Tag: grief work

Your Story-Someone Else’s Trail Guide

Hey-I get it.

Who wants to air the good, the bad and the ugly for everyone else to see?

In today’s world where photo filters on our cellphone cameras can turn a pretty rotten picture into a magazine worthy masterpiece no one is anxious to be seen as less than polished and put together.

The pressure is on to pretend that all is well even when all is, well, going quite the other direction.

If you are trudging through a tough patch, let folks know.

You might be surprised by who reaches out saying, “That was me just a while ago. Would you like to know how I made it through?”

If you’ve already walked the long and lonely road of grief, loss, trauma, depression or other difficult circumstance-share your story!

Don’t sugar coat it. Don’t clean up the messy bits. Don’t gloss over the hard spots.

How can anyone learn to walk the hard roads, the rocky paths, the treacherous terrain of life unless someone else is willing to be a guide? And who can trust a guide that hasn’t also made that journey?

Tell it like it was.

Then tell it like it is.

Map the path from there to here.

Shine a light for a soul that thinks darkness is all there is.

Reach back and take a hand.

Help a heart hold on to hope.

I Am Not Ashamed to Wait on the LORD

“Those who wait for Me with hope will not be put to shame.”

Isaiah 49:23c NLV

We love stories of overcomers.  We invite testimonies that end in victory.

We applaud members of the Body who have a “before” and “after” tale of how Jesus plus willpower took them from the dust of defeat to the pinnacle of spiritual success.

But we hide the strugglers and stragglers in the back pews.

If suffering lingers long, whether or not it is in the hands of the one who suffers to do anything about it, we cringe and pull back and hope they go away.

We don’t offer them the pulpit or the Sunday School hour to speak of how Christ continues to be the hope to which they cling.

Because deep down, we think there must be something wrong with them, something wrong with their brand or quality or strength of faith.  If they only got it “right”, they too, would have the victory.

We would rather shush the suffering than face the tension between God’s goodness and His sovereignty.

We shame them to silence by implying they have nothing to share until they are able to wrap their story with a perfect spiritual bow.

We add insult to injury when their need for help exceeds the allotted three weeks or six months or whatever arbitrary deadline we impose on the prayer list and our patience.

But maybe what God has for me and others who suffer long is not a victorious tag line that can be slapped on a photo or shared on social media.  

Maybe it’s only in the continued press of suffering that God reveals Himself in ways the non-suffering never see.

Maybe a dash to declare victory is actually rushing past what God has for us in deep pain and ongoing struggle.

Maybe waiting in hopeful expectation for what God is doing and will do in me and through me IS the victory.

We wait for Yahweh;
He is our help and shield.
For our hearts rejoice in Him
because we trust in His holy name.
May Your faithful love rest on us, Yahweh,
for we put our hope in You.

Psalm 33:20-22 HCSB

Some Words That Help My Wounded Heart

I cling fast to words that speak aloud what I’ve only thought.

I collect sentences that eloquently express what I can only feel.

I pull them out on days when my head and heart are doing battle and I can’t find any middle ground.

Reading reminds me I’m not the first soul to travel this way.

Others have been here before and left breadcrumbs.

A friend said, “Remember, he’s in good hands.” I was deeply moved. But that reality does not put Eric back in my hands now. That’s my grief. For that grief, what consolation can there be other than having him back?

Nicholas Wolterstorff, Lament for a Son

The promise that I will one day see Dominic again makes the pain bearable. But it does nothing to treat the essential wound. He is not here and I will miss him, miss him, miss him until I draw my last breath.

The worst type of crying wasn’t the kind everyone could see–the wailing on street corners, the tearing at clothes. No, the worst kind happened when your soul wept and no matter what you did, there was no way to comfort it. A section withered and became a scar on the part of your soul that survived. For people like me and Echo, our souls contained more scar tissue than life.”
― Katie McGarry, Pushing the Limits

I never knew a person could cry every day for months. Not just a tiny overflow that falls sweetly down a cheek but gigantic gut-wrenching, ear-shattering sobs. That was what I hid from everyone-the pillow-over-my-mouth-to-muffle it-crying in my room in the dark.

Maybe we all do.

Maybe that’s why those untouched by child loss don’t really know how much it hurts and for how long.

grief is a house
where the chairs
have forgotten how to hold us
the mirrors how to reflect us
the walls how to contain us

grief is a house that disappears
each time someone knocks at the door
or rings the bell
a house that blows into the air
at the slightest gust
that buries itself deep in the ground
while everyone is sleeping

grief is a house where no one can protect you
where the younger sister
will grow older than the older one
where the doors
no longer let you in
or outJandy Nelson, The Sky is Everywhere

When Dominic ran ahead to Heaven, he was living on his own. He’d been out of the house for a couple of years.

So I was utterly unprepared to find his earthly absence echoed in the house from which he had already been absent. Everything changed, everything was slightly askew.

And it is “a house where the younger [brother] will grow older than the older one”.

For in grief nothing “stays put.” One keeps on emerging from a phase, but it always recurs. Round and round. Everything repeats. Am I going in circles, or dare I hope I am on a spiral?

But if a spiral, am I going up or down it?

How often — will it be for always? — how often will the vast emptiness astonish me like a complete novelty and make me say, “I never realized my loss till this moment”? The same leg is cut off time after time.C.S. Lewis, A Grief Observed

I remember being surprised the first time I circled back around in my grief and revisited places in my heart I thought I had subdued and conquered.

But that’s how it is.

Grief has so many layers that I honestly don’t believe we could survive it at all if forced to peel them back all at once. So I’ve resigned myself to the fact I will come back to many of the same sore spots over and over.

I do feel like I’m spiraling upward. Each time I circle around, I’m better equipped to face the fear or guilt or sorrow or despair.

The phases recur, but I’ve grown in the meantime.

I’m stronger.

I’m wiser.

I’m more resilient.

And I’m still here.

It’s Been YEARS-What is Wrong With You???

If you think that time makes a difference to a mama missing a child who ran ahead to Heaven without her, you don’t know as much as you think you know.

Time does not heal all wounds-especially the kind that shatter a heart into a million pieces.

It takes time for the wound to scar over, but it doesn’t undo the damage.

So if you are wondering why your coworker still takes the day off on his child’s birthday or the anniversary of her child’s homegoing, I’ll let you in on a little secret: Years disappear when those milestones loom large.

Read the rest here: It’s Been Years-What’s Wrong With You?

Don’t Go-Help Another Heart Hold On To Hope

When grief was fresh, the pain was raw and my heart was oh, so tender, I desperately needed a safe space to talk about the nitty-gritty of child loss.

And I found it in online bereaved parents’ groups.  

I’m so thankful that they exist, that they are maintained by people who give time and energy to keeping them safe and that-for the most part-participants are kind, compassionate and encouraging.

There is something I’ve noticed now that I’ve been here awhile.  Many parents tend to drop out of active participation when they get a little further along in their journey. 

Read the rest here: Stick Around: Help Another Heart Hold Onto Hope

I’m Still Human and There’s No Shame in That

I don’t know about you, but since my son ran ahead to Heaven, I’m ultra-aware that every encounter might be the LAST encounter.

That has its pluses-I’m careful when I deal with touchy subjects, I make sure to tell my people I love them, I try not to leave in a huff.

But it has its minuses too.

When things go sideways (and they do!) or someone just isn’t willing to listen to my point of view or I am offended by theirs and can’t manage to cover my feelings, regret and guilt consume me.

That’s not helpful or healthy, though.

I have to remember I’m human just like everyone else. Bereavement hasn’t changed that.

❤

Everyone struggles.

Everyone makes mistakes.

Everyone wishes, at one time or another, that he or she had done better, spoken more softly or loved more fiercely.

But we are human and can’t get it right all the time.

So if you, like me, have had a less-than-stellar recent record dealing with those you love, those you meet and those you pass on the street or in your car, accept this truth:

You are absolutely, positively NOT perfect.

And that’s OK.

Pick yourself up, dust yourself off and start over.

If apologies are in order, make them.

If hugs can set things straight, hug away.

And if only time can soften a heart then be prepared to wait.

Grief, Like Love, Lasts a Lifetime

At first grief felt only like sorrow and longing and brokenness.

Then it felt like confusion and anxiety and despair.

A little further along this journey it mostly felt like apathy.

Now it feels like love.

It’s the same love that helped me hold on when I was face first in the toilet every morning for seven months. Morning sickness with Dominic lasted nearly the whole pregnancy! With two young children already in our home, it was one of the hardest seasons of my life.

It’s the same love that demanded they bring me my baby when they whisked him away due to “concerns” after birth. Twenty-four hours later, c-section or no c-section, I told the nurse I’d be marching my butt down to the nursery if they didn’t bring him to me right away. (It was a different time-no real “rooming in”.)

It’s the same love that worked with my frustrated little boy to make his words sound clear and correct. Slow down, hit the hard consonants, be precise in how you form your lips. He grew up to give the undergraduate address when he graduated from UAB in front of thousands.

It’s the same love that listened when he told me his troubles, his fears and his dreams. So, so many nights he’d come in, flop down backwards on my bed and proceed to talk until I was just about to drift off to sleep.

It’s the same love that held his hand as people walked by expressing condolences.

It’s the same love that kissed his cold cheek before they lowered the casket lid. Told him, “Good-bye” and walked upright from the sanctuary.

I refused to dishonor his brave life by giving in to my personal fear.

Grief is really just love.

Dominic has been my son since he sat safely in my womb.

He’s still my son.

My love is not diminished because I can no longer touch him.

Love lives.

Forever.

A Few Grief Quotes That Help My Heart

When I find words for my feelings it helps.

So I collect quotes, copying them down in my journal and sometimes hanging them where I can see them throughout the day.

Here are a few that speak to my heart. I hope they speak to yours. 

I wish there WERE a secret to surviving this journey. But there isn’t. There is just one moment, one breath, one step at a time. I do the best I can each day.

Over time I’ve grown stronger and better able to carry the load. Over time I’ve learned how to shift my focus from my son’s death to his life.

Death ends so many things.

But it does not end the influence of my son’s life on my heart and it can’t steal the moments I shared with him.

As long as I hum the tune of his unique song I can still hear him.

Before I was the one in the Valley of the Shadow of Death, I didn’t realize it’s a lifelong journey. I acknowledged that loss changed a person but I didn’t know that it keeps changing you. Grief influences how I experience the present not just how I view the past.

When Dominic ran ahead to Heaven it instantly changed the landscape of my life. The future I thought I’d have was shattered and I was thrust into unfamiliar and often frightening territory with no road map. It has taken a long time to learn how to walk in this uncertain world and I still stumble.

There are no set standards for how or how long a heart grieves. Everyone brings his or her own personality and experience to the process.

It’s tempting to look for a structured guide to measure my progress.

Others can share how they are walking this road but ultimately I have to forge my own trail through the wilderness.

This is one of my very favorite quotes. Great love, great grief. How could it be any different?

When a child is born into a family, no one finds it strange that the addition changes everything. When that child leaves too soon they shouldn’t find it strange that it changes everything once again.

I didn’t just lose my son, I lost the family I used to have.

The place he should be but isn’t looms large every time we sit at the table, gather for celebrations or just line up for a group photo.

Part of the work grief requires is learning to hold onto the love and influence my son poured into my own life. I have had to redefine my relationship with Dominic-figuring out how I to mother a child I can no longer see or hold.

There’s a lot of pressure on grieving hearts to “get better” based on the medical model of illness, treatment, recovery. But grief is not a disease. It truly is the price you pay for love. I have experienced healing in the eleven years since Dominic left for Heaven but I won’t be fully healed until I join him in eternity.

Every single child is a unique gift to the world.

When death steals their presence, the light and love they shared with others lives on.

As long as we remember, as long as we speak their names, they continue to be a gift to those who love them . 

We Don’t Lose Them All at Once-Bit By Bit They Fade Away

I cannot speak for others but in my case, it seems that I did not lose Dominic all at once.

In fact, I’m still losing him.

Bit by bit, a little at a time, nearly molecule by molecule, his mark on my life, my walls, my world grows smaller.

Of course the space he occupies in my heart is safe-a mother’s heart grows larger with each birth and never shrinks again!

But in the physical world, the observable world, the world outside the safe sanctuary of my own soul-his presence THERE is fading.

And that’s it’s own brand of grief that must be recognized, felt, mourned and laid to rest.

fading-away

Every time Dominic SHOULD be here but ISN’T means another memory made without him, another photograph with a missing piece, another family milestone celebrated a bit more quietly because his booming laughter doesn’t join the chorus.

Every decision that would ordinarily involve consulting all four children’s schedules and desires is one more opportunity to count down two, skip one and go to my youngest.  I never can remember that there are only three phone calls or texts to make. My heart hurts each time I don’t check in with Dominic.

desimones uab family

Odd pieces of mail come in his name-leftover from mass mailing lists that have not yet been purged of deceased individuals.  Still a little shocking, always sad, I carry it up the quarter mile to the house and lay it on top of the pile of other things that prove he once walked the earth.

Digging through the toolbox in the garage for a screwdriver and there’s that funny little part he took off a car years ago and tucked inside the drawer-just in case we could use it for something.  I smell the grease and gas and feel him near.

Then my mind drags my heart back to reality and he’s gone again.

Dozens of moments make me miss him anew.

I’m not delusional.

I know he has run ahead to Heaven.

But my heart holds on to every shred of physical connection as long as it can.

any place we ever walked i miss you

And then he’s ripped from me all over again.

Choosing to Lift the Cup of Sorrow

See, here’s the thing: to the outside world, my son’s death happened at a single point in time.

But to me, his death is a continuous event.

I must lift the cup of sorrow every day to parched lips.  I must choose to take it to the One Who can help me lift it.

Jesus knows this cup.

“You anoint my head with oil; my cup overflows.” Psalm 23:5b

I remember standing in our field with my husband at sundown one day, thankfulness and grace and mercy and wonder flooding my heart-and I whispered, “surely my cup overflows!”

Surely, God’s hand is in this, is on our lives-He has brought us to this place of blessing.

And that’s how I used to always think of that verse-the cup overflowing with goodness and blessing.

But what about when the cup overflows with sorrow?  

With pain?

With tragedy, trials and temptations?

jesus in the garden

Jesus knew about that cup.  That’s the cup He begged the Father to take from Him.

The cup that was bitter and hard to swallow.

He prayed three times, He sweat blood and He battled His flesh so that His spirit could conform to the Father’s will.

And in the end, He submitted Himself to the Father’s plan.

He was obedient, even to death, even to death that He did not deserve, did not HAVE to suffer, did not WANT to suffer.

I have buried a son.

And it is the most painful thing I have ever had to bear.

It’s a burden I never anticipated and it’s a burden of which I will not be free until I join him in Heaven.

There are some parents who have suffered the loss of multiple children. Or who have suffered child loss and other difficult life circumstances.

If my cup is full and overflowing, theirs is overflowing still more.

Where to take that full cup?

Where to find the strength to carry it, to drink it to the dregs?

When my heart screams, “No more!” and my body cries, “I can’t do this!”, I look to my Savior for the model of how to carry on.

Only in Christ, Who Himself bore the cup and Who drank its bitter fullness can I hope for strength and redemption.

The One Who knows my pain can carry my pain.

The One Who lives again will breathe life into my heart.  

The One Who redeems what the enemy has stolen will turn my mourning to dancing.  

cup of blessing

This cup will not always overflow with sorrow.  Around the banquet table at the wedding supper of the Lamb, it will once again be full of joy.

You make me know the path of life; in your presence is unbounded joy, in your right hand eternal delight.

Psalm 16:11 CJB