Tag: Dominic

No Remedy

Our family has a reputation:  If it’s broke, sick or something just plain hard to do–call us.

We are not miracle workers but we are hard workers.  We can’t fix everything, but we will try to do something.  

But there’s one thing we can’t fix.

One thing none of our skills can shape into a victory in the shadow of defeat.  One thing that will not give in to elbow grease or commitment to persevere.

We can’t fix Dominic’s being gone.  

We can’t make it better.

We can’t undo the deep hole his absence has carved in our hearts and our lives.  

And that is very, very hard to live with.  

 

cant-fix-it-my-family-is-always-achingly-incomplete

Of Leaking Buckets and Grief

I first wrote about this a few months back when I was pondering the FACT that no matter how wonderful the moment, how beautiful the gift, how marvelous the fellowship of family or friends, I am simply unable to feel the same overflowing abundant joy I once experienced.

Since then, I’ve been thinking about the great heroes of Scripture and studying their stories in detail.

I may be wrong, but I haven’t found one whose life did not contain pain.

It appears that sorrow and suffering in this world is one of the chief tools God uses to help the hearts of His people long for the world for which we are made-the eternal city whose Builder is God:

It was by faith that Abraham obeyed the summons to go out to a place which he would eventually possess, and he set out in complete ignorance of his destination. It was faith that kept him journeying like a foreigner through the land of promise, with no more home than the tents which he shared with Isaac and Jacob, co-heirs with him of the promise. For Abraham’s eyes were looking forward to that city with solid foundations of which God himself is both architect and builder.

Hebrews 11: 8-10 PHILLIPS

Some point to  lack of abundant joy as proof of a weak faith.

I counter that obedience, in spite of the lack of abundant joy is proof of rock-solid faith.

Walking on in spite of my empty bucket means that I am trusting God to fill it even when I can’t see how.

Here’s the original post:  There’s a Hole in My Bucket

 

On The Edge

Almost three years and here I am-

still on the edge.

On the edge of an anxiety attack.

On the edge of the cliff of deep sorrow and darkness that threatens to swallow every thing bright in my life.

On the edge of giving up and giving in.

On the edge of turning my back on every one and every thing.

On the edge of losing hope.

On the edge of deciding that this fight is really not worth it,

that there is nothing left to give,

that I will absolutely never survive this pain and loss.

Some days I manage to take a few steps back.

I might go a week or more and almost forget the edge is there.

And then one conversation will catapult me forward to the brink again.

Shaking, crying, ragged gasping breaths.

Tears.

So. many. tears.

I thought I had run out of tears.

Sometimes sadness is sanity. Tears are the reasonable response. Quickness to shush, shame, or fix them, can reveal a resistance to wisdom.

~Zack Eswine

feel-it-in-your-bones

 

 

What to say? What to do? Loving the Grieving in Public Places

 

Last week I wrote about some strategies I employ when in a social situation: Surviving Social Situations After Child Loss. 

But if you are the friend, family member or acquaintance milling around who bumps into me or spies me across the room, here are some things you can do and say that will help me as well:

Be aware that the greeting, “How are you?” sometimes feels like a challenge instead of an invitation. I’m scrambling for words to express my true condition without ruining the mood of the gathering.  It would be so much better if you simply said, “Hello” or “I’m happy to see you” without additional comments about how long it’s been.

Don’t pose or push for answers to questions that are primarily designed to satisfy your own curiosity.  If I give a brief reply, take the hint and move on.  If I say I can’t talk about it, drop the subject.  If I turn the conversation back to you, pick it up and carry the ball.  Public spaces are not the place to try to draw me out.  If you are concerned about me or want to REALLY know how I’m doing, take me to lunch or bring me dinner or invite me out for coffee.

questions

Notice my body language.  If I am fidgeting or hugging myself or backing away or crossing my arms it’s time to let me go.  I may hold my tongue but my body will give you abundant clues that I’m nearly at my limit for social interaction.  Give me permission to end the conversation and preserve my dignity.

Hugs are almost always wonderful.  Physical touch conveys love and compassion without requiring any response.  If you know me well enough to hug me or squeeze my hand, please do.

brene-brown-on-empathy-image

Don’t corner me-physically, emotionally or spiritually.  Backing me into a tight space makes me feel trapped.  If I’m on the end of a pew or aisle, don’t ask me to scoot down so you can join me.  I’m there in case I need to make an exit.  Don’t stand too close to me while we’re talking-my need for adequate personal space has greatly increased since Dominic ran ahead to heaven.  Don’t throw Bible verses at me or ask me how Jesus is meeting me in my sorrow.  These are things we can talk about together, in private, in a way that makes space for me to be honest and express emotion without fear of embarresment.

Don’t make comparisons between my missing child and person featured in the wedding, baby shower or engagement party we are attending. Trust me, I’ve already done the math. I already know the distance between Dominic’s homegoing and this day.  I am already mourning one more thing I’ll never get to see him do.

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Please don’t use this time to tell me about another bereaved mother you “just want to introduce to me”.  I am open and willing to walk with others on this journey, but this is not the time nor the place to put me on the spot.  If you know of another mom that needs my help, write me a note, give me a call or text me.

If I leave a room, don’t follow (unless you are a very close friend).  Let me go.  I will return if I can and if I can’t, I won’t.  Text me if you’re concerned.  If I come back, let me slip in without any fanfare.

If I cry, hand me a tissue or a handkerchief.  Don’t ask, “What’s wrong?” Besides the obvious, I may not have an answer for you.

woman-mourning

Please help me move conversation along when I lose my train of thought or seem at a loss for words.  Grief makes it hard to think sometimes, especially when in a crowd and/or a place with lots of background noise.  Give me permission to end a conversation-it probably doesn’t have a thing to do with YOU-I’m just running out of steam and need a few minutes’ respite from having to talk.  

Attending social events is exhausting for me now.  I want to celebrate birthdays, weddings, anniversaries, graduations-but that means a lot of people and a lot of unknowns.  Dozens of potential triggers, any one of which might conjure a grief wave that can drown me.  

I do what I can to be prepared. 

But I’ll take all the help I can get.

best-way-you-can-help-me

 

 

Why I Still Speak About My Son

I know it makes some people uncomfortable when I speak of Dominic.

They aren’t sure whether to join in or ignore my comment and hope I change the subject.

I get it-they are wondering whether my continued interest in my missing child is a sign of mental illness (she’s “stuck” in grief) or a delusion or wishful thinking.  They have no frame of reference other than an elderly relative whose passing into eternity was a more orderly and expected event.

But out of order death is wrenching and traumatic and not the way things are supposed to be.  A parent doesn’t stop thinking about or talking about or loving his or her child simply because they have been robbed of their physical presence.

I speak of my son because he is STILL MY SON.

we-talk-about-them-not-because-we

Surviving Social Situations After Child Loss

The first three months after Dominic ran ahead to heaven were full of social obligations.

Dominic left us in mid-April.  My youngest graduated college five days after we laid Dom to rest.  My eldest son graduated as a veterinarian two weeks after that.  He married two months to the day from Dom’s funeral.

Friends and family members stepped up and lent a hand.  Most people present were very aware of our recent loss and didn’t force small talk. My living children were amazing-flexible, supportive and loving even in their own deep sorrow.

But I’ll be honest, it’s mostly a blur.

I have photographic evidence of each event, but not a lot of personal memories.

Fast forward a few months and there are other social occasions I must attend.

By this time, for most folks, Dominic’s death was an event marked on a calendar they discarded at the end of 2014.  For me, it was as fresh as ever and the pain had actually increased as the absolute truth that he was gone, gone, gone was settling in my bones.

Without a thought, people I’d known for years trotted right up and said, “How are you?” They didn’t really want to know.

Smiling stylish woman showing sign excellently, isolated on red

They were tossing me the conversation ball in the only way they’d been taught to do it.

At that moment, I had a choice:  I could give in to my inner child and shout, “How the heck do you think I’m doing???? I buried a child!!!” OR I could extend the grace I long to receive and say something more controlled and measured.

Now, I’m not nearly as grace-filled as I ought to be or long to be, but I did manage to construct some “pre-recorded” answers to that question in a sincere attempt to be kind. They continue to serve me well.

Heres how I do it:

  • I give an honest, brief response that does not leave room for additional questions. Something like, “As well as you would expect” or “It’s hard, but I’m trying to hold on” or “I’m here” or “Today is a hard day”  or “Today is a better day”
  • I turn the conversation back to them.  I might ask, “How are you and your family?” or, if I had information about a specific event or person in their family, “How is so-and-so doing?” or “I heard you had a new grandbaby-tell me about him/her!” It’s absolutely amazing how easy it is to get people to talk about themselves.
  • If the person is insistent or persistent in questioning me and digging for details I politely say, “I can’t talk right now.  I want to be able to enjoy the (whatever event we were attending) as best I can.  Sorry.”

I also plan a physical escape route if needed:

  • Whenever I enter a space, I scout the restrooms and exits so that if I need to, I can leave a conversation usually by saying I need to go to the restroom.
  • I take note of who’s present and keep an eye out for a safe person I can migrate toward in a crowd.
  • If it’s a sit-down event I make sure to choose a seat where I can get out without having to depend on anyone else-the end of an aisle, table near the door, etc.
  • If I feel myself losing control, I try to leave before it becomes obvious to anyone else.

And I come prepared:

  • I carry tissues,
  • drink plenty of fluids,
  • have some aspirin and usually an anxiety pill with me,
  • wear one of the special pieces of jewelry my children have given me in honor of Dominic and touch it often to keep myself grounded, and
  • wear comfortable clothes and shoes.

I choose a focal point if I must look in the same direction for a long period of time (like at a wedding) and force myself to consider details so my mind won’t wander as much and possibly take me places I don’t want to go.

I remind myself that when that one person I thought would be there for me and but wasn’t floats up like there’s no rift in our relationship, this is not the time nor the place to correct that.

I smile and wave and preserve the dignity of the situation.

Most of all I try to remember that the people most likely to be insensitive or rub me the wrong way are blissfully ignorant of the weight of the pain I carry.  They can’t see the fragments of my shattered heart. They don’t know how much courage it takes to show up.

band-aid-and-heart

I thank God they don’t and pray they never do.

 

Can’t Fake It Forever

There’s a common bit of advice in grief circles:  Fake it until you make it.

It’s not bad as far as it goes and can be pretty useful-especially just after the initial loss and activity surrounding it.

Like when I met the acquaintance in the grocery store a month after burying Dominic and she grabbed me with a giant smile on her face, “How ARE you?!!! It’s SO good to see you out!!!”

I just smiled and stood there as if I appreciated her interest, a deer caught in headlights, silently praying she’d live up to her talkative past and soon move on to another target.

Faked it.

Boom!

BUT there comes a time when faking it is not helpful.  In fact, it’s downright dangerous.

Because if I fake it long enough and get good enough at it, I can convince myself that I have done the work grief requires.

Grief will not be ignored forever.

It bubbles up in physical symptoms and sleepless nights. It boils over in anger and impatience and anxiety and nervous habits.

There is no way through but through.  It has to be faced head on.

Life circumstances kept me distracted and busy for the first four or five months after Dominic ran ahead to heaven.

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I cried, screamed and was heartbroken-I definitely had my moments. But for the most part I functioned at a pretty high level.

It wasn’t until things slowed down that I had my come apart. And it caught me by surprise.

I was forced to sit in silence and face the feelings.  I was compelled to hear my heart shatter-over and over again.

I’ve now had 33 months of this burden of sorrow.  Almost three years to think about, work on and pray through the pain.  

I’m learning to pay attention to my own heartbeat, to my body, to my triggers, to my joy-bringers, my joy-stealers and my limitations.  I’m beginning to accept the bellycrawl progress through this tunnel of darkness by focusing on the bright light at the end.  

I still fake it sometimes-it’s not worth it to me to get into a long conversation with that person I only see every year or so.  Too much time, too much energy and too little reward.

But I’m learning to be more genuine with the people that matter most.  I’m learning to be honest about how I feel, what I need and how much I can do.

And I refuse to allow busyness to creep up on me so that I don’t have the time and energy to continue doing the work grief requires.  

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Juxtaposed

Living and dead.

Loud and silent.

Together yet parted, present but absent.

Beauty of the moment contrasted with darkness that refuses to obey the light.

How to be present in the “now” with a heart that longs for the “then”?

I never expected to have to reach across time and space and heaven to touch my child.

I hate this divided life!

Imagining the worst thing possible can’t hold a candle to knowing it by experience.

I want my living children to know how fiercely they are loved!  

A lioness could not keep me from protecting them if it were possible.  

But it’s not possible.

My heart holds knowledge I would gladly give up.  

 

 

 

(Almost) All Together

Our family has never been the “go somewhere for the holidays” sort.  We tend to stick close to home, to what’s familiar, to routine and regular bedtimes.

But lately life has thrown us a number of curveballs. And we are learning to swing at them instead of just letting them lob past us.

So just after Christmas, the four of us that were together in Alabama took a drive down to Florida to spend time with our oldest son and his wife in their new home.

We spent New Year’s Eve on a windy dog beach enjoying waves and walks and friendly strangers whose mutts came over to sniff ours.

Seafood  and people watching at a nearby restaurant sitting outside in the breezy cool topped off a lovely day.

I’m learning to live with Dominic’s absence.

I’m (almost) used to photographs of my three surviving children documenting adventures that don’t include his smiling face and raucous antics.  I’m trying to recapture the joy of his life and not dwell as much on the fact and circumstances of his death.

I can look forward a little further on a calendar.  I can plan a bit more.  My heart finds some satisfaction again in hosting friends and family for special occasions or no occasion at all.

In a word, I’m “better”.  

Not healed-never healed (past tense)-until heaven.

But oh, so thankful for the days I have to spend with the family I have left.

I don’t know if Dominic can see us from where he is, but if he can’t, we’ll have lots to tell him when we get there.  

One day closer.  

 

 

Christmas Cards-Yes? No? Maybe?

Getting Christmas cards out on time was always a challenge in my busy household.  

So for the last years of kids at home, we transitioned to sending New Year’s greetings.  It was easier to get a family photo with everyone home for Christmas, there was no artificial deadline to send them and we could include a “thank you” or respond to news in their Christmas letters.

I haven’t sent anything for three years.  

What could I say?  

And a family photo was out of the question.

But faithful friends and relatives keep sending us theirs.  

As I was looking at them this past week, I decided to make a go of it one more time.  I sat down and pecked away at the computer keys until I composed something that felt right.

HERE’S WHAT I WROTE:

“Hello from the DeSimones!

For anyone counting, it has been three years since our last Christmas/New Year’s update.

I just could not figure out how to send greetings when our hearts were so very wounded and sore.  I’m still not sure how to do it-but am plunging ahead. 

We are learning to live with the absence of Dominic.  We are learning to carry the weight of grief and sorrow that burden our hearts.  We are managing the necessary tasks of life.  We are moving forward in careers and education.  We live and love and even laugh.

It’s not the same.

It will never be the same. 

And that’s a testimony to our enduring love for Dominic and his lasting impact on our lives.

We look forward to heaven, where everything that the enemy has stolen will be redeemed and restored. 

I’ve been reading The Jesus Storybook Bible-it is a remarkable way to re-imagine and re-engage with God’s Story.  My very favorite part is a paraphrase of Revelation 21:4:

‘And the King says, “Look! God and his children are together again.  No more running away.  Or hiding. No more crying or being lonely or afraid.  No more being sick or dying.  Because all those things are gone.  Yes, they are gone forever.  Everything sad has come untrue.  And see-I have wiped every tear from every eye!”‘

[Here I inserted updates on each of us under the title “newsy bits”]

We are thankful for each one who has encouraged us, loved us and stuck with us in this journey.

It’s our prayer that this Christmas season the Saviour will fill your hearts-hurting or happy-to overflowing with His love, grace and mercy.” 

You may not be ready to send Christmas cards. Maybe next year, or maybe never and that’s OK.

I’m sharing so that perhaps my words can help you find a way to tell your family’s story.  

Christmas for those of us missing a child we love will always be different.  It will always be tinged with sadness.

But we are stronger together.

We can hang on harder when others hang on with us.

I appreciate each person who reads this blog and takes time to comment.

Thank  you for encouraging, loving and sticking with me in this journey.  

May the God of all hope fill your hurting hearts with hope as we wait together for our faith to be made sight.