my high school years wondering if I would ever have a really, truly best friend.  In these years since Dominic ran ahead, God has given me one of the desires of my heart and blessed me with just that kind of friendship.

friends pick us up

I have a broader circle of parents that understand what it’s like to send a child ahead to Heaven.  They are a safe place to offload comments and questions that the rest of the world would neither appreciate nor comprehend.  So many have touched my heart with the right word at the right time.  I am overwhelmed by the compassion, grace and kindness of this community.

I write.  It helps my heart.  And the truly amazing and surprising thing is it seems to help a few other hearts too.  I am so thankful that three years ago I followed a prompting to compose that first timid and intimidating post.  Now I can’t imagine a morning where I don’t get up in the wee hours to peck away at the keyboard.

Five years ago I celebrated my fiftieth birthday with all my children, my husband, parents and a crowd of friends.

Tonight the celebration will be a little quieter but very precious.  

My fiftieth year was to be a jubilee of sorts-a culmination of so many dreams in our family and in my own life.  

Instead it was the year we buried Dominic, in addition to the beautiful things we looked forward to.

I’ve stopped making predictions about what a year will bring.  But I haven’t stopped looking forward to the good things I know are on the horizon.  

ultrasound 1 jm lillie

This year our family will grow again and that is a great blessing.  

So I wake and watch and wait.  

Happy Birthday to Me!

Holidays and Grief: Having Hard Conversations

You don’t have to bury a child to know that changing long-standing family traditions around holidays is a hard, hard thing.

Just ask a parent trying to work out Thanksgiving and Christmas for the first time after an adult child marries.  Suddenly the way things have “always been” are no longer the way things are.

If you’ve decided to try to do things differently this year, you know that means telling other folks who might not like it.

And that’s really hard.  

But the sooner you have those conversations, the better. 

Because the only thing that makes it worse is procrastinating until it feels like an ambush to your extended family and friends.  

Read the rest here:  Grief, Holidays and Hard Conversations

 

 

 

Grief and Holidays: Some Practical Ideas After Loss

I wish I had found some of these ideas before we headed into our first set of holidays after Dominic ran ahead to Heaven.  

It would have helped so very much.  

So I’m sending these out early enough so that someone else may be both validated and liberated in planning how to approach one of the most difficult times of year for bereaved parents.  

I pray they reach the heart that needs them.  ❤

It cannot be overstated:  holidays are extremely hard after loss.  Every family gathering highlights the hole where my son SHOULD be, but ISN’T.

There is no “right way” or “wrong way” to handle the holidays after losing a child.

For many, there is only survival-especially the very first year.

These days also stir great internal conflict:  I want to enjoy and celebrate my living children and my family still here while missing my son that isn’t. Emotions run high and are, oh so difficult to manage.

Read the rest here:  Practical Ideas for Dealing with the Holidays after Child Loss

What the Bereaved Need from Friends and Family (But Might Not Tell You)

I know it is hard.  I know you don’t truly understand how I feel.  You can’t.  It wasn’t your child.

I know I may look and act like I’m “better”.  I know that you would love for things to be like they were:  BEFORE.  But they aren’t.

I know my grief interferes with your plans.  I know it is uncomfortable to make changes in traditions we have observed for years.  But I can’t help it I didn’t ask for this to be my life.

I know that every year I seem to need something different.  I know that’s confusing and may be frustrating.  But I’m working this out as I go.  I didn’t get a “how to” manual when I buried my son.  It’s new for me every year too.

Read the rest here:  Grief and Holidays:What the Bereaved Need From Friends and Family