Repost: The Forgotten Ones-Grieving Siblings

I continue to be amazed at the resiliency of my surviving children.  

They have shouldered the burden of loss so bravely and well.

But it is hard.

And everyone needs help to carry on.

As midterms approach, I was reminded that surviving siblings often exhibit signs they need help that may go unnoticed by those around them.

So I wanted to post this again-it has been shared thousands of times and seems to be helpful:   The Forgotten Ones: Grieving Siblings

Strong or Weak? How Labels Harm the Hurting

Labels and categories can be helpful.  When cruising the grocery aisles I’m thankful for the signs that point the way to “vegetables” or “baking needs”.

But labels can be harmful when applied to people.

label-jars-not-people

Thankfully public discussion rarely includes some of the ugly words  I heard growing up.

And that’s a good thing.

It means we are free to talk about the things that really matter without having to clear the hurdle of offense.

This trend has yet to take hold in wider circles when speaking about or speaking to bereaved parents and other hurting people.

From the outside looking in, we tend to classify struggling hearts as either “strong” or “weak”.  We apply standards based on our own experience and background to determine whether or not a particular soul is “handling it well” or “crumbling under the stress”.

The problem with labels for hurting people is that it puts extra pressure on them and lets those around them off the hook.

heard-stories-but-not-know-heart

You probably mean it as a compliment when you say, “You are so strong”.

But I know it’s not true-I’ve gotten very good at holding it together in public and at saying all the right things when I meet folks on the street.

I can look you in the eye, recite answers to the question of , “How are you doing?” by focusing on the current status of my surviving adult children. What you probably won’t notice among the well-rehearsed lines is I never share my heart-I never tell you how I FEEL.

If I opened that vault there’s no telling what might spill out.

You walk away confirmed in your opinion that I am doing well, that I no longer need any active encouragement or ongoing prayer.  I’m off the “ministry list” because I am past the point of crisis and doing just fine.

Or you may see me at a vulnerable moment and think, “She’s weak” or “She’s really struggling”.

I AM weak and I DO struggle.

If you are tired of hearing about the ongoing struggle, how tired do you imagine I am living it?

If you wish I would “get over it”-how much more do you think I wish it never happened?

You may give up because it’s too much trouble to keep reaching out.  You may tuck me in the basket of lost causes because you think I’m not committed to keep trying.

It’s easy to draw a line in the sand and decide that you will go thus far and no farther in extending help or encouragement or grace because you CAN walk away.

But I am not a lost cause.

Each day Jesus meets me in my weakness and brokenness and gives me the strength I need to carry on.

And He often does this through people-people who choose to walk alongside and not label me or my journey.  People who are committed to continue even when they are tired of helping carry the burden and sick of hearing my story.

Graceabundant grace-given and received is what makes life livable.

Love, not labels is what I need.  

It’s what everyone needs.

never-forget-the-ones-who-helped-me-through-grief

 

 

Accommodating Grief

The doctor I see every six months or so for my rheumatoid arthritis always fusses at me.

One of the routine questions is, “How’s your pain level?”

I usually say, “About a three.”

And then she looks at my hands and my feet-at the swollen joints and twisted toes-and shakes her head.

But here’s the deal:  sure they hurt, sure I can’t do all the things I used to do, sure I have to do many things differently than I did them when my hands and feet were unaffected by this disease-but I’m STILL moving and doing what needs to be done.

I don’t really know how to do anything else.

And that’s how it is with this grief I lug around-it’s heavier some days than others-but I’m STILL moving and doing what needs to be done.

fall still moving.jpg

This is not the life I thought I would be living, but it’s the life I have.

So I make accommodations for my sorrow just like I make accommodations for my hurting hands and crooked toes.

  • I try not to over-schedule my days.  If I have an appointment I mark it on the calendar and refuse to pile other commitments on top of it.  That way if I’m wiped out I have some built in down time.
  • I prioritize what needs to be done.  Whether it is for a week or a day, I jot down a list (still using paper-but a phone would work) and then decide what are the two or three MOST important tasks that must be done in that time frame.  If I find myself running behind because it’s a hard grief day (or week), I can quickly make choices that ensure the needful things are done and the others laid aside for when I have more energy to do them.  I’m less anxious about what I don’t get finished because I know I did the most important things first.
  • I build rest into my days.  When I’m overtired, I’m more susceptible to grief attacks. I pause every now and then to sit or take a quick walk outside or simply change my work from detail-oriented to broad strokes.  I have more flexibility because I work at home but even in an office it’s possible.  My husband walks every day on his lunch hour-sunshine and physical activity make his afternoons easier to bear.
  • I ask for help. When I’m drowning in grief, I reach out for a lifeline.  There’s no shame in asking for help.  I have a good friend that I can text or call anytime I need to and ask for prayer or a listening ear.  I belong to a couple of online grief groups and they are full of people who understand my pain and will lift me up in prayer and encourage my heart when it feels especially broken.
  • I accept my limitations.  My toes don’t allow me to wear beautiful shoes anymore so I’ve learned to wear what fits instead of what’s in fashion.  I am not the same person I was before I buried a child so I’m learning to live with the new me.  I don’t like crowds.  I don’t like unexpected change.  I feel anxious in unfamiliar places and around strangers.  I make choices that limit my exposure to those things when possible.
  • I shake off the really awful day.  I can’t help that some days take a nosedive into terrible as soon as I leave the bed. I admit that grieving is hard, that it will continue to be hard.  But I won’t let my worst days be my only days.

I am not in control of everything, but I can control some things.

I would not have chosen this life for myself, but I can make choices that help make it bearable.

losses-and-choices-nouwn

 

 

 

No More “Smile and Wave”!

We live in a world of fake smiles, plastic body parts and cheap knock-offs.  We’re so used to it that sometimes we can’t tell the difference anymore.

It’s part of our relationship patterns too.

We see someone we know out shopping and toss, “How are you?” at them anticipating the obligatory reply:

“I’m just FINE!  How are YOU?”  (Said with a deep southern accent and wide, lipsticked smile.)

shopping-cart-medium

But then something unexpected happens.

She says, “I’m having a hard time.  I’m struggling.  This week has been really stressful.  (Spoken in a whisper, through tears.)

weakness1

And I’m faced with a choice:  

Do I shut her down or draw her out?  Do I recognize the courage it took to be honest or do I dismiss her openness as inconvenient and inconsequential?

 

Me, I’ll take genuine, every time.

I will stop, find a quiet corner and allow her to share as long as it takes.  I will pray or listen or hug or console until the storm passes.

Because that has been, and still is, ME sometimes.

Before Dominic left us, if you saw me in the grocery store you would have gotten the answer you expected.  My eyes on my list, my head filled with the next thing I was going to do when I left with my buggy full, my heart unbroken and whole-who’s got time for chit-chat?

Smile and wave was standard practice as I moseyed on down the aisle.

Not anymore.

There is nothing, NOTHING, more important than people in this life.

compassion and stay with you

If you want proof, ask a bereaved mama.

Because no one knows with more certainty, with more clarity and will tell you with more conviction that MORE TIME  with someone you love is the ONE thing you would give EVERYTHING for-in a heartbeat. 

So I will lay aside things and chores and to do lists.  

I will give up entertainment and ignore the urge to check Facebook or Twitter.

Because the person in front of me is a gift.

And I want to unwrap that gift and be present for every moment.

kindness

Grief and Grace:What I Need from Friends and Family

You cannot possibly know that scented soap takes me back to my son’s apartment in an instant.

You weren’t there when I cleaned it for the last time, boxed up the contents under the sink and wiped the beautiful, greasy hand prints off the shower wall.  He had worked on a friend’s car that night, jumped in to clean up and was off.

He never made it home.

So when I come out of the room red-eyed, teary and quiet, please don’t look at me like I’m a freak.

Please don’t corner me and ask, “What’s wrong?” Or worse-please, please, please don’t suggest I should be “over it by now”.

If you were reading a novel or watching a movie, you’d show more grace.

You would nod in understanding as the main character made choices that reflected the pain of his past.  You would find his behavior perfectly predictable in the context of a life lived with a broken heart.

I can’t control what makes me cry.  I can’t stop the memories flooding my mind or the pain seizing my heart.

I might be OK one minute and the next a blubbering mess. Grief doesn’t mind a schedule.

But there are some things you can do to help:

  • If you are aware of the circumstances around my child’s death, be thoughtful when highlighting similar situations in conversation, in movie choice, in recommending books or news stories.  I bump into reminders all the time, I don’t need to have them forced upon me.
  • It can be particularly hard to celebrate milestones in another child’s life when that child is about the same age as the one I buried.  Feel free to invite me, but give grace if I choose not to attend a birthday, graduation or wedding.  I’m doing the best I can and I don’t want to detract from the celebration so sometimes I bow out.
  • Ask me if, or how,  I would like my missing child included in family gatherings. Sometimes I want his memory highlighted and sometimes I want to hold it close like a personal treasure.  It might be different one year to the next. Just ask.
  • Be sensitive to the calendar.  Make a note of my child’s birthday, heaven day, date of the funeral or memorial service-these are important dates for me and they will be as long as I live.  In the first months, maybe for years, each month is a reminder that I am that much further from the last time I heard his voice, hugged his neck or saw his living face.  Those days are especially hard.
  • Don’t pressure me to move faster in my grief journey.  And don’t interpret a single encounter as the measure of how I’m doing.  Be aware that it is often a two-steps-forward-one-step-back kind of experience.  It is MY experience and will go as fast or as slow as it does.  I can’t even hurry it along even though sometimes I am desperate to do so.
  • Understand that the things I may share don’t paint a total picture.  There are pains too deep, thoughts too tortuous, experiences surrounding my son’s death and burial too hurtful for me to speak aloud.

I admit that I never thought of any of these things until it was MY son missing.

But now I think about them all the timenot only for my sake, but for the sake of others like me. I try to walk gently and kindly, extending grace and love.

And honestly, that’s really all I want from anyone else-grace, abundant grace.

I will be weepy when it’s inconvenient.  I will react when you can’t fathom why.  I will stay away when you want me to come near.  I will make choices you don’t understand.

I am truly sorry.

But child loss is not something I chose for myself, it was thrust upon me.

I am walking this path the best I know how.

When you extend grace and love me through the roughest places it makes all the difference.

heart and wood

Do Good, Be Light, Extend Hope

Dear friends, do you think you’ll get anywhere in this if you learn all the right words but never do anything? Does merely talking about faith indicate that a person really has it? For instance, you come upon an old friend dressed in rags and half-starved and say, “Good morning, friend! Be clothed in Christ! Be filled with the Holy Spirit!” and walk off without providing so much as a coat or a cup of soup—where does that get you? Isn’t it obvious that God-talk without God-acts is outrageous nonsense?

James 2:14-17 MSG

James doesn’t mess around.

He says what a lot of people are thinking but are too timid to speak aloud.

I like that.

We could use a good dose of his brand of preaching in the church today.  Let’s stop pretending that following Jesus is just about getting our theology right.  Let’s stop acting like going to church, serving on committees or teaching Sunday School is the best indicator of where my heart is relative to my Savior.

Let’s face facts:  if my life does not look different than the lives of those who do not know Jesus, then either I don’t know Him or I’m not paying attention to what He’s telling me to do.

I have been blessed on this grief journey by a few dedicated friends who go out of their way to do good, be light and extend hope to my heart when I’m barely holding on.  They have chosen, often sacrificially, to be the hands and feet of Jesus in my life.

And they make a difference!

Sometimes it’s a card in the mail, sometimes a text or message and sometimes a visit-but they DO something.  They might not understand why God is putting me on their heart, but they obey the prompting.

So if the Spirit is nudging you to reach out to someone, don’t ignore Him or put it off. Sure, praying is important.  We are commanded to do that.

But we are also commanded to be physically present and to extend practical help to hurting hearts.  We are supposed to BE the hands and feet of Jesus.

Who knows, I might be the answer to my own prayer that God send encouragement to someone else.

I can choose to do good.

do-all-the-good

I can choose to shine light.

let-light-shine

I can choose to share hope.

hope-and-heart

And my small gesture be the very thread that holds a broken heart together.  

If anyone, then, knows the good they ought to do and doesn’t do it, it is sin for them.

James 4:17 NIV

 

 

Move Over, Make Room for the Broken

I used to position myself at the end of the pew, just in case someone I’m not too comfortable with might come along and try to sit down.

It saved us both that awkward conversation where they ask if they can join me and I say “yes” with my mouth but “no” with my body language.

Frankly, I was at church to be lifted up so I could face the coming week with power and strength. I didn’t want to be dragged down by their reality of brokenness and sometimes bitter tears.

I don’t do that anymore.

I realize that most of what made me uncomfortable was other people’s pain.

Now I’m the one who’s broken.  I’m the one who can’t get through “Amazing Grace” without blubbering.

And I’m the one that others hope won’t ask to join THEM.

But here’s the deal:  God loves the broken.  Christ came for the broken.  It’s the broken and breathless who long for the Spirit to blow life across their wounded hearts.

It’s the hopeless and fearful that run faster to the safety of their Shepherd.

It’s the worried and weary who are thankful for a Burden-bearer.

When I refuse to move over and make room for the broken, I’m barring the way for the very ones who most desperately need the blessing.  When I want my worship experience to exclude those who haven’t the strength to bring their own hearts before the throne of grace, I’m being selfish.  

And that is sin.

Jesus went out of His way to heal the hurting,

to bless the broken and

to speak strength to the weary.

So now I sit in the middle of the pew and leave room for whoever God brings my way.

I want to be an open door, not a gatekeeper.

“Come to me, all of you who are weary and over-burdened, and I will give you rest! Put on my yoke and learn from me. For I am gentle and humble in heart and you will find rest for your souls. For my yoke is easy and my burden is light.” ~Jesus

(Matthew 11:28-30 PHILLIPS)

Grieving Parents: What Helps and What Hurts

Last February I ran a series of posts about “loving well” during loss.

Other bereaved parents graciously shared both what helped and what hurt in the first few days, weeks and months after losing a child.

I wanted to share this one again because I’ve been reminded recently that it’s hard to know what to do and what to say when a friend or family member is facing the devastating pain of child loss.

If you long to help someone in meaningful ways when they are struggling in a storm of grief, read this:  Loving Well: Some Things Hurt

 

 

Practical Ideas for Dealing with the Holidays after Child Loss

This is the fourth in a series on making plans for the holidays after loss.

Yes, it’s early and no, you might not want to think about them-it’s really hard to imagine Thanksgiving and Christmas without the child you love.  BUT, the days will come whether we want them to or not. Here’s some help to navigate them.

If you missed the first three posts you can find them here:

Grief and Holiday Plans: Working Out the Details

Grief, Holidays and Hard Conversations

Grief and Holidays:What the Bereaved Need From Friends and Family.

It cannot be overstated:  holidays are extremely hard after loss.  Every family gathering highlights the hole where my son SHOULD be, but ISN’T.

There is no “right way” or “wrong way” to handle the holidays after losing a child.

For many, there is only survival-especially the very first year.

These days also stir great internal conflict:  I want to enjoy and celebrate my living children and my family still here while missing my son that isn’t. Emotions run high and are, oh so difficult to manage.

So I’m including some ideas from other bereaved parents on how they’ve handled the holidays.  Many of these suggestions could be adapted for any “special” day of the year.

Not all will appeal to everyone nor will they be appropriate for every family.  But they are a place to start.

If you have decided to make a Holiday Journal,  consider printing these ideas to put inside or copying out the ones that might be helpful for you.

Skip it.  

  • Sounds drastic and it is.  But for some families (especially if there are no small children involved) it is absolutely possible (and sometimes healing) to ignore all traditions and trappings associated with Thanksgiving and Christmas.
  • You might choose to serve others on these days by volunteering with a local organization offering meals to the homeless or disadvantaged in your community.
  • Take a holiday meal to hospital workers, police officers or firemen in your area.  You can do it anonymously or in the name of your child.

Consider traveling for the holidays.

  • On the first Thanksgiving after my son left us, we shared the weekend with our newly married son and his wife in another state.  It was the first time in my life I hadn’t spent the holiday with my parents.  It was still very hard, but helpful in a way.
  • Other families have chosen to rent a cabin or condo and have the same people involved but experience the season in another location.  Most try to choose a place with a natural focus for activity that isn’t all about the holiday-like skiing in the mountains or near a lake or beach.

Change how you do meals.

  • If your family traditions always include the same foods in the same house, you might want to eat the holiday meal in a restaurant instead.
  • You could swap up the timing of a meal-evening instead of noon or vice-versa.
  • Change up the guest list-include a few close friends along with family members (friends that understand your grief).  Sometimes it helps to have others not so affected by the loss in the mix.
  • If you have been the host but don’t feel like you can do it this year-definitely consider passing that to someone else.  And don’t feel guilty about it.
  • Include the missing family members at the table in some way. One bereaved mom wrote:  “My niece includes my  son and mom at events hosted in her home.  She sets a chair aside and places a photo in the seat and a commemorative bow on the chair back.”
  • Don’t make certain foods. I make giant plates of cookies but have not made shortbread cookies since my son left us.  It was his favorite and one of the few things that tempted him from his strict weight-lifting diet
  • Make your child’s favorites and enjoy eating them and sharing memories around the table.

Let others do the planning/cooking/communicating.

  • Explain to your family that you aren’t up to being the one to plan this year’s holidays.  Let someone else do it.  Participate if and when you can.  
  • Be kind, but stand your ground.

Make new traditions. 

  • If you go around the table at Thanksgiving saying, “I’m thankful for…“-it might not be something you can do this year.  That’s OK.
  • Light a candle for the missing child.  You might want to have those present share a favorite memory or you might simply want to have the candle create a silent presence.
  • Some families can’t bring themselves to use the same Christmas tree they used before loss so they get a new and/or different one.  Some don’t want a tree at all.
  • Some families have a separate tree full of ornaments or memorabilia for their missing child and use the main tree as usual for the rest of the family.
  •  “I have a separate tree for Z. . It’s filled with ornaments that remind us of him. They range from glass ornaments with his favorite candy inside to a Thomas the tank engine ornament. Collecting more ornaments for him as I’m out shopping for others helps me during this very painful time.”
  • Some families don’t hang any stockings while others hang them all, including the missing child’s.
  • Another family asks family members and friends to write a note to their son or share a favorite memory of him.  They place them in his stocking to be opened and read on Christmas Day.
  • “We asked everyone to do a random act of kindness in memory of our daughter and our friends’ son and to email it to us. We printed out all of the emails, put them in her stocking and read them as a family on Christmas morning. It was amazing to hear all of the lives touched as a result, and it took our focus off of our loss.”
  • My husband, children (all adults) and myself didn’t want to receive gifts from extended family the first year.  We still gave them, but asked that others refrain or give a donation in our son’s name.
  • Some families buy gifts that would be appropriate for another child the same age as their missing child (or the age they would be) and give them to  another child for Christmas.

Commemorate your child:  

  • Some bereaved parents put a Christmas tree with solar powered or battery powered lights on their child’s resting place.
  • Some parents take family photos and include a large photo of their missing child or a special family memento (like a stuffed animal or symbol on a shirt) to represent that child in the pictures.
  • Some families give donations in their child’s name to organizations that purchase Christmas gifts for needy families or food for families at Thanksgiving.
  • In some communities there is a “Blue Christmas” ceremony on December 21st each year in which families gather to remember lost loved ones with music, candles and sometimes a devotional message. Some are sponsored by local chapters of The Compassionate Friends.  If there is not one in your area, your church may be willing to host one.

Keep the same traditions:

  • For some families, keeping everything the same is the most comforting choice. Especially if there are young children involved, it may be the easiest way to go.
  • But feel free to ask for help.  If you are not up to shopping for children in the family, make a list, let someone else do it and wrap the presents for you. Or use an online shopping service (many offer gift wrap).
  • Same goes for holiday outings-maybe a good family friend or an extended family member could take the children this year and document it with photos.

Whatever you choose to do or not do, know that there’s no wrong way or right way.  

Be gentle with yourself-this is a hard road.  And a long one. 

Photo credit: State Farm via Visual hunt

A Few of My Favorite Things

When I had a child, suddenly I cared about everything. When I lost a child, suddenly I cared about nothing.

~ a bereaved mother

When I read this comment, I thought about it for a moment to see if it was true for me.

And I realized that, yes, it WAS true at the very beginning.

Mind-numbing pain and soul-crushing agony pressed down so heavily that I couldn’t care about anything other than reminding myself to

BREATHE.

In. 

Out.

Repeat.

A bit over twenty-eight months have passed and my body, mind and spirit are stronger.

The pain is still great, but I am better able to bear it now.  

My heart is bigger because I suffer and it is softer toward those who also suffer.

heart and wood

Trials make great room for consolation. There is nothing that makes man have a big heart like a great trial. I have found that those people who have no sympathy for their fellows, who never weep for the sorrows of others very seldom have any of their own. Great hearts could be made only by great troubles.

Charles Spurgeon

Now I care much more deeply about a few, select “things”.

The ones I can take with me into eternity:

People

And love

And grace

Forever in heaven with Jesus.