Crossroads: Celebrations After Child Loss

I want to be everything my living children need me to be.  

I try hard to celebrate them, be available, listen closely and love them well.  

I never, ever want them to feel they are competing with their missing brother for my affection or my attention.  

But I’d be lying if I said it was always easy.  

Sometimes the happy moment so closely resembles a shared memory that includes Dominic, my heart takes my head in directions I wish it wouldn’t go.  Sometimes it’s a long awaited once-in-a-lifetime occasion and Dom’s absence is a giant, gaping hole everywhere I look.

It’s really hard to be stuck at the crossroad of being happy for a child still here while mourning and missing the child that’s gone.

I’ve had to do that many, many times in the five years since Dominic ran ahead to Heaven and I’ve found a couple of things that help.  

I put something in my pocket or wear a piece of jewelry that is a token of my love for Dominic. 

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It helps me feel as if he’s represented even if no one else knows about it.  Then I lean in and take hold of the celebration as best as I can. When I feel overwhelmed, I touch my little token and/or escape to a quiet corner or bathroom for a minute or two and collect myself.

I also try to do something called “pre-grieving”. 

coffee and journal morning

I allow myself time early in the morning of an event to be alone and cry if I need to.  If the tears won’t come, I listen to music that helps my heart reach that place of release.  I journal my feelings.  I walk through the day and admit where it might be especially challenging.  I think through how I can deal with that and make a plan.

It makes a difference.  

So much has been stolen from my surviving children. 

I don’t want them robbed of their mama too.  

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Child Loss: Missing The Family I Thought I’d Have

I miss a lot of things since Dominic ran ahead to Heaven.  

I miss HIM-his deep voice, his perspective and his thump-thump-thumping down the stairs and the rhythm of who he is.

And I miss how his absence has reshaped the family I thought I’d have.  

Raising four children, investing my time, heart and energy into who they were turning out to be, I naturally projected into the years ahead.  All that love poured into them would create a legacy we’d all enjoy.  Marriages, careers, grandchildren and experience would blend together into a (if not perfectly harmonious) at least a shared future.

desimones uab family

I never imagined turning a calendar page without one of my children to turn it with me.  

Dominic’s death has touched each one of us.  His missing is as powerful a force as his presence.  We are absolutely NOT THE SAME as we would have been if he were still here nor as we were when he was still here.

When Dom first left us, I was primarily mourning HIM.  I still miss him like crazy.  

But a lot of my mourning during the past twelve months has been for the family I thought I would have.  I see each of my surviving children are processing Dominic’s absence in ways that influence their decisions.

In some ways it’s beautiful-I see twenty-somethings and thirty-somethings making choices with wisdom way beyond their years.  In some ways it’s brutal-they set up safeguards because they know by experience that leaving the house doesn’t always mean you return. 

They have back up plans for everything.

Which wasn’t something I even thought about when I was their age.  

My husband and I expected to drift into retirement years full of energy and vigor.  Much of that has been stolen from us by child loss too.  Oh, how we long to be the fun grandparents, the traveling duo, the footloose crazy pair but it’s much more effort than we anticipated.

Sometimes we can’t muster that energy at all.  

I know some changes were inevitable. 

Dominic’s death coincided with a natural progression toward an empty nest.  I’m not a helicopter mama and I’ve always said my goal was to raise children who could function well without me so I think that as much as possible, I prepared my heart for them to grow up and grow apart.

But in addition to normal changes, there’s an utterly unnatural and unwelcome transformation from nuclear family to brokenhearted family.

I am so, so thankful that we have chosen the hard path of running toward one another instead of running away.  

I’m grateful that we have grown from five left behind to a table for seven-a new spouse and a precious grandchild. 

I do not take a single second for granted because I know that seconds are not guaranteed.  

But I sure wish Dominic were here to share it with us.  

dominic at olive garden

Repost: No Words

Some days there are just no words for this journey.

Sometimes I can only feel what I feel

and do what I do

and cry when I cry.

Today is like that.

I cannot wrap my mind around the FACT that my son is dead.

Read the rest here:  No Words

You Are Missing From Me

 

There’s a subtle difference between the English phrase, “I’m missing you” and the french expression, “you are missing from me”.

When Dominic went on a trip or wasn’t present for a meal or hadn’t called in a couple of days, I missed him.

But it was the kind of missing where you can catch up eventually. 

I could have filled in the details of what happened while he was gone and still get his reaction, advice, input and unique perspective.

But now, things are utterly changed.

He is missing from me.

Untouchable, unreachable and unknowable.

The part of me uniquely reflected from the mirror that is my third-born child is just gone.

And there is no way to get it or him back.

missing from me

Repost: Ask Me. Please.

I have been guilty of this more times than I ‘d like to admit. 

I assume someone else’s feelings mirror my own and act on that assumption by withdrawing or not showing up or “giving them space”.

But the problem is, most times, on reflection, I realize my action (or inaction) was really all about sparing my own feelings  or staying within my own comfort zone.

The heart is deceitful above all things
    and beyond cure.
    Who can understand it?

~Jeremiah 17:9 NIV

So I’m learning to ask hard questions.

Read the rest here:  Ask Me, Please.

Anxiety After Child Loss Is Real

Before Dominic ran ahead to Heaven I would not have described myself as “anxious”.

Of course I had my moments, but anxiety ,panic or worry was not really something I experienced on a regular basis.  

That’s changed.  

Now I sometimes have to close my eyes when a family member is driving in traffic.   I clench my fists when in a crowd.  I can’t concentrate if too many people are talking at once and I cannot navigate unfamiliar roads while the radio is blaring.

Dominic’s sudden death destroyed my sense of safety and control. 

If my son could be healthy and alive one moment and dead the next, anything could happen.  

It doesn’t matter if you agree with me or not, the anxiety I experience is very real and often debilitating.

What makes it worse is when friends and family minimize my feelings, mock my fear or dismiss it as foolish and stupid.

What helps is when friends and family choose to acknowledge my feelings and commit to compassionate companionship while I work through them.

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Repost: Why I Say, “My Son Died.”

Died.  

It is a harsh word.

I understand completely that some parents don’t want to use it to describe their child and I respect that.

I have chosen to use it often (not always-sometimes I say “left” or “ran ahead to heaven”) because what happened IS harsh. I don’t want to soften it because there was nothing soft about it for me or my family.

It is heartbreaking, lonely, heavy, hard and utterly devastating. 

Read the rest here:  Why I Say, “My Son Died.”

Grief Coping Strategy: Derailing A Negative Train of Thought

It happens most often when things are very quiet or I’m trying to drift off to sleep.  

My mind will rehearse the moment the doorbell rang, or the phone calls I had to make, or-worse yet-imagining what, exactly, Dominic experienced when he left the road and plowed through bushes until he was thrown from his motorcycle and died.

Once my thoughts begin to follow that track, it’s so hard to derail them.

It used to be absolutely impossible.

But now (at five years into this journey) I have some default visualizations that help me break unfruitful mental cycles.

I might imagine details from my childhood-recreating a room or an experience-or recite Scripture, hymns or poems.  Sometimes I force myself to delineate my next day’s tasks precisely and in order.

I am always very careful what I watch, read or meditate on before bedtime because if I plant a seed of fear or dystopia it flowers in my dreams.

And then there are the days when responsibilities lead me down memory lane-going through photos for my daughter’s wedding, consolidating boxes to make room for my husband’s retirement, hunting a particular item for the holidays or another family celebration-and I have a hard time not sinking into despair because Dom’s just not here.

But at five years those are no longer utterly uncontrollable feelings.

I’ve learned ways of diffusing, distracting and redirecting my thoughts to help me deal with them in the moment: 

  • If possible, I stop the activity that triggered the feelings or thoughts and switch to something else.  Sometimes just turning my back makes all the difference.
  • I focus on a non-triggering detail.  Shifting my eyes often shifts my thoughts.
  • If in a group of people, I force myself to listen to the conversations around me and ignore my own thoughts.
  • If alone, I speak the feeling/thought aloud.  Breaking the silence can break the cycle.

Then, (often) I’ll have a meltdown later, but at a time when I can afford it better.

I’ve said over and over that the absolute weight of this burden has not changed but my ability to carry it has grown through practice and doing the work grief requires.

Sorrow is no longer all I feel and my son’s absence is no longer all I see.

Every time I overcome my fear, I redirect my thoughts, I face my feelings and refuse to let them paralyze me, I’m stronger.

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Repost: It’s My Story And I’ll Cry If I Want To

I don’t cry nearly as much as I used to.

That kind of bothers me.

I don’t know if I’m just not as sad or if I’ve just used up most of my tears.

I think it’s a bit of both.

Read the rest here:  It’s My Story and I’ll Cry If I Want To

Repost: What I’m Learning From Other Bereaved Parents

There’s a kind of relational magic that happens when people who have experienced the same or similar struggle get together.  

In an instant, their hearts are bound in mutual understanding as they look one to another and say, “Me too. I thought I was the only one.”

It was well into the second year after Dominic ran ahead to heaven that I found an online bereaved parent support group.  After bearing this burden alone for so many months, it took awhile before I could open my heart to strangers and share more than the outline of my story.

But, oh, when I did! What relief!  What beautiful support and affirmation that every. single. thing. that was happening to me and that I was feeling was normal!

Read the rest here:  What I’m Learning From Other Bereaved Parents