It would surprise my mama most of all that on this day I’m at a loss for words.
I regularly embarrassed her with my non-stop commentary as a child. I told stories about what I heard and saw (and what my young mind THOUGHT it heard or saw) to anyone who would listen.
But I realize now there are moments too sacred, wounds too deep, experiences too precious for words.
Either you are there and share it-or you’re not-and can’t imagine.
This is one of those times.
Dominic would be [thirty-three] years old today if he had lived.
Living on a farm I’ve buried a lot of things in this Alabama dirt, I never thought my brother would be one of them. I miss you so much Hector Dominic DeSimone! ~Julian DeSimoneThe many sides of Dominic.
He’d be several years out of law school, on some path toward making his mark in the world, maybe (?) married, perhaps even a dad but definitely, positively here and part of our lives.
To be honest, I wouldn’t even care what his life looked like right now as long as it wasLIFE.
Something very few people know and even fewer would note is that on Dominic’s birth day, the doctor who delivered him had just the day before become a bereaved parent himself. His daughter left this world by her own hand.
Another C-section, Dominic was lifted up next to my face by this sweet and vulnerable man while the tears poured down my face. I was crying for HIM not for me. I was undone that he had shown up and delivered my child while his own laid lifeless wherever they had taken her.
I thought I understood then.
But I had no clue.
I understand now.
Sometimes you show up and do what you need to because it’s the only way for a heart to survive.Sometimes you walk on because standing still leaves too much time for the horror to take root and overwhelm you.
I miss Dominic.
I miss the future we would have had togetherand the family we would have been if death hadn’t invaded our reality.
I would literally give anything other than the life of one I love for Dominic to be alive right now.
But it’s not an option.
So I’ll spend his birthday thinking about what we had, lamenting what we will never have, rejoicing that his faith is made sight and I’ll cry.
Because a mama’s arms are made for holding her child, not holding his memory.
I wrote this three years ago but it still speaks my heart.
❤
I will not get used to the fact that my son is beyond my reach. I have come to a certain acceptance of it as fact, and acknowledgement of the truth that I cannot change that fact.
The pain hasn’t become less painful, only more familiar. It doesn’t surprise me as often when it pricks my heart anew.
In addition to their own heartache, bereaved parents carry the heartache of their surviving children.
The family everyone once knew is now a family no one recognizes. Hurting hearts huddle together-or run and hide-and it is so, so hard to find a way to talk about that pain.
I’m the kind of person who thinks a lot about what makes people tick.
I always assume the person in front of meis the sum of his or her experiences.
We all are, really.
No one wakes up one day and just “is”. We become, over time, as our innate nature interacts with the world around us. First our parents and siblings influence us and then school, friends, life experience either gently molds us or pounds us into shape.
Often we get so used to our own way of doing and being we never give it much thought. It’s just “how we are”. We work around our faults and try to use our strengths to our advantage.
Most of us are pretty good at it.
Then something earth shattering comes along and suddenly the cracks are exposed and we haven’t the energy to cover them over.
Grieving hearts can be overwhelmed by all the seemingly unrelated issues that crop up after child loss. They lament that the pain and sorrow they bear missing their child is more than enough of a burden. Why, oh why are all these other things demanding attention at the same time?
How we grieve is informed by so manythings!
Not only by our relationship with the one we miss but also our relationship withprevious losses, ourselves and others.
Here are some often overlooked things that affect our grief:
Relationship with the one we miss. I think most of us realize this intuitively but we might be afraid to look deeper than the most recent memories and feelings. Dominic was almost 24 when he was killed in a single-vehicle motorcycle accident. At first my reaction to his death was mostly about losing him as a young adult. Over time I mourned losing him as a younger middle child who came along when I wasn’t taking as many photos of babies and toddlers (I have far fewer of him than his older siblings!). I mourned not making as much of his high school graduation and being not long out of major surgery for his college graduation. I mourned not making videos of his amazing drum playing because, you know, there’s always next time. My relationship with Dominic was complicated as all relationships are. I’m still discovering sore spots, having to think about, feel them and forgive myself or him for that specific pain. It takes time and willingness to explore my heart even when it hurts.
Relationship to previous losses. We’ve all suffered loss in our lifetimes. It might not have been due to death, but something or someone was taken from us, left us or is missing. And we’ve observed how others in our family have dealt (or not dealt) with loss. How we processed previous loss-what we learned or didn’t learn-in the course of living through it impacts how we approach child loss. I suffered numerous smaller losses before Dominic ran ahead to Heaven. One of the most profound was the decade prior to his leaving when my health declined in ways I could neither control nor anticipate. Over and over I was forced to accept that no matter how hard I tried, I couldn’t MAKE something happen (or not happen). I had already surrendered, for the most part, to the worldview that I was not in control. It didn’t stop my heart from crying out nor stop my mind from trying to find a reason for this awful tragedy, but it helped me get past the initial disbelief that it could happen at all.
Relationship to ourselves. Some of us are masters of ignoring inner voices and prodding. Some folks never have a conversation with themselves, question their own motives or examine their own behavior. They walk through life and experience it moment by moment, day by day without looking too far ahead or looking over their shoulder at what they might leave in their wake. I’d love to have a day like that. Because I’m precisely the opposite. I will replay a conversation a dozen times trying to figure out where it went wrong or what I could have said differently. I am never free of a long list of self-imposed “Do’s and Don’t’s”. Even while grieving, I had expectations regarding what was allowed and what was out of bounds. It took time for me to give my heart permission to do whatever was necessary as long as it didn’t harm me or others. The less introspective may need help setting boundaries around their words and behavior so they don’t damage other hearts and relationships in unbridled grief.
Relationship to others. One of the most shocking realizations in child loss is that although others are in your immediate grief circle (spouse, other children, grandparents) no one has precisely the same relationship with the missing child. And every relationship within a family is impacted by the space left behind. Families are reshaped as much by the subtraction of a member as by the addition of a new baby or spouse. It changes everything. So even in this intimate setting, misunderstandings happen. Each person is working through their own grief. As they do, they will change. And the cycle begins anew. The husband I knew and the children I knew BEFORE Dom left have been reshaped as much by this experience as I have. I tend to want to relate to the people they were before and not to the people they are NOW. The gap between the two can be difficult to navigate. We continue to learn to live together in our new reality-changing and (hopefully) growing together. We talk more about important things, hide less behind false fronts and work harder at keeping short accounts.
Child loss shook me to the core.
It rattled every loose thought and feeling so hard they fell out and I was forced to deal with them. It ripped away any facade I’d managed to construct around poor coping techniques and suddenly I had to find new ones. Excuses that served to kick relationship problems down the road weren’t enough anymore.
Our family’s experience was a bit unusual though hardly unique.
In the two months after Dominic ran ahead to Heaven we had Easter, two graduations, a wedding, Mother’s Day and his birthday.
So we were thrust right into the uncomfortable whirlwind of celebration and mourning from the start.
I remember having to dig deep to let the happy come out through the muck and mire of sorrow.
But even then, it was there.
Six years later and it’s much easier to let laughter loose and produce a genuine smile for those Kodak camera moments.
Six years later there are a heap of things to be happy about not the least of which is the addition of this little fella to the family circle.
From frightening beginnings to a first birthday full of love, laughter, food and fun my grandson has come a long, long way.
A couple of days ago was the one year anniversary of his coming home from NICU-what a glorious day when he made that trip safely and slept the first night in his crib next to his parents’ bed!
I am still in awe of how this story (that could have had a much different ending) has a beautiful one.
Last night his dad FaceTimed us and we got to see our little Captain cutting up, laughing, taking a few tentative steps, reacting to our voices and generally having a great time.
It’s balm to my soul.
It doesn’t fill the space where Dominic should be but it has enlarged my heart once again.
If you are wondering if you will ever feel joy or gladness again, hang on.
Celebrate the good things even when it’s hard.
It’s not treason to let love and laughter back in.
They find a tagline or a cause or even a certain color and it becomes shorthand for remembering and honoring their missing child.
Me, not so much.
Dominic wasn’t the kind of person you could sum up in a few words or a certain favorite anything.
He was a drummer, a social commentator, an adrenaline junkie, a fitness fanatic, a neat freak, a bargain hunter, a mechanic, an electronics aficionado, so very funny and a loyal and fierce friend.
He could be sarcastic and cutting.
He was nearly always brutally honest. His twitter feed is full of (sometimes misspelled) witty commentary on everyday irritations and observations. I can hear his voice in my head when I read them.
Dominic was also kind and compassionate.
He was often the kid that sat next to the kid that no one else wanted to sit with. His friends from law school told me tale after tale of how he helped them with one thing or another, how he went out of his way to be there for them and how his kindness made a difference.
He was a stubborn mule too.
When he’d established a position it took a heap of convincing to get him to change his mind. More than once he simply waited the other person out, trusting exhaustion to do the work of making his case.
His [thirty-third] birthday is coming up in a few days. It will be the [tenth] one without him.
If he was still here I’d do what I do for most birthdays-create a portfolio of gift cards in an amount equal to the years. I love hunting down a recipient’s favorite places to shop and filling up the envelope.
I’m still not good at figuring out what to do about birthdays down here when he’s in Heaven and probably not even marking the day.
He would hate balloons.
He’d know none of us needed any cake.
Between now and then I’m going to try to think of something.
Especially therapists that only know what child loss is supposed to look like from books and lectures.
I understand how logical it seems that a parent should be able to accept his or her child is no longer alive. After all, most of us saw our child’s lifeless body and performed whatever rituals our hearts find most comforting.
We haven’t received a phone call, text, message or new photograph. Weeks, months and years pass and no word.
Of course this child is gone.
But a mama’s heart still hopes. Somewhere deep down there is a part of me that longs for connection to this child I carried, nurtured and loved.
So sometimes my heart will play tricks on me.
It started just after Dominic ran ahead to Heaven.
I was the one who had to make phone calls and inform the family of his passing, repeating the awful words over and over and over. So my head got it right away.
Dominic was dead. He was not coming back. There was nothing I could do about it.
Still, I found that for the first year or year and a half, every time I went somewhere we usually went together or attended a family function or celebration where we’d all be in one room, I looked for him.
If someone came around the corner and I caught a glimpse of a shoulder-could that be him?
If voices drifted upstairs-maybe that’s Dom’s laugh down there?
A whiff of soap or shampoo on the grocery aisle-was he just ahead of me?
Ridiculous. Maybe. But very, very real.
Now these [ten] years later that hardly ever happens. Once or twice a year, when the family is together and especially if we are together in a crowd of other people, I’ll kind of “look” for him-on the fringes, around the edges, his voice maybe mixed in with others.
I do still sit silent in the dark hours of early morning shaking my head and saying aloud, “How can Dominic really be dead?”.
But that’s not denial of the fact he is gone.
It’s acknowledgement of how hard it is to live with that truth.
When it first happened all I could think about was getting through a minute, then a day and then all the decisions and days leading up to a funeral or memorial service.
There’s no road map.
Even when others come alongside (and many, many did!) there’s just no easy way to navigate that part of the journey.
And then I realized that in addition to all the “regular” days that absolutely, positively break your heart, I had to forge a path through “special” days.
It was overwhelming!
Mother’s Day was especially challenging that first year. Our loss was fresh and we’d had to acknowledge and celebrate two graduations and a wedding was about a month away. How in the world could I honor my living children and also safeguard my broken heart?
We muddled through by having Mother’s Day at my daughter’s apartment co-hosted by some of her sweetest and most compassionate friends. Not a lot of fanfare, but good food, good company and a quiet acknowledgment of Dom’s absence but also my living children’s presence.
It was a gift.
This is my seventh Mother’s Day. Every year is different. Every year presents new challenges and every year things change.
Since discovering there is an International Bereaved Mother’s Day my heart has taken advantage of having a day to think about and honor Dominic and then another day to think about and honor my living children.
That helps.
I wrote this post four years ago but can’t really improve on it so I’ll share it again. I pray that each heart who finds Mother’s Day hard will lean in and take hold of the hem of His garment.
It’s beautiful weather and nothing terrible happened today but my heart is heavy and I can’t shake it off.
I try so hard to identify triggers and personal traits that lead me down this path of sorrow.
Sometimes I come up empty.
I do think it has something to do with all the changes we’ve been forced to embrace.
They feel familiar.
Sudden, unexpected events have squeezed all of us into a narrow place with fewer options than we are accustomed to have available. Jobs lost, schools closed and (what is the deal???) no toilet paper.
A life that used to feel like an open vista of opportunity now feels constrained and burdensome.
I’m limiting my exposure to news and social media but there’s no escaping it altogether and it’s affecting my ability to keep a stiff upper lip.
I guess lack of sleep has something to do with it too. And the fact that someone’s dogs got into my chickens and killed half of them. Death-any death-is awful!
Plus Mother’s Day coming up. It will be the first I’ve spent without one of my children and without my own mother being at least a phone call away.
I would normally try to talk myself out of giving in. But not today.
I’m sitting outside in the extraordinary windy day and letting the tears fall. I think that’s what I need.