Child Loss: Marking the Milestones

When your child is born you take notes.

You plan to mark this day as a special milestone for the rest of your life.

You absolutely, positively NEVER think you will have to mark another one:  the day he or she leaves this life and leaves you behind.

But some parents have to mark both.  The dash in the middle is shorter than we anticipated, and our child’s life ends before ours.

grieving mother at grave

So how do you do it?  How in the world do you observe the polar opposite of a birthday?

Here are some ideas (shared with permission) that parents shared recently in an online discussion sparked by one mom’s very honest admission that she just didn’t have it in her to create another video montage from the same old photos to mark yet another year without the earthly companionship of her precious son:

Don’t do anything.  That is an option. We do not have to draw a red circle around THAT day on the calendar, gather folks as if  it’s a celebration.  As one mama said, “Yes, the day they left us does not need to be ‘remembered’.”  For some parents, going to work like it’s a regular day, engaging in whatever normal activities are required, ticking the hours off on the clock until night falls and the earth turns to the next day may be the very best choice.  Another mama wrote this:  “I have friends who celebrate a ‘heaven day’ for their son.  I can’t.  I just can’t.  If it were up to me, I would probably go camp somewhere all alone, and not move a muscle for the entire day.”

Do something big (or small).  Some parents choose this day to hold an annual “Celebration of Life”.  It might take the form of a balloon release, or lantern release at home, at a park or other outdoor venue or at the cemetery.  It might be lunch or dinner out at your child’s favorite restaurant or at home with your child’s favorite menu.  Invite friends and family to join you and ask that they bring a photograph or memory and share.  One mom said that such an event kind of happened organically and spontaneously when contacted by her son’s widow:  “We went to one of [his] favorite restaurants.  Told funny stories about him, talked about how missed he is, then went o his grave and put fresh flowers.”

balloon release

Serve others.  Did your child have a special interest in a particular charity or community organization?  Maybe you can spend this day volunteering or raising awareness/money for that group.  Often having something to do helps a heart from sinking into despair.  If the group allows, maybe put up a sign saying, “Volunteering today in honor of __________” and attach appropriate photos of your child.  Some parents whose child died from cancer or suicide or violence participate in walks or fundraisers that highlight those causes.

Encourage Random Acts of Kindness (RAK).  I plan to do this one in April.  It will be seven years (!) and I can barely stand it.  But so many of the comments from Dominic’s friends after he left for Heaven went something like this one, “He was always doing something for someone else.  Fixing their car or showing up when they needed an encouraging word.”  He was known for his many acts of generosity and kindness and I feel like he lives on in the hearts of others because of that.  I had cards printed ( I intentionally let his “dates” off) which I will distribute well in advance of April 12th for friends and family to leave behind when they do a RAK in memory of Dom.  Vistaprint and other online publishing companies offer reasonable prices and will guide you through the process step-by-step.

random act of kindness

Escape.  Lots of us find being at home (alone or in the company of others) too hard to bear.  Many received word of their child’s death at home and as the day creeps closer, the memories crowd every corner of mental and physical space and are inescapable.  So sometimes parents plan a trip around this time.  Go somewhere your child would have loved to go or go somewhere he or she enjoyed visiting.  Take photos and post them in honor of your child if you want to.

Focus on family.  You may not want to be alone, but the thought of being with anyone outside your closest grief circle is overwhelming.  That’s OK.  Spend time with the people who, like you, are most affected by your child’s absence.  You don’t have to do anything special.  You can make room for them to speak or not speak about their grief as they choose.  Sometimes just having another warm body in the room is enough to ward of the chill of despondency.

grieving dad

Flip the script.  For those of us who believe that this life is not all there is, the day can be one of celebration.  Our children have escaped life full of sorrow and trouble and are safe forever in the arms of Jesus, where we will also be one day.  Waiting is hard, but waiting is not forever.

Simply allow yourself to feel the full force of missing and grief.  “As far as his death day, for me, that is a day when I allow myself to fully feel and express the pain of my loss.  It is a way to (temporarily) empty myself of all this pain, so I can breathe again to face another day.  I will sit in his sweatshirt, listen to reflective music, cry a lot, talk to him, pray to God, and just allow myself to feel all the pain and emotion that everyday responsibilities cause me to stuff away.”  If you can manage it, taking the day off work and giving yourself grace and space to grieve in ways that are denied so often may be the very best way to experience the day.

Here’s a list of ways some parents honor their child on this day:  

  • Giving away stuffed toys with a card or note explaining why.
  • Taking goodies to first responders and/or nurses who were served their family during an accident or illness.
  • Handing out Bibles or books in memory of their child.
  • Making memory baskets for parent whose child will be born straight into heaven.
  • Adding to a scholarship fund or other charitable fund in honor of their child.
  • Placing balloons, flowers or other special decorations on their child’s final resting place.
  • Lighting candles, releasing butterflies, balloons or lanterns.
  • Placing a memorial advertisement in a local paper.

Do or don’t do whatever helps you make it through those twenty-four hours that represent another year of sorrow, another year of missing.  

missing child from arms

There is NO wrong way to mark or not mark this day. 

It’s up to you and your heart.  

And absolutely does not require anyone else’s permission or approval.  

dont trade authenticity for approval

Sometimes I Just Want To Be Me!

Even in the very first hours after the news, my brain began instructing my heart, “Now, try to be brave.  Try not to disappoint people.  Try to say the right thing, do the right thing and be the example you should be.”

Whatever that meant.

As I made phone calls and received concerned friends and family members I was so aware that they would take a cue from me-how much can I say, how hard can I cry, should I hug or stand back, should I talk about him or be silent lest it make the tears fall harder?

And here-almost five years later-I still feel like I need to lead the way in conversations and social encounters.

Read the rest here:  Can I Just Be Me?

How To Be Fierce Without Being Fractious

It’s funny how child loss has, at the same time, made me more yielding and more steadfast.

I give in without a moment’s hesitation to other people’s choice in where to go for lunch, what to do for birthdays, how to arrange this or that at church.  My brain simply doesn’t have the capacity any more to argue over trifles.

But I will stand up to a lion for the sake of love or to protect a hurting heart.

wounded_heart-960x600

I can be a little reactionary when that happens-snapping and biting the heads off those who might have said or done something in ignorance and not intentionally.

So I’m learning to think a minute before I launch into a tirade and try to discern just what will be most helpful.

I want to challenge and educate folks, not send them running for cover every time they see me coming around a corner.

I want to be fierce without being fractious.

I ask myself, “How can I communicate truth in love?” and I try to follow these precepts:

Don’t attack the person.  Quite often people speak without thinking and speak about things they haven’t experienced.  They may just be parroting something they’ve heard and not even actually believe it themselves.

Ask questions.  Try to suss out WHY they said or did what they said or did.  Again, without thinking?  Or is there a motive behind it?  Fear is a frequent motivator for pushing hurting hearts away.  People are afraid of how much they might have to invest in a relationship or they are afraid that what happened to me can happen to them and they just don’t want the reminder.

Many People Thinking of Questions

Educate.  I often start by saying something like, “If you haven’t buried a child, you would have no way to know this but…” and follow up with whatever I think they might need to hear.  No one can argue with my experience.  I’ve never had a single person walk away angry when I share this way.  Some have come back and thanked me for the insight.

schoolhouse

Extend grace.  I know child loss but I don’t know everything or even a tenth of everything.  So while my friend may have stepped on MY toes by saying or doing something today, I’ve probably stepped on HERS another day.  I try to assume that the person in front of me is doing the best he or she can and not aiming to inflict pain on my heart.

grace tree

Choose to end fruitless discussions.  If I realize that the person I’m speaking to is defensive, resistant and unyielding, then I find an opportune moment to end the conversation.  We’ve all been there-someone itching for a fight decides that now is the moment to have one.  I’m not interested in debating anyone over my experience so I just don’t.

calvin-cartoon_debate

As long as I walk in this world there will be others with whom I disagree.  some who actively seek to wound and many who are just ignorant of situations they have never experienced. 

I don’t want to bludgeon them with words, forcing them to agree with me.  

I want to be a light that opens eyes, a gentle breeze that blows away the fog and helps them see clearly.  

a candle loses nothing by lighting another candle

Repost: I Get It-I Really DO Get It

I write a lot about what bereaved parents (me!) wish others knew or understood about child loss and this Valley we are walking.  And I am thankful for every person outside the child loss community who chooses to read and heed what I write.

But I want to take a minute to tell those of you who are not part of this awful “club” that I get it-I really do get itwhen you need to put distance between yourself and me or other people walking a broken road.

We all love to think that life is a never-ending ascent toward bigger, better and more enjoyable moments.

Our children are born and we think only of their future, not their future deaths.

Read the rest here:  I Get It-I Really DO Get It.

Speak, Don’t Stuff

As a counterweight to yesterday’s post, I wanted to share this one.

While I am a huge advocate for not flying off the handle (I repeat that here), I am also an advocate for speaking aloud things that need to be said.

I want to create a safe space where friends and family can share what’s on their hearts without fear of my reaction or recrimination.  ❤

Someone commented the other day on my post, Shadows and Celebrations, that they thought my child’s remark was selfish.

I countered that I didn’t think so. 

Instead, I thought it was honest.

Of course my heart hurts any time I’m unable to meet my family’s expectations, but that doesn’t mean they should refrain from sharing them with me.

One of the things I’m learning in this Valley is that I must make room for observations, for sharing, for venting and for genuine conversation.  It’s the only way any of us are going to survive.

courage starts with showing up and letting ourselves be seen brene brown

I can’t pass judgement on every word spoken.

I needn’t assume responsibility for every unmet expectation.

I don’t have to fix every situation. 

I can’t.

Sometimes we just need to give voice to something.  Because when we name it, when we share it, when we speak it aloud, it often ceases to have power over us.

Secrets drive hearts apart.

Sharing draws them together.

Even when what’s shared is painful.

connection brene brown

Repost: Step Back, Don’t React

It is possible not to react to every single thing someone says or does.  It is possible to scroll past social media posts that get under your skin and not look back.  It is possible to ignore a snarky comment or an unhelpful piece of advice from someone who ACTS like they know what you’re going through but really has. no. idea.  

Now if you are new on this journey, you will read these first few lines and think, “Is this woman crazy????” 

I felt EXACTLY the same way in the first months and even through the first couple years in this Valley.

Read the rest here:  Step Back, Don’t React

Enough or Not Enough?

I already struggled with the sense that I was rarely able to meet everyone’s expectations before Dominic ran ahead to Heaven. 

That’s been multiplied by a factor of at least 100 since then.

For those of you who are so self-confident or blissfully unaware, it won’t make sense but for those of you who are firstborns or “Type A” personalities you know exactly what I mean.

I cannot ignore the gap between what people need from me and what I’m able to give.  

My internal dialogue is a combination of self-condemnation and pep talks to “do better”, “try harder” and “don’t give up or give in”.

But no matter how hard I try, it’s never enough.  

And I need to let go of that.  I need to let myself off the hook.  I need to admit that some people’s expectations are unrealistic or self-serving.  

But it is so. very. hard.  

I have had an invisible disease for a decade that saps my energy, circumscribes my ability to do daily tasks and gifts me with chronic pain.  Yet I tend to discount the impact it has on my life and try to ignore the fact it makes every. single thing more difficult.

It will be five years in April that Dominic left us.  FIVE YEARS!  I can barely type that.  I don’t even know what to do with it.

A lifetime ago and a breath away all at the same time.  

I feel like I am giving everything  I have to my family, to my friends and to other folks that count on me to show up.  So often it’s not enough.  So often I fall short.  So often I go to bed shaking my head and hoping that tomorrow is a better day and I’m a better person.

I try so hard to be brave.  

Sometimes I simply can’t conjure courage.

But I keep showing up. ❤

love is courage

 

 

Why Some Friends Abandon Grievers

Often a new year means taking stock of the previous twelve months and making adjustments for the next twelve. 

When I comb back through my memories I try to notice where I struggled and where I soared.  I want to learn from the things that worked and the things that didn’t.  And I almost always find relationships top the list of where I need to make changes.

Grief is tough on friendships.  

Not everyone can or will stick around while broken hearts work hard to put the pieces back together.

I miss some of the people I thought would still be here and, if I allow myself to do it, can invest too much of the precious and limited emotional energy I have left this side of child loss in being angry, bitter or just plain disappointed.

But that is unhelpful. 

So instead I began to think about WHY some friends abandon grievers.  

Here’s what I think:  Why Friends Abandon Grievers

Cheerleaders Are More Important Than You Think

I‘ve never been the cheerleader type. 

No long legs, long hair or graceful moves that might have caught the eye of the ever watchful gatekeepers who picked the favored few each year to represent beauty on the sidelines.

So (I’ll be honest here) I really didn’t give the position much thought beyond the fact that those girls always got asked to dances first.

But in these years since Dominic left us I’ve learned something very important about cheerleaders-both the ones in the cute clothes at sporting events and the ones that come alongside others in real life:  they make a difference.  

word of encouragement is the fuel for hope

Cheerleaders are more important than you think.

Someone calling courage can mean a heart holds on when it’s about to let go.

Someone reminding you what’s at stake if you give up can help you dig deep for that last bit of effort hiding inside.

Someone chanting rhythm to your plodding forward progress can provide another focus for your mind besides the throbbing pain in every step.  

Someone showing up and standing by your side even when the odds are against you says, “You are worth the effort-win or lose!”

courage-dear-heart

You don’t have to be a certain size or a certain type to be a real-life cheerleader.  

You don’t even have to fit into those cute little skirts.

The only qualification is an unqualified commitment to showing up and being seen and holding on and hanging in no matter where life takes the ones you love.  

You have the power to be the difference in somebody’s life. 

I guarantee it.

So get out there and cheer them on! 

cheerleaders

Another Year, Another Christmas: 25 Practical Ways to Give Holiday Hope to the Grieving

This is the fifth Christmas without Dominic. There really are no words to describe the intersection of holiday cheer and another milestone in this journey of child loss.

I’m not sad all the time-far from it. Often I am very, very happy.

But I will never stop missing him, missing the family we used to be and missing our blissful ignorance of how quickly and utterly life can change in an instant.

And I will never outgrow the need to have others remember him as well, to encourage my heart and the hearts of my family members and to help us make it through another year, another Christmas.  ❤

Here are some great ways to do it:  25 Ways to Give Holiday Hope to the Grieving