Navigating Grief: On The Edge

I wrote this nine years ago.

Even writing that makes my heart skip a beat! How can I be heading toward surviving twelve years after that fateful morning? It hardly seems possible and yet it’s true.

And some days I still find myself on the edge of despair, of anxiety attacks, of deep sorrow and darkness.

But not nearly as often.

For that, I’m thankful.

Almost [twelve] years and here I am-

still on the edge.

On the edge of an anxiety attack.

On the edge of the cliff of deep sorrow and darkness that threatens to swallow every thing bright in my life.

On the edge of giving up and giving in.

On the edge of turning my back on every one and every thing.

On the edge of losing hope.

On the edge of deciding that this fight is really not worth it,

that there is nothing left to give,

that I will absolutely never survive this pain and loss.

Some days I manage to take a few steps back.

I might go a week or more and almost forget the edge is there.

And then one conversation will catapult me forward to the brink again.

Shaking, crying, ragged gasping breaths.

Tears.

So. many. tears.

I thought I had run out of tears.

Sometimes sadness is sanity. Tears are the reasonable response. Quickness to shush, shame, or fix them, can reveal a resistance to wisdom.

~Zack Eswine

feel-it-in-your-bones

Navigating Grief: Why Does Coffee Make Me Cry?

Oh, the early days, weeks and even years of grief!

I was a giant walking nerve.

Every sight, sound, smell or even touch that reminded me of Dominic evoked a wave of sorrow that almost always ended in tears.

I cried in the grocery store, walking past Bath and Body Works in the mall, driving down the road when certain songs came on the radio, tidying up drawers and finding a long lost and forgotten something that Dominic tucked away for later.

Sometimes I just wanted to scream, “Don’t you know my son’s not here??!!”

But of course I couldn’t do that and walk around in society.

So the triggers were an outlet for that pent up energy, angst and sadness.

It was awful.

Especially when what I set out to do was something I really needed to do. I’d leave the house with a list of places to go, things to buy and people to see but often return having done only a fraction of it.

I’m better at it now.

I’ve grown stronger and am more skilled at carrying the burden of the disconnect between my heart and other hearts who haven’t experienced deep pain and loss.

I’ve learned how to fix my eyes on some distant point if cornered by a well-meaning friend asking how I am but not really wanting to hear about how Dominic’s death continues to impact our family.

I press my fingers together hard in an attempt to stop the sorrow rising up and threatening to undo me until I can escape to the bathroom, a quiet corner or my car.

And I’ve learned not to be ashamed of the tears that fill my eyes and slip down my cheek despite all my best efforts no matter where I am.

Navigating Grief: Darkness and Fear

I was afraid of the dark until I was almost forty years old.

My fear was rooted in scary childhood moments and even years of adult experience could not rip it from the soil of my psyche. I never could convince my heart what my head knew to be true: there was nothing in the dark that wasn’t also there in the light.

It was fear, not darkness, that controlled me.

There is great darkness in grief.  So many unanswerable questions, so much anquish, so much pain.

And there is darkness in many other painful, unchangeable circumstances.

The darkness can hide things that I see clearly in the light.  And if I’m not careful, I  can allow the darkness to foster fear and keep me from venturing futher.

In my own strength, depending on my own resources, I am afraid.

But when I call out from my scary place to the God Who made me, I can face the fear in confidence He hears and cares.

When I am afraid, O Lord Almighty, I put my trust in you.

Psalm 56:3 GNT

Sometimes believers in Christ can convince themselves that admitting their world is dark with pain or suffering or questions diminishes the power of God–that it speaks ill of God or that it means God is insufficient to uphold us in our weakness.

If I pretend that I’m never afraid, or that I never experience darkness, I am denying others my aid.

Even worse, I may be shaming them to silence, sending the message that if they are experiencing pain, something is wrong with THEM.

How many people are sitting in our pews with broken hearts and broken lives, afraid to reach out for help because–in addition to the pain of their broken life–they live under condemnation?

Life is full of pain and darkness.  Even for those who follow Jesus.

When I deny that truth, I also refuse to testify to God’s power to help me carry on and give me the courage to face my fear.

God is the God of the day AND the God of the night.  

I do not diminish Him by admitting that I experience both.

He invites me to lean into Him and to hold hands with His children as I journey on, even when it’s dark.

“Christians with this unflinching faith in the sovereign God do not deny grief. But even in their darkest hours, they borrow God’s strength. In their tears and pain they cling to God who will never let them go. What the Savior has done for others He will do for you. When you are shaken, and you know that life will never be the same again, you can trust and not be afraid. You can live in HOPE with the sturdy confidence that God will dry your tears and put you on your feet again.”

“Grief, Comfort for Those Who Grieve and Those Who Want to Help” by Haddon W. Robinson

Navigating Grief: Have a Day. It Doesn’t Have to be a Good One.

I don’t know about you, but I think of every day as a blank canvas and it’s my responsibility to paint something useful or beautiful or helpful on it.

I’m a list maker so each night before I drift off, I usually jot down 3 or 300 things I would like to do the next day.

I get up, get started and then (more often than I’d like to confess!) hit a wall.

hit the wall yoda

Sometimes it’s the wall of circumstance.  Things happen I didn’t expect and suddenly the hours I was going to spend cleaning the garage are spent cleaning a mess.

Sometimes it’s the wall of community. Someone calls.  Or a multitude of someones call. I hate to admit it but I’m really not a fan of the telephone.  Like Alexander Graham Bell, I consider it more of an inconvenience and interruption than a means of delightful connectivity.  Minutes slip by and I can’t recover them.

I love my friends and family. 

But I’d rather chat while we are doing something together in person than over the phone.

Sometimes it’s the wall of pain.  Rheumatoid Arthritis, like all autoimmune diseases, is unpredictable.  Usually I can tell in the early morning hours if my joints are going to cooperate on a given day.  But sometimes they surprise me and I find that all that yard work will have to wait.

Sometimes it’s the wall of grief or sadness or longing or any of a multitude of feelings.  I have gotten pretty skilled at steering clear of grief triggers when I know I have lots of things to do.  I don’t listen to the songs friends post on their timelines or read too many comments on the sites for bereaved parents.  But I can’t anticipate random sights, sounds or memories.  I’ve been working on a room, cleaning drawers, moving stuff tucked in corners and come across a Lego man or a pellet from the air soft guns they weren’t supposed to shoot inside the house (but of course did anyway) when the boys were young.  That does me in and I have to walk away.

Sometimes it’s the wall of “What difference does it make anyway?!!” This one I usually see approaching in the distance when there have been too many days and too little progress.  Or a string of gray, rainy mornings.  Or multiple failed attempts at fixing something.  And then I throw up my hands and decide my paltry attempts at controlling my corner of the world hardly matter, so why keep doing them.

So I give in and let myself just have a day. 

tired cat

It doesn’t have to be a good one or a productive one or even a cheerful one.  The glass can just be a glass.  I don’t have to pretend it’s half-full or declare it half-empty.

half-full

And after a rest I usually remember that what I used to find impossible is now possible;  what used to be hard, is often a little easier.

I am stronger and better able to carry this load.

Sorrow is no longer all I feel nor my son’s absence all I see.

And although THIS day may be lost.  It’s only ONE day.

It’s perfectly OK for me to sit down with a cup of coffee, a book or a movie and let myself off the hook.

The sun will rise tomorrow and I can start over.

I will start over.

have a day

Navigating Grief: What is a Grief Circle?

Our family is navigating deep grief a second time.

In January, my granddaughter, Holly, was gathered into the arms of Jesus after only two weeks on earth-almost to the minute.

Once again my children are plunged beneath the flood of hurt, pain, questions and sadness of child loss.

This time my oldest son and his wife are the center of the circle. Their sons are the immediate next ring. My two other earthbound children, my husband and I are slightly more removed.

But distance from the center does not necessarily indicate the degree to which the same loss might reignite old feelings, trauma, anxiety and unwanted physical, mental and spiritual responses to grief.

A grief circle is comprised of those most closely impacted by a loss.

The world likes to draw it tight because even if it doesn’t represent the reality of those involved. Expanding the circle expands the need for compassion and compassion might well demand action.

Drawing it smaller also gives the curious permission to ask personal questions from those close to the loss (and who may have information they desire) without feeling guilty about asking the question.

May I give a piece of (unsolicited) advice?

Please. Don’t.

Please don’t ask my children how I’m doing.

Please don’t ask my son and daughter, the uncle and aunt of Holly, how their brother is doing or how I am doing.

Please don’t ask my son how his wife is doing. He is also a parent of a child he can no longer hold.

Please don’t assume that being slightly removed from the center of loss means being removed from the pain and damage such a loss entails.

You are welcome to ask me anything. Both my experience and age mean I’m better equipped to answer or not answer as I am able.

I have found that Holly’s brief life and death have impacted me in ways I don’t understand and am still trying to process. She is my grandchild. I don’t love her less because her life on earth was brief.

Since I’ve walked this broken road, I am oh, so aware of what lies ahead for both my son and daughter-in-law as parents, their sons as surviving siblings and my own children as doubly grieved siblings.

I remember thinking when we gathered in the AirBnB the night after the long, long day Holly took her last breath how heavy, powerless and hopeless I felt.

No words could undo what had happened.

No hug could press the pieces of broken hearts back together.

No amount of wishing, wishing, wishing would turn back a clock that had relentlessly brought us forward to this very moment.

My family is knit together in ways and with bonds no one would choose.

We keep our phones with us “just in case”. We share travel itineraries, traveling companions’ contact information, and we answer phone calls from one another no matter where we are or with whom.

The grief circle is larger than most folks would like to admit and it remains intact over time and across distance.

There is no “fix” for grief.

No “getting over” or “past” loss.

There is moving forward and I am so, so proud of my family for choosing that hard path.

But here we are again.

And it is going to take more time than anyone outside our circle would like to admit.

Navigating Grief: Seeing Scripture as an Eternal Love Story

When I began to view Scripture as an eternal love story, it opened my heart to the truth that even when this broken world results in pain, sorrow and unbearable (without Jesus) burdens, Love is writing a better ending.  

I don’t have to like what’s happening but I can lean in and grab hold of my Shepherd King who will always guide me through the awful.  

I may ache for a lifetime but will rejoice for eternity.

Does that negate the pain?  

NO!

Does it make it bearable?

YES!

Navigating Grief: Remembering All the “Lasts”

One of the things even the most uninformed person understands about loss is that the first birthday, the first Thanksgiving, the first Christmas and all the “firsts” after loss will be hard.

But one of the things no one tells you about is that a heart will mark the “lasts” just as much.

The last time I saw him.

The last time I spoke to him.

The last time I hugged his neck and smelled the unique fragrance that was my son.

missing child from arms

Every year as I approach the anniversary of the day Dominic left this life and stepped into Heaven, I also remember all the last times.

It’s hard on a heart to think about and wish that somehow I had made more of those moments.  I long to have just one more opportunity to say what needs to be said, to see his smile, hear his voice, and hug his neck.

But there’s no going back.

So part of the pain of marking the milestones is knowing there is no way to change a thing.  Not only the FACT that my son is gone, gone, gone.  But also the FACT that whatever I said or did or left unsaid or undone is utterly and undeniably carved in stone.

I don’t know why this anniversary is hitting my heart harder than last year.  Maybe it’s because I recognize how much life has happened since Dominic left us.  Maybe it’s because I think in terms of decades.  Maybe it’s because there are so many exciting family celebrations that he won’t be part of.

I have no idea.

But it’s nearly eleven long years since my son crossed the threshold of his family home.  It’s nearly eleven years since I heard that familiar deep “Hey!”.  It’s nearly eleven years since I waved him down the driveway and hollered, “Be careful!” as he drove back to his apartment.

I am thankful for the faithful love of my God and my family.  I am thankful for the compassionate companionship of friends.  I am thankful that I am still standing after the awful blow that I was sure would knock me so far down I’d never get up again.

But I miss him.  I miss him.  I miss him.

I will never be able to watch the early spring flowers bloom again without also remembering that it was those blossoms that heralded the good weather that lured him to take his motorcycle that night.

I will never hear Spring Break plans without counting the days between his last Spring Break trip and the day he met Jesus.

dom and julian spring break

I cannot step outside and smell the grass growing, feel the breeze blowing and hear the birds singing without my heart skipping beats and doing the math.  Today marks less than two months before the day he left us.

I understand that for others-if they remember at all-Dominic’s departure is a day circled on the calendar.

For me, it’s an entire season.

I mark every single day that led up to that day.  I remember every single conversation, meeting, text and phone call.  I remember all the things I did and regret all the things I didn’t do.

While the world is celebrating new life, I’m remembering a life that ended.

miss-you-every-day

New Year’s Eve 2025: Auld Lang Syne

We don’t know what tomorrow will bring.  We plot and plan and hope and dream but in the end we have very little control over how our story ultimately plays out.

So we are left each New Year’s Eve with some good memories, some not so good ones and some we cling to like gold from a treasure chest because they are all we have.

Should auld acquaintance be forgot and days of auld lang syne?

Never. 

Read the rest here: New Year’s Eve and Auld Lang Syne

Holidays 2025: Emotional Overload

There are so many ways child loss impacts relationships!

Some of the people you think will stand beside you for the long haul either never show up or disappear right after the funeral.

Some people you never expected to hang around not only come running but choose to stay.

And every. single. relationship. gets more complicated.  

When your heart is shattered, there are lots of sharp edges that end up cutting you and everyone around you.  It is pretty much inevitable that one or more relationships will need mending at some point.

Read the rest here: Emotional Overload and T.M.I.

Advent 2025: The First Christmas Was Messy and So Is Mine

It’s tempting to line up our friends and acquaintances in columns under headings of “perfect family”, “good christian”, “struggling addict” or “hopeless case”.  

When I label someone I justify my response-good or bad-and let myself off the hook for sharing the extravagant, unrestrained love God has shown to me.

The longer I live, the more people I meet, the more certain I am that the neat little categories we like to use are not very helpful.

If I decide they are “doing well” then they don’t need my help.

And if I decide they are “beyond hope” then why waste my time or effort?

Either way, I’m wrong.

Christmas is the story of God come down-Emmanuel-of Love reaching down into a dark and lonely world. It was hardly tidy, it was a Messy Christmas