A Whole Series of “Lasts”

One of the things even the most uninformed person understands about loss is that the first birthday, the first Thanksgiving, the first Christmas and all the “firsts” after loss will be hard.

But one of the things no one tells you about is that a heart will mark the “lasts” just as much.

The last time I saw him.

The last time I spoke to him.

The last time I hugged his neck and smelled the unique fragrance that was my son.

missing child from arms

 

Every year as I approach the anniversary of the day Dominic left this life and stepped into Heaven, I also remember all the last times.

It’s hard on a heart to think about and wish that somehow I had made more of those moments.  I long to have just one more opportunity to say what needs to be said, to see his smile, hear his voice, and hug his neck.

But there’s no going back.

So part of the pain of marking the milestones is knowing there is no way to change a thing.  Not only the FACT that my son is gone, gone, gone.  But also the FACT that whatever I said or did or left unsaid or undone is utterly and undeniably carved in stone.

I don’t know why this anniversary is hitting my heart harder than last year.  Maybe it’s because I recognize how much life has happened since Dominic left us.  Maybe it’s because I think in terms of decades.  Maybe it’s because there are so many exciting family celebrations that he won’t be part of.

I have no idea.

But it’s nearly five long years since my son crossed the threshold of his family home.  It’s nearly five years since I heard that familiar deep “Hey!”.  It’s nearly five years since I waved him down the driveway and hollered, “Be careful!” as he drove back to his apartment.

I am thankful for the faithful love of my God and my family.  I am thankful for the compassionate companionship of friends.  I am thankful that I am still standing after the awful blow that I was sure would knock me so far down I’d never get up again.

But I miss him.  I miss him.  I miss him.

I will never be able to watch the early spring flowers bloom again without also remembering that it was those blossoms that heralded the good weather that lured him to take his motorcycle that night.

I will never hear Spring Break plans without counting the days between his last Spring Break trip and the day he met Jesus.

dom and julian spring break

I cannot step outside and smell the grass growing, feel the breeze blowing and hear the birds singing without my heart skipping beats and doing the math.  Today marks less than two months before the day he left us.

I understand that for others-if they remember at all-Dominic’s departure is a day circled on the calendar.

For me, it’s an entire season.

I mark every single day that led up to that day.  I remember every single conversation, meeting, text and phone call.  I remember all the things I did and regret all the things I didn’t do.

While the world is celebrating new life, I’m remembering a life that ended.

miss-you-every-day

Child Loss: Helpful Tips for Interacting With Bereaved Families

I firmly believe that our friends and extended family want to reach out, want to help, want to walk alongside as we grieve the death of our child

 I am also convinced that many of them don’t because they don’t know how.  

It may seem unfair that in addition to experiencing our loss, we also have to educate others on how to help us as we experience it, but that’s just how it is.

The alternative is to feel frustrated and abandoned or worse.  

So here’s a list of helpful tips (and a great infographic!) for interacting with bereaved families:  

Express condolences and show you care. Don’t avoid me, please!  You cannot make me any sadder.  I need to hear from you.

friends hugging

Refer to my child by name.  Dominic is STILL my son.  He is still part of my story.  But because he’s no longer visible, his name often goes unspoken.  Please talk to me about him, use his name, tell me a story of how he impacted your life or a memory that makes you smile.  It makes me smile too.

Actively listen and be supportive.  It’s hard to listen to someone tell you how much they are hurting and not offer advice or think of ways to “fix” them.  I can tell you from experience that what I need most on my darkest days is for someone to say, “It IS dark.  I’m so sorry.”  Silence is OK too.  Not every quiet moment needs to be filled with chatter.

listening is a postive act

Understand that each family and family member will grieve in different ways.  You may have observed child loss before but what you saw in one family may not translate to the next.  There are no hard and fast rules for this awful journey.  The age of the child, family background and structure, manner of death-all these impact grief.  In addition, mothers and fathers, sisters and brothers all bring their personalities, stage of life, beliefs and experiences to the journey.  There were five of us left behind when Dominic ran ahead.  We were each devastated but expressed it in very different ways.  Nearly five years later, those gaps have widened, not narrowed.

Fathers grieve too.  Sometimes support focuses almost exclusively on the mother.  In part because of a common notion that mothers are somehow emotionally closer to their children than dads.  In part because many men are less demonstrative and may do a good job hiding grief.  Whatever the reason, don’t assume one parent is dealing “better” with the loss than another (mother or father) just because he (or she) is not crying openly.  No one escapes this awful blow unscathed.

bereaved fathers

Don’t overlook siblings.  Surviving siblings are sometimes referred to as “forgotten grievers”.  If they are very young, people may think they are relatively unaffected by the death of a brother or sister. If they are grown and out of the home, people may figure that the siblings’ own, very full and very busy, lives keep them preoccupied.  While some of that may be true-to an extent-most surviving siblings are deeply impacted by the death of a brother or sister, regardless of age.  Not only have they lost a member of the family and changed birth order, they have also lost the family they knew, the parents they knew and a co-keeper of memories and secrets.  Bereaved parents are often overwhelmed with grief for their living children as well as the child that is missing. One of the best gifts anyone gave me was reaching out to my surviving children.  It helped my heart to know that they had friends who were supporting and loving them well.

kids cartoon

Be yourself.  People often feel awkward and stiff when approaching a bereaved parent or family member.  That’s perfectly understandable.  The bereaved seem so fragile (are so fragile!) that folks are afraid the wrong word or touch might shatter them into a thousand pieces.  But what your friend or family needs right now is the you they’ve always known and loved.  If you are a hugger, hug!  If you are a storyteller, tell stories (appropriate ones, ones of the missing child).  If you are a cook and cleaner, then cook and clean.  Our family was blessed by our friends doing exactly what they had always done-come alongside in their own special way.  So much had changed in our world that familiar touchstones, familiar routines and familiar faces were a real comfort.

Keep in mind words matter.  Now is not the time to try to satisfy your curiosity about exactly “what happened”.  Loud joking is rarely welcome.  Many bereaved families find it hard to laugh in the first days, weeks, months because it feels like betrayal.  Don’t offer platitudes intended to help them “look on the bright side” or consider that “it could be worse”.  There is nothing worse than burying your child.  Nothing.  Listen and take direction from the person you are comforting.  Follow his or her lead.  And if something less than helpful slips out, own it and apologize.

pencil-drawing-bereaved-mother

It’s never too late to reach out.  NEVER.  Sometimes people stay away at first for lots of reasons.  Or they show up for the memorial service and then fade into the background.  After a bit, even if they want to reach out, they may feel embarrassed by the long absence.  Don’t be.  So many people stop calling, visiting and texting within the first weeks that your outstretched hand of friendship will be a welcome beacon of hope.  If you need to, apologize for your absence.  Be honest.  Admit you were scared or whatever.

Then show up. 

Stick around.

You don’t have to be perfect.  

Just be present.  

bereaved families infographic

Repost: What is Safe?

I remember as a  young mother of four working hard to keep my kids safe. 

dominic and siblings little children at nannys

Next to fed and dry (two still in diapers!) that was each day’s goal:  No one got hurt.  

It never occurred to me THEN to add:  No one got killed.  

Because the most outlandish thing I could imagine was one of them falling or touching a hot stove and us having to rush to the emergency room.

Then I became a mother of teens and one by one they acquired a driver’s license and motored away from our home.  

That’s when I began to beg God to spare their lives.

Read the rest here:  What is Safe?

How Terrible It Is To Love Something That Death Can Touch

I know as a believer in Jesus I’m supposed to be able to look beyond “this mortal veil” and treat death as a mere “address change”.

Well, I can’t.

Death is the enemy and I do not experience it as simply a transition from one state to another.

The last enemy to be abolished and put to an end is death.

~I Corinthians 15:26 AMP

Death is a reminder of all that is wrong with this earth.  It’s a reminder that sin is costly.  It’s a reminder that this world is not my true home.

find in ourselves a longing c s lewis

It’s just plain wrong!

I hated death long before I counted my own son among the casualties.

Living on a farm, we have buried everything from domestic livestock to random wildlife that wandered up, wounded and we tried to save.  I have hatched eggs found in disturbed nests,  loved on baby rabbits, squirrels, deer and woodchucks, nursed abandoned kittens, lambs and goat kids.  Many of them didn’t survive and every one took a bit of my heart when they breathed their last.

how terrible it is to love somthing that death can touch memorial stone

I have said “good-bye” to my 99 year old aunt, my grandmothers, my grandfathers and my own son.

There is nothing pretty about death.  It wasn’t in God’s original plan and I hate it.

Lately, I’ve been worrying about my “therapy” cat-Roosevelt.  He’s aging.  And all things being equal, he won’t last much longer.

r and christmas

 

He sat in my lap as I recovered from numerous surgeries and hospitalizations.

And he stayed with me as I received concerned family and friends when Dominic ran ahead to Heaven.  I don’t know what I would have done without his warm weight holding me in the chair when all I wanted to do was run away and hide.

hand-coffee-roosevelt

He has been a compassionate companion in many sad and lonely moments-never asking for a thing and giving so much with his presence and unconditional love.

Every night he sleeps beside me, snuggled down tight against my neck, purring peacefully.

But he’s getting old and I am becoming fearful that I don’t have too many more years left with him.  I hate that most nights I drift off to sleep thinking he won’t be here much longer.

And then I feel guilty.

Because the death of my cat (when it happens) can’t begin to touch the depth of pain of the death of my son.  It seems, though, that every death taps that wounded spot in my soul.

dominic at olive garden

But every death-whether a person or an animal I love-opens the floodgate of sadness I work so very hard to keep behind the dam.

I know I’m not supposed to borrow trouble from tomorrow and I work hard not to do that. 

I’m working hard to cherish each moment with everyone I love without worrying that it may be one of the last. 

It’s a fine line I walk every day.  

IMG_2089

 

 

Springtime Preview: Countdown to April

We’ve had an unusually warm winter this year.  

Not at all like the winter in 2014 which was punctuated by several deep freeze days and one giant “Snowmeggedon” that resulted in hundreds of people trapped in cars, at work or in schools.  

But there are other things that strike a chord in my heart and make me feel like I’m reliving that January through April. 

Lots of rain-both here and at my parents’ place in Florida.  A few days before Dominic left us, I sent him a photo of his younger brother nearly knee deep in creek water that had spilled from the banks into a nearby field.  He couldn’t believe it!  I still have the texts.

julian and creek in 2014

 

As for my parents’ home-well the rain has already filled the ponds which have risen across some spots in the dirt road that connects them to everywhere.  In 2014, the water got so high they were forced to evacuate for months as travel became nearly impossible except for lifted trucks or tractors.  It probably won’t reach that state again since dirt has been added to the road bed but it’s coming awful close and that taps memories and feelings in ways it’s hard to explain.

The year Dominic left us was going to be a year full of celebrations, culminations and hearty parties.  Julian was graduating with a Business Management degree, James Michael was wrapping up Veterinary School, Dominic would have survived the first two years of Law School with relatively easy classes left, Fiona was advancing in her Masters of Public Health Degree and James Michael and Lillie were getting married.

We thought all we’d need to “survive” that year was a cold winter and wet spring.  

We were wrong. 

This year is another year of celebration:  Fiona is marrying Brandon.  James Michael is coming home from deployment and will welcome, along with Lillie, his first child.  My husband will retire.

And all the preparation, along with the rain, is making me anxious.  

I wish it didn’t.  

Something about the timing, the temperature, the smell of green grass growing and leaves unfurling just overwhelms my heart.  

I’m so much better at planning now than I was just a year ago.  I can think more clearly, work more consistently, stay on track and make progress much better than those first years after Dominic ran ahead.

I have notebooks stacked on my table, decorations stacked in the room that used to be Dom’s.  Plastic bins full of tidbits we’ll use for the wedding and bridal showers.  My dress is sleeved in plastic and hung on the door for safe keeping.

I’m as ready as I can be.  

But once you’ve made big plans and had them shattered in an instant, once you’ve looked far forward to exciting times and had dancing turned to mourning, once you’ve done all the right things to make everything right and it’s gone all wrong-well, you just can’t shake the feeling that it might happen again.

I’m working hard to throw off the mantle of hesitation and anxiety that threatens to weigh me down.

I’m doing everything I can to remind my heart that this is an entirely different year, these are completely different celebrations.

Some days I am really good at it.  

Others, not so much.  

But I AM looking forward to all the beautiful things on my calendar.  

New marriage.  New life.  Bigger family circle.  

Spring is the year’s promise.   

I’m hanging on to that.  ❤

no winter lasts foreer and no spring skips its turn

Child Loss: At Night, It’s Still Fresh

It happens most often as I am drifting off to sleep. 

There is this one spot on the bedroom bookshelf where my eyes landed that first night-one paperback spine that instantly transports me to the moment I had to close my eyes on the day I found out my son would never come home again.

And it is fresh.  

Absolutely, positively fresh.  

Like “just happened” fresh.  

missing-someone

You’d think that nearly five years of intervening experience, nearly five years of grief work, nearly five years of trying so darn hard to learn to tuck that feeling away deep down so it can’t escape would have worked whatever magic time is supposed to work.  

it has been said that time heals all wounds rose kennedy clock

But it hasn’t.  

Oh, most days I can lock that lid down tight.  I can distract my mind, busy my hands and keep my heart from wandering too close to despair.

Darkness though. 

Shadows and silence and stillness give room for the memory to rise to the surface.  

And it does.  

My son is never coming home again.  

Fresh.  

Absolutely, positively fresh.

“Just happened” fresh.  

sometimes cant believe you are gone

 

Child Loss: When It’s Been YEARS-How To Bless a Grieving Parent

Please hear me. 

I do NOT blame you that my son and my sorrow have drifted down your list of “things that need attention”.  Your life is as busy as mine once was and your calendar full of commitments and celebrations that require your attendance.

There is no way you would know it’s 69 days until the fifth anniversary of Dominic’s sudden absence. 

There is no reason for you to be aware that as the southern landscape turns to spring, my heart and mind turn to death.  

But it’s the truth. 

Read the rest here:  When It’s Been YEARS-How to Bless a Grieving Parent

Child Loss and Secondary Losses

While I certainly had no real idea in the first hours or even weeks what losing a child entailed, I understood plainly that it meant I would not have Dominic to see, hold or talk to.

I wouldn’t be able to hug his neck or telephone him.  

He wouldn’t be sitting at my table any more.

But the death of a child or other loved one has a ripple effect.  It impacts parts of life you might not expect.  As time went on, I was introduced to a whole list of losses commonly called “secondary losses”.

secondary losses

Here are just a few:

Loss of a large chunk of “self”.  Dominic possessed part of my heart and part of my life.  It was violently ripped away when he died.  There is part of me that was uniquely reflected from him-like a specialty mirror.  I can never access that part of me again.

Loss of identity.  Before Dominic died I was one kind of mother.  I was a mother of four living children who were making their way in the world as successful adults.  I was a mother looking forward with happy anticipation to the next years.  Now I am still a mother of four children but one whose heart has been changed by tragedy and sorrow. Tomorrow is still bright, but there’s a shadow just behind it.

desimones uab family

Loss of self-confidence.  I used to enter a room without a thought to how I’d be received or perceived.  That’s definitely not the case now.  I’m self-conscious-constantly wondering if I’m saying or doing the right thing.  I never know if a grief trigger will (at best) pull my attention away from conversation or (at worst) send me scurrying for the bathroom.

Loss of sense of security.  I think every parent has moments of fear over his or her child.  When they first go off someplace without us, when they get a driver’s license, travel abroad, go to college.  But all the awful things I imagined didn’t hold a candle to the reality of waking one morning to a knock on my door and the news that Dominic had been killed.  The bottom fell out of my (relatively) safe world.  Bad things, random things can and do happen.  Once it happened to ME, it changed how I processed everything.  The passing years have softened some of the anxiety but I will never be able to assume safety again.

Anxiety

Loss of faith.  I did not “lose” my faith.  I never once doubted that God was still working, was still loving and was still in control.  But I most certainly had to drag out every single thing I thought I knew about how I thought He worked, loved and superintended the world and examine it in light of my experience of burying my son.  It took a long time to work through all the pat answers I had been offered and myself doled out to others for years that didn’t fit with my new reality.  I am learning that doubt is not denial and that I have to live with unanswered questions.

Loss of family structure.  I’ve written before that a family is more than the arithmetic total of the number of members.  There were six of us.  But we were so much more than six when we were all together!  Our talents, personalities and energy were amplified in community.  When Dominic’s large presence was suddenly whisked away, every relationship got skewed.  We’ve fought our way back to a semblance of “whole” but still miss him terribly.  We can function, but we will never be the same.

empty chair

Loss of my past.  Memories are funny things.  They are plastic and subject to change.  And my recall of an event is limited to my own perspective.  For a memory to be rich and full, I need input from others who were there as well.  One vessel of family memories is no longer available to add his unique contribution.  Every time I pull out a photo or dig down deep in my heart to draw up a treasured moment, I realize I’ve lost something I can not recover.  The joke, the glance, the odd detail are all gone.

Loss of the future I anticipated.  I’m a planner by nature.  Not a detailed, OCD, got-everything-in-order kind of planner, but a “big picture” kind of planner.  When Dominic left us in 2014, things were going (pretty much) according to plan.  Each child was well on his or her way to the career path they had chosen.  I was easing into an empty nest and exploring options for life after homeschooling.  My husband was entering his last few years of a lengthy career.  It’s hard to explain to anyone who hasn’t experienced it, but when your world is shaken by child loss, everything gets scrambled.  You can’t just pick up where you left off and keep going with the pieces that remain. 

There’s a prolonged period of confusion and everyone is impacted differently and in ways you could never imagine.  All of us have changed dramatically in the years since Dominic left us.  He is not the only thing missing from the rest of our lives.  Holidays are altered.  Birthdays are different.  We have to plan special events around uncomfortable milestone dates that roll around every year whether we want them to or not.  It’s a constant readjustment to life as it IS instead of life as I thought it WOULD be.

Loss of ability to focus and function.  Oh, how this surprised me!  I was in some kind of zone for the first month after Dominic left.  My other children were home, we had to make it through planning his funeral, two graduations and cleaning out his apartment.  I also had to handle paperwork for my husband to take short-term disability due to grief.  I cried a lot, wrote down dozens of notes but managed to do what I had to do.  Then I crashed. I couldn’t remember a thing.  I couldn’t read more than a couple sentences at a time.  I hated the telephone.  I could barely stand to hear the television.  I had to make a list of the most basic things like brushing my teeth, feeding my animals, turning off all the lights before bed.  It was awful!  And it didn’t really get better for well over a year.

I still suffer from a very short attention span, low tolerance for noise and an inability to accommodate last minute changes.  I don’t schedule anything back to back.  I live in a rural area and sometimes shop in the nearby town.  I will start the day with a long list and shorten it repeatedly as I go along because driving in traffic, crowds and random sounds ramp up my anxiety and make me want to go home with or without what I came for.  I have changed the way I do so many things.  My pre-loss memory has never returned.  

griefbrain1

Loss of patience.  I am at once impatient and long-suffering.  I have zero patience for petty grievances, whining and complaining.  Yet I have compassion for other people living hard and unhappy stories.  I berate myself for not being “better” and, at the same time, extend grace to others who aren’t “better” either.  I want to shake people who bowl over weak, hurting, desperate souls.   I don’t have time for moaning about rain when you were planning a picnic but will listen for hours to a mama tell me about her missing child.

Loss of health.  I had a number of chronic health conditions before Dominic ran ahead.  Within the first year of his departure, I was hospitalized twice.  My experience is not unique.  Some parents suffer immediate health effects (heart attack, blood sugar spikes, anxiety/depression) and some see a slow decline over time.  In part because child loss, like any stressor, will negatively impact health and also because sometimes bereaved parents stop doing the things that help them stay healthy.  At almost five years, I’ve learned how to manage the stress better although some of my health issues continue to get worse.  It’s hard to tease apart what is age, what is disease and what is grief.

When your child leaves this life before you do, it changes everything.  

Not only things you might expect, but many you’d never imagine.  

It’s a constant balancing act, readjusting every day to new challenges.  

Struggling to keep my head above the waves.  

grief like the ocean learn to swim

 

 

Sometimes I Just Want To Be Me!

Even in the very first hours after the news, my brain began instructing my heart, “Now, try to be brave.  Try not to disappoint people.  Try to say the right thing, do the right thing and be the example you should be.”

Whatever that meant.

As I made phone calls and received concerned friends and family members I was so aware that they would take a cue from me-how much can I say, how hard can I cry, should I hug or stand back, should I talk about him or be silent lest it make the tears fall harder?

And here-almost five years later-I still feel like I need to lead the way in conversations and social encounters.

Read the rest here:  Can I Just Be Me?

I Don’t Have to Choose Between Sorrow and Celebration

Our family is looking forward to Spring and also dreading it.  

This year we will welcome a new baby (my first grandchild) and also celebrate my daughter’s wedding to a wonderful man. 

Our family is growing again!

brandon and fiona engagement

But we will also mark the fifth year anniversary of Dominic leaving for Heaven and another birthday that he won’t be here to greet.

dom on mountaintop

I’m pretty sure tears will be shed on each of these days and they will be salty-sweet, sad and happy, sorrowful and celebratory-all at once.  

There are no more hard lines in my life that separate events into distinct categories where only a single set of emotions is appropriate.  Instead my heart’s a watercolor mosaic where one feeling washes into another, darker colors make the lighter ones brighter.

My daughter recently wrote her own blog post, Guest Books & Memory Tables: A Sibling’s Perspective on Love and Loss.

Here’s an excerpt:

“Even Hobby Lobby reminds me that if I’m remembering anyone at my wedding it should be the family legends of generations past, not current. Somewhere in my carefully- packed boxes of wedding decorations, sits frames and mementos for mine and my fiance’s grandparents and my forever-frozen-in-time 23 year old brother.

I highly recommend you read the whole thing.  She’s done a beautiful job sharing from a sibling’s perspective.

Her wedding day will be full of great joy and celebration and also some sorrow as we take pictures of the whole family minus one.

 

you should be here

I might be laughing one minute and crying the next.  

And that’s OK.  

No need to fake it.  

It’s ALL part of life. 

sorrow and celebration can coexist authentically