Repost: Curating Grief

I wrote this post 18 months ago after a number of incidents when friends and family members tried to tell me how long to grieve, what my grieving should look like and (most hurtful) how my son would want me to grieve.

I rejected that notion then, and I reject it now.

Most of us have taken a class or two in literature–we read other people’s writing and sit around discussing “what it really means”.  My husband has always scoffed at the notion that anyone but the author knows that.

Me–I love books, plays and poetry so I’ve spent a lifetime reading and trying to interpret the meaning of others’ words.

But now I find I’m leaning more toward my husband’s point of view.

One of the challenges I face as a grieving parent is finding that other people want to interpret my experience for me.

Read the rest here:  curating grief

Grief Groups and Echo Chambers

I belong to several online bereaved parents’ groups and they are truly a lifeline in so many ways.

I can speak my mind there without fear of rejection or correction or of hurting my non-bereaved friends and family.  I learn from other parents farther along in this journey how they cope with birthdays, anniversaries, holidays and every day grief triggers.

Sadly, there are new members added daily.  New parents are forced to join this “club” where the dues are higher than anyone would willingly pay.

I am horrified by how quickly the numbers jump week-to-week and month-to-month.

And usually the parent (when they are ready) will share a bit about the child that has run ahead and the circumstances of his or her death.  It’s an important part of learning to live with this pain-learning to speak your story.

But when too many of the seasoned parents are silent and my newsfeed explodes with stories of newly bereaved parents, my heart can easily be ovewhelmed by the desperation, sadness and utter despair that swamps a parent’s heart when they first find out their child is not coming home again.

Then the sites turn into echo chambers where sadness calls to sadness, circles back around and calls again.  Despair is everywhere and there appears no way forward.

what is an echo chamber

Bitterness weaves a black thread through post after post after post:

No one understands,

everyone has abandoned me,

I am unloved, alone and hopeless.

That’s precisely how I felt in those early months and it is an appropriate response to the awful devastation of out-of-order death.

But if I’m to survive this life I didn’t choose, then I’ve got to also have a healthy dose of hope.

hope holds a breaking heart togetherSo I limit my exposure to the echo chamber from time to time, especially if I’m feeling weak and vulnerable.  I might take a week’s break to let my heart recover a bit and then go back with fresh vigor, ready to participate, encourage others and be encouraged.

Life after child loss is a marathon, not a sprint.

I have to pace myself if I’m going to make it to the finish line.

Sometimes that means taking a break and sitting on the sidelines.

let-yourself-rest

 

Can We Talk?

Joan Rivers was famous for opening her comedic routine with the question, “Can we talk?”

She would launch into a hilarious rendering of topics that were usually off-limits in polite conversation but which everyone secretly wanted to share.  It actually helped bring some things into the light that had been hiding in shadows for far too long.

So, I’m going to take a cue from her and ask, “Can we talk?”

Can we talk about my missing son and quit pretending that just because he’s no longer present in the body, he’s not still part of my life?

Can we say his name without also looking down or away like his death is a shameful secret?

Can we share stories and memories and laughter and tears just as naturally about HIM as we do about anyone else?

Can we make a way to represent him at holidays, birthdays and special occasions?  It doesn’t have to be a grand gesture-even a photo or place setting or ornament will do.

Can we stop acting surprised that I still get upset when other people’s kids reach milestones my son will never attain?

Can we talk about your feelings as well as mine without devolving into a shouting match or a flurry of accusations about who should be feeling what by now?

Can we make space for tears?

Can we make space for solitude?

Can we make space in our conversations and celebrations that allows joy and sadness to dwell together?

Can we continue to honor the light and life that was (and is!) my son?

Because if we can do this, it will make all the difference. 

best way you can help me

 

 

At Least?

“At least you had him for 23 years.”

Yes, but I thought I’d have him for my whole life!

“At least you still have three other children.”

Yes, but which one of yours would you choose to do without?

“At least  you know he’s in Heaven.”

Of course that brings me comfort and hope, but it doesn’t take away my pain.

A wise friend once said that any comment to a griever that begins with “at least” needs to remain unsaid.

It’s especially true for those of us grieving our child.

Because there is no “at least” in child loss.

NONE.

child-and-mama-heart-together

My Juggling Days Are Over

When I was a young mother, my brother used to love to sit back and wait to see how many things I could do at once.

I could hold a baby, iron a shirt and talk on the phone at the same time.  I could pick things up with my toes when I didn’t want to disturb the sleeping child in my lap and couldn’t reach the object with my hand.

Four children in six years, breastfeeding, homeschooling and taking care of all the household chores meant that I got pretty darn good at keeping multiple balls in the air at the same time.

juggling huff post

Those days are over.

Like so many things at this point in my life I don’t know how much of what I experience and feel is a function of getting older (definitely middle aged here!) and how much is attributable to grief following the death of Dominic.

But this I do know:  I am only able to focus on a single task, thought, desire or problem at a time. If I try to multi-task, I might as well cry, “Uncle!” from the start.

It’s a little discouraging.  

Often I feel like I’ve wasted an hour or a day or even a week. What exactly did I get done?

But it’s also a kind of freedom.  

My household isn’t nearly as busy as it once was so there’s really no need to rush from here to there or stack task on top of task.

I’m learning that taking time, talking to people for as long as they need me, doing something well even if I don’t do it quickly are all perfectly acceptable ways to spend a day.

And while I miss so much of who I was before Dominic ran ahead to heaven, I don’t miss the frantic craziness of trying to do too much in too little time.

I will receive THIS change as a gift.  

if you are always racing to the next moment

 

Bereaved Parents Month Post: What Grieving Parents Want Others to Know

I wrote this post December, 2015.  It hadn’t been long since I joined an online community of bereaved parents and began to see that I wasn’t the only one who had friends and family that misunderstood child loss.

I was spending a lot of time in my life trying to help others comprehend, just a little, what it felt like to bury a child.

Trying to give them a tiny taste of how this pain is so, so different than any other I had experienced.  Begging them to toss the popular ideas bandied around that grief followed “stages” and was “predictable”.

I re-share every so often because it seems to help, a little.  I’m re-sharing today in  honor of Bereaved Parents Month. ❤

People say“I can’t imagine.

But then they do.

They think that missing a dead child is like missing your kid at college or on the mission field but harder and longer.

That’s not it at all.

What Grieving Parents Want Others to Know

Bereaved Parents Month

Before Dominic ran ahead to heaven I knew only a handful of bereaved parents, all of whom I met after their bereavement.

I had never walked with anyone through this Valley.

Now I am friends with dozens of them and there are hundreds more I “know” online through private groups and blogs.

Until this was MY life, I would have dismissed “Bereaved Parents Month” as another random and narrowly applicable declaration by some group trying to muster support for their own agenda.

I’m ashamed to say that, but it’s true.  

Like most folks,  I assumed my life would follow the typical trajectory of marriage, children, their marriages and grandchildren in an unbroken chain of generations-the younger burying the older.

That’s how it is supposed to be. 

But that isn’t how it has turned out for me and so, so many others.  

Now, “Bereaved Parents Month” is near and dear to my heart.  I understand that we need to raise awareness of the ongoing challenges parents face in the wake of child loss.

I see clearly that those outside the child loss community really have no clue.  

How could they?

So my challenge to readers for the remainder of this month is twofold:  

  • If you are a bereaved parent, please use this time to share articles, blog posts and personal experiences on your social media platforms.  One of the easiest ways to raise awareness and to educate the public is simply to make the topic unavoidable. (That’s what book tours and movie trailers and press releases do.)  Be honest.  Be bold.  Be unapologetic for the fact that you continue to miss your child, that you continue to love your child and that the life you have NOW is very different than the life you had before loss.
  • If you are the friend or family member of a bereaved parent, please read what we post-even if your first response is “Oh, no!  Not again!”  However tired you are of hearing about our loss and ongoing struggle cannot compare to the exhaustion of living it.  Honor our child and us by listening.

Compassionate response is only possible when we begin to understand what another heart is facing.  

This month is an opportunity to do that.  

Let’s make the most of it.

juliy bereaved parents month

Repost: Grief is NOT Sin

Grief is not sin.  

It wasn’t until another grieving mom asked the question that I realized there are some (many?) in the community of believers that think grief is sin.

Not at first, mind you-everyone is “allowed” a certain amount of time to get over the loss of a dream, the loss of a job, the loss of health or the loss of a loved one.

But carry that sadness and wounded heart too publicly for too long and you better be ready for someone to question your faith.

Read the rest here:  Grief is Not Sin

Is It More Admirable to Pretend?

 

We say we want real.

But we really don’t.

We tune in by the millions to watch “reality TV” even though we know the drama is manufactured and the outcome decided months before.

We participate daily in quiet subterfuge when our coworker pretends her marriage isn’t falling apart even though we overhear her desperate phone calls trying to mend it.

We like to hear “Fine, thank you.” when we offer the polite greeting, “How are you?”.

What happens to the person who refuses to play along?  What about the one whose heart is so broken that she can’t begin to put on the false front that would make everyone else more comfortable around her?

smile-question

What do you do when someone stops pretending everything is OK?

Often, people walk away.

Because we have absolutely no idea what to do with real. We have no words when “How are you?” is answered with “Awful.  My world is falling apart.”

We reward those who choose to go along with the script that makes us comfortable and isolate the ones that don’t.

But is that the world we really want to live in?  Do we want to walk with unsaid words between us, unreleased feelings bottled up and threatening to overflow?

It is really more admirable to pretend?

 

masks by shel silverstein

MASKS  by Shel Silverstein

She had blue skin
And so did he.
He kept it hid
And so did she.
They searched for blue
Their whole life through.
Then passed right by —
And never knew.

 

Dispelling Marriage Myths Surrounding Child Loss

Today my husband and I celebrate 33 years of marriage.  

Our thirtieth anniversary was a mere two months after we buried our son.

Here’s the last “before” anniversary photo (2013)-unfeigned smiles, genuine joy, excitement to have made it that far:

hector and me 29 anniversary

This is us on our thirtieth anniversary, at our oldest son’s wedding -holding one another up as best we could:

IMG_2151

This is us last Christmas:  

beach hector and me and boys in sand

We are definitely the worse for wear, but we are still here.

Together.

There are a lot of myths floating around about what happens to a marriage on the other side of child loss.  The one tossed out most often cites a “study” reporting 90 percent of marriages fail after the death of a child.  

It’s just not true.

But the danger is that if you believe it is true, you may stop trying.  You may stop reaching out across the painful abyss that threatens to keep you apart forever.  You may decide that living alone with your broken heart is better than living alongside someone who may be broken in very different ways than you are.

It can become a self-fulfilling prophecy. 

The truth is that child loss is no more likely to destroy a marriage than a list of other terrible life events-even though child loss is the most terrible.

A child’s death shakes a marriage to its foundations and reveals the weak spots. And EVERY marriage has weak spots.

So the challenge in this season of marriage-like every season of marriage-is to turn toward one another instead of away.  Choose to do the work necessary to make it:

  • Do the best you can to take care of your own emotional, physical, psychological and spiritual health so that you can come together stronger and better able to help one another.
  • Assume the best and not the worst about your spouse.
  • Allow for different grieving styles and different ways of honoring your missing child.
  • Get help from others.
  • Don’t expect your spouse to carry your load of grief as well as his or her own.

It takes energy and commitment right when we don’t have any to spare. But at least in this, we have a choice.

I have already lost so much over which I had no control.  

I will fight for what I CAN hold onto as hard as I know how.

wedding rings