I Know Why My Story Scares You

At first all I could feel was pain.

Pain of abandonment, of being misunderstood, of being pushed to the outside edges of groups that used to welcome me with open arms.

But as time passed, I began to understand.

My story scares you.  You are utterly afraid that if child loss can happen to ME, it can happen to YOU.

You’re right.

It CAN happen to you.

And no one wants to be reminded that the one thing every parent fears is not nearly as impossible nor as predictable as we would hope it is.

From the minute we take that baby home from the hospital, safely tucked in the approved and properly installed car seat, we assume we can control the future.  We think that if we eat right, get regular check ups, cover outlets and sharp corners, remove choking hazards and stuff that little mouth full of organic and healthful treats, it’s all good.

Except no one can account for random.  No one can see undetected and unsuspected genetic defects.  No one can predict or protect against every way a child might leave this life before his or her parents.

But we absolutely, positively do not want to think about that.

I don’t blame you.

I didn’t either.

So I understand why you distance yourself from me.  I get why even my presence in a room is sometimes uncomfortable.  I am not upset that you don’t add my name to the invitation list when the occasion is happy and you are afraid I might cast a shadow over the celebration.

I’m a walking advertisement for your worst nightmare.

You can afford to ignore it-and me.

I don’t have that luxury.

cant-fix-it-my-family-is-always-achingly-incomplete

 

I Didn’t Cry, But Then I Did

This past weekend was an emotional one.

My deployed son began his trek back home to his wife and newborn son.

My youngest son went on the bachelor trip with his soon to be brother-in-law and was incommunicado for almost 72  hours which always makes me nervous.

My daughter’s wedding is only a few weeks away and there is so much to do. Fun things.  Things I want to do.

My companion animal and faithful sidekick died two weeks ago and I haven’t been sleeping nearly as well as I did before

It was the fifth anniversary of Dominic’s death and funeral.

I didn’t cry, but then I did. 

And I couldn’t stop. 

I just couldn’t stop.

How in the world can it be five years?  I can’t explain it to anyone who hasn’t buried a child. But I keep trying.  The giant chasm between what I thought life would be like and what it actually turned out to be is so wide that it’s impossible to comprehend.  I’m living it and I can’t comprehend it.

dom on mountaintop

I am trying so, so hard to participate.

I’m working at keeping grief at bay and leaning into the life I have without constantly comparing it to the life I thought I would have or the life I wanted instead.  I’m purposing to keep my expectations low so I won’t be disappointed.

But it’s not working.

I think I’m just at the end of my personal resources.  I think I’ve exhausted any reserve I might have had.  I’m leaning into Truth and holding onto the hem of His garment.

I know it won’t always be this way.  

The tears will dry up.  They always do.  

Tomorrow is a new day.  

finish each day and be done with it emerson

 

 

 

 

 

Please Don’t Ask My Kids How I Am Doing

It may seem like the easiest way to get an inside scoop on how I’m REALLY doing-but don’t do it.

Please don’t ask my kids how I’m doing.

Respect the fact that they have their own grief burden.  Respect family privacy and understand you are putting them in an impossible position.

If you want to know-to REALLY know-how I’m doing, ask me.

Life for us is no different than life for you except every decision, every event, every single thing requires more effort and energy because we carry the additional burden of death and loss.

It’s easy to assume children and young people-even adults in their 20’s and 30’s-are somehow more resilient than they really might be. 

They are often in seasons of activity that serve as cover for deeper, more difficult feelings.  Many beautiful celebrations typically mark these years.  Graduations, weddings, births are wonderful!   But they are complicated for grieving siblings as well as grieving parents.

So be a friend to my kids.  Love them.  Celebrate them.  

And please, please, please treat them as fellow grievers and not simply bystanders to their parents’ grief.

If you want to know about me, just ask.  

Me. 

Not them.  

Bitterness Is A Terrible Legacy

Oh, how easy it would be to become bitter!  

If I’m honest, part of me just wants to tell the world to “Get lost!”. 

But the wiser part of me knows that’s neither a helpful nor healthy response to even this most awful burden of child loss.  

Lament is how we bring our sorrow to God. Without lament, we won’t know how to process pain. Silence, bitterness, and even anger can dominate our spiritual lives instead.

~Mark Vroegop – Dark Clouds Deep Mercy

Because my bitter spirit wouldn’t stop with me.  It would spread like kudzu on an Alabama roadside.  

kudzu field huff post

The writer of Hebrews warns against this very thing:  

Be careful that none of you fails to respond to the grace which God gives, for if he does there can very easily spring up in him a bitter spirit which is not only bad in itself but can also poison the lives of many others.

Hebrews 12:15 PHILLIPS

There is sufficient grace for even this. 

But I can refuse it.  

It’s a choice every single day. 

Do I embrace the grace God freely offers or do I turn my back and embrace bitterness?  Do I lean in to every promise of God in Christ or do I listen to the enemy of my soul who whispers, “Did God REALLY say….?” 

Woman hands praying with a bible in a dark over wooden table

Bitterness never ends with one person.  It spreads.  It grows. 

It ruins lives and relationships and generations.  

We all know families where it has taken root.  We all know old folks whose faces are frozen in frowns and who rarely speak except to pass along their spiteful comments.

I may not get many things right.  I’m pretty sure I get quite a few things wrong.  

But I don’t want to mess this one up.  

Bitterness is a terrible legacy.  

I refuse to pass it on.  

lifetime of unexplored resentments brene brown

Five Years of Faithfulness

For my fellow Christ followers, my early morning post may have been a disappointment.  

We’re all schooled in the “right” things to say in the midst of a trial, aren’t we?  

“God is good!”  

“I know the end of the story!”

“Death doesn’t have the last word!”

And on, and on, and on….

True. Every single one of them.  

And yet…

If we are honest (and often we are not, because spiritual honesty is absolutely underrated in the church) we will also have to admit that KNOWING all those things doesn’t minimize pain.

It only makes it tolerable.  

But I don’t want leave anyone doubting for one minute that God has been faithful these past five years. 

He most certainly HAS.  

He has been a silent Source of hope and strength and breath and grace.  He has lifted my head when I couldn’t do it myself.  He has sent His faithful flock to minister to my needs and the needs of my family.  He has held me when I would have let go.

I have wrestled and questioned and even shouted but I’ve never, ever doubted He was here.  

faith does not eliminate questions but faith knows wehre to take them

I wish I could tell you that there was some super-spiritual moment when He assured me of Dominic’s safety in Heaven, but there hasn’t been.  

I wish I could tell you of a morning when His love and assurance and Presence washed over me to take away the angst, but I can’t.  

What I can say is that the Word I hid in my heart before this awful pain was also lodged there has been enough.  That deep well of living water has been more than adequate to quench my thirsty soul.  The torch of truth has been sufficient light along even this black-as-night path.

walk by faith feet on path

My faith is still just that-faith.  

I don’t have special revelation nor an extra dose of grace.  

I’m just following my Shepherd, trusting that He will lead me Home.  

jesus the shepherd the i am

How Can It Be Five Years??!!

We all experience it from time to time-that moment when your head comprehends that life has kept going but your heart refuses to keep pace.  

So today, I’m looking at a calendar that assures me it has been five years since that deputy knocked on my door. 

It’s a fact.  

My heart says, “It cannot be true.  It cannot be that long since I saw my living, breathing son cross the threshold of our family home.  It cannot be that long since I made the phone calls that still echo in my ears.  It can. not. possibly. be. that. long.”

And yet it is.  

If folks ask me how I’m doing, how my family is doing, I usually say we are OK.

Because, all things considered, we ARE. 

beach-and-family-better

None of us find daily life unmanageable.  None of us have fallen prey to addiction or unhealthy coping mechanisms.  None of us sit inside all day, moping and mourning the loss of a life we couldn’t hold onto even if we had seen it slipping away in time to take a firmer grip.

But we are absolutely, utterly, profoundly CHANGED.  

I often think back to old Star Trek episodes that showed crew members transporting to the surface of an unknown planet.  Their bodies were broken down into the tiniest component molecules and reassembled somewhere else.

I think that’s what this life is like. 

We’ve all been disassembled and reassembled. 

But instead of everything falling back into place, there are missing bits here and there, gaps too small for others to see but very, very real to us.  Connections lost.  Memories without proper context.

dont recognize myself without one of my sons

Feelings floating free of any anchor, bubbling up at the most inconvenient moments.  

And we all just plain MISS HIM.

We miss Hector Dominic DeSimone and who he is, what he brought to the table and car rides and family gatherings.

We miss who we were before we knew loss that burrows deep in your bones.  We miss the unmitigated joy and celebration we could toss around like confetti at the slightest provocation.

So today, unlike most days, we will give in to the sorrow.  We will remember that morning.  We won’t brush away the tears or the sad memories.  

He is worth every second and every heartache.

He is never forgotten.  

He is always, always on our minds.  

IMG_1790

 

 

For You, a Moment; For Me, a Lifetime

I used to look at tombstones in cemeteries and do the math between the dates. 

I was most focused on how long this person or that person walked the earth. 

I still do that sometimes.  But now I do something else as well. 

I look to the left and the right to see if the person who ran ahead left parents behind.  My eye is drawn to the solitary stones with the same last name next to a double monument clearly honoring a married pair.

grieving mother at grave

And then I do a different kind of math. 

I count the years between the last breath of the child and the last breath of his or her mama.

Because while that first date marked an end for everyone else, for the mama, it marked the beginning of the rest of her life- a life she never imagined nor would have chosen.  

I wonder how many lives have been cut short by the effects of grief.  I know some folks have tried to research it, but it’s so hard.  Because grief ends up doing things to bodies that look like aging or like other disease processes and it’s really difficult to tease it out.

But those of us who live this life know. 

We know.  

What’s a moment for everyone else, is a lifetime for us.  What is a date on the calendar, a trip to a funeral home, a casserole delivered to a door in hopes of lifting spirits for everyone else, is so much more for us.

grief as timeless as love

I don’t begrudge your ignorance. 

I celebrate it! 

My heart breaks every single time another name is added to the roles of “bereaved parent”.

I think a lot about the generations gone before.  Before vaccinations, before penicillin, before so many modern blessings that lengthen life and give hope where there used to be none.

I think about the families involved in WWI and WWII.  I understand the need to call the first war “The Great War” and assume such atrocities would stop mankind from falling headlong into them again.

But it didn’t.  

So, so many families that made the highest sacrifice. 

So, so many parents that hung that photo of their son or daughter on the wall and never moved it-because they were as frozen in time as their child.  

cant-fix-it-my-family-is-always-achingly-incomplete

I have a friend who does home-based physical therapy.  She often goes to the homes of elderly patients and lovingly and gracefully listens to their stories.  If it is part of their history, they almost always point out the child who never grew older and tell the tale of how much they miss him or her.

It’s so, so hard for others to understand how very different child loss and out-of-order death is from any other loss in this life.  

But it is not a moment.  

It is not even a week or month or years.  

It’s a lifetime. 

We miss them and mourn them for a lifetime.  

grief is a pain that cant be spoken goes on and on

 

Repost: Don’t Let It Fool You

Whether the burden is child loss, abuse, chronic illness or some other ongoing and unchangeable hard circumstance, it’s easy to get so good at acting “OK” you can almost fool yourself.

But all that stress and struggle exacts a cost.

Pretending that it doesn’t is not helpful at all.

Read the rest here:  Don’t Let It Fool You

Messed Up. Again.

I’m not sure when I’ll get the hang of this life after loss.  

Five years is long enough to have completed a college degree, so you’d think it would be long enough to explore the edges of how to walk in the world without my son, without the family I used to have, without the confidence I once enjoyed that “every little thing was gonna be alright”.  

But it’s not.  

I’m still feeling my way in the dark much of the time. 

man in woods with glowing light

 

New challenges greet me and I have to navigate them with the profoundly changed “me” that I neither understand nor like.

I make mistakes. 

I get upset and I upset others. 

If I didn’t believe that there was a Day when all this would be redeemed, I would just give up. 

But I DO believe that.  

It doesn’t take the pain away.  It doesn’t soften the feeling of failure when my sorrow stops me being what others need me to be.  It doesn’t blow soft breezes across my weary soul.

faith is not an epidural

It gives me focus and a goal.  It gets me out of bed so I persevere.  It helps my heart hold on and not give in to despair.

Today is not a good day.  

Tomorrow doesn’t look good either.  

But one day-

One. Glorious. Day.

there will be a day blue and pink jeremy camp

 

Tangible Absence

In response to something I posted in a bereaved parents’ group a friend used the term “tangible absence” to describe what I was feeling.

She is so right.

When I imagine something I’ve never actually experienced-even when I might say “I miss such and such” it’s not the same as when I’ve had something and it’s been taken away.

I can only miss the imaginary in an ephemeral, insubstantial way.  I miss what I once possessed in a tangible way.

I know exactly the size and shape and sound and substance of the person that SHOULD be here but isn’t.

IMG_1815

I know the energy he would add to a room or a conversation.

I know the point of view that’s missing from the debate or decision making.

And I miss him like crazy. 

nicolas wolterstorff theres a hole in the world

~Nicholas Wolterstorff, Lament for a Son