What Helps and What Hurts

I am committed to continue to trust Jesus and to look to the Word of God for my hope and direction in this life and in the one to come.

I speak truth to my heart through Scripture, worship songs, testimonies of others who have gone before and remaining in community with other believers.

But I’ve yet to reach the place where I can plan on most days being better days rather than hard ones.

I’m trying.

And I’m working to tease out the influences that make a difference-both the ones that help and the ones that hurt.

So here’s the list so far:

WHAT HELPS

  • Starting the day with Bible reading
  • Writing out a verse or two that speaks hope to my heart
  • Listening to worship music
  • Feeling well-less physical pain translates to an overall sense of well-being
  • Having a plan for the day-even if it is simple and created in broad strokes, knowing what I plan to do gives me a reason to get up and get going
  • Seeking companionship with other believers either via Facebook groups, telephone calls, in person get togethers or messaging.
  • Allowing myself a set time to grieve-cry, pray, lament, or whatever-then moving on with the day
  • Mixing up physical activity with rest-changing my body position often reorients my attitude.
  • Striving to get proper sleep, eating good food (not junk and not mindlessly), exercising and stretching.
  • Crying-if I need to cry I’ve found allowing the tears to fall is much better than fighting them off all day.
  • Retreating when necessary-if I find a situation is too much for me to handle, I give myself permission to retreat.  Most things can be done another day.  Sometimes just granting myself permission means I have the courage to press on and face it.
  • Planning for hard things.  If I know I’m going to have to face a hard thing, then I try to plan it.  I prepare myself by thinking through (as much as possible) various outcomes.  I’m more prepared and usually it goes better than I anticpated.
  • Not overscheduling my days/weeks-it is harder than it used to be to get going in the mornings so I take that into consideration when making appointments.  If I have a busy day on Monday, I will try to make Tuesday open and relaxed.  Having space between commitments gives me time to recoup and minimizes anxiety.
  • Doing as many things via Internet and telephone as possible-I can do needful things even if I’m having a bad day if I don’t have to get dressed and go out to do them.

WHAT HURTS

  • Neglecting my spiritual life-if I don’t read Scripture, don’t engage with other believers and refuse to acknowledge and thank God for the blessings He still bestows-I can quickly succumb to the dark whispers of the enemy of my soul.
  • Ignoring physical needs-when I don’t prioritize sleep, good nutrition, adequate exercise and appropriate pain control (for my RA) then sadness is multiplied and it is so much harder to climb out of the pit of despair.
  • Carrying unnecessary burdens-I cannot MAKE anyone understand the pain and ongoing challenge of child loss.  So when people outside my immediate grief circle question my feelings or try to make me conform to their expectations of what grief should look like and how long it should last, I have to shake it off. If it’s an important and ongoing relationship, I try to help them understand but if they choose not to or if it is a tangential relationship, I let it go.  I refuse to carry the burden of others’ expectations in addition to the burden of burying my child.
  • Being ignored-it hurts to be ignored.  It hurts when someone asks how I am yet doesn’t allow the space and time for me to answer.  It hurts when I answer and they ignore my pain or dismiss it with a story or platitude or Bible verse or just don’t say anything.
  • Being shamed-it hurts for others to shame me by implying that I am not strong in my faith or not trusting Jesus or not hoping hard enough for heaven when I admit I still struggle in grief and still miss my son.
  • Disregarding my triggers:  There are certain situations that I know will guarantee a breakdown, panic or a crying fit.  I avoid them when I can.  If I can’t-then I make a plan of escape (just in case).
  • Being “on display” for others-I am one woman doing the best I can to walk faithfully with Jesus through an unbelievably painful experience.  I am not the Author and Finisher of your faith-Jesus is.  It hurts when I feel like others are watching to see if I’ll make it, if I’ll say the “wrong” thing, if I’ll admit that I doubt.  I want the same freedom others have to grow in my faith and to make mistakes and learn from them.  I don’t want to be a “poster child” for anything.
  • Friends staying away.  I know it is hard to be my friend right now.  You never know what you might get when you call.  But if you ARE my friend, please don’t stay away.  Please reach out even when it makes you uncomfortable.  A good word at the right moment is often the difference between a very bad and very lonely day and a pretty good and generally hopeful one.
  • Hiding my sorrow-when I try to pretend I am stronger than I really am or when I try to hide my tears it takes so much energy and makes me so less capable to do the other things life requires.

These are just some of the things that help/hurt me in my journey.  I would love to have others share what helps/hurts them in theirs.  There’s strength in community.

Leave your thoughts in the COMMENTS below!

 

 

 

Another Day

I wake and you are still gone.

The cats tap-tap-tapping on my arms and face declare the day has begun despite the dark and I need to climb out of bed.

Why?

What difference does it make?

I trudge downstairs, put the coffee on, feed the cats and settle into my chair to read and write.

Habits.

Routine carries me through the day.  There are things that need to be done.

The sun still rises-must be soon now because I hear the rooster’s escalating declaration that he, at least, can see the light.

One cat settles into my lap adding weight and warmth to the morning. I remember when I held you and your brothers and sister.  I never tired of that sweet bundle bearing down on my heart.

I would do anything to feel it again.

But that can’t be.  And I won’t hold your children either.

All of you was taken away.

Every last molecule, every last gene.

Nothing left but flat photos and memories that are increasingly difficult to piece together in rich detail.

The vital essence that sent shock waves through a room, the loud laugh, the snarky comments, the deep, deep voice that made you sound so serious-all gone.

Heaven is a real  place and I know you are there.

But I want you here.

I can’t help it.

All the theological arguments don’t fill the hole in my heart where you are supposed to be.

Shake it off.

Here’s the sun.

Get to it.

Another day.

 

 

Retreat

As a kid our family made a yearly pilgrimage to the Gulf Coast-back when the beaches were wide open vistas, the water see-through green and the days long and unhurried.

We didn’t spend money on the “attractions” or tourist trap souvenir shops-we got up early to watch the sun rise and spent the remainder of the day back and forth between the beach and the water.

I loved to find a spot that was about waist deep and feel the waves move across my body-up and down, up and down-floating in rhythm to the world’s heartbeat.

But every so often a wave would surprise me, crash over my head unannounced and break the cycle of gentle rocking with a sputter-inducing plunge beneath the salty sea.

As long as the giant waves were few and far between, I could recover, regather my sense of well-being and continue to enjoy the water.

But when the first wave marked a change in the tide or an incoming storm and was followed by more and more of the same, I knew it was time to move toward shore.

I could withstand one or two of these but if there was no chance to catch my breath in between I was going under.

This past week has been a deluge of waves.

Waves of grief,

waves of regret,

waves of disappointment,

waves of discouagement.

No storm clouds on the horizon.  No major life events or grief anniversaries-just a turning of the tide.

And so I find myself retreating a bit.

Backtracking from progress I thought I had made. Retracing steps and repeating cycles I though I had left behind.

I suspect that most of us have weeks like this.

You don’t have to bury a child to beg Jesus to make things whole again-to bring hope to your heart again-to ask Him to calm the storm and save you from destruction.

Ebb and flow.  Waves and calm.  Storms and sunshine.  Life is made up of all of these.

I am confident that Jesus is the Peace-speaker.  He can calm the wind and the waves.

I want to have faith.  I want to learn to call out in trust and not doubt.

I’m working on that and waiting for His Spirit to work on it in me.

But as I wait, I’m going to have to sit on shore for awhile.

 

 

 

It Changes Everything

Part of the reason I share my story is to provide insight for people who haven’t lost a child into the hearts and lives of those who have.

But mainly it is to be a voice for and to encourage other parents walking this valley by letting them know they aren’t alone, their feelings and experiences are perfectly normal and that just as welcoming a child into your family is a life-altering event, saying good-bye to a child is a life-altering event. 

We do not expect a mom to “get over” the changes having a baby brings to her everyday experience, and we should not expect a  bereaved mom to “get over” the changes burying one brings either.

Want to help?  Read:  Loving the Grieving Heart

Please-Just. Listen.

It’s hard-it’s hard to stay the words that come unbidden to mind and threaten to fly out of your mouth.

It takes restraint.  And patience.  And wisdom.

But when I finally open my locked box of hurt and pain and memories and heartache-please, please-just listen.

I know better than you that nothing anyone says, or does or hopes to do can change the facts.

Dominic’s not here-he’s there.

And I also know that makes you feel helpless.  I feel helpless too.

I’m not looking for pity.  I don’t want attention.  I have no desire to make you sad.

I have to let it out or I’ll burst.  If others saw the fullness of emotions brimming in my heart they would stand amazed that I could push them down and keep them inside so much of the time.

But speaking my sorrow is empowering.  

It provides a witness.  It means that he matters, that I matter and that this awful reality is recognized by someone other than just me.

When you shut me down or shut me out I. am. crushed.

Again.

In the end, you can walk away.  You have another life to go back to.  My pain is tangential to the reality of your every day.

It is central to mine.

So, please-encourage my heart with compassionate presence and just listen.

presence best gift

 

 

 

Who Needs Hope Unless They are Broken?

The gospels don’t hide the fact that Jesus came to a broken world.

Religious leaders who were supposed to be guarding and guiding God’s people were instead protecting positions of power and leading others astray.

The masses were beaten down-helpless under the burden of Roman occupation and hopeless that they could ever “measure up” under the system of customs and laws that had been imposed by the Pharisees.

Jesus spoke truth to this reality, He didn’t deny it.

Jesus looked brokenness in the face and promised redemption and restoration.

But He admitted that in THIS world, the one we walked on, there would be tribulation.  He didn’t promise a pain-free existence, He promised His Presence in the midst of pain.

And that is the power of the cross-that an instrument of torture became a symbol of hope.

What the enemy meant for evil, God used for good.

When we try to soft-pedal the struggles of life, when we try to shape our stories into victorious narratives with tidy endings, when we deny the presence of pain, we diminish the power of the cross.

Read more here:  denial

How Do You Breathe?

It was the question I asked the bereaved mother that came to my son’s funeral.

It was the question a mother asked me as we stood by her granddaughter’s casket, surrounded by family and flowers.

And it is the right question.

Because when the breath leaves the body of your child, and you look down at the shell that used to be the home of a vibrant, living soul, you simply can. not. breathe.

What should be an autonomic, automatic, don’t-even-think-about-it bodily function escapes you.

When your lungs finally scream for oxygen, your body takes over, against your will.

And even more than two years later, it’s where I still live-between the conscious world of aching loss that drains me of the will to go on and the unconcious biology of a body still functioning without my permission.

I live in a no-man’s-land with one foot in the HERE AND NOW and one foot in FOREVER.

But there are no bright flags to mark its borders, no crossing guards to give warning to the people I mingle with every day that they are over there- outside my world of hurt-and I am stuck in here.

And so they wave from across the way, cheerful and unburdened by the weight of sorrow I drag around.  They give me odd looks now and then, vaguely unsettled by my inability to plunge unrestrained into their fun.

Memory escapes them-what happened? how long has it been? shouldn’t she be over that by now?

They can’t understand, and I’m thankful for that.

“How do you breathe?”

Only the ones who share the secret knowledge know the answer to that question.

You learn to will your heart to keep beating and your lungs to keep filling because there are others who depend on you and who need you to stay.

You can’t hold your breath forever, even if you want to.  

You lean harder on the hope you have in Christ.

You recite verses and hymns and fill your mind with the promises of Jesus.

And you beg the Spirit of God to fill you to fullness with His breath, His life and His hope.

I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him. Then you will overflow with confident hope through the power of the Holy Spirit.

Romans 15:13 NLT

 

 

 

Safe Friends

I hope you have one.  

That one person who knows your greatest joys and deepest pain and keeps it locked in her heart as if the secrets were her own.  

She is a gift from God to me, that friend.  

She’s the one I call when I’m wracked with sobs and the words won’t come.  She knows it’s me and just waits on the line until I can speak. She gets my jokes, knows my weaknesses, my strengths and helps me steer a better path on this hard road called “Life”.

She is a safe friend.

listening is a postive act

A safe friend listens.  

Just listens.  

She isn’t formulating an answer while I am talking, she isn’t rounding up cliches or Bible verses or platitudes meant to make her sound wise and shush my sharing.  She hears my heart even when my words might not make sense.

A safe friend sees.  

Really sees.  

She looks in my eyes and pays attention to my expression. She notices when my smile doesn’t match the tone of my words or the silent language of my hands.

She won’t let me by with a quick, “I’m fine!” meant to brush off the real need to spill my guts.

A safe friend stays.  

As long as it takes.

She doesn’t leave in the middle of a hard conversation.  Even if life gets in the way, she will come back and pick it up.  She checks in with me and doesn’t let time unwind the threads that bind us together.  If I don’t contact HER, she contacts ME.

 

 

A safe friend walks with me.  

No matter how steep the path, no matter how rocky the road. We might be hobbling along, broken together, but she keeps going and she keeps me going.

 

 

A safe friend encourages me to look to Jesus.

She admits that she doesn’t have all the answers.  She agrees that there are many things we will have to wait to understand.  But she reminds me that for this, we have Jesus.  We have a High Priest Who was tempted in every way yet was without sin.  We can enter boldly into the Holy of Holies because by His blood the veil is rent.

She doesn’t issue spiritual ultimatums that undermine, instead of strengthen, my faith in Christ.

friends pick us up

 

A safe friend doesn’t cut me out of her life when my life is a mess.  

Even if the mess is of my own making.  She helps me untangle the knot, own up to the sin, reach out to Christ and make amends.

 

A safe friend doesn’t just “happen”.

She allows the grace and mercy and love of Jesus to mold her heart so that He can use her.

Everyone NEEDS a safe friend.

Anyone willing can BE that friend.

kindness

 

I am NOT Crazy!

It was just over a year after Dominic’s accident and a friend forwarded an article about odd behaviors of those who were “stuck’ in grief.  Along with the forward was a little tag, “Reminds me of you.”

It hurt my feelings.

And it was inappropriate.

Because not only had I not participated in any of the listed behaviors (most of which anyone would deem odd and some that were actually harmful) but as far as I could tell, I was doing pretty good, considering.

Considering I went to bed one night with four children alive and well and woke in the wee hours of the next day to the news that one was dead.

No warning.  No good-byes.

Just gone.

In the months since that day I had gotten up each morning and taken care of necessary tasks.  I was not abusing alcohol, drugs or food.  I was still exercising when I could.

And I was engaged with my family -working with them to put the pieces of our shattered lives and hearts back together again.

Yes, I cried.  A lot.  No, I didn’t like to be around crowds.  I stayed at home much more than before. I struggled with anxiety when anything out of the ordinary happened.  I found small talk hard to follow and forgot things (still do). And I was not participating in many “extra” activities.

I slept with Dominic’s pillows every night-it was a way to touch what was left of him.

But I was functioning.

My friend’s reaction to the fact that I was “still” grieving after a year is not all that unusual.

I speak to bereaved parents who are often made to feel by others as if they should “be over” the death of their child.

They are told to “move on”.

Or, in faith circles, to “be happy he is in heaven”.

Most mental health professionals agree that child loss is probably the most difficult loss anyone has to bear.  

A simple Google search will turn up dozens of articles that support this understanding of a parent’s heartache and lifelong struggle to embrace the pain of losing a child.

Yet most people are unaware of this fact.

So I’m here to tell you-grieving mama, grieving dad-you are NOT crazy!  

You are not overreacting to one of the most awful things that can happen to someone.  Out of order death is devastating!

When asked about his son years after he had died,  Gregory Peck replied:

every day

As I’ve written in a previous post Am I Normal?

No one thinks it strange that the ADDITION of a child is a life-long adjustment.

So, why, why, why is it strange that the SUBTRACTION of a child would also require accommodation for the rest of a mother’s life?

I understand that if you haven’t walked this path, you can’t REALLY know what it’s like-even if you try.

I don’t want you to know this pain by experience.

It’s awful and unrelenting.

What I do want you to know is I am NOT crazy for missing my son.  I am NOT crazy for wishing I could turn back the clock.

I am NOT crazy because this devastating, paradigm shifting, unbelievably painful event still impacts my everyday life.

Please don’t treat me like I am.

The best help a friend can offer is a listening ear-no judgement-and a hug that says, “I love you. And I’m sorry.”

changed for life

 

Navigating Treacherous Terrain

One of the things I’ve been forced to embrace in the wake of child loss is that there are very few questions, experiences or feelings that are simple anymore.

Read the rest here:  It’s Complicated