Don’t Let It Fool You

Whether the burden is child loss, abuse, chronic illness or some other ongoing and unchangeable hard circumstance, it’s easy to get so good at acting “OK” you can almost fool yourself.

But all that stress and struggle exacts a cost.

Pretending that it doesn’t is not helpful at all.

So it’s wonderful when people ask about it.

It’s a gift when they let us share.

Awhile back another loss mom wrote this and gave me permission to use it: 

In case you ever wonder, please know that it is always, always OK to ask me about [Dominic]. 

I love to talk about him.

No, I’m not OK.  I’ll probably cry, but it’s just because it’s under the surface always, not because you asked.

And I don’t really know what people mean when they say “she’s doing well,” because if you knew what all goes on in my mind and body from grief-well, frankly you couldn’t handle it.

But it’s OK to bring it up.

Talking helps.  ❤

im ok face fools myself

What Can I DO? Start by Showing Up.

This weekend another family joined the ranks of the bereaved. 

A beloved son left for heaven in a car accident.

The mama’s best friend messaged to ask what she could do to help this newly broken heart.

It made me dig deep in my memories for who did what in those first hours, first days and how it made a difference in our family’s ability to hold onto hope and to stumble forward in the heavy fog of grief, pain and sorrow that enveloped our hearts.

My friend was already committed to showing up and sitting silently and  lovingly with this child’s mother. I didn’t have to remind her of the power of compassionate companionship.

She was going. 

She was staying as long as it was helpful and necessary.

She was coming back as many times as needed.

And that is a gift!

love is courage

I remember the morning I got the news and as the sun was coming up, a truck pulled down our lane.  It was Robbie-our “adopted” son.  As soon as my oldest son (who was in WV at the time) got the call, he called Robbie.  Because he knew I would be able to bear Robbie’s presence and accept Robbie’s help.  I cannot describe the relief I felt when he came to the door-another shoulder to help carry this burden until we could gather all our family together to lift it in unison.

And after him came a couple we had known since the kids were little. 

Both rushed to our doorstep to offer companionship, practical aid, listening ears and simple reassurance that though this was NOT a dream-oh, how I wanted it to be a dream!I was not going to walk this Valley alone.  They stayed until my husband, son and parents had made it here.  I will never, ever, ever forget that gift of unconditional love and time offered just when I needed it most.

Others came.  Some did practical things, brought necessary items, helped me begin to think through next steps.  But many just sat with me and my children as we waited for my husband to fly in and my parents to drive up.

I cannot overstate how important SIMPLY BEING THERE was!

Thinking back on that time, I dug up some other very practical “first few days” things friends and family can do:

  • Bring disposable plates, cutlery and plenty of paper goods (toilet paper, kleenex, napkins) along with extra trash bags.
  • Place a notebook and pens near the spot folks might drop off meals or other things and ask that they write their names and what they brought inside.  My daughter did this for me and while I was often unable to acknowledge it at the time (or unaware of the blessing) I had a record that is dear to me still.
  • Set up an online meal planning/scheduling group. Make sure to note allergies or special food needs because while it’s wonderful to have food provided, it’s not helpful if the family can’t eat it because of dietary restrictions.
  • If there are unwashed clothes belonging to the childDO NOTwash them in an attempt to help out.  It may sound awful to anyone who has not buried a child, but nearly every mom I know wanted something with her child’s scent still on it.  I have a few things of Dom’s that are in a sealed plastic bag.  Every so often I open it and inhale what’s left of his fragrance.  Smell is such a powerful memory stimulant.
  • Begin to collect photographs from online sources, friends and family so that there will be many to choose from if the family wants to make a video for services.
  • Bring disposable Lysol wipes or something similar for quick clean ups in bathrooms and the kitchen.  Discreetly tidy up whenever possible or necessary.
  • Do NOT move papers, piles of mail, etc. without the family’s permission.  It may seem like a good idea at the time to make things neat for visitors, but it will be a nightmare later!  My brain is nearly empty of details for most of the first month after Dominic left us.  I depended on routine and familiar spots to remember where important items might be for the first year.  If something had been moved, I could not locate it, no matter how hard I tried.  If somethingHAS to be moved, place it in a box-clearly labeled-and attach a prominent note on the refrigerator or someplace like that indicating where it is.
  • Just sit and listen.  Or just sit in silence.  Whatever is most helpful to the bereaved parents and their family. Loving presence kept me anchored to this world when all I wanted to do was float away somewhere the pain couldn’t find me.

Compassionate companionship makes the difference between a heart holding onto hope or letting go and falling into the abyss.

Trust me.

I know.

love is not what you say it is what you do pooh

“Don’t Dwell on That!”

Why is it “dwelling” in one instance and “remembering” in another?

Who gets to decide whether I’m taking out a cherished memory, holding it, stroking it and reliving it because it’s all I have left or I’m clutching the past, refusing to let go?

I will be the first to admit that mulling over past offenses is probably the last thing I need to do.  Especially if I’m trying to forgive them.  That’s not helpful nor is it healthy.

But there’s a difference between THAT kind of thinking and the kind of thinking every bereaved parent does about his or her missing child.

When Dominic ran ahead to heaven, there was a sudden, horrible and unchangeable end to new experiences, to making any more memories, to another conversation, picture or text.

All I have of my son is whatever I had saved up to the moment of his accident.  

And it is not enough. 

It will never be enough to fill up the spaces of what my heart wishes I had.

He lived for nearly 24 years.  But I can’t withdraw those memories like cash and “spend” them, day for day, for the next 24 years.

It doesn’t work that way.

So I have favorite moments, like we all do, that I pull out over and over.  I cherish them like precious stones or rare coins.  I hold them, stroke them, tell the stories behind them and hug them close.

Not because I can’t “move forward”.

Goodness! 

Here I am nearly seven years later living, breathing and fully connected to the people and events in my present!

I do it because memories are a way to remain connected to Dominic.  

He is as much a part of my life-unseen by others, unheard by others, often forgotten by others-as the living, breathing children that are still here with me.  

So I am not DWELLING on these memories.

I am hanging on with both hands because I refuse to let one-quarter of my heart be relegated to darkness and silence because of other people’s discomfort.  

I will remember.  

As long as I have breath I will speak my remembrance.

I will never, ever, ever let go.  

handprint on my heart

Family Tree

A cousin whom I haven’t seen in decades recently contacted my dad in order to complete a family tree he is working to compile.

It’s a noble task and one I fully support.

But when my dad forwarded the request to me (because I had details on my own son’s wedding and his wife’s birth date) it was an unexpected trigger.

Typing away I added mine and my husband’s birth dates and the place and date of our marriage.

hector and me 29 anniversary

Then down the line of my children.

Fiona.

fiona and cash at home (2)James Michael and his bride.  Their wedding date.

james and lillie

 

Dominic.  I have another date for him-one I never, ever thought I would live to record-the day he left this earth for his heavenly home.  My breath catches in my throat.

035Julian.

My youngest son who is now older than his brother ever got to be.

 

julian in mountainsMy second son has no descendants.  Every molecule that was Dominic is now in the grave.  No representation of his humor, his talent, his face.

His unique light has been extinguished from this world forever.

I realize that these dates will be filed away, made part of a record for those that come after without any understanding of the person they represent.

Just facts on a page.

History.

missing child from arms

 

 

Keep on Keeping On

One of the challenges in this journey as it lengthens into years is that it is just so DAILY.

life is just so daily

Milestone dates and holidays aside, most of the time I’m just a woman trying to make it through 24 hours at a time.  I’m just doing all the things life requires without letting grief overwhelm me.

I’ve gotten pretty good at it too.  

Sorrow is no longer all I feel and my son’s absence is no longer all I see.

I laugh as well as cry.  I look forward to my living children joining me around the table.  I anticipate changing seasons and plan holiday meals again.

But much of my time is spent plodding faithfully forward to a future I cannot see and a reunion I long for.  

Maybe it’s because I’m only at four years but I haven’t yet recovered a sense of excitement about the future no matter what wonderful event might be waiting on the calendar.

I cannot recapture joyful anticipation.  

The best I can do is not be afraid of what might be around the corner.  

And keep on keeping on.  

never, never never give up

A Trail of Love Crumbs

I used to read- a LOT.

By that I mean I often had five or six books going at a time and typically finished four in a week.

Since Dominic ran ahead to heaven I find I rarely have the attention span for books anymore.

But every now and then I find a book that can hold my attention and I read like I used to-carrying it with me from the kitchen (where I read as I wait for cookies to come out of the oven) to the bathtub (where I read as I soak my achy joints).

EVERYTHING HAPPENS FOR A REASON (and other lies I love to believe) by Kate Bowler is one of those books.

everything happens for a reason book

I heard an interview of Kate on an NPR program while driving.  She had me in tears and rolling in laughter all at the same time.

And this bargain loving, never-pay-full-price mama came straight into the house and ordered the hardback book off Amazon.

It lived up to every expectation.  I felt like I was sitting across from someone who truly “gets it”.

The author is not a bereaved parent but is living with Stage IV metastatic colon cancer.  Her life is, as she describes it, “Stuck in present tense.

So, so many nuggets of wisdom and truth hidden in these pages.

But the one that resonated with my heart the most is this:

My little plans [thoughtful gifts, words and actions] are crumbs scattered on the ground.  This is all I have learned about living here, plodding along, and finding God.  My well-laid plans are no longer my foundation.  I can only hope that my dreams, my actions, my hopes are leaving a trail for Zach [my son] and Toban [my husband], so, whichever way the path turns, all they will find is Love.

When I read it, I nearly shouted aloud, “THAT’S IT!!!”

Her heart sings the same song as mine.

Very few of us will do great things, remembered in history books or blazoned across the front of granite edifices.

Most of us will only do small things.

But we can do them with great love.

not all of us can do great things typewriter

Dominic left this earth before he even had a chance to do great things.  Twenty-three years taken up by growing to adulthood and going to college and then law school left little time for solving the world’s big problems.

But he left a trail of love crumbs.

One that can be followed from his heart to dozens of others.

IMG_1816

That’s what I want my legacy to be:  A trail of love crumbs. 

I want tiny bits of me scattered far and wide-a wild and winding path made by relentlessly giving away all I am and all I have.

My name won’t be engraved anywhere but on my tombstone.  

But I pray my love is engraved on many hearts.  

the answer is still and again love

 

 

Busy Doesn’t Fix Grief

I don’t know if this is the way of other mama’s hearts but mine always accuses me when I try to take it easy.

Maybe it’s a lifetime of a too long list of chores and a too short day in which to do them, but I’m uncomfortable sitting down, doing nothing.  

to do list

If I try to take a minute, my mind races until my hand reaches for a piece of paper and begins to jot down things I need to do.

Shoot-even as I fall asleep I’m usually planning what my day will look like tomorrow!

As I’ve written before, it is tempting to fill every minute trying to avoid the pain and sorrow of missing Dominic.  

But it’s not a healthy way to deal with grief.  

And moving ever closer to the anniversary of the date Dom met Jesus, the temptation grows stronger and stronger.

Just. stay. busy. 

Just. don’t. think.  

What I NEED is solitude and space.  What I NEED is freedom to cry (or not!).  What I NEED is less doing and more being.  What I NEED is to face my feelings, process my feelings, journal my feelings, pray through my feelings and to do the hard work grief requires.

sometimes the most important thing is the rest between two breaths

What I NEED is to treat myself the way I would treat one of my children in distress. 

I NEED tender loving care.  

But it’s just. so. very. hard.  

owning-our-story-and-loving-ourselves-through-the-process

 

 

 

 

 

What is Suffering?

The slim little book, LAMENT FOR A SON, by Nicolas Wolterstorff was a lifeline for me in the first few weeks after Dominic ran ahead to heaven.

It wasn’t just because both of our young adult sons died in an accident.

It was mostly because Wolterstorff refused to distill the experience down to one-liners.  

He admitted that (even ten years later-which was the copy of the book I received) he was still struggling to make sense of all the feelings and spiritual implications of child loss.

And I love, love, love that he picks out every single thread and follows it as far as it goes.

Here is an excerpt on suffering:  

What is suffering? When something prized or loved is ripped away or never granted — work, someone loved, recognition of one’s dignity, life without physical pain — that is suffering.
Or rather, that is when suffering happens. What it IS, I do not know. For many days I had been reflecting on it. Then suddenly, as I watched the flicker of orange-pink evening light on almost still water, the thought overwhelmed me: I understand nothing of it. Of pain, yes: cut fingers, broken bones. Of sorrow and suffering, nothing at all. Suffering is a mystery as deep as any in our existence. It is not of course a mystery whose reality some doubt. Suffering keeps its face hid from each while making itself known to all.
We are one in suffering. Some are wealthy, some bright; some athletic, some admired. But we all suffer. For we all prize and love; and in this present existence of ours, prizing and loving yield suffering. Love in our world is suffering love. Some do not suffer much, though, for they do not love much. Suffering is for the loving. If I hadn’t loved him, there wouldn’t be this agony.


This, said Jesus, is the command of the Holy One: ‘You shall love your neighbor as yourself.’ In commanding us to love, God invites us to suffer.


~Nicholas Wolterstorff, Lament for a Son

My heart receives two truths from his words: 

  • that if I love, I WILL suffer.  That’s the nature of love-risking all for the benefit of another means that my heart is ultimately in their hands; and
  • pain is part of but not all of suffering.  Pain can often be dulled, dealt with, the source remedied.  Suffering is a state of the heart, mind, soul and spirit.  It can rarely be undone.  It must simply be endured.  

Understanding that the only way I could never suffer would be to never love helped me embrace this blow with a willing heart.  Even if I had known it was coming, I would still have chosen to love my son.  All the years I had are worth all the years I will carry this burden.

ann voskamp love will always cost you grief

And understanding that there is no cure for suffering changes my perspective from looking for a way out to looking for a way to persevere.  

Nicholas Wolterstorff will never know my name but I will never forget his.

I am so grateful for Wolterstorff’s words.  

So thankful that he chose to share them with others.

Forever in his debt for being one of the first hands proffered to me on this journey.  

 

New Feature on the Blog: Search Bar

I’ve been meaning to do this for a long time.

Like many of you, I find myself wanting to find a particular blog post but just can’t remember the title.

Now that I’ve published over 900 posts, I have NO desire to backtrack through all of them hoping to light on the one I’m looking for.

SO...at the request of a sweet friend I finally (FINALLY!) added a “search” feature on the side bar.

I have to admit that changing anything on the site gives me jitters.  Dominic was my tech guru and without him I am always afraid to make changes that I might not be able to undo.  (He was the one that showed me ctrl-z could rescue that line or paragraph I accidentally deleted in word documents!)

Anyway, it’s here now. 

search bar

And I hope it becomes a useful tool for anyone looking for a particular post or for posts about a particular subject.  

Just put in your word or words and you will get a page (or more) of all the blog posts that are tagged for that topic or contain references to that topic.

It made me smile.  

I hope it makes you smile too. 

 

 

It’s Been YEARS, When Should I Mention My Missing Child?

This came up in a bereaved parents’ support group and I thought it was a great question:  When you meet someone for the first time, do you tell them about your missing child?”

It’s one of those practical life skills bereaved parents have to figure out.

I remember when it dawned on me a few months after Dominic left us that I would meet people who wouldn’t know he was part of my story unless I told them.

It was a devastating thought.  

I had no idea how I would face the first time it happened.  

Since then I’ve developed a script and guidelines, but it can still be awkward.

If the person I meet is going to be part of a ongoing relationship or partnership then I tell them fairly soon about Dominic.    Depending on who they are, how I sense they may be able to deal with it and if I feel comfortable enough I may give more or fewer details.  The main thing I try to communicate in sharing is that I will behave in ways they might not understand without the context of child loss.  I’m not looking for sympathy or special consideration but “bereaved parent” is as much a part of my identity as “married”.

If I am attending a social function and it’s a casual “meet and greet” then I won’t mention Dominic in terms of his death unless the conversation lends itself to that revelation.  No need to burden acquaintances with my story or run the risk of changing a celebratory mood to a sad one.

I always say I have four children-because I do.  But I don’t have to give details.  If the person insists I tell them more about my children it’s fairly easy to steer the conversation toward a detail or two about my living children without the person noticing it doesn’t add up to four.

I make sure to tell health professionals about Dominic because the stress, physical, emotional and mental changes grief has wrought are integral to my treatment plan.  I’ve had a couple of new doctors since Dom ran ahead and received different responses from them when I shared.  One seemed to understand the impact of child loss while another just continued typing without any acknowledgement of what I revealed.

My son’s death is not a dirty secret.

I don’t have to hide it to protect others.

But it is also not a “poor me” card that I fling on the table of relationships trying to manipulate others into showing me special consideration.

I want people to know Dominic.

dominic at gray haven

So I share.

I don’t want people to only think of him in terms of his death.

So sometimes I don’t.

It depends.