Before Dominic ran ahead to Heaven I could be awfully self-righteous.
I could not understand how some people (notice how I dehumanized them by lumping them together) couldn’t just act right, do right, pick themselves us by their bootstraps and get on with life.
Not anymore.
Now I am more apt to wonder, “What awful thing has happened to this person?” instead of “What is WRONG with them????” when I notice someone acting a bit out of character or not quite living up to their commitments or somehow missing the mark of societal expectations.
Take all this coronavirus craziness.
Some of us are being more cautious.
Some of us consider caution a sign of insecurity or fear or lack of faith.
None of us have enough information (really!) to make an informed decision.
ZOONO3 VIA GETTY IMAGES
Lack of testing, lack of research, lack of transparency and not enough time means we are all essentially guessing what is the most prudent and appropriate individual response to this threat. I’m choosing not to judge anyone’s choices even if they are different than my own.
I’ve felt judged many times in the past six years since Dominic ran ahead to Heaven.
People who haven’t buried a child really don’t understand how it changes EVERYTHING. But that doesn’t stop them from offering an opinion or advice or making comments on social media that are clearly intended to correct or shame me.
Now that things are opening up on the back side of blanket stay-at-home orders I’m probably going to be judged again.
What people don’t know about me-what they can’t see and can’t know unless they ask-is I suffer from an autoimmune disease. The treatment impacts my ability to fight off infections. It lowers my white blood cell count. It makes me susceptible to things that other folks never have to worry about.
I had latent (non-contagious and asymptomatic) tuberculosis a couple years ago.
I’m not part of population that would normally be considered “at risk” and only found out about it because it’s protocol to test for TB before prescribing some of the more potent medicines used in treating rheumatoid arthritis. I still have no idea where I was exposed to it.
Eight months of antibiotics with unpleasant side effects later I was disease free.
Based on first person accounts of what it feels like to have Covid19 (not even considering the most dire outcomes) that was a cakewalk.
So I’m not standing in line to try my hand at surviving this new threat.
And I have other, very real, very painful, experiences which inform my choice to be more cautious. I know that regardless of odds, of treatment and of what a heart HOPES will happen, things don’t always go as planned or as predicted.
I know the horror death leaves in its wake. I know the toll trauma takes on a life left behind.
My family has already had to deal with more than I could have imagined and I will not purposely expose them to something else if I can help it.
So regardless of local, state or national guidelines, protocol or recommendations I will be mostly staying home.
It’s not lack of faith.It’s not fear. It’s prudence based on experience.
You can make a different choice and I will absolutely positively respect that.
All words that can describe a heart once the dishes are washed and the celebration ended.
Some of y’all probably woke up thinking, “I did pretty good on Mother’s Day” only to be blindsided by the tears you managed to hide and the grief you managed to stuff.
That’s OK. It happens.
If you are struggling to open your eyes to a new day or face this week, I want to pray for you-I want to pray for us:
Father God,
You have made me and I am yours.
Sometimes I don’t feel You but I trust You haven’t abandoned me. You care for me with the tender heart of a mother for her children so I know you are here. You are a good, good Father and Your loving kindness is eternal.
My heart wants to run and hide.
I’m tired.
Tired of carrying this load, tired of pretending it’s not all that heavy, tired of trying to put the scattered pieces of a broken life back together.
Help me.
Help me lean into the truth that I don’t have to do any of that alone. Help me let go of the things I have no control over and to place them into your hands. Help me adjust my expectations and my attitude.
Give me sufficient grace for this moment, this hour, this day. Pour your love into my spirit and strengthen me with your courage. Make me brave. Be my Light and my Life.
Amen
It’s OK to cry. It’s OK to take the mask off and let the feelings fall.
I first shared this post four years ago after a group of bereaved parents and I were talking about how things that used to be simple and straightforward simply weren’t anymore.
Things like the question, “How many kids do you have?”
Things like going to a movie or picking a place to eat out.
So. Many. Things.
Honestly, I thought it’d be less of a minefield by now-I mean it’s been six years already! And while there ARE some things that I find easier, most of the things I talk about in this post are still hard.
❤
One of the things I’ve been forced to embrace in the wake of child loss is that there are very few questions, experiences or feelings that are simple anymore.
“How many children do you have?”
A common, get-to-know-you question lobbed across tables, down pews and in the check-out line at the grocery store. But for many bereaved parents, it can be a complex question that gets a different answer depending on who is asking and where we are.
Especially therapists that only know what child loss is supposed to look like from books and lectures.
I understand how logical it seems that a parent should be able to accept his or her child is no longer alive. After all, most of us saw our child’s lifeless body and performed whatever rituals our hearts find most comforting.
We haven’t received a phone call, text, message or new photograph. Weeks, months and years pass and no word.
Of course this child is gone.
But a mama’s heart still hopes. Somewhere deep down there is a part of me that longs for connection to this child I carried, nurtured and loved.
So sometimes my heart will play tricks on me.
It started just after Dominic ran ahead to Heaven.
I was the one who had to make phone calls and inform the family of his passing, repeating the awful words over and over and over. So my head got it right away.
Dominic was dead. He was not coming back. There was nothing I could do about it.
Still, I found that for the first year or year and a half, every time I went somewhere we usually went together or attended a family function or celebration where we’d all be in one room, I looked for him.
If someone came around the corner and I caught a glimpse of a shoulder-could that be him?
If voices drifted upstairs-maybe that’s Dom’s laugh down there?
A whiff of soap or shampoo on the grocery aisle-was he just ahead of me?
Ridiculous. Maybe. But very, very real.
Now these [ten] years later that hardly ever happens. Once or twice a year, when the family is together and especially if we are together in a crowd of other people, I’ll kind of “look” for him-on the fringes, around the edges, his voice maybe mixed in with others.
I do still sit silent in the dark hours of early morning shaking my head and saying aloud, “How can Dominic really be dead?”.
But that’s not denial of the fact he is gone.
It’s acknowledgement of how hard it is to live with that truth.
This will be the eighth Mother’s Day since Dominic ran ahead to Heaven.
Every year has been different because families continue to grow and change and the world turns and life marches on.
Every year presents unique challenges and particular paths that must be navigated anew. It’s always an emotional roller coaster.
The Captain, March 2019
Two years ago our family welcomed a first grandchild. His frightening entrance into the world made his life all the more precious and Mother’s Day gave us a chance to celebrate him, his mama and the fact that his story has a happy ending.
The Captain, April 2020.
This year I’ll be a motherless child when the sun rises tomorrow. For the second time in my life, I won’t be able to see or telephone my own mother. Another light and life lost from sight.
Dominic and Mama in Heaven together.
Julian, Dominic, Mama, James Michael & Fiona
Every year my living children work hard to celebrate me even when they are unable to make it home.
I always feel loved.
So what’s a mama to do when her heart is torn between the very great and beautiful blessings of her living children and grandchildren and the very great and devastating sorrow of missing her child in Heaven?
Since discovering there is an International Bereaved Mother’s Day my heart has taken advantage of having a day to think about and honor Dominic and then another day to think about and honor my living children.
I also rise early enough on Mother’s Day to have time alone with my thoughts and feelings.
I walk my heart through the upcoming hours and “pre-grieve” moments where I’ll be looking for Dom among the faces at the table or around the room. I remember the gift of his life and place it in context of the gift of each of my children.
I thank God for my family.
Thanksgiving years ago, when we were all younger and all here on earth. One of my favorites. ❤
And then I get up, get dressed and open my heart to the love I have in front of me.
I never, ever want my living children to think that their brother’s ABSENCE is more important or more precious to me than their PRESENCE.
My mama’s heart has room for all of them as it always has.
For just over six years I’ve been waiting to see my son again. Waiting for this ache in my heart to be healed. Waiting for a sunrise that brings only joy and no reminder of sorrow.
So I’ve figured out some ways to fill these waiting days. I’ve developed habits and routines to make them count for something other than empty hours ticked off on a clock face.
The pandemic has thrust many other hearts into an unwelcome season of waiting.
Here are some good habits (most of which I’ve employed daily for years!) that make the waiting a little easier and healthier:
Get Dressed. Sure it’s fun to hang out in pajama pants when you know the only meetings you might have are online and no one can tell what you’re wearing. But getting dressed signals your brain the day has begun and creates a dividing line between night and day. Trust me, it makes a big difference!
Eat Well. Don’t allow yourself to graze all day on snack foods. Make or order real meals. It’s easy to overeat when grazing which will ultimately make you feel too full, bloated and uncomfortable. Fill a plate (even if it’s a paper plate!), sit at the table or a TV tray and finish your breakfast, lunch or dinner then put the food away. Daily rituals help a heart hold on and crafting them around meals is simple and satisfying.
Do something creative. It can be rearranging pictures on the wall, placing photos in an album (something you might have wanted to do for a long time), coloring, completing a craft project, sewing fabric masks, or dragging out a puzzle you’ve had in the closet. Anything that helps you think outside the box is wonderful.
Stay connected with friends and family. I know it’s not the same. FaceTime, Facebook, Instagram and whatever other social media apps may be trending right now are no substitute for face-to-face meetings and warm, in-person hugs. But they are the best we can do right now. And they are absolutely, positively better than nothing! Take advantage of all the ways you can reach out to those you love. Share funny stories or memes. Let your loved ones know how your day is going.
Do your hair and makeup. Well, I might not be the best person to recommend this particular practice since I don’t wear makeup unless it’s a very special occasion. BUT–if you wear makeup on a regular basis, do the minimum. It’s another way of helping your brain and psyche draw a line between day and night, work and relaxation. Doing your hair might just be putting it in a ponytail or clip but get it out of your face. At least run a comb or brush through it.
Get some fresh air. There is NO substitute for outdoor air. Too much time cooped up indoors makes even the most sane person a little crazy. Walk, ride a bike, run, skip or hop your way around the block or in the park. If moving is too hard on your joints or your balance or your heart, then sit outside in the sun and breathe deeply. It’s a wonderful way to reset your mental attitude and get some Vitamin D.
Unplug devices and walk away from the screens! Too often we are stuck in echo chambers that reflect back fear and mistrust of the “other side”. Social media algorithms feed us what they think we want to see. The 24/7 news cycle thrives on half-truth headlines that encourage viewers to tune in for the “rest of the story”. It is possible to learn everything you NEED to know in about five minutes online. Leave the rest for those that enjoy drama, intrigue and worrying about every little thing.
Reach out. If you feel yourself falling down a black hole into the pit of despair, tell someone.It’s scary to risk rejection or judgement. But I think you will be surprised to find that most of the time you will be met with grace and compassion.
If others had access to my view of this WordPress site they’d marvel at the number of post drafts I’ve left unfinished.
As of today, it’s over a thousand.
But I won’t let them go until I feel like I’ve gotten them right. And lately I haven’t been able to do that.
It’s not traditional writer’s block because I still have lots to say, still put words on [virtual] paper and still dictate random notes onto my phone when walking or driving.
I just can’t finish the thoughts.
I’m not sure if it’s a function of the unprecedented times in which we find ourselves, the sudden and unexpected change of having my husband work from home or what I call my “season of sorrow” that lasts from the end of March through the end of May but something is definitely mucking up the works.
I hope to find a few hours soon to sit down in silence with my own thoughts and my computer and finish up new posts I’ve started.
I know that you never-in your wildest imagination-thought that you would need a day set aside for your broken heart and your empty arms.
Who thinks when they learn a new life is growing inside that this same life might be cut short? What heart is brave enough to consider the possibility?
Yet here you are.
I’m so, so sorry.
But there are a few things I want you to know. There are some important truths to remember on this broken road-truths that can help you hold onto hope and finish strong.