My nearly ninety year old father suffered a major stroke in mid September.
Much like the morning when a deputy showed up at my door and told me Dominic was never coming home, my life was suddenly and drastically changed in ways I wish it wasn’t.
I got in the car, drove to the hospital and suddenly became a full time caregiver.
It’s been a rocky couple of months.
I’ve learned more than I ever wanted to know about navigating our complex healthcare system of doctors, rehabilitation services and finding reliable and qualified respite care.
My patience, self control and organizational skills have been stretched to the limit.
I was forced to cancel several upcoming ministry commitments and am just now beginning to try to figure out how to re-engage directly with parents on a regular basis. I miss that so much!
One of the things I’ve learned since Dominic ran ahead to Heaven is that life keeps coming.
The calendar has no respect for my personal Season of Sorrow or any other, more pressing, stressors being heaped one atop the other. Holidays and birthdays are fixed dates. Babies are born in the fullness of time and don’t ask permission.
I know I’m not the only bereaved parent who is part of the sandwich generation-adult children on one side and aging parents on the other. It is truly a challenging season.
I find many of the strategies and habits I developed while grieving have served me well as I try to navigate a different kind of loss.
Boundaries are so important. I’ve had to tell lots of people that I simply cannot be available all the time. I let text messages go unanswered when I’m engaged in more important tasks. That’s hard and uncomfortable but necessary.
If someone offers to help, let them. There are so many things that only I can do for my dad that when someone offers to do one of the others, I’m trying hard to let them.
I’m honest about the hard.It’s tempting to gloss over or minimize the most difficult parts of our journey. But that’s not helpful for me or for anyone else who might be following my journey. When I share transparently, I encourage others to hold on, knowing they are not alone and give friends and family the opportunity to come alongside and encourage me.
Give grace-to yourself and to others. I don’t always make the best choices and sometimes I say the wrong thing. I get tired and grumpy. I’m human and that’s going to happen. When it does, I need to extend the grace to myself I’d give to someone else.
People are going to offer unsolicited and unwanted advice. They are going to say things that rub me the wrong way. Bible verses and trite, bumper sticker, positive thinking messages have been tossed at me from the sidelines. Our culture insists on bright siding even the darkest and most devastating situations.I try to extend grace to those folks too. (And when I can’t, I mute them on social media and silence their texts and calls!)
I don’t know how long or how hard this season will ultimately prove to be.
But I know that I will survive.
The Lord has been faithful for the more than eleven years since Dominic ran ahead to Heaven.
My hardest grief season begins in November and runs to the end of May. Thanksgiving through Dominic’s birthday on (or near) Memorial Day are days full of triggers, memories and stark reminders that one of us is missing.
If I could fall asleep November first and wake up in June I’d do it.
But I can’t so I have to employ all the tricks I’ve learned in the over eight years since Dominic ran ahead to heaven to survive those particularly challenging months.
Here are ten ways I survive hard grief days:
1. I make lists of things to do. I’ve found that if I don’t make a plan for each day it’s far too easy to just lie around and feel sorry for myself. I use index cards but whatever works for you is fine. I list household chores, phone calls to make or notes to write, exercise, errands or whatever. And then I consider them non-negotiable. These are my marching orders and after my morning coffee I start down the list.
2. I do something creative. I crochet or arrange flowers or sew a little. Taking just five or ten minutes to make something beautiful changes my perspective. I have a can opener that takes the lids off without sharp edges and I make magnets for friends and family members or just to have on hand for a little gift.
3. I take a walk. I am thankful I can go outside on my own property and enjoy fresh air and country sunshine. I know not everyone has that option. But even a walk inside your office building or up and down a couple flights of stairs gets the blood pumping and releases endorphins. If I can’t walk, then I at least change my physical position-from sitting to standing, from standing to moving. Body position impacts my emotions.
4. I find something to make me smile. There is scientific evidence to back our common sense experience that smiling lightens our mood and helps our hearts. I read jokes or check out some of my Facebook friends that tend to post funny memes or stories. Sometimes I just “practice” a smile and even that can send feel-good hormones surging through my system.
“Don’t try to win over the haters, you are not a jackass whisperer.” ~ Brene Brow
5. I call or text a friend. Sometimes I just need to know that someone else is aware of my hard day. No one can undo my grief but when I feel there is a witness, it lightens the load somehow.
6. I stay off Facebook and other social media platforms. I love that I’m able to keep in touch with friends and family via social media. But it can be full of drama and negativity as well. So if I’m having a tough day, I remove the potential for it to be made harder due to random comments, posts or photographs.
7. I pet my cats. I have always been an animal lover. But I truly do not know how I could have survived these past four years without the companionship of my cats and other furry friends. Study after study confirms that being in the presence of pets lowers blood pressure and calms nerves.
8. I go with my feelings. There is no rule book that says I have to be tough and hide my tears. If I’m having a hard grief day it is perfectly acceptable to let the sorrow wash over me and let the tears fall. Sometimes fighting the feelings only prolongs my pain. Often a good cry is cleansing and I am much better afterwards.
9. I journal. There are things I need to “say” that are better kept between me, God and my notebook. I have kept a journal for nearly three decades. Many times just writing out my feelings, my fears, my thoughts and my frustrations is enough to take the sting out. There’s something about not keeping it all bottled up inside-even if no other soul reads it-that acts as a catharsis.
10. I copy encouraging quotes or Scripture and hang them prominent places throughout the house. I have notes tacked to my bed post, on my bathroom mirror, taped to the cabinet next to my stove, stuck on the fridge, slid into my wallet in my purse-absolutely everywhere. Because when my heart is hanging on by a thread, the smallest bit of encouragement is often enough to help me hold onto hope.
None of these things undo my grief in the most basic sense.
Dominic is gone, gone, gone and I will not see him or hear his voice until we are reunited in the Presence of our Savior.
But they DO help.
One of the most devastating aspects of child loss is the overwhelming sense that NOTHINGmakes sense anymore and that I have absolutelyNOcontrol.
Choosing helpful habits and actions gives me a way to regain dominion over a tiny corner of my world.
And that little bit of action strengthens my spirit and helps my heart hold on.
It would be lovely if life were neatly divided into seasons or sections.
But like so many things, there are no clean lines between now and what used to be.
Who I am today is shaped by who I was the day before.
I think that’s one of the things I enjoy most about fiction-authors are free to wander back and forth among character’s thoughts, past experiences and present reality.
It makes for a more complete story.
Each year about this time (in the waning days of my Season of Sorrow) I usually stop and take stock of how far I’ve come and how grief continues to shape my life.
There are many, many ways I’ve healed and am healing:
I no longer cry every day.
I feel true joy!
The pain of losing Dominic doesn’t dominate me although it plays like Background Music-not always demanding my attention.
I celebrate my family and my family’s milestones with genuine excitement and once again enjoy planning get togethers, birthdays and (most!) holidays.
I function at a higher level and am able to rejoin some groups and participate in some activities I just couldn’t manage in the early years.
I’ve made peace with the questions that won’t be answered this side of eternity.
I’ve incorporated traumatic loss into my understanding of Who God is and how He may work in world while accepting I don’t always like it.
I attend baby showers, weddings and even funerals without bringing all my lost dreams or personal sadness to the event.
I laugh-a lot. It feels good again to belly laugh at family memories or new jokes.
I can extend hospitality once more. That was a core component of my pre-loss life and personality and I missed it.
But there are many ways in which grief and loss continues to inform how I walk in the world:
I absolutely, positively cannot multitask! I have to break daily chores into single actions so I can focus and accomplish one thing at a time. I used to be able to cook, talk on the phone, bend over and motion to a child needing help with school all at once. Not anymore! Just recently I lost an important piece of mail most likely because I was looking at it while chatting to a family member. I put it down and cannot for the life of me remember where it is.
I become anxious when around too many people-especially if they are people I don’t know or the venue is one with which I’m unfamiliar. This even happens in the car driving in new places. I was never an anxious person before. In fact, I was typically the voice of calm in a group of friends panicking over some small detail that went awry. I try not to share my anxiety, but it’s there and it takes a huge amount of energy to corral it and keep it from escaping into wild demonstrations like running from a room. (I do a lot of counting/visualizing/breathing and self-soothing.)
I don’t like noise. To be fair, I never really did but now it’s exacerbated. Shopping can be a real trial when stores insist on blasting music in hopes it makes patrons feel like spending more money. I, for one, just want to get what’s on my list and get the heck out of Dodge! I love children but I can’t tolerate the incessant chatter little ones bring to a Sunday School classroom or a Vacation Bible School craft table. I used to be the first one to volunteer for those posts but I just. can’t. do. it. anymore.
I crave predictability. I know, I know, of all people I should understand control is an illusion. I do. But the tiny details of life-like planning meals, choosing clothes, cleaning routines and evening quiet times- are things I want to be able to count on. Routine is my friend. It helps my mind (such as it is) operate on reliable pathways. I’ve never been a big fan of random, but now it’s something I try to avoid at all costs.
I need solitude. I’m still processing some things. I imagine I’ll be doing that the rest of my life as different experiences from NOW interact with my loss. I cannot do that in the presence of others. I need to think, reflect, write, read and walk it out. That means I have to devote time and space to being alone. If circumstances prevent me from quiet solitude for too long my blood pressure climbs, my patience disappears and little things grow large.
I don’t sweat the small stuff (usually-see above!). If time, effort or money can remedy it then it’s just. not. a. problem. I’ve learned the hard way that life and love are the most important things in life. Everything else might be nice but it’s not essential. I’m not minimizing the stress and strain of broken pipes, wrecked cars or lost jobs. It’s just that eventually those are situations that can be fixed. And lest you think I’ve not experienced any of those, I have. My first thought whenever anything happens I once perceived as “the worst thing that could happen” is, “It’s absolutely, positively NOT the worst thing that can happen”.
I need to observe a careful rhythm of commitment and freedom on a daily, weekly and monthly basis. I always kept my big calendars each year and tossed them into a box of “if I ever need to know these things”. When I look back on how busy we were as a young family I’m astounded at the pace we kept, the places we went, the hours I was frantically working to fulfill all our obligations along with the things we just wanted to do. I’m sure some of this is a function of age-I’m no spring chicken any more-but I know in my bones it’s also a function of the ongoing toll grief takes on my body, mind and soul. I can only manage a few days of busyness in a row until I need a complete shut-down for at least twenty-four hours or more. I refuse to schedule any but the most difficult to get appointments in a week where I’ve already inked in other commitments.
Sleep, regular exercise and good food are necessary for me to face life with a good attitude. This is probably true of most folks but just a day or two of fast food, no outdoor walks or interrupted nights and I’m toast. I’m not a whole foods, organic everything kind of gal but I try to eat a variety of fresh and less-processed meals. When I’m home I have an almost two mile path through woods and up gentle inclines that builds muscle, exercises my lungs and body and gives me ample time to drink in the beauty of birds, wildflowers and leafy trees. If you’ve ever been to my home you know that the rest of the crowd can stay up as long as they want to but I’m headed upstairs between eight and nine. Of course I get up before the sun, so my total hours are roughly the same but there’s something about that pre-midnight sleep that restores me like no other.
I could probably list dozens more, less obvious, ways grief still shapes the me of today. But it no longer binds me like it did in the early days. I’m better able to work around the difficult bits and still make a meaningful life with the people I love.
One of the things even the most uninformed person understands about loss is that the first birthday, the first Thanksgiving, the first Christmas and all the “firsts” after loss will be hard.
But one of the things no one tells you about is that a heart will mark the “lasts” just as much.
The last time I saw him.
The last time I spoke to him.
The last time I hugged his neck and smelled the unique fragrance that was my son.
Every year as I approach the anniversary of the day Dominic left this life and stepped into Heaven, I also remember all the last times.
It’s hard on a heart to think about and wish that somehow I had made more of those moments. I long to have just one more opportunity to say what needs to be said, to see his smile, hear his voice, and hug his neck.
But there’s no going back.
So part of the pain of marking the milestones is knowing there is no way to change a thing. Not only the FACT that my son is gone, gone, gone. But also the FACT that whatever I said or did or left unsaid or undone is utterly and undeniably carved in stone.
I don’t know why this anniversary is hitting my heart harder than last year. Maybe it’s because I recognize how much life has happened since Dominic left us. Maybe it’s because I think in terms of decades. Maybe it’s because there are so many exciting family celebrations that he won’t be part of.
I have no idea.
But it’s nearly eleven long years since my son crossed the threshold of his family home. It’s nearly eleven years since I heard that familiar deep “Hey!”. It’s nearly eleven years since I waved him down the driveway and hollered, “Be careful!” as he drove back to his apartment.
I am thankful for the faithful love of my God and my family. I am thankful for the compassionate companionship of friends. I am thankful that I am still standing after the awful blow that I was sure would knock me so far down I’d never get up again.
But I miss him. I miss him. I miss him.
I will never be able to watch the early spring flowers bloom again without also remembering that it was those blossoms that heralded the good weather that lured him to take his motorcycle that night.
I will never hear Spring Break plans without counting the days between his last Spring Break trip and the day he met Jesus.
I cannot step outside and smell the grass growing, feel the breeze blowing and hear the birds singing without my heart skipping beats and doing the math. Today marks less than two months before the day he left us.
I understand that for others-if they remember at all-Dominic’s departure is a day circled on the calendar.
For me, it’s an entire season.
I mark every single day that led up to that day. I remember every single conversation, meeting, text and phone call. I remember all the things I did and regret all the things I didn’t do.
While the world is celebrating new life, I’m remembering a life that ended.
I wrote this a few years ago in response to post after post across social media of (mostly!) moms lamenting the fact their son or daughter would soon be moving away or off to college.
I get it!
When you are used to having your kid around it’s tough when he or she leaves the nest.
But there is a vast difference in having to work a little harder to stay in contact or arrange visits and never being able to speak to your child again.
It’s an adjustment to compare calendars to find a day your family can celebrate together but it’s heartbreaking to know that one chair will always be empty at every family gathering.
I thought I had at least a passing understanding of what grief is, what it feels like, how it impacts a heart before my son died.
But I was wrong.
Until you live with it day in and day out for weeks, months, years you really just. don’t. know.
There are so many feelings wrapped up in what we call grief. So many surprises along this path.
Who knew that the same heart that would do nearly ANYTHING to spare another parent the awful burden of child loss could also be wildly jealous of that same parent’s intact family?
I’m writing this today as springtime sunlight floods my window and the scent of grass and growing things wafts in the breeze.
I still feel the stir of life when the days grow longer and the laying hens gift us with eggs every twenty-four hours.
But for ten years now my heart drags itself into the light bearing a burden of darkness.
In memory of Dominic from an anonymous friend.
In the early years it totally eclipsed any promise spring might portend. Birdsong only reminded me of my son’s silent voice.Flowers smelled like death. The appearance of fresh growth highlighted the passage of time and the timelessness of missing Dominic.
It took a long while to learn how to be alive and also acknowledge the awful reality and sadness of death.
Now I can watch the faithful chickadee family (generations of them) who perch on a garden torch singing praise to the rising sun. I marvel when a daring chipmunk races to retrieve some tasty tidbit while keeping a watchful eye for my outdoor cats. I count the hours as the sun makes its path outside my kitchen window from darkest dawn to midday and beyond. I put on and take off the garment of grief many times each day.
I regret springs spent doing anything other than reveling in the beautiful life of my beautiful children. I wish I had understood then what I understand now: Life is short, no matter how long it lasts.
Then a lovely memory pops into my mind and I know I did the best I could with what I knew at the time.WeDIDspend days playing and laughing and learning together.
It’s a battle, this remembering.
I don’t always have time to indulge my heart.
But for this season, this day, I’m giving myself permission.
My hardest grief season begins in November and runs to the end of May. Thanksgiving through Dominic’s birthday on (or near) Memorial Day are days full of triggers, memories and stark reminders that one of us is missing.
If I could fall asleep November first and wake up in June I’d do it.
But I can’t so I have to employ all the tricks I’ve learned in the over eight years since Dominic ran ahead to heaven to survive those particularly challenging months.
I wrote this six years ago but it still speaks my heart.❤
Melanie
I will not get used to the fact that my son is beyond my reach. I have come to a certain acceptance of it as fact, and acknowledgement of the truth that I cannot change that fact.
The pain hasn’t become less painful, only more familiar. It doesn’t surprise me as often when it pricks my heart anew.
thelifeididntchoose 