coping skills – Page 28 – thelifeididntchoose

Spoon Theory Applied to Bereavement

I thought I would follow up yesterday’s post with another one to help folks recognize when they NEED to rest.

I don’t know about you but I have a hard time figuring that out sometimes.

One approach that has helped me is something called “Spoon Theory”.

Spoon Theory was first described (as far as I know) by Christine Miserandino of butyoudontlooksick.com.

The original article pertains to chronic illness. But when I stumbled across it a couple years ago it really clicked with me.

The basic idea is that everyone starts with a finite number of “spoons” representing the energy, attention and stamina that can be accessed for any given day. When you do something, you remove a spoon (or two or three) based on the effort required. When you have used up all your spoons, you are operating at a deficit.

Like a budget, you can only do that so long before you are in big trouble.

The only change I would make is to say that in the first months and years, most bereaved parents have far fewer than 12 spoons.

Grief uses at least half of them by itself.

But it’s helpful for me to recognize that I do not have an infinite supply of energy and stamina regardless of what I think has to be done or how many more hours there are in a day. I’ve written about that in this earlier post: Emotional Bankruptcy: I Can’t Spend the Same Energy Twice

And I think it’s a great graphic to show to family and friends so they can understand why we simply CAN’T do everything we used to do.

Nope, Not Crazy. It’s Just Grief Brain.

Oh, my goodness!!!

If grief brain is my constant state of mind, adding stress upon stress (like your mama being life-flighted to the hospital!) and it gets even worse.

These last weeks I’ve had to ask for grace repeatedly as I fumbled for words, fumbled for keys and made stupid mistake after stupid mistake.

But I’m not crazy, just can’t access my brain like I used to.

So for those who are feeling the same way, here’s a reposting of a blog that sheds some light on how our brains change because of grief.

I’m looking right at her.

I know her. In fact, I’ve known her for years. But please don’t ask me her name.

I have no idea.

Read the rest here: Grief Brain: It’s a Real Thing!

NOBODY Does it Alone

Even if you think you are the Lone Ranger-riding the hills and vanquishing enemies all by yourself, you aren’t. Heck, HE wasn’t alone either (thus my confusion over his name).

Every single one of us has people in the background making life as we know it possible.

And when life as we know it takes a sudden left turn, all those “invisible” people become oh, so important.

It happened when Dominic ran ahead to heaven. The eleven days between the knock on the door and his funeral were filled with friends, family and even strangers who came by, brought meals, cleaned my house, made phone calls, and did all the things I just. couldn’t. do.

These last weeks have been the hardest season since Dom left us. When I got the phone call Mama was being life-flighted my heart dropped to the floor. Having been there once before, I was not at all ready to revisit the awful pain of loss.

So I gathered what I needed, made a few phone calls of my own and my children and I raced down to be with her and my father.

Thankfully, the ending to THIS story, though hard, isn’t tragic.

After the first eleven days in hospital and only a few at home before a second hospital admission, Mama is back at home getting stronger.

Things are different. Changes are required.

But she is smiling and beautiful. Still with us.

Hallelujah!

But in order for me to stay with my folks for 27 of the past 31 days I have had to call on and depend on the help of others.

For me to leave MY responsibilities at home, someone else had to pick them up. Horses and goats and dogs and chickens don’t feed themselves. The church deposit has to be made each week.

My husband has graciously accepted that our communication is limited and sporadic. What used to be long phone calls every day turned into short bursts and quick texts that let him know I was OK and still breathing.

My youngest son, Julian, laid aside his own project of remodeling his first home to pick up all the things I normally do around the farm-no complaints and no questions asked. He is patient with me when my tired brain can’t think of words while trying to give him yet another chore that needs done.

My daughter, Fiona, finishing a tough last semester in RN school, as well as working and putting in required clinical hours, has called to check on me and her grandmother, offered excellent medical tips and helped me ask for the things we need for Mama. She shoots me funny memes and encouraging texts that provide laughs to boost my immune system and bolster my courage.

My eldest son, James Michael, has squeezed in a weekend visit to my parents’ house in between helping his AF base recover from Hurricane Irma and a hundred other responsibilities as the Public Health Officer for a large command. He drove the tractor and helped bale hay. He brought flowers for Mama and BBQ ribs and sweet tea for me.

My friends at church have graciously given me space and taken up slack so that I didn’t have to worry about my duties as treasurer. No pressure and no tacky comments-only love and understanding from folks who KNOW how important family is.

My very special friend, Laura, sent me back from my brief three day stint at home a couple weeks ago with helpful herbal tinctures to brace my body for stress and hard work. And she always listens without trying to fix me.

Dominic’s example as a strong advocate gave me the backbone to stand and insist that Mama get the care she needed when in hospital and at home. I could hear him say, “Don’t let them get by with that!” to my often trembling heart.

And many, many of my parents’ friends and our extended family have phoned, sent notes and stopped by to encourage my heart and theirs.

People keep saying, “You are doing a good thing for your parents”.

I appreciate that. But I want them to know that I am not doing it alone. It goes back in a long chain to those who choose to take up the slack I leave behind when I drive out my lane.

I would not be free to help if others didn’t choose to help ME be free.

So I want to give a loud and public shout out to each one that has done this hard and necessary work in the shadows.

You are amazing.

I love you.

Zero Points for Pretending: You Can’t Hide Your Heart

Oh, sometimes I think I’m clever enough to do it.

I edit my words, costume my body and fix my face so I can act the part. But truth is, I never manage to fool anyone who looks closer than my plastic smile.

I can’t hide my heart.

And I don’t know why I try-I don’t get points for pretending.

There’s no prize at the end of this long road for the one who makes it with fewest tears.

No one offers me any token for the months or years or decades I make it without breaking down or cracking up.

But I damage my own soul by shoving the feelings deep. I clog my arteries by swallowing every angry word. Sorrow turns to despair which turns to hopelessness if I never let it out.

And like it or not, it leaks out somewhere.

So I’m learning to speak my truth, to name my feelings and express them in healthy ways:

I journal.
I share in safe spaces like bereavement groups and my church small group.
I exercise-which helps to burn off “steam” or just that awful sense of discomfort when darker feelings overwhelm my heart.
I build rest into my day along with silence so my mind and heart get a break from constant self-restraint and editing needed during conversation.
I read helpful articles and books.
I write this blog.
And when I need to, I talk to someone who is making my journey more difficult and try to work it out.

All of this takes energy and effort when I have the least of either to spare. But the alternative is too grim to consider.

I don’t want to walk the rest of my years carrying more heartache than that of child loss-which is heavier than I could ever have imagined.

I choose to shed the extra pounds of emotional baggage I can leave by the roadside.

I won’t hide my heart.

Through This Valley Conference for Bereaved Parents-Don’t Miss It!!

I admit I’m not much of a gatherer.

Oh, I love my Sunday School class and my church family. I enjoy the occasional family reunion or wedding. But, on the whole, I tend to stick to small groups instead of large crowds.

And that tendency has been amplified since Dominic ran ahead to heaven.

So I totally understand why a bereaved parent might be reluctant to come to a CONFERENCE full of STRANGERS.

But please listen to my heart, not just my words: this is NOT your average gathering.

April Wendland (a bereaved mother herself) and a very special team of people have worked hard to put together a two-day event that will speak courage to broken hearts.

You won’t be surrounded by people who glance sideways when the tears roll. You won’t feel out of place when the tears turn to sobs.

Because we’ve all been there-we are STILL there.

There is no substitute for hearing (perhaps for the first time), “Me too! I feel that way too!”

If you have never had the blessing of sharing space with other hearts that know exactly how you feel, then please, please, please try to come!

And it’s FREE!

Courage is going to flow through the building. Love will overwhelm your heart. Grace and mercy will spill forth like water from a fountain.

Come be encouraged, strengthened and filled with hope for this journey. ❤ ❤ ❤

Here’s the link: Through This Valley Bereaved Parents’ Conference

Friday, October 6th-Saturday, October 7th

Legacy Church, 3540 Central Ave., Hot Springs, Arkansas

Boundaries: I’m Not a Punching Bag

Last week I wrote a post titled They Don’t Know What They Don’t Know and made the case that often folks say insensitive things but truly don’t mean harm. Many are walking in the dark and step on our toes because they can’t see.

But there are some people who make it a habit to be insensitive.

They are the ones who delight in speaking their mind regardless of how it hurts another heart. They pride themselves on “telling it like it is” and justify the fallout as a necessary consequence of “opening the eyes” of people they consider “blind to the truth”.

And while I believe that it is my duty as a Christ follower to forgive these folks when they hurt my feelings, I do not believe that I am required to continue to offer my heart to them to be tossed to the ground and trampled.

I do not have to welcome them with open arms and invite their untimely and unkind comments.

I do not have to engage with them on social media-I can unfollow, unfriend or simply ignore their posts. I can delete inappropriate comments made on my own posts and untag myself when they try to draw my attention to an article or meme that they think “helps” when it only wounds me.

If the person is a family member, I can choose to be polite when we meet at gatherings but I do not have to sit next to them at the table. I can excuse myself early from birthday parties, Sunday dinners or holiday meals. I can simply refuse an invitation and stay home instead.

If the person is someone tightly woven into the fabric of my friendships, I can do the same thing-choosing not to be alone with them so I’m not an easy target for their “helpful” monologues.

If the person is a casual acquaintance then I can choose not to engage them at all. It’s OK to scoot around the next aisle in the grocery store so that I’m not caught like a deer in headlights when they see me and exclaim, “How ARE you???”

In other words, it is perfectly acceptable to have boundaries around my heart so I can survive this journey.

It is healthy.

It is necessary.

I’m not required to be someone else’s punching bag.

Anger or Sadness? Or Both?

We live in an angry society.

Social media is full of rants about this and that. Television blares raised voices shouting over one another in what passes for news coverage. T-shirts are emblazoned with one-liners intended to provoke others.

We tolerate and even embrace anger as a legitimate emotion.

Yet we rarely make room for mourning. We hide our tears. We shame those who don’t hide theirs as “weak” and “soft” and “cowardly” or worse.

But many times what we think is anger, is really sadness.

I’ve discovered that sometimes in this Valley of the Shadow of Death, deep sorrow masquerades as anger. And I’ve become sensitive to that truth in other people as well.

Sadness over loss of any kind can be spewed out as anger:

Sorrow over declining health.

Despair over lost opportunities with loved ones.

Heartache that life has not turned out the way one had hoped.

The problem with anger is that it pushes people away. It creates an impenetrable circle that isolates a heart just when it needs to be loved, cared for and comforted.

Very few are brave enough to battle through another’s angry front to find the sorrow hidden underneath.

So I challenge myself to be more authentic in expressing what I actually feel and not dig a moat around my heart by acting angry when I’m really devastated by grief.

Because I don’t want to push people away, I want them to come close.

I need them to take my hand and remind me that I’m not alone.

[#unblessed] If You Don’t Laugh, You’ll Cry

So my regular followers know by now my mom was lifeflighted over a week ago from her VERY rural home to the nearest large hospital due to a heart attack and complications from preexisting heart/lung disease. (If you didn’t, you do now 🙂 )

I’ve been here with her since Thursday morning-taking night shift at the hospital so my dad can go home to the farm, get some rest and do what needs to be done.

You’d think a body might catch a break when some giant life-altering event like this happens. But NOOOOOOO!

In the week plus a day since Mama has been hospitalized we have had (not really, but sorta) funny one [#unblessed] moment after another.

Last Friday morning, following my dad to the hospital, he did the same sliding “stop” at a stop sign turning right onto an access road that he’s done every time he goes this way for 20 years. But this time-you guessed it!– a very enthusiastic and attentive LEO saw him and pulled his old red farm truck over.

Following behind, I’ll just be honest, more than one salty word slipped out as I anticipated the worst possible outcome in case fatigue and stress prompted Papa to tell the officer what’s what. Thankfully, it didn’t come to that and after running the plates and license the cop let him go. [#unblessed]

Sunday I came to the farm by myself for the first time and left Papa at the hospital. He had remembered to give me a house key and I had carefully put it in my purse.

Perfect.

Got inside-no problem.

I needed to add clothes to a load in the washer and stepped out on the porch to toss them in. Being the well-trained daughter I am, I shut the house door behind me. Locked myself out of the house.

No phone.

No shoes.

No car keys.

NOTHING.

Everyone down this way was in church.

So I did the only thing I could do. I put on an old pair of Papa’s boat shoes (after checking for spiders) and hoofed it the two miles to my uncle’s house so he could give me the spare key. At midday. In the Florida sun. No one stopped to ask if I needed a ride. [#unblessed]

Tuesday I thought I was being very innovative in getting my critical daily medicine prescriptions filled at the local pharmacy HERE since I didn’t bring a sufficient supply from home. Called CVS and it was a breeze except for one hiccup. A single script was out of refills so I had to call my doctor and ask for an emergency 14 day supply to be sent. Nurse took the message, said she’d get it done. That was at 11:15. I head to the pharmacy about 3:00 to pick everything up. Two are ready but the one from the doctor isn’t.

Thinking that there had been a snafu-they might have called it in without thinking to my pharmacy back home-I telephone the office only to be told that the doctor was going to do it this time, but that because he wanted me to do a follow-up appointment (which I had cancelled but forgot to reschedule), he was basically doing it under duress. (Even though this is a “don’t you dare stop it suddenly” medicine and I told the nurse my mom was lifeflighted to the hospital with a heart attack).

All the fight was out of me. I “yes ma’amed” my way through that phone call and said “thank you so much”. The nurse waited until the minute before their office closed to fax the script just because she could. [#unblessed]

They are trying to move the fluid off my mom’s heart and lungs with aggressive IV diuretics. She had one round Tuesday but by Wednesday morning her potassium was so low we had to bring that back up before the next round. Well, the next round started at 6:30 Wednesday night. (For those of you who don’t know about these things, IV diuretics mean trips to the bathroom about every 20-30 minutes.) Yep! All night long, me and Mama made that three foot trek from the bed to the potty-unhooking oxygen, unplugging the IV pole (it won’t hold a battery charge) and carefully moving her fragile self twice an hour until about 3:30 in the morning. Apparently cardiologists figure that if they are on 24 hour call, patients should be too. [#unblessed]

Heading home Thursday morning after little sleep on Wednesday night, I see blue lights behind me. I check my speed. Within the limit. I’m talking on the cell but not texting. I have no idea why I’m being pulled over.

License and registration. He tells me that the tag I have on my truck comes back to the Toyota Camry we own.

Now, you have to understand our family has many vehicles and they issued new tags this year. I didn’t pay close enough attention when taking them outside to put them on and got them mixed up. But “switching” tags is a serious offense. And then, OF COURSE, I had not put the new insurance card in the glove compartment-it was floating in my purse. (Thankfully I found it.) For about 10 minutes my heart was racing although I had already decided that if I got off with a ticket I’d pay it without blinking an eye. He did let me go but I’m convinced he thought I was a crazy woman who should have known better [#unblessed]

Today, I tried to get my injectable RA medicine shipped to the same pharmacy since my shot is due tomorrow. Went through the whole routine of getting the shipment set up and find out the earliest they can get it here is NEXT Thursday. When I probably won’t be here at all. [#unblessed]

I’m sitting here in my parents’ home, typing and taking a break. Because my oldest son may be here tomorrow. See, the largest, strongest and potentially deadliest hurricane is headed either for his home on the east side of Florida or for us here in the western panhandle-but we are further inland. My truck is stocked with bottled water and other supplies “just in case”. We don’t know if Mama will be released before Irma gets here or not but we’ll be OK. Who would have thought? It figures. [#unblessed]

Each incident adds stress to the system but none are really all that traumatic.

Because when you’ve buried a child, nothing short of death really rocks your world very much.

And I’ve learned to laugh (once the adrenaline wears off)-because if I don’t, I’ll just cry.

Repost: Practical Ideas for Dealing With the Holidays After Child Loss

It cannot be overstated: holidays are extremely hard after loss. Every family gathering highlights the hole where my son SHOULD be, but ISN’T.

There is no “right way” or “wrong way” to handle the holidays after losing a child.

For many, there is only survival-especially the very first year.

These days also stir great internal conflict: I want to enjoy and celebrate my living children and my family still here while missing my son that isn’t. Emotions run high and are, oh so difficult to manage.

Read the rest here: Practical Ideas for Dealing with the Holidays after Child Loss

Revised Post: Grief and Holidays:What the Bereaved Need From Friends and Family

Thank you to each one who is praying for my Mama. She is improving each day and we are hopeful that maybe in a few days we will escape the hospital 🙂

I am so, so thankful for the wonderful medical care available in our nation and to the medical professionals who are helping her heal.

As all my bereaved friends know, life doesn’t stop for grief-it keeps going. Things happen. So we keep on keeping on-it’s the best we can do. ❤

I know it is hard. I know you don’t truly understand how I feel. You can’t. It wasn’t your child.

I know I may look and act like I’m “better”. I know that you would love for things to be like they were: BEFORE. But they aren’t.

I know my grief interferes with your plans. I know it is uncomfortable to make changes in traditions we have observed for years. But I can’t help it. I didn’t ask for this to be my life.

I know that every year I seem to need something different. I know that’s confusing and may be frustrating. But I’m working this out as I go. I didn’t get a “how to” manual when I buried my son. It’s new for me every year too.

So I’m trying to make it easier on all of us.

Read the rest here: Grief and Holidays:What the Bereaved Need From Friends and Family

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