Child Loss: The Question of Photographs

When I shared this post awhile back, it sparked quite a discussion among friends and an online community of bereaved parents to which I belong.

Pictures are a mixed blessing to those of us who have buried a child:

We love to see our dear one’s face beaming back at us but we also long to touch and hold the one represented by the two-dimensional image.  And when others share a photo on Facebook or Instagram, we are sometimes caught off-guard as our newsfeed scrolls by–There he is!  Our hearts stop for a moment.

I love to get pictures of my son through email or in notes and letters-many are ones I would otherwise never know about.  So if you have photos that a bereaved parent might like to see, think about sharing them.  And write a line or two about how our child is still part of your life.

We miss our children and welcome ways to connect with them through others.

“Pictures are everywhere today–much different than when I was a child and you had to go down to the local studio to get a decent family photo. Poloroids were fun and fast, but the number of shots you could take was limited to the film in the packet.

One of the challenges facing bereaved parents is what to do about photographs–both the ones that exist and the ones yet to be taken.”

Read the rest: Bereaved Parents and The Question of Photographs

What if Tomorrow Never Came?

I know, I know, we’ve all heard it–no one is guaranteed tomorrow. Depending on the setting, and depending on your age when (usually) an older person says it, this admonition is easier or harder to ignore.

But I am here to sound the trumpet:  There might not be a tomorrow for you or for someone you care about!

So if there is something you need to say, something you need to do, please, please, please–for the love of LOVE, say it or do it!

My family will tell you that I’ve always been one of those people who says things on the phone and writes things in cards that most folks just think about but never put into words.

And since Dominic’s death, I am even bolder.

Because we had NO CLUE that the last time each of us spoke with him, or texted him, or exchanged emails with him was going to be the LAST TIME. He wasn’t sick or going off to war, so there was no reminder of the brevity of life the day before he died.

Don’t get me wrong, we are not always roses and buttercups around here.

We have plenty of disagreements and misunderstandings.  And every one of us has strong opinions about almost everything.  But we refuse to stay angry for more than a few minutes.  Even when all that can be said or done is a text, “I’m sorry.  I love you.  Let’s talk about this later when we’re not so worked up.”

That’s what we do.  

That’s what we’ve always done.

And we are not shy about blessing one another either:  “Great job!”  “I knew you could do it!”  “Sorry you are having a bad day-praying.”

Who decided that smiley face stickers were only for kindergartners?  We all need encouragement every day.

I can’t bring Dominic back.  

I can’t get one more second, one more minute, one more day with my third born child to tell him I love him and that I am so very proud of him and that he was witty and a wonderful drummer and a good, good friend to so many people.

But I know he knows.

Because even though I can’t tell him now, I told him then.

I told him often and I told him in ways that were meaningful to him.

So, I carry the burden of missing him.  I carry the weight of sorrow that comes from burying a child.  But I am free from the awful cross that I might have been forced to bear if I didn’t know that I had loved him well.

And for that, I am grateful.

 

 

Ambushed

I know that certain things will bring tears to my eyes or make it impossible to squeak out a sound.  So, when I can, I avoid them.

But sometimes I can be minding my own business and BAM! from out of nowhere a sight or a sound or a smell or a memory sneaks up and there I am, ambushed by grief.

The other day was one of those.

Waiting to meet my dad for lunch, I was wandering around Cracker Barrel, enjoying the cute kitsch when the song playing overhead caught my ear–

“I bet it gets so quiet in Heaven sometimes
Even God cries when an Angel’s hands are tied”

(Rodney Atkins – Angel’s Hands)

I started listening more closely.  And as I did, Bible verses and Sunday School lessons and sermons all ran together in my head:

“God sends His angels to intervene sometimes.”

“He sent an angel to try to stop Balaam from his folly.”

“Was there an angel there when Dominic had his accident?

“Does God cry?”

These thoughts shot lightning fast through my head and straight to my heart until I found myself searching for a corner where the tears could roll and I wouldn’t have to answer anyone’s polite inquiry, “Are you OK?”

Foolish and perhaps theologically unsound questions that sent me right back to Day One.

By the time my dad arrived, not a trace of my grief attack was left showing.

Some days are like this.  Some days are filled with sadness still.

But not every day.

Thank God.

Loving well: Understanding “Acceptance”

Sometimes those that walk alongside the bereaved are biding time, waiting for that “final” stage of grief: Acceptance.

And some therapists, counselors and armchair psychiatrists are certain that if the grieving mother can simply accept the death of her child, she can move on–that she can get back to a more “normal” life.

But this notion is as ridiculous as imagining that welcoming a new baby into a household doesn’t change everything.

And new parents have months to prepare.

I had the brief millisecond between the words leaving the deputy’s mouth and my ears hearing them for my mind to comprehend.   

And I admit, there were moments in the day, even a few months afterwards, that I found myself saying out loud, “How can Dominic be dead?”

But those have mostly passed.

I accept that my son is dead.  He will not return to me in the land of the living.  He will not walk through my front door and he will not grow older, marry and have children of his own.

Every now and then, I do see a shape in a crowd, the shoulders set just so and for a moment my heart leaps.  But my mind quickly remembers that Dominic is not here.

So, acceptance means that I understand that things are the way they are.

Acceptance does not mean that I have to like it or that I don’t wish some things were different.

Acceptance means that I comprehend the future will not include new memories with Dominic as part of our family circle here on earth.

Acceptance does not mean that I never look back fondly and with yearning for the years we spent together.  It does not mean that I don’t grieve the years we won’t have.

I accept that I have a life to live even though part of my heart is no longer with me.

But acceptance does not mean that the life I live going forward is not impacted by my loss or that it isn’t framed at the edges by grief.

I am now what losing a child has made me.  

Acceptance means that I will offer up this new me, just as I have offered up every new me in the past, to the God Who made me, to use me according to His plan and for His glory.

The people of Israel were shaped as much by what they lost as by what they gained.

A group of Israelites, led by Ezra the scribe, returned to Jerusalem from Babylon, and were charged with rebuilding the Temple that had been destroyed many years earlier.

A few among them had seen with their own eyes the glory and majesty of Solomon’s Temple, but most of those returning had been born in captivity.  To the older men, this new temple paled in comparison to what they had lost.  But to the younger, it represented a new beginning and a brighter future.

Many of the older priests and Levites and the heads of families cried aloud because they remembered seeing the first temple years before. But others were so happy that they celebrated with joyful shouts.Their shouting and crying were so noisy that it all sounded alike and could be heard a long way off.

Ezra 3:12-13 CEV

The grieving were sad, but they worked anyway.

Acceptance acknowledges loss, but is not immobilized by it.

So how to love me and others well in this phase of our grief journey?

Understand that acceptance involves both of us:  while I must accept the fact that my child is dead and that my life is different than the one I would have chosen for myself–others must accept that I am who I am and I will never be the other me–the one before losing a child, again.

My life as a bereaved mother is always going to be a mixture of sorrow and joy.

It will always include looking back and looking forward.

It can’t be anything else.

Loving Well: Relational Acts of Kindness

Focusing on “Loving Well” has reminded me again of the dear friends and sisters who consistently, compassionately and sacrificially love me just when I need it most. They came last week for a visit and spoke courage to my heart once again.

Loving well takes time and effort and is costly.  But I think we represent Jesus best when we love extravagantly.

“You can always give without loving, but you can never love without giving.”

– Amy Carmichael

I have two very special friends.

After Dominic died and the meals and visits and cards had dwindled and the silence and heartbreak had become oh-so-overwhelming, they came out to spend the day with me.

The whole day.

With me.

With this crying, couldn’t hold it together, didn’t know what to say mama who had buried her son just weeks ago.

They brought lunch.  And let me talk–or not. They didn’t try to fix me, didn’t offer platitudes or Bible verses to smooth things over when conversation lagged.  They hugged me and listened.

And they have been doing this every few weeks since.

It costs them a whole day and it’s 60 miles each way–but they keep coming and keep lifting me up so that grief and sorrow don’t drown me.

Social networks buzz with posts and tweets and Instagrams of “random acts of kindness”. That’s a good thing.

But on a scale of 1 to 10, those are easy.

We pick a stranger, discern a way to help (maybe paying for a meal or a coffee) and then both walk away feeling warm and fuzzy. No relationship, no comm

Relational Acts of Kindness are much harder.

We can’t just do our thing and leave.  Our hearts and resources are going to get tangled up with theirs.

It might get expensive.

That’s what my friends did.  They leaned into relationship with me even though it was messy, and hard, and costly.

So my challenge to you is this:  who do you know that could use a relational act of kindness?  A neighbor?  A distant relative? Someone who sits alone in a pew?

There is no greater kindness than coming alongside someone at just the moment they feel their strength is gone.

I know that without these friends I would not be able to bear my grief nearly so well.  I pray that God will bless them abundantly as they have been a blessing to me.

“Help carry one another’s burdens, and in this way you will obey the law of Christ.”  

~Galatians 6:2 GNT

 

Loving Well: Just Say His Name

I know you are afraid.

You think that speaking his name or sharing a memory or sending me a photo will add to my sorrow.

I understand.

But even when it costs me a split second of sharp pain, it is truly a gift to know that Dominic lives on in the hearts and minds of others.  It gives me courage to speak too.  It creates space where I can honor my son.

It helps keep him alive.

“I mean, they say you die twice. One time when you stop breathing and a second time, a bit later on, when somebody says your name for the last time.” ~Banksy

I know you’re busy.  I know your life is full and bustling with so many people and activities demanding attention that you don’t have any to spare.

It is easy to forget.

He wasn’t your child. The date of his homegoing isn’t etched into the marrow of your bones, it isn’t scribed on the inside of your eyelids.

Every time the calendar screams “12” I make one more chalkmark on my heart counting the days since I saw him last.

But please remember.  Please don’t let the day slip by and not acknowledge that it is as important a milestone to me and my family as his birthday.

I know you’re scared.

Death is scary.  Even for us who trust Jesus.  And the death of a child just trashes the notion that we are in control, that we can fully protect the ones we love from all harm.

But you are frightened of what you cannot comprehend.

I am living the reality of your greatest fear.

Be brave.  Step out and welcome me in.

Give space for the longing to hear my son’s name, to know my son matters, to relive some of the happy moments and funny times and even some of the hard days.

I can sit by myself and remember him.

But sharing him with you breathes life into the recollection and speaks hope to my heart.

It fuels the fire that helps me see that even when I’m not here to carry him into the land of those still living, someone else will do it for me.

Love is stronger than death even though it can’t stop death from happening, but no matter how hard death tries it can’t separate people from love. It can’t take away our memories either. In the end, life is stronger than death.

—Anonymous

 

 

 

 

Loving Well: Understanding the Grieving Heart

In my last post I shared the difference between mourning and grief. While the outward ceremonies have long passed, the inward struggle to embrace and understand the pain and sorrow of losing my son continues.

If you love someone who has lost a child, perhaps these thoughts might help you understand a bit of their pain and how completely it changes the way bereaved parents encounter the world.

Please be patient.  Please don’t try to “fix” us.  Please be present and compassionate. And if you don’t know what to say, feel free to say nothing–a hug, a smile, an understanding look–they mean so very much.

A bereaved parent’s grief doesn’t fit an easy-to-understand narrative. And it flies in the face of the American “pull yourself up by your bootstraps” mentality.

You can’t beat it–it’s not a football game-there is no winning team.

You can’t lose it–it’s not the extra 10 pounds you’ve been carrying since last Christmas.

You can’t get over it–it’s not a teenage love affair that will pale in comparison when the real thing comes along.

You can only survive it.  You can heal from it, but it will take a lifetime and require very special care.

I have a young friend whose first child was born with a life-threatening heart defect.  At just a few months of age, her little girl received a heart transplant.  Without it, she would have died.  With her new heart, this sweet baby will live-but her parents must observe careful protocols to protect that heart and she will never outgrow the scar from the surgery that saved her life.

Burying Dominic wounded my heart so deeply that while I know it will heal–it is beginning to, I think–it will bear the scars and require special handling as long as I walk this earth.

So when I thank you for an invitation, but choose not to go…I’m not rejecting you, I’m protecting my heart.  Please ask again–tomorrow might be a better day, and going somewhere or being with someone could be just what I need.

If you call and I don’t pick up…I might be crying, or about to, and I choose not to burden you with my grief.  Call in a day or two or next week–keep trying.

A text or email or card is so helpful.  I can read these when I’m ready and respond when it’s easier for me to think.

And please, please, please don’t look for the moment or day or year when I will be “back to my old self”.  My old self was buried with my son.  I am still “me”–but a different me than I would have chosen.

I know it makes you uncomfortable–it makes me uncomfortable too.

But because I trust in the finished work of Christ, I know that one day my heart will be completely healed.

I hurt but I have hope. This pain will be redeemed and my scars will be beautiful.

“For just as Christ’s sufferings are ours in abundance [as they overflow to His followers], so also our comfort [our reassurance, our encouragement, our consolation] is abundant through Christ [it is truly more than enough to endure what we must]”  2 Corinthians 1:5.

 

Loving Well: Transitioning From “Good-bye” to Grief

A funeral or memorial service seems like a final chapter.  We close the coffin, close the doors and everyone goes home.

But for bereaved parents and their surviving children, it’s not an end, it is a beginning.

Much like a wedding or birth serves as the threshold to a new way of life, a new commitment, a new understanding of who you are, burying a child does the same.

I walked away from the cemetary overwhelmed by the finality of death–not in a theological sense–I believe firmly that my son lives with Jesus–but with the undeniable fact that he is no longer available to me on this earth.

And in the days afterward, I was struck by the inadequacy of a funeral or memorial service to make space for the deep and ongoing sense of loss and pain and sorrow.

There is a difference between mourning and grief.  Although before losing Dominic I never bothered to notice.

I think we confuse the two on a regular basis.  I know I did.

Mourning is defined as “the outward signs and rituals associated with sorrow for a person’s death.  It is usually limited in time by social conventions or community expectations”.   

Mourning is the more or less public (depending on the family’s choices) “Good-bye” to their loved one.  It’s a circumscribed set of things we do and time we spend welcoming others into the space where we remember, make final arrangements for a body and celebrate the life that has left us.

In most North American communities, we have dispensed with the tradition of draping pictures, windows and ourselves for six months to a year to mark the home and heart of someone who has suffered loss.

What used to be a longer span of time allowing for special accommodations due to grief has now been squeezed into about two weeks.

Our hyper-drive world insists that even parents who bury a child show up to work, begin to participate and act like they have it “together” in public much sooner than our frail human bodies and broken hearts can manage.

Grief is more than a feeling.  It invades your heart, your mind, your body and your soul

Grief is the deep and poignant distress caused by bereavement..

It cannot be circumscribed by time and refuses to limit itself according to the expectations of others or even myself.  It will last (though perhaps not with the same intensity) as long as I live.

Because unlike a funeral, missing my son will not come to an end until I am reunited with him in heaven.

And we need to talk about this.

We need to help ourselves and others understand that grief changes who we are.  It changes how we perceive the world.  It alters our sense of self and impacts our relationships with others.

I am not as fragile as I was just weeks or months after Dominic’s death.  I have learned to put on a smile and pass by his favorite food in the grocery store without crying.  I can remember funny things he said or did without simultaneously experiencing gut-wrenching pain that he is no longer here to do them.

But I am still grieving.  

I am still working out how this missing is weaving itself into the fabric of who I am.

And it is WORK.

Much of the work I have to do on my own–I have to think about and feel and embrace the changes that have been thrust upon me.  But for some of the work, I need the help of others.  I need to be able to speak aloud my thoughts and feelings and receive feedback so that I’m not stuck in unfruitful inner dialogue.

It requires energy and resources.

While I am doing this grief work, my physical, mental, emotional and spiritual energy is largely consumed by it.  I am unavailable more often.  I have a smaller capacity to absorb sudden change and unexpected events. I’m uncomfortable in crowds.  I tire more easily.

And it takes TIME.  

I have discovered that no matter how much I want to speed up this process, it will not be hurried along.  And it proceeds in a “two-steps-forward-one-step-back” fashion so even when I feel I am making progress, I discover I’m not as far along as I think I am or would like to be.

So how to love well at this stage in my grief journey?  When I’m transitioning from “good-bye” to grief?  When I’m trying to understand this new life I never expected to live?

  • Acknowledge my ongoing pain and struggle.
  • Encourage me by allowing me to share honestly.
  • Be patient.  I want to heal but I don’t have control over how long it will take.
  • Don’t shut me out or shut me down.  Grief is uncomfortable for both of us.
  • Remember my son.  I need to know that others miss him too.

Rejoice with those who rejoice [sharing others’ joy], and weep with those who weep [sharing others’ grief].

Romans 12:15 AMP

 

 

 

 

 

 

 

 

 

 

 

 

31 Practical Ways to Love Grieving Parents in the First Few Days

When Dominic died, I didn’t get a manual on what to do.  I didn’t get an orientation into how to be a grieving parent.  So when some people asked how they could help me and my family, I really didn’t know.

A comment repeated often by bereaved parents is, “Please don’t use the phrase, ‘let me know if there is anything I can do’, people mean well, but this is unhelpful.”

Another mom put it this way, ” There are too many meanings to this phrase.  It can mean anywhere from, ‘I really want to help’ to ‘I don’t know what to say so I’ll say this but I don’t really want you to ask’.  Also it’s so hard to make any decisions–trying to figure out what you might want or be able to do is overwhelming.  Instead, offer specific things you can do and make plans to do them.”

For those that want to help, here ia a list of 31 ways you can provide practical and timely help to grieving parents:

Show up and answer phones, open the door to visitors, find room for food they bring.  Act as a buffer zone for the parents.

Consider donating PTO, sick leave or vacation days to a bereaved parent if your employer allows it. Many employers allow three (3) days leave for a death in the family with no special consideration for the death of a child.  Three days is not long enough and many parents can’t afford to stay home without pay.

Donate sky miles, rental car points, hotel points or other loyalty points to the parents or family members that need to travel.  There are many expenses associated with burial and the family may not have extra money for travel.

Pick up family members from the airport that are coming for services.

Offer to accompany the parents to the funeral home as they make arrangements.

Donate a burial plot.  Few people have one picked out for their child.

With the family’s permission, set up an account to take donations to help with burial expenses or the medical bills that will be arriving soon.

Offer an extra bedroom to out-of-town family members or friends.  Not every home can accomodate extra guests and the parents need some space of their own.

Bring folding tables and chairs to the home–they are easy to set up and take down as needed to accomodate extra people in the house.

Respect a grieving parent’s need for some private time and space.  If we retreat to a back room, let us.  Check on us quietly and gently, but don’t follow us around asking, “Are you OK?”  No, we are not.  And being asked over and over is stressful.

It is always helpful to bring food.  Set up a meal schedule on Takethemameal.com. There is a way to note any special dietary restrictions.  When people sign up, they can see what others are bringing/have brought.  Driving directions are available on the site and the family can ask that meals be brought at a standard time so there is someone home to receive them.

Bring ice in an ice chest for drinks.

If a parent has a chronic health condition like diabetes or heart problems, check in with them regularly to see if they are taking their medication and if they are experiencing new symptoms.

Offer to drive grieving parents where they need to go.  Deep grief can impair driving as much as or more than alcohol or drugs.  Be willing to sit in the lobby or parking lot–we may not want company finalizing arrangements or speaking with our pastor.

Clean the house. And don’t allow your intimate glimpse to become a source of gossip.

Don’t turn on the television or radio unless the family asks you to or does it themselves. If you want to know the score, check your phone or go to your car.

Mow the yard, tidy flower beds, sweep, rake leaves.

Bring toilet paper, paper towels, paper plates and napkins.

If one or both of the bereaved parents are caregivers to an elderly relative, offer to take over that responsibility for awhile.  (Only if you are willing and competent to do so.)

Take surviving younger children for a walk in the park, to get ice cream or a hamburger. Not all children will be comfortable leaving their parents.  Even if they don’t understand what is going on, they may feel insecure and upset.

Sit with and minister to surviving older children.  We are concerned about our surviving children as well as the child we lost.  Knowing someone is loving on our kids is a great comfort.

Clean the family’s car before the funeral.

Make sure there are bottles of water and maybe a snack in the car for afterwards–often family members can’t eat and forget to drink before the day of the funeral.

Begin assembling electronic photos from friends for a slideshow at the funeral, if the family requests one.  Make sure you run choices by the parents before you flash them on a screen.

Make a list of appropriate songs that might help the family choose.  Don’t be hurt or offended if we use other songs instead–your list may very well have nudged our memory and been helpful.

Offer to drive the family to the funeral and burial.

Attend the funeral.  We want to know our child mattered.  We need to know you care.

If your church provides a meal for the family after burial, and you are asked to bring a dish, bring one.

Offer to help pack up a child’s dorm room or apartment.  We may welcome the help or we may want to do it alone–it has nothing to do with you.

Many grieving mamas want something that smells like their child.  If you are helping to clean in the first hours or days, don’t wash all the child’s clothing.  Put a few worn items in a ziploc bag for her to have later.

Don’t abandon the family after service.  There is such a sense of finality when the coffin is lowered or the memorial over.  Usually lots of people are around and then we go back to the house and quiet overwhelms us.  If you are close to the family, consider joining them for a little while when they first get home.

Dear friends, do you think you’ll get anywhere in this if you learn all the right words but never do anything? Does merely talking about faith indicate that a person really has it? For instance, you come upon an old friend dressed in rags and half-starved and say, “Good morning, friend! Be clothed in Christ! Be filled with the Holy Spirit!” and walk off without providing so much as a coat or a cup of soup—where does that get you? Isn’t it obvious that God-talk without God-acts is outrageous nonsense?

James 2:16-17 MSG

Are you a bereaved parent?  Have you walked this path with a friend or family member? Please add your suggestions to these in the comments section.

 

 

 

 

 

 

Life at the Intersection of Desire and Self-Control

Maybe you can relate:  It is easier to do without if what I want isn’t close enough to tempt me. 

I don’t shop if I don’t want to spend.  I don’t get donuts if I don’t want to eat sugar.  I don’t have soda in the house if I don’t want to drink carbonated soft drinks.

It’s much harder to deny my desires when what I long for is within reach.

I have practiced the spiritual discipline of fasting on and off for over a decade.  And I have learned a great deal about myself, about desire and about how very weak I am, in my own strength, to continue long on a path of self-denial.  Who can resist chocolate when it’s right there in front of you???

When I perceive that God is calling me to give up food or something else for a span of time to focus on Him and on spiritual growth, I can prepare myself.

I can pick a date.  I can arrange my home and schedule and commitments to accommodate what I know will be the challenges associated with the battle that is to ensue.

But there is a difference between choosing to fast and being forced to starve.

For those who live in parts of the world overrun by famine, choice has been removed. They don’t go without food because they desire to exercise personal or spiritual discipline–it has been decided for them. And many times, there is not one thing they can do about it except to hang on and try to survive.

Grieving my son feels like an odd and uncomfortable mix of both scenarios.

I certainly had no choice in the matter–I was not consulted, prepared or given any warning.  And he is gone. Gone, gone, gone.

Yet I am surrounded by memories, physical connections and constant reminders of the one I miss.

I must live everyday at precisely the intersection of desire and self-control.

No, I cannot “have” him back.  When I am thinking correctly, I don’t want him back here in this broken world with broken people.  If what Scripture says is true (and I preach to myself that it is) then he is experiencing joy and beauty that fills his heart so full there’s no room for missing me.

But the heart wants what the heart wants.

And my heart wants my family circle whole again.  My heart wants to see how Dominic would use his gifts and talents to impact the world.  My heart wants my surviving children and my husband and my extended family not to have to carry this heavy grief load and to be free to live life without the intimate knowledge of the darkness of death and loss.

Every day I am forced to acknowledge my heart’s desire and then exert the self-control necessary to get out of bed and participate in daily life.

It takes so much energy.  I am often tempted to give up and give in.

This fast is the most strenous ever thrust upon me.

I know in my head my desires will never be fulfilled this side of heaven.  This passionate longing won’t end until I am reunited with Dominic and ultimately, all my loved ones in the Presence of Jesus.  And I have no idea when that might be.

So I must focus my thoughts and fix my heart’s affection on the promise of God in Christ: that He will redeem every broken thing, that He will restore every lost treasure and that resurrection will rule.

Energize the limp hands,
    strengthen the rubbery knees.
Tell fearful souls,
    “Courage! Take heart!
God is here, right here,
    on his way to put things right
And redress all wrongs.
    He’s on his way! He’ll save you!”

 Blind eyes will be opened,
    deaf ears unstopped,
Lame men and women will leap like deer,
    the voiceless break into song.
Springs of water will burst out in the wilderness,
    streams flow in the desert.
Hot sands will become a cool oasis,
    thirsty ground a splashing fountain.
Even lowly jackals will have water to drink,
    and barren grasslands flourish richly.

Isaiah 35:1-7 MSG