What Helps and What Hurts

I am committed to continue to trust Jesus and to look to the Word of God for my hope and direction in this life and in the one to come.

I speak truth to my heart through Scripture, worship songs, testimonies of others who have gone before and remaining in community with other believers.

But I’ve yet to reach the place where I can plan on most days being better days rather than hard ones.

I’m trying.

And I’m working to tease out the influences that make a difference-both the ones that help and the ones that hurt.

So here’s the list so far:

WHAT HELPS

  • Starting the day with Bible reading
  • Writing out a verse or two that speaks hope to my heart
  • Listening to worship music
  • Feeling well-less physical pain translates to an overall sense of well-being
  • Having a plan for the day-even if it is simple and created in broad strokes, knowing what I plan to do gives me a reason to get up and get going
  • Seeking companionship with other believers either via Facebook groups, telephone calls, in person get togethers or messaging.
  • Allowing myself a set time to grieve-cry, pray, lament, or whatever-then moving on with the day
  • Mixing up physical activity with rest-changing my body position often reorients my attitude.
  • Striving to get proper sleep, eating good food (not junk and not mindlessly), exercising and stretching.
  • Crying-if I need to cry I’ve found allowing the tears to fall is much better than fighting them off all day.
  • Retreating when necessary-if I find a situation is too much for me to handle, I give myself permission to retreat.  Most things can be done another day.  Sometimes just granting myself permission means I have the courage to press on and face it.
  • Planning for hard things.  If I know I’m going to have to face a hard thing, then I try to plan it.  I prepare myself by thinking through (as much as possible) various outcomes.  I’m more prepared and usually it goes better than I anticpated.
  • Not overscheduling my days/weeks-it is harder than it used to be to get going in the mornings so I take that into consideration when making appointments.  If I have a busy day on Monday, I will try to make Tuesday open and relaxed.  Having space between commitments gives me time to recoup and minimizes anxiety.
  • Doing as many things via Internet and telephone as possible-I can do needful things even if I’m having a bad day if I don’t have to get dressed and go out to do them.

WHAT HURTS

  • Neglecting my spiritual life-if I don’t read Scripture, don’t engage with other believers and refuse to acknowledge and thank God for the blessings He still bestows-I can quickly succumb to the dark whispers of the enemy of my soul.
  • Ignoring physical needs-when I don’t prioritize sleep, good nutrition, adequate exercise and appropriate pain control (for my RA) then sadness is multiplied and it is so much harder to climb out of the pit of despair.
  • Carrying unnecessary burdens-I cannot MAKE anyone understand the pain and ongoing challenge of child loss.  So when people outside my immediate grief circle question my feelings or try to make me conform to their expectations of what grief should look like and how long it should last, I have to shake it off. If it’s an important and ongoing relationship, I try to help them understand but if they choose not to or if it is a tangential relationship, I let it go.  I refuse to carry the burden of others’ expectations in addition to the burden of burying my child.
  • Being ignored-it hurts to be ignored.  It hurts when someone asks how I am yet doesn’t allow the space and time for me to answer.  It hurts when I answer and they ignore my pain or dismiss it with a story or platitude or Bible verse or just don’t say anything.
  • Being shamed-it hurts for others to shame me by implying that I am not strong in my faith or not trusting Jesus or not hoping hard enough for heaven when I admit I still struggle in grief and still miss my son.
  • Disregarding my triggers:  There are certain situations that I know will guarantee a breakdown, panic or a crying fit.  I avoid them when I can.  If I can’t-then I make a plan of escape (just in case).
  • Being “on display” for others-I am one woman doing the best I can to walk faithfully with Jesus through an unbelievably painful experience.  I am not the Author and Finisher of your faith-Jesus is.  It hurts when I feel like others are watching to see if I’ll make it, if I’ll say the “wrong” thing, if I’ll admit that I doubt.  I want the same freedom others have to grow in my faith and to make mistakes and learn from them.  I don’t want to be a “poster child” for anything.
  • Friends staying away.  I know it is hard to be my friend right now.  You never know what you might get when you call.  But if you ARE my friend, please don’t stay away.  Please reach out even when it makes you uncomfortable.  A good word at the right moment is often the difference between a very bad and very lonely day and a pretty good and generally hopeful one.
  • Hiding my sorrow-when I try to pretend I am stronger than I really am or when I try to hide my tears it takes so much energy and makes me so less capable to do the other things life requires.

These are just some of the things that help/hurt me in my journey.  I would love to have others share what helps/hurts them in theirs.  There’s strength in community.

Leave your thoughts in the COMMENTS below!

 

 

 

It Changes Everything

Part of the reason I share my story is to provide insight for people who haven’t lost a child into the hearts and lives of those who have.

But mainly it is to be a voice for and to encourage other parents walking this valley by letting them know they aren’t alone, their feelings and experiences are perfectly normal and that just as welcoming a child into your family is a life-altering event, saying good-bye to a child is a life-altering event. 

We do not expect a mom to “get over” the changes having a baby brings to her everyday experience, and we should not expect a  bereaved mom to “get over” the changes burying one brings either.

Want to help?  Read:  Loving the Grieving Heart

Please-Just. Listen.

It’s hard-it’s hard to stay the words that come unbidden to mind and threaten to fly out of your mouth.

It takes restraint.  And patience.  And wisdom.

But when I finally open my locked box of hurt and pain and memories and heartache-please, please-just listen.

I know better than you that nothing anyone says, or does or hopes to do can change the facts.

Dominic’s not here-he’s there.

And I also know that makes you feel helpless.  I feel helpless too.

I’m not looking for pity.  I don’t want attention.  I have no desire to make you sad.

I have to let it out or I’ll burst.  If others saw the fullness of emotions brimming in my heart they would stand amazed that I could push them down and keep them inside so much of the time.

But speaking my sorrow is empowering.  

It provides a witness.  It means that he matters, that I matter and that this awful reality is recognized by someone other than just me.

When you shut me down or shut me out I. am. crushed.

Again.

In the end, you can walk away.  You have another life to go back to.  My pain is tangential to the reality of your every day.

It is central to mine.

So, please-encourage my heart with compassionate presence and just listen.

presence best gift

 

 

 

Wow! Just. Wow!

I’m always a little frightened to expose my vulnerable underbelly to the sometimes vicious wilderness of the worldwide web.

So when I clicked “send” for yesterday’s post I had immediate regrets-was it too personal? too negative? too self-focused?

I am overwhelmed by the comments both on the blog and on Facebook-comments of encouragement, understanding and hope-not condemnation or condescension.

All I can say is,  “Thank you!”

And I was reminded that isolation is a powerful weapon in the hands of the enemy of our souls.

But godly community disarms it.

So I want to make sure that everyone who reads this blog knows about two online Facebook sites that offer hope and healing through the truth of Scripture and the Good News of Jesus Christ.

Each has a public page visible to anyone on Facebook and features posts of interest to bereaved parents and those walking with them.

While We’re Waiting is a large, well established non-profit organization.  In addition to the online presence, it offers in-person support to bereaved parents through retreats and support groups.  I am very grateful to the Sullivans and Browns who founded the group after experiencing child loss-their obedience has been a blessing in my life and in the lives of many other grieving parents. 

Heartache and Hope is the name of a page I created as an additional resource, along with the blog, for those who are grieving a child.

To receive posts in your newsfeed, simply “like” the public page and benefit from the encouragement.

From each group’s public page, bereaved parents and grandparents can request admission to a closed discussion group.

The private discussion groups are just that-private. Only bereaved parents and grandparents may participate.  It’s a safe space where everyone understands and shares your pain.

As I read and was encouraged by each comment on yesterday’s post, I thought of an image many of us have seen-a defensive circle of elephants facing outward-the vulnerable calves safely tucked in the middle.

circle of elephants

A lion can prowl around the edges but knows it is already defeated.  Nothing can penetrate the powerful perimeter that protects the potential prey.

Peter warned early believers:

Most importantly, be disciplined and stay on guard. Your enemy the devil is prowling around outside like a roaring lion, just waiting and hoping for the chance to devour someone.

I Peter 5:8 VOICE

That’s what community feels like.  

I’m surrounded and protected.  

That old lion-the enemy-can roar all he wants to.  He can’t touch me.

For God did not choose us to condemn us, but that we might secure his salvation through Jesus Christ our Lord. He died for us, so that whether we are “awake” or “asleep” we share his life. So go on cheering and strengthening each other with thoughts like these, as I have no doubt you have been doing.

I Thessalonians 5:9-12 PHILLIPS

 

Safe Friends

I hope you have one.  

That one person who knows your greatest joys and deepest pain and keeps it locked in her heart as if the secrets were her own.  

She is a gift from God to me, that friend.  

She’s the one I call when I’m wracked with sobs and the words won’t come.  She knows it’s me and just waits on the line until I can speak. She gets my jokes, knows my weaknesses, my strengths and helps me steer a better path on this hard road called “Life”.

She is a safe friend.

listening is a postive act

A safe friend listens.  

Just listens.  

She isn’t formulating an answer while I am talking, she isn’t rounding up cliches or Bible verses or platitudes meant to make her sound wise and shush my sharing.  She hears my heart even when my words might not make sense.

A safe friend sees.  

Really sees.  

She looks in my eyes and pays attention to my expression. She notices when my smile doesn’t match the tone of my words or the silent language of my hands.

She won’t let me by with a quick, “I’m fine!” meant to brush off the real need to spill my guts.

A safe friend stays.  

As long as it takes.

She doesn’t leave in the middle of a hard conversation.  Even if life gets in the way, she will come back and pick it up.  She checks in with me and doesn’t let time unwind the threads that bind us together.  If I don’t contact HER, she contacts ME.

 

 

A safe friend walks with me.  

No matter how steep the path, no matter how rocky the road. We might be hobbling along, broken together, but she keeps going and she keeps me going.

 

 

A safe friend encourages me to look to Jesus.

She admits that she doesn’t have all the answers.  She agrees that there are many things we will have to wait to understand.  But she reminds me that for this, we have Jesus.  We have a High Priest Who was tempted in every way yet was without sin.  We can enter boldly into the Holy of Holies because by His blood the veil is rent.

She doesn’t issue spiritual ultimatums that undermine, instead of strengthen, my faith in Christ.

friends pick us up

 

A safe friend doesn’t cut me out of her life when my life is a mess.  

Even if the mess is of my own making.  She helps me untangle the knot, own up to the sin, reach out to Christ and make amends.

 

A safe friend doesn’t just “happen”.

She allows the grace and mercy and love of Jesus to mold her heart so that He can use her.

Everyone NEEDS a safe friend.

Anyone willing can BE that friend.

kindness

 

Monday Musings: Be Kind

I wrote and scheduled this post BEFORE the Nice terrorist attack and BEFORE the gunning down of police officers in Baton Rouge just yesterday morning.

But how very timely-as long as we divide the world into “us” and “them” we fuel hatred and acts of violence.  As long as we choose rhetoric rather than reason we encourage a mindset that believes only radical action will spur change.

As I wrote over a week ago, My Heart Hurts.  And I refuse to be part of the division that will only surely result in more death and destruction.

Instead I will choose to be radically kind.

This year has been filled with divisive politics, headlines and heartbreaking reminders of the many ways people can hurt one another.

I have my own opinions and positions on various issues and sometimes they are at odds with those of my friends or acquaintances.

But I am committed to speak, write and interact with everyone I meet in kindness-respecting our differences.

be kind2

Because we are all image-bearers of the One True God.

James said, With our tongues we praise our Lord and Father. Yet, with the same tongues we curse people, who were created in God’s likeness. Praise and curses come from the same mouth. My brothers and sisters, this should not happen!” (James 3:9-10 GW)

Jesus answered the question, “Who is my neighbor?” with a well-known parable that shocked His audience and challenged their preconceived ideas.

As soon as I ask, “Who is my neighbor?” I am trying to draw a circle around who I should and should not be obligated to treat with kindness and love.  

I’m not going to do that.

Henri Nouwen writes:

Kindness is a beautiful human attribute. When we say, “She is a kind person” or “He surely was kind to me,” we express a very warm feeling. In our competitive and often violent world, kindness is not the most frequent response. But when we encounter it we know that we are blessed. Is it possible to grow in kindness, to become a kind person? Yes, but it requires discipline. To be kind means to treat another person as your “kin,” your intimate relative. We say, “We are kin” or “He is next of kin.” To be kind is to reach out to someone as being of “kindred” spirit.

Here is the great challenge: All people, whatever their color, religion, or sex, belong to humankind and are called to be kind to one another, treating one another as brothers and sisters. There is hardly a day in our lives in which we are not called to this.

 I can purpose to listen even when I disagree.  

The Wrecking Ball of Grace

In the aftermath of loss, relationships suffer.

Sometimes it’s because of harsh words exchanged in the heat of emotional moments.

Sometimes it’s due to disagreements about how to deal with ongoing issues.  Often, it’s because most people just don’t know what to say and don’t know what to do in the presence of great pain and suffering.

Days and weeks and months pass and one day we wake up and realize that a previously close relationship is now distant and strained.

I know that in my grief I have felt abandoned by people I felt sure would stand with me, would never leave me, would be my most stalwart encouragers.

And I know, too, that I have shut some people out.  Some were too chipper or too quick to offer platitudes and others just seemed intolerant of my ongoing pain and sorrow.

Walls have been erected.

My heart sectioned off and my world divided into “us” and “them”.

I’m sorry for that.  That’s not the way I want it to be.

Walls between people are built brick by brick.

A word spoken or not spoken.  A call,  text  or message misinterpreted or mistimed.

But they can be brought down with one blow.

wrecking ball

Grace is a wrecking ball that breaks through walls and stone cold hearts.

Grace given and grace received.  

A call, a text, an email or message that says, “I’m thinking of you.  I’m sorry I haven’t been in touch.”

Or a card sent the old fashioned way filled with love to assure a wounded heart that it is not abandoned or forgotten.

Image result for image letter

“”I’m sorry.”

“I miss you.”

“I love you.”

It may not be easy and it might take several attempts.

 

 

 

But in the end, who can refuse extended arms and an open heart?

 

 

 

 

 

 

 

 

Navigating Treacherous Terrain

One of the things I’ve been forced to embrace in the wake of child loss is that there are very few questions, experiences or feelings that are simple anymore.

Read the rest here:  It’s Complicated

Silence Doesn’t Serve Anyone Well

One of the reasons I write is to share my grief experience with others.

I realized when tossed into the ocean of sorrow that of all the things I had heard about or read about, surviving child loss was never mentioned.  

Oh, someone might comment that so-and-so had LOST a child, but then the conversation quickly moved on to more comfortable topics.

But if we don’t talk about it, we can’t learn to live through it.

Silence doesn’t serve anyone well.

I agree with Mr. Rogers:

Anything that’s human is mentionable, and anything that is mentionable can be more manageable. When we can talk about our feelings, they become less overwhelming, less upsetting, and less scary. The people we trust with that important talk can help us know that we are not alone.”
― Fred Rogers

spotlight3

During the course of my lifetime I have seen many topics dragged from behind closed doors out onto the stage and under the public spotlight.

Frankly, some of them could have remained in darkness as far as I’m concerned.

But there is something still taboo in polite conversation–something hushed with awkward silence should it ever be spoken aloud in a crowded room–mention GRIEF and eyes drop to the floor or someone hastily throws an arm around you and says, “There, there–it’s going to be alright.”

I don’t blame them. Remaining in the presence of great pain is uncomfortable.

In my growing up years I don’t remember anyone speaking about death and grief for longer than the time it took to go to a funeral home visitation and stand by the grave as the casket was lowered in the ground.

What came AFTER the loss–not a word.

We need to talk about it.  We need to educate ourselves about it.  Because, like my EMT son says, “No one gets out of here alive.”

You WILL experience grief in your lifetime.

I pray the people you lose are full of years and ready to go–that you get to say “good-bye” and all the important things have been said and done so you aren’t left with extra emotional baggage in addition to the sorrow and missing.

But you never know.  Neither you nor I are in control.

And even in the one place where it would seem most natural to talk about life and death and grief and pain–our churches–it still makes those who are not experiencing it uncomfortable.

Yes, there are grief support groups.  And, yes, they are helpful in ways that only a group made up of people who understand by experience what you are going through can be.

But much of life is spent rubbing elbows with folks unlike ourselves, with parents who know the fear of losing a child but not the awful reality.

And just a little bit of openness, a little bit of education and a little bit of understanding would make such a difference.

We don’t want pity.

compassion and stay with you

 

We aren’t looking for special accommodations that single us out and mark us as “needy”.

But we long for understanding and compassion and the opportunity to tell our stories.

No Substitute for TIME

Healing can’t be hurried.

Read the rest:  No Rush