Child Loss: When It’s Been YEARS-How To Bless a Grieving Parent

Please hear me. 

I do NOT blame you that my son and my sorrow have drifted down your list of “things that need attention”.  Your life is as busy as mine once was and your calendar full of commitments and celebrations that require your attendance.

There is no way you would know it’s 69 days until the fifth anniversary of Dominic’s sudden absence. 

There is no reason for you to be aware that as the southern landscape turns to spring, my heart and mind turn to death.  

But it’s the truth. 

Read the rest here:  When It’s Been YEARS-How to Bless a Grieving Parent

Child Loss and Secondary Losses

While I certainly had no real idea in the first hours or even weeks what losing a child entailed, I understood plainly that it meant I would not have Dominic to see, hold or talk to.

I wouldn’t be able to hug his neck or telephone him.  

He wouldn’t be sitting at my table any more.

But the death of a child or other loved one has a ripple effect.  It impacts parts of life you might not expect.  As time went on, I was introduced to a whole list of losses commonly called “secondary losses”.

secondary losses

Here are just a few:

Loss of a large chunk of “self”.  Dominic possessed part of my heart and part of my life.  It was violently ripped away when he died.  There is part of me that was uniquely reflected from him-like a specialty mirror.  I can never access that part of me again.

Loss of identity.  Before Dominic died I was one kind of mother.  I was a mother of four living children who were making their way in the world as successful adults.  I was a mother looking forward with happy anticipation to the next years.  Now I am still a mother of four children but one whose heart has been changed by tragedy and sorrow. Tomorrow is still bright, but there’s a shadow just behind it.

desimones uab family

Loss of self-confidence.  I used to enter a room without a thought to how I’d be received or perceived.  That’s definitely not the case now.  I’m self-conscious-constantly wondering if I’m saying or doing the right thing.  I never know if a grief trigger will (at best) pull my attention away from conversation or (at worst) send me scurrying for the bathroom.

Loss of sense of security.  I think every parent has moments of fear over his or her child.  When they first go off someplace without us, when they get a driver’s license, travel abroad, go to college.  But all the awful things I imagined didn’t hold a candle to the reality of waking one morning to a knock on my door and the news that Dominic had been killed.  The bottom fell out of my (relatively) safe world.  Bad things, random things can and do happen.  Once it happened to ME, it changed how I processed everything.  The passing years have softened some of the anxiety but I will never be able to assume safety again.

Anxiety

Loss of faith.  I did not “lose” my faith.  I never once doubted that God was still working, was still loving and was still in control.  But I most certainly had to drag out every single thing I thought I knew about how I thought He worked, loved and superintended the world and examine it in light of my experience of burying my son.  It took a long time to work through all the pat answers I had been offered and myself doled out to others for years that didn’t fit with my new reality.  I am learning that doubt is not denial and that I have to live with unanswered questions.

Loss of family structure.  I’ve written before that a family is more than the arithmetic total of the number of members.  There were six of us.  But we were so much more than six when we were all together!  Our talents, personalities and energy were amplified in community.  When Dominic’s large presence was suddenly whisked away, every relationship got skewed.  We’ve fought our way back to a semblance of “whole” but still miss him terribly.  We can function, but we will never be the same.

empty chair

Loss of my past.  Memories are funny things.  They are plastic and subject to change.  And my recall of an event is limited to my own perspective.  For a memory to be rich and full, I need input from others who were there as well.  One vessel of family memories is no longer available to add his unique contribution.  Every time I pull out a photo or dig down deep in my heart to draw up a treasured moment, I realize I’ve lost something I can not recover.  The joke, the glance, the odd detail are all gone.

Loss of the future I anticipated.  I’m a planner by nature.  Not a detailed, OCD, got-everything-in-order kind of planner, but a “big picture” kind of planner.  When Dominic left us in 2014, things were going (pretty much) according to plan.  Each child was well on his or her way to the career path they had chosen.  I was easing into an empty nest and exploring options for life after homeschooling.  My husband was entering his last few years of a lengthy career.  It’s hard to explain to anyone who hasn’t experienced it, but when your world is shaken by child loss, everything gets scrambled.  You can’t just pick up where you left off and keep going with the pieces that remain. 

There’s a prolonged period of confusion and everyone is impacted differently and in ways you could never imagine.  All of us have changed dramatically in the years since Dominic left us.  He is not the only thing missing from the rest of our lives.  Holidays are altered.  Birthdays are different.  We have to plan special events around uncomfortable milestone dates that roll around every year whether we want them to or not.  It’s a constant readjustment to life as it IS instead of life as I thought it WOULD be.

Loss of ability to focus and function.  Oh, how this surprised me!  I was in some kind of zone for the first month after Dominic left.  My other children were home, we had to make it through planning his funeral, two graduations and cleaning out his apartment.  I also had to handle paperwork for my husband to take short-term disability due to grief.  I cried a lot, wrote down dozens of notes but managed to do what I had to do.  Then I crashed. I couldn’t remember a thing.  I couldn’t read more than a couple sentences at a time.  I hated the telephone.  I could barely stand to hear the television.  I had to make a list of the most basic things like brushing my teeth, feeding my animals, turning off all the lights before bed.  It was awful!  And it didn’t really get better for well over a year.

I still suffer from a very short attention span, low tolerance for noise and an inability to accommodate last minute changes.  I don’t schedule anything back to back.  I live in a rural area and sometimes shop in the nearby town.  I will start the day with a long list and shorten it repeatedly as I go along because driving in traffic, crowds and random sounds ramp up my anxiety and make me want to go home with or without what I came for.  I have changed the way I do so many things.  My pre-loss memory has never returned.  

griefbrain1

Loss of patience.  I am at once impatient and long-suffering.  I have zero patience for petty grievances, whining and complaining.  Yet I have compassion for other people living hard and unhappy stories.  I berate myself for not being “better” and, at the same time, extend grace to others who aren’t “better” either.  I want to shake people who bowl over weak, hurting, desperate souls.   I don’t have time for moaning about rain when you were planning a picnic but will listen for hours to a mama tell me about her missing child.

Loss of health.  I had a number of chronic health conditions before Dominic ran ahead.  Within the first year of his departure, I was hospitalized twice.  My experience is not unique.  Some parents suffer immediate health effects (heart attack, blood sugar spikes, anxiety/depression) and some see a slow decline over time.  In part because child loss, like any stressor, will negatively impact health and also because sometimes bereaved parents stop doing the things that help them stay healthy.  At almost five years, I’ve learned how to manage the stress better although some of my health issues continue to get worse.  It’s hard to tease apart what is age, what is disease and what is grief.

When your child leaves this life before you do, it changes everything.  

Not only things you might expect, but many you’d never imagine.  

It’s a constant balancing act, readjusting every day to new challenges.  

Struggling to keep my head above the waves.  

grief like the ocean learn to swim

 

 

Sometimes I Just Want To Be Me!

Even in the very first hours after the news, my brain began instructing my heart, “Now, try to be brave.  Try not to disappoint people.  Try to say the right thing, do the right thing and be the example you should be.”

Whatever that meant.

As I made phone calls and received concerned friends and family members I was so aware that they would take a cue from me-how much can I say, how hard can I cry, should I hug or stand back, should I talk about him or be silent lest it make the tears fall harder?

And here-almost five years later-I still feel like I need to lead the way in conversations and social encounters.

Read the rest here:  Can I Just Be Me?

I Don’t Have to Choose Between Sorrow and Celebration

Our family is looking forward to Spring and also dreading it.  

This year we will welcome a new baby (my first grandchild) and also celebrate my daughter’s wedding to a wonderful man. 

Our family is growing again!

brandon and fiona engagement

But we will also mark the fifth year anniversary of Dominic leaving for Heaven and another birthday that he won’t be here to greet.

dom on mountaintop

I’m pretty sure tears will be shed on each of these days and they will be salty-sweet, sad and happy, sorrowful and celebratory-all at once.  

There are no more hard lines in my life that separate events into distinct categories where only a single set of emotions is appropriate.  Instead my heart’s a watercolor mosaic where one feeling washes into another, darker colors make the lighter ones brighter.

My daughter recently wrote her own blog post, Guest Books & Memory Tables: A Sibling’s Perspective on Love and Loss.

Here’s an excerpt:

“Even Hobby Lobby reminds me that if I’m remembering anyone at my wedding it should be the family legends of generations past, not current. Somewhere in my carefully- packed boxes of wedding decorations, sits frames and mementos for mine and my fiance’s grandparents and my forever-frozen-in-time 23 year old brother.

I highly recommend you read the whole thing.  She’s done a beautiful job sharing from a sibling’s perspective.

Her wedding day will be full of great joy and celebration and also some sorrow as we take pictures of the whole family minus one.

 

you should be here

I might be laughing one minute and crying the next.  

And that’s OK.  

No need to fake it.  

It’s ALL part of life. 

sorrow and celebration can coexist authentically

Sudden and Unwelcome Change

I woke up just past midnight to notice my bedside clock flashing off and on, indicating the power had gone out for at least a few minutes at some point after I fell asleep. 

“No worries, ” I thought as I rolled over and drifted off.  

An hour or so later and the cold woke me again.  No power.  This time for several hours.

I snuggled deeper under the warm covers and decided to go back to sleep.  Surely it’d be on by morning.

And it was.  

But it set my mind thinking as I got up, turned on the light in the kitchen and plugged up the coffee pot:  My morning routine would be utterly disrupted if electricity hadn’t begun flowing again.  

hands and coffee

No warm house, no warm shower, no hot coffee, no way to get online and post the blog (cell service is unavailable at my home), no handy portable phones to make necessary calls should the power also be out at our church just a mile down the road.

I could go on and on.

Of course each of these difficulties could be surmounted.

It would take extra effort and be frustrating, but I could manage to get by without coffee and plug up the old phone to make phone calls.  The blog could wait.  And it’s unlikely that the outage would last more than a few hours or a day and then things would be back to normal.

Imagine, though, being used to the modern convenience of electricity at the flip of a switch and then being suddenly plunged into darkness and disconnection.

Unprepared-no matches, no alternative fuel sources, no extra warm clothes for winter days and nights-just plucked from the world you knew and dropped into a world you didn’t.

That’s what it felt like when Dominic ran ahead to Heaven.  No warning, no chance to think through what life might be like, what changes I would have to accommodate, how I would need to face the days, weeks, months and years of his absence.  

family never gets over the death of a loved one

I went to bed and expected to wake to the world I knew.  

Instead I woke to a world I could never have imagined.  

And just like I rarely consider the dozens and dozens of ways electricity impacts my life-makes it easier, brighter, better-until it’s unavailable;  I had NO IDEA how Dominic’s leaving would touch every corner of every moment of every day.

Last night I slept through the power outage.  Other than resetting my blinking clocks it will require no adjustments this morning.

I can’t sleep through child loss.  

When I wake, I face it anew each day.  

And it continues to require adjustments, even now.  

homesick huff post

Feedback Loops and Grief

I wasn’t there when Dominic left the road but I’ve imagined it in detail hundreds of times since that night nearly five years ago.

I can’t help it.

I wonder what he thought, what he felt, whether he knew…

It’s not the only tape that plays over and over in my head.

I think about his childhood and the times I probably overlooked my third of four children as I hurried to get this or that done.  I think about the arguments we had, the laughter we shared, the disappointments and challenges we faced together.

I replay birthdays and holidays and ordinary days.

Sometimes I get in a cycle that makes me smile:  Dominic playing drums in church and subtly shaking his head and sharing an eye roll with me as the congregation claps in awkward rhythm to a song-dozens of different beats, none of which were the right one.

dominic at gray haven

Sometimes I get in a cycle that draws sobs from a place I thought I had sealed off after the first two years of his absence. 

My thoughts fall into an emotional feedback loop that, like the sound wave counterpart, is all screeching, mind-numbing and painful noise.

Like a microphone too close to a speaker, the only way out of the loop is to back away and keep backing away until the cycle is broken.

Most days I can shepherd my thoughts down safe paths.  Those are the ones I share with others when they ask me to tell them about my son.

But when I’m alone and everything is quiet and my mind is left to its own devices or cued up by a random sight, sound or smell I can find my thoughts running places I’d rather they not go.

And the loop begins again.  

 

Shadows and Celebrations

One of my children told me recently that every celebration and holiday over the past few years had a shadow over it. 

I know.

But I can’t help it.

I wish I could find a light bright enough to drive out the shadows.

But there isn’t.

I’m trying.  Really, truly trying.  I want to be able to join in without reserve, without that still small voice whispering, “This won’t last”, in my head.

Because that’s really the shadow, isn’t it?

Not *just* the one who is missing, the incomplete family photo, the empty chair at the dinner table-but the fact that I know, know, know what I didn’t used to know.

I know life is fleeting and death can come for anyone at any time.

I wish I could forget that lesson.

Because that is what casts the longest shadow.

you think you have forever but you don't

 

Repost: Grief and Family

One of the things I absolutely LOVED about having four kids was the way they pinged off one another.  There were evenings when the comments were flying so fast I could barely keep up.  Sly looks, secret texts, funny faces and friendly punches made up most of our times together.

That’s how families are-each person is just a little “more” when surrounded by folks that love and understand him or her.  

When Dominic left us, we didn’t only lose HIS companionship, we also lost the part of each of us that was reflected back from him.

Read the rest here:  Grief and Family

No Substitute for My Missing Child

Bereaved parents hear lots of things from folks who truly do wish to bring comfort but often miss the mark by a mile.

One of them goes something like this, “Well, at least you have your other children (and/or grandchildren) and they need you!”

Now, if they gave it a bit of thought, they would know right away that’s at best an uninformed remark and at worst, a very painful one.

before you tell a grieving parent to be grateful which of yours could you live without

People are not interchangeable.  

There is no substitute for my son.  

He is a unique individual who holds a unique space in my heart.  

dominic at olive garden

As much as I rejoice in my surviving children and look forward to grandchildren, no one else can take his place.  

It’s little comfort to think that no matter how large our family circle grows in years to come, it will always-ALWAYS– be a broken circle.

The place where Dominic should be, but isn’t, will remain unfilled. 

I will never stop missing him.  

Never.  

missing child from arms

 

 

When Your First Thought Is, “Oh No, Not Again!”

Last night I woke to my youngest son’s ringtone at nearly midnight.

I missed the call but when I looked, realized it was the third time he’d tried.  

My heart skipped several beats as I dialed him back only to have it go directly to voicemail.  I tried again and a second later, he answered.

“What’s wrong??!!!”

(Because he never calls me late at night unless something is wrong!)

Julian was downstairs at the front door and needed me to let him in because he’d received some odd texts from his dad- a series of random letters and emojis scrolled across his screen.

He’d tried to call him.  No answer. 

Tried texting him back.  No message except more of the same random letters and images.  

So he drove over from his house just a few miles away, the whole time running a dozen scenarios through his head.

  • “Is dad having a stroke? Mom is asleep upstairs and won’t know.”
  • “Is someone in the house and dad’s only able to randomly swipe his thumb on the screen trying to ask for help?”
  • “Why won’t mom answer her phone?  Do they have her too?”

Five miles and ten minutes is a lifetime when all you can think of is another family member needing help- or worse.  

As I was coming downstairs to let Julian inside, my husband woke up and asked me what was wrong.  We got to the door at the same moment and let our big, burly bear of a son inside.

It took him a split second to realize that all was well and then it poured outthe fear, the panic, the intense self-control necessary not to simply break down the door and barge in, the pent up grief that lives inside each one of us since Dominic left and is always about to spill out and over when we think of another loss.  

He melted into his dad’s arms.  

This is how our hearts are wired since that morning nearly five years ago. 

When the thing you never think will happen, happens, it becomes the first thing you think of when you can’t get in touch with someone. 

Panic is always a breath away.  

family never gets over the death of a loved one