Have A Day. It Doesn’t Have to Be a Good One.

I don’t know about you, but I think of every day as a blank canvas and it’s my responsibility to paint something useful or beautiful or helpful on it.

I’m a list maker so each night before I drift off, I usually jot down 3 or 300 things I would like to do the next day.

I get up, get started and then (more often than I’d like to confess!) hit a wall.

hit the wall yoda

Sometimes it’s the wall of circumstance.  Things happen I didn’t expect and suddenly the hours I was going to spend cleaning the garage are spent cleaning a mess.

Sometimes it’s the wall of community. Someone calls.  Or a multitude of someones call. I hate to admit it but I’m really not a fan of the telephone.  Like Alexander Graham Bell, I consider it more of an inconvenience and interruption than a means of delightful connectivity.  Minutes slip by and I can’t recover them.

I love my friends and family. 

But I’d rather chat while we are doing something together in person than over the phone.

Sometimes it’s the wall of pain.  Rheumatoid Arthritis, like all autoimmune diseases, is unpredictable.  Usually I can tell in the early morning hours if my joints are going to cooperate on a given day.  But sometimes they surprise me and I find that all that yard work will have to wait.

Sometimes it’s the wall of grief or sadness or longing or any of a multitude of feelings.  I have gotten pretty skilled at steering clear of grief triggers when I know I have lots of things to do.  I don’t listen to the songs friends post on their timelines or read too many comments on the sites for bereaved parents.  But I can’t anticipate random sights, sounds or memories.  I’ve been working on a room, cleaning drawers, moving stuff tucked in corners and come across a Lego man or a pellet from the air soft guns they weren’t supposed to shoot inside the house (but of course did anyway) when the boys were young.  That does me in and I have to walk away.

Sometimes it’s the wall of “What difference does it make anyway?!!”This one I usually see approaching in the distance when there have been too many days and too little progress.  Or a string of gray, rainy mornings.  Or multiple failed attempts at fixing something.  And then I throw up my hands and decide my paltry attempts at controlling my corner of the world hardly matter, so why keep doing them.

So I give in and let myself just have a day. 

tired cat

It doesn’t have to be a good one or a productive one or even a cheerful one.  The glass can just be a glass.  I don’t have to pretend it’s half-full or declare it half-empty.

half-full

And after a rest I usually remember that what I used to find impossible is now possible;  what used to be hard, is often a little easier.

I am stronger and better able to carry this load.

Sorrow is no longer all I feel nor my son’s absence all I see.

And although THIS day may be lost.  It’s only ONE day.

It’s perfectly OK for me to sit down with a cup of coffee, a book or a movie and let myself off the hook.

The sun will rise tomorrow and I can start over.

I will start over.

have a day

Why Am I Still Writing?

I ask myself this question often:  Do I want to keep writing in this space?  

Sometimes the answer is a resounding, “no!”. 

Because while I love to write, some days it’s hard to put together words in a way others can understand.  Sometimes I’m tired, or rushed or just tired of thinking about how grief and loss impact my life.

And then I ask the follow up:  Do I still have anything to say?

That’s the one that keeps me here. 

Because as soon as I think the answer is “no” to that question,  a conversation or a comment thread or a personal experience brings up something that I feel I need or want to write about.

So I sit down and begin again.  

your-story-could-be-the-key

I made a commitment in the beginning to be as honest as possible and I’ve done that the best I know how while protecting identities of those who are part of my story but who have their own stories to tell (should they choose).

I also promised to be transparent about my thoughts on God, on faith, on life everlasting.  I feel like I’ve done that.  In fact, I’m pretty sure some of my rambling has shocked friends and family from time to time.  But I’m not afraid of shocking God.  He knows my frame, knows my heart and cannot be made small by my questions or doubts.

I try to do research when appropriate to bring together resources and ideas for bereaved parents in one place. 

One of the most frustrating things to me in the early months of missing Dominic was how hard it was to find good resources.  The Internet is not your friend if you are looking for local and accessible help for practical problems.  It was over a year and a half before I found a closed group of like-minded bereaved parents.  But once I did, oh, what a difference that made in my journey!

So if you are interested in finding a safe, closed group, ask me.  I know of several.  

And then there’s the sweet comments that (usually) mamas send my way-either through Facebook or here.  When someone writes that looking for the blog post each morning helps them get out of bed-well, that’s both encouragement and a serious responsibility.  I don’t want to not show up and disappoint a heart.  Even when all I have to offer is only my words.

So for now, at least, I plan to stay.  

When my life circumstances make it impossible to carry on or I run out of things to say (which my mother will swear won’t happen!) then I’ll quit.

I send each post into cyberspace with a prayer-even for my readers who don’t believe in prayer: 

“Father God, help each heart hold onto hope.  Send a ray of sunshine into every cloudy day.  Bring someone along who will listen, who will care and who will offer a hand to the one who is too weary and broken to take another step.  Help them believe that they are seen, they are loved and that they matter.  Overwhelm them with Your love, grace and mercy.”

You DO matter.

I DO care.

If you need to talk, message me. 

If you need a safe space, I’ll direct you to it.  

I’m not going anywhere.  

compassion and stay with you

Fix It Or Forget It: Why Unfinished Stories Make Others Uncomfortable

Attention spans are shorter than ever.

It’s easy to understand why.  We live in a world full of sound bytes, memes, tweets and T-shirt slogans.

But life can’t be reduced to such little snippets, even if we wish it could.

Not every biography has the perfect “beginning, middle, end” arch that makes for a good and satisfying story.

Some of us can’t tie up our experiences in tidy boxes, with colorful bows and a lovely tag line that inspires thousands.

gift box with bow

We are living unfinished, messy, hard stories that keep shifting, changing and require us to face mountain after mountain and valley after valley.

And we stumble. 

A lot.

I suppose it’s tiresome for our friends to have to slow down, turn around, bend down and help us get back up over and over and over.

Many of our compassionate companions turn into personal trainers at some point:  “You can do it!  Try harder! Push farther!  You’ve got to work at it!  Don’t give up!  Come on, don’t you want to get stronger, fitter, better????”

personal trainer

The hidden message?  If I wanted to badly enough, would try hard enough, work long enough or get the right help, I could “fix” this.  I could emerge from child loss whole, healed and healthy.

And when I don’t, they get frustrated, disgusted or just plain bored and leave me lonely on the trail.  They walk away and forget-because they CAN forget.

I’ve said it before and I’ll say it again:  If you think it’s hard to watch your friend struggle with a broken heart, a shattered life, doubts and regrets, it’s harder to live it.

 

You can walk away.  I can’t.  You can go home, close the door and think of something else.  I go home, close the door and am flooded with thoughts, emotions and overwhelming grief.

mixed stages of grief

 

If I could “fix it” don’t you think I would?

But I can’t.

I will continue to have a messy, untidy, unfinished life this side of Heaven.

And I will keep climbing, struggling and stumbling.

Will you stick around and walk with me?

Or will you walk away?

walking-up-a-hill

 

 

Repost: How Can I Survive Grief Anniversaries?

There are more than you might think.  

Most folks would count the date of death and maybe the date of burial or memorial service.

But a mama’s heart counts it ALL.

Read the rest here:  How Can I Survive Grief Anniversaries?

Worse For Wear, I Don’t Care

I have never been one of those women who lied about her age.

My weight…well, you will have to threaten me with something that matters to get THAT number out of my lips.

But I’ve noticed this year more than others since Dominic left us that the wear and tear of years and tears and life and loss are showing up on my face as well as my hips.

I am definitely the worse for wear.

My daughter is getting married in May and for the first time in my life I am religious about applying under eye cream and moisturizing lotion to my face each morning and night.

who wants to look young

I don’t want to be the sore thumb in the family pictures!

I’m not sure it’s working.  I’m not sure anything can erase or roll back the marks that life and love and loss have etched on my face.

I’m not sure I want to.

Because each wrinkle, each line, each saggy, baggy skin flap says, “I loved, I lived and I am surviving-even though it’s hard.”

Before Dom left I was camera shy.  I still am, a bit.  But I’m trying hard to suck up my pride and my insecurity and let those flashes pop.  Memories are made one day at a time and photos help preserve them.

engagement party group shot (2)

So whether I’m at my best, at my worst or somewhere in between, I won’t say no to a Kodak moment.

I wish I had more of them from “before”.

Dominic and family at PRSSA banquet

I wish I hadn’t’ been so darned particular about what I looked like, what I was wearing and whether or not my wrinkles or big butt showed.

Worse for wear?

Who cares?

This one wasn’t made to last.  

For instance, we know that when these bodies of ours are taken down like tents and folded away, they will be replaced by resurrection bodies in heaven—God-made, not handmade—and we’ll never have to relocate our “tents” again. Sometimes we can hardly wait to move—and so we cry out in frustration. Compared to what’s coming, living conditions around here seem like a stopover in an unfurnished shack, and we’re tired of it! We’ve been given a glimpse of the real thing, our true home, our resurrection bodies! The Spirit of God whets our appetite by giving us a taste of what’s ahead. He puts a little of heaven in our hearts so that we’ll never settle for less.

2 Corinthians 5:1-5 MSG

A Whole Series of “Lasts”

One of the things even the most uninformed person understands about loss is that the first birthday, the first Thanksgiving, the first Christmas and all the “firsts” after loss will be hard.

But one of the things no one tells you about is that a heart will mark the “lasts” just as much.

The last time I saw him.

The last time I spoke to him.

The last time I hugged his neck and smelled the unique fragrance that was my son.

missing child from arms

 

Every year as I approach the anniversary of the day Dominic left this life and stepped into Heaven, I also remember all the last times.

It’s hard on a heart to think about and wish that somehow I had made more of those moments.  I long to have just one more opportunity to say what needs to be said, to see his smile, hear his voice, and hug his neck.

But there’s no going back.

So part of the pain of marking the milestones is knowing there is no way to change a thing.  Not only the FACT that my son is gone, gone, gone.  But also the FACT that whatever I said or did or left unsaid or undone is utterly and undeniably carved in stone.

I don’t know why this anniversary is hitting my heart harder than last year.  Maybe it’s because I recognize how much life has happened since Dominic left us.  Maybe it’s because I think in terms of decades.  Maybe it’s because there are so many exciting family celebrations that he won’t be part of.

I have no idea.

But it’s nearly five long years since my son crossed the threshold of his family home.  It’s nearly five years since I heard that familiar deep “Hey!”.  It’s nearly five years since I waved him down the driveway and hollered, “Be careful!” as he drove back to his apartment.

I am thankful for the faithful love of my God and my family.  I am thankful for the compassionate companionship of friends.  I am thankful that I am still standing after the awful blow that I was sure would knock me so far down I’d never get up again.

But I miss him.  I miss him.  I miss him.

I will never be able to watch the early spring flowers bloom again without also remembering that it was those blossoms that heralded the good weather that lured him to take his motorcycle that night.

I will never hear Spring Break plans without counting the days between his last Spring Break trip and the day he met Jesus.

dom and julian spring break

I cannot step outside and smell the grass growing, feel the breeze blowing and hear the birds singing without my heart skipping beats and doing the math.  Today marks less than two months before the day he left us.

I understand that for others-if they remember at all-Dominic’s departure is a day circled on the calendar.

For me, it’s an entire season.

I mark every single day that led up to that day.  I remember every single conversation, meeting, text and phone call.  I remember all the things I did and regret all the things I didn’t do.

While the world is celebrating new life, I’m remembering a life that ended.

miss-you-every-day

How Can I See Love?

Fairy tales and favorite movies aside, what does love really look like?

How can I see this feeling that has driven some to distraction, some to destruction and even more to dedication to another in spite of whatever obstacles life has placed in the path?

It’s not often writ large.

In fact, it’s usually tiny stitches in the tapestry of life.

love is not what you say it is what you do pooh

A choice to fix her breakfast before his. * Bending down to plant a kiss on that frowning face. * Lending a tool or a few dollars knowing full well you’ll never see it again. *Refusing to leave when that friend pushes away.Bearing witness to sorrow and joy and pain and celebration. * Holding a hand when a heart is barely able to hold on. *Showing up, without being asked, because presence makes a difference. * Consistency in the face of chaos. * Doing the things that need to be done even when they go unnoticed and the one you do them for is ungrateful. * Letting go when it’s time.  * Turning up the heat for him and taking off your sweater. * Cooking a favorite meal or dessert or stew. * Carefully preserving a legacy. * Folding the towels the way she likes. * Phone calls across continents. * Refusing to give up, ever, no matter how hard it gets. 

winnie the pooh feel love

If I want to see love, all I have to do is look around.  

Love is so much more than flowers or candy on a single day of the year. 

It’s a life lived in service to another. 

It’s a pouring out. 

Real love is costly-in time, in effort, in energy.

And it’s always, always brave. 

ann voskamp love will always cost you grief

 

Child Loss: Helpful Tips for Interacting With Bereaved Families

I firmly believe that our friends and extended family want to reach out, want to help, want to walk alongside as we grieve the death of our child

 I am also convinced that many of them don’t because they don’t know how.  

It may seem unfair that in addition to experiencing our loss, we also have to educate others on how to help us as we experience it, but that’s just how it is.

The alternative is to feel frustrated and abandoned or worse.  

So here’s a list of helpful tips (and a great infographic!) for interacting with bereaved families:  

Express condolences and show you care. Don’t avoid me, please!  You cannot make me any sadder.  I need to hear from you.

friends hugging

Refer to my child by name.  Dominic is STILL my son.  He is still part of my story.  But because he’s no longer visible, his name often goes unspoken.  Please talk to me about him, use his name, tell me a story of how he impacted your life or a memory that makes you smile.  It makes me smile too.

Actively listen and be supportive.  It’s hard to listen to someone tell you how much they are hurting and not offer advice or think of ways to “fix” them.  I can tell you from experience that what I need most on my darkest days is for someone to say, “It IS dark.  I’m so sorry.”  Silence is OK too.  Not every quiet moment needs to be filled with chatter.

listening is a postive act

Understand that each family and family member will grieve in different ways.  You may have observed child loss before but what you saw in one family may not translate to the next.  There are no hard and fast rules for this awful journey.  The age of the child, family background and structure, manner of death-all these impact grief.  In addition, mothers and fathers, sisters and brothers all bring their personalities, stage of life, beliefs and experiences to the journey.  There were five of us left behind when Dominic ran ahead.  We were each devastated but expressed it in very different ways.  Nearly five years later, those gaps have widened, not narrowed.

Fathers grieve too.  Sometimes support focuses almost exclusively on the mother.  In part because of a common notion that mothers are somehow emotionally closer to their children than dads.  In part because many men are less demonstrative and may do a good job hiding grief.  Whatever the reason, don’t assume one parent is dealing “better” with the loss than another (mother or father) just because he (or she) is not crying openly.  No one escapes this awful blow unscathed.

bereaved fathers

Don’t overlook siblings.  Surviving siblings are sometimes referred to as “forgotten grievers”.  If they are very young, people may think they are relatively unaffected by the death of a brother or sister. If they are grown and out of the home, people may figure that the siblings’ own, very full and very busy, lives keep them preoccupied.  While some of that may be true-to an extent-most surviving siblings are deeply impacted by the death of a brother or sister, regardless of age.  Not only have they lost a member of the family and changed birth order, they have also lost the family they knew, the parents they knew and a co-keeper of memories and secrets.  Bereaved parents are often overwhelmed with grief for their living children as well as the child that is missing. One of the best gifts anyone gave me was reaching out to my surviving children.  It helped my heart to know that they had friends who were supporting and loving them well.

kids cartoon

Be yourself.  People often feel awkward and stiff when approaching a bereaved parent or family member.  That’s perfectly understandable.  The bereaved seem so fragile (are so fragile!) that folks are afraid the wrong word or touch might shatter them into a thousand pieces.  But what your friend or family needs right now is the you they’ve always known and loved.  If you are a hugger, hug!  If you are a storyteller, tell stories (appropriate ones, ones of the missing child).  If you are a cook and cleaner, then cook and clean.  Our family was blessed by our friends doing exactly what they had always done-come alongside in their own special way.  So much had changed in our world that familiar touchstones, familiar routines and familiar faces were a real comfort.

Keep in mind words matter.  Now is not the time to try to satisfy your curiosity about exactly “what happened”.  Loud joking is rarely welcome.  Many bereaved families find it hard to laugh in the first days, weeks, months because it feels like betrayal.  Don’t offer platitudes intended to help them “look on the bright side” or consider that “it could be worse”.  There is nothing worse than burying your child.  Nothing.  Listen and take direction from the person you are comforting.  Follow his or her lead.  And if something less than helpful slips out, own it and apologize.

pencil-drawing-bereaved-mother

It’s never too late to reach out.  NEVER.  Sometimes people stay away at first for lots of reasons.  Or they show up for the memorial service and then fade into the background.  After a bit, even if they want to reach out, they may feel embarrassed by the long absence.  Don’t be.  So many people stop calling, visiting and texting within the first weeks that your outstretched hand of friendship will be a welcome beacon of hope.  If you need to, apologize for your absence.  Be honest.  Admit you were scared or whatever.

Then show up. 

Stick around.

You don’t have to be perfect.  

Just be present.  

bereaved families infographic

Repost: What is Safe?

I remember as a  young mother of four working hard to keep my kids safe. 

dominic and siblings little children at nannys

Next to fed and dry (two still in diapers!) that was each day’s goal:  No one got hurt.  

It never occurred to me THEN to add:  No one got killed.  

Because the most outlandish thing I could imagine was one of them falling or touching a hot stove and us having to rush to the emergency room.

Then I became a mother of teens and one by one they acquired a driver’s license and motored away from our home.  

That’s when I began to beg God to spare their lives.

Read the rest here:  What is Safe?

Child Loss: Good Days, Bad Days-All Part Of The Journey

Will today be a good day or a bad day?

Not sure yet.

Mainly because what usually determines THAT is something that happens (or doesn’t happen) at some point after my morning quiet time.

But whether it’s a good day, a bad day or somewhere in between, it is absolutely, completely, utterly NORMAL for my emotions to change as I make my way down the path called “Child Loss”.

As long as I am doing the work grief requires I will continue to have some better days.  

But grief still comes in waves in response to triggers or in response to nothing at all and it may be a bad day.  

waves-of-greif

How well did I sleep, rest, eat or exercise? My body affects my emotions in ways I don’t fully understand but absolutely experience.

Stress can bring tears to the surface.  Even GOOD stress can do it.  Looking forward to things, planning a party, large meal, trip or event is stressful, even if it isn’t sad.  All stress weakens my defenses and makes it harder to employ the techniques I’ve mastered for diverting my thoughts or controlling my tears.

Sunshine or rain? I have learned to count the number of recent cloudy days if I wake one morning feeling bluer than normal.  I often realize that a week or more has passed since I’ve seen the sun.

Too much interaction or too little interaction with other humans makes a BIG difference. My introvert self loves long afternoons alone, sitting in silence with a book or crochet, quiet walks in the woods and chore-filled days without music blaring.  But healthy solitude can turn to withdrawal if I let it and sometimes I realize my sudden sense of overwhelming grief is, in part, due to lack of human company.

The list is endless.  

Thankfully, at nearly five years, the better days outnumber the worse ones for me. 

But  no matter what kind of day it may be, I no longer worry if it’s normal. 

Because it’s ALL normal. 

you will have good days bad days keep showing up

 

 

 

 

Loss, Grief, Bereavement and Life Transitions Resource Library

Celebrating Life And Living Without The Denial Of Loss And Grieving

A Light for My Path

Carrying the torch for bereaved parents.

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Dealing With My Grief

Healing through writting

Deserts Like Eden

"The Lord will look with compassion on all her ruins; he will make her deserts like Eden, her wastelands like the Garden of the Lord." Isaiah 51:3

My Journey Through

Journaling Through The Grief

Losing Joe - Finding My Way Thru Grief

Losing Joe and finding my way thru grief.

All About Life

Ideas and musings from a middle-aged 20 something

Listening to Him

& seeking to walk in His ways ~ Joshua 22:5

Rebellious Grace

Defying mainstream thoughts on grace and who it is reserved for.

Gift of God : Ian Coronas

IANspiration : Live Like Ian

Bereaved Parents

“Love recognizes no barriers. It jumps hurdles, leaps fences, penetrates walls to arrive at its destination full of hope.” — Maya Angelou

From my heart...

...the heart of a God chaser.

God's Grace ~ God's Glory!

~ declaring His kingdom ~ for His glory

You Can Trust Him

Living Each Day in the Light of God's Faithfulness

Enough Light

"In faith there is enough light for those who want to believe and enough shadows to blind those who don't." - Blaise Pascal