Child Loss: A Letter to My Living Children

I never thought it possible to love you more than I already did.

But I do.

photo (20)

Your brother’s untimely departure has opened my heart in a whole new way to the glory that is your presence.  It has made me drink you in like water in the desert.

No more do I take even a moment for granted.  Never again will I be “too busy” to listen to you, to hug you, to greet you on the porch when you decide to make your way back home.

Read the rest here:  A Letter To My Living Children*

Springtime Preview: Countdown to April

We’ve had an unusually warm winter this year.  

Not at all like the winter in 2014 which was punctuated by several deep freeze days and one giant “Snowmeggedon” that resulted in hundreds of people trapped in cars, at work or in schools.  

But there are other things that strike a chord in my heart and make me feel like I’m reliving that January through April. 

Lots of rain-both here and at my parents’ place in Florida.  A few days before Dominic left us, I sent him a photo of his younger brother nearly knee deep in creek water that had spilled from the banks into a nearby field.  He couldn’t believe it!  I still have the texts.

julian and creek in 2014

 

As for my parents’ home-well the rain has already filled the ponds which have risen across some spots in the dirt road that connects them to everywhere.  In 2014, the water got so high they were forced to evacuate for months as travel became nearly impossible except for lifted trucks or tractors.  It probably won’t reach that state again since dirt has been added to the road bed but it’s coming awful close and that taps memories and feelings in ways it’s hard to explain.

The year Dominic left us was going to be a year full of celebrations, culminations and hearty parties.  Julian was graduating with a Business Management degree, James Michael was wrapping up Veterinary School, Dominic would have survived the first two years of Law School with relatively easy classes left, Fiona was advancing in her Masters of Public Health Degree and James Michael and Lillie were getting married.

We thought all we’d need to “survive” that year was a cold winter and wet spring.  

We were wrong. 

This year is another year of celebration:  Fiona is marrying Brandon.  James Michael is coming home from deployment and will welcome, along with Lillie, his first child.  My husband will retire.

And all the preparation, along with the rain, is making me anxious.  

I wish it didn’t.  

Something about the timing, the temperature, the smell of green grass growing and leaves unfurling just overwhelms my heart.  

I’m so much better at planning now than I was just a year ago.  I can think more clearly, work more consistently, stay on track and make progress much better than those first years after Dominic ran ahead.

I have notebooks stacked on my table, decorations stacked in the room that used to be Dom’s.  Plastic bins full of tidbits we’ll use for the wedding and bridal showers.  My dress is sleeved in plastic and hung on the door for safe keeping.

I’m as ready as I can be.  

But once you’ve made big plans and had them shattered in an instant, once you’ve looked far forward to exciting times and had dancing turned to mourning, once you’ve done all the right things to make everything right and it’s gone all wrong-well, you just can’t shake the feeling that it might happen again.

I’m working hard to throw off the mantle of hesitation and anxiety that threatens to weigh me down.

I’m doing everything I can to remind my heart that this is an entirely different year, these are completely different celebrations.

Some days I am really good at it.  

Others, not so much.  

But I AM looking forward to all the beautiful things on my calendar.  

New marriage.  New life.  Bigger family circle.  

Spring is the year’s promise.   

I’m hanging on to that.  ❤

no winter lasts foreer and no spring skips its turn

On The Struggle Bus

I weigh more today than I’ve weighed in ten years.  

Just before Dominic graduated high school in 2008, I decided that being “fluffy” was not good for my health, not good for my joints and for the first time in my married life I had the extra energy, time and attention to work on losing weight.  

I lost over fifty pounds.  

Still not skinny, but definitely a much smaller version of me than had existed since I started having children.

IMG_0744 (1)
June 2013

But after Dom left us,  a series of choices and out-of-my-control health issues combined to make it harder and harder to maintain the weight loss I had (fairly) effortlessly maintained for six years.

I’m scheduled to see my GP tomorrow and you know what makes me more nervous than all the bloodwork they will have to do?  Stepping on the scales!

Why is it more deplorable to be fat than to be mean?

Why is it considered a greater moral failure to lug around extra pounds than to lug around a hateful heart?

I feel more like a failure because I’ve allowed pounds to creep back up on my backside than for so many other things that are so much more important.  

Menopause, middle age and many sleepless nights which increase my cortisol levels have conspired to make it harder this time than last time to rid my body of excess weight.

family fionas grad (2)

I’m active, eat well and in limited amounts (no Twinkies or high fructose corn syrup!) but my hips refuse to get smaller.

I try hard not to blame everything on child loss. 

But I’m pretty sure a significant portion of responsibility sits squarely on the fact that my heart is broken.  I am exercising so much self-control every. single. day. that I don’t have any left over.

I rarely cry any more in public. 

Goodness!  I rarely cry any more in private.  

I can return a cheery, “Have a nice day!” to any and everyone I meet.  

But that means I am constantly running a tape in my head that goes something like this:  “Don’t take it out on her.  She has no idea. Keep smiling.  People don’t know that you were about to cry just a minute ago. Don’t let that person’s ugly attitude unleash the beast inside you.”  

Can I be honest here?  

I’m tired.  

I’m tired of everything being hard.  

please be aware i am trying

I don’t know if or when I’ll lose weight (please don’t inbox me with your latest, greatest sales pitch).

I’m trying most days.  

But sometimes I just don’t have it in me to try.  Sometimes I just want to be normal-whatever THAT is.  Sometimes I just want to have one corner of life where things are easy and don’t require constant vigilance or extreme restraint.  Sometimes I want to eat ALL the things and not give a hoot if it adds inches to my waist.

the struggle bus

I won’t do it.  

Because I know it’s not what’s best.  

But I want to.  

eat whatever you want

Child Loss: At Night, It’s Still Fresh

It happens most often as I am drifting off to sleep. 

There is this one spot on the bedroom bookshelf where my eyes landed that first night-one paperback spine that instantly transports me to the moment I had to close my eyes on the day I found out my son would never come home again.

And it is fresh.  

Absolutely, positively fresh.  

Like “just happened” fresh.  

missing-someone

You’d think that nearly five years of intervening experience, nearly five years of grief work, nearly five years of trying so darn hard to learn to tuck that feeling away deep down so it can’t escape would have worked whatever magic time is supposed to work.  

it has been said that time heals all wounds rose kennedy clock

But it hasn’t.  

Oh, most days I can lock that lid down tight.  I can distract my mind, busy my hands and keep my heart from wandering too close to despair.

Darkness though. 

Shadows and silence and stillness give room for the memory to rise to the surface.  

And it does.  

My son is never coming home again.  

Fresh.  

Absolutely, positively fresh.

“Just happened” fresh.  

sometimes cant believe you are gone

 

Child Loss: When It’s Been YEARS-How To Bless a Grieving Parent

Please hear me. 

I do NOT blame you that my son and my sorrow have drifted down your list of “things that need attention”.  Your life is as busy as mine once was and your calendar full of commitments and celebrations that require your attendance.

There is no way you would know it’s 69 days until the fifth anniversary of Dominic’s sudden absence. 

There is no reason for you to be aware that as the southern landscape turns to spring, my heart and mind turn to death.  

But it’s the truth. 

Read the rest here:  When It’s Been YEARS-How to Bless a Grieving Parent

Refuse to Hide: Lament As Worship

We usually think of worship as songs of joy and happiness extolling the virtues of God and Christ.  

While that is most certainly a form of worship, it is absolutely not the only one.  

Biblical lament is an honest, vulnerable expression of pain, a crying out to God in faith as we are suffering.
― Cindee Snider Re

Worship is also the broken whimper of a scared and wounded child, crawling into the lap of her Abba Father.  

There is no less adoration in this ultimate act of confident trust than in the most eloquent declaration of theological truth in word or song.  

Lament is worship.  

Christian lament is not simply complaint. Yes, it stares clear-eyed at awfulness and even wonders if God has gone…Yet at its fullest, biblical lament expresses sorrow over losing a world that was once good alongside a belief that it can be made good again. Lament isn’t giving up, it’s giving over. When we lift up our sorrow and our pain, we turn it over to the only one who can meet it: our God.”
― Josh Larsen

Bringing my brokenness to God as an offering, trusting Him to receive it, to keep it and to begin to weave even this into the tapestry of my life is perhaps the ultimate act of worship.  

you keep track of all my tears

When I refuse to pretend, refuse to hide, refuse to run away and look for an answer somewhere else, I affirm that He is my God, and there is no other beside Him.  

A lament is an act of worship, a faith statement of trust, in the face of difficulty. It’s a wonderfully honest way to acknowledge our trouble to God as we also acknowledge our hope is in him.
― Linda Evans Shepherd

lamenting is a painful process

 

God is not only the God of the sufferers but the God who suffers. … It is said of God that no one can behold his face and live. I always thought this meant that no one could see his splendor and live. A friend said perhaps it meant that no one could see his sorrow and live. Or perhaps his sorrow is splendor. … Instead of explaining our suffering God shares it.
― Nicholas Wolterstorff

Things I CAN Control

When I opened the door to that deputy and received the news, my world suddenly spiraled out of control.

Over the next days, weeks months I would have to do things I never imagined I might do and certainly things I did not WANT to do.  So, so much I couldn’t change.  So many ways I lost the right to choose.  

And I hated it!  

Wasn’t long and that sense of helplessness permeated every corner.  Even when it didn’t belong there.  I began to feel as if I couldn’t control anything.

So in many ways I stopped trying.  

But then one day I woke from the fog of despair.  I remembered that there WERE some areas of life where I could still make choices.

And it was empowering!  

So here’s a list that I pray gives hope to other hurting hearts.

THINGS I CAN CONTROL

  • My attitude (how I react to what others say or do)
  • My thoughts (with great difficulty sometimes)
  • My perspective (when I’m careful to fill my mind, heart and eyes with truth)
  • If I’m honest (about ALL things-including my feelings)
  • Who my friends are (from my end-can’t stop people from walking away)
  • What books I read (I am choosy and only read things that feed my soul)
  • What media I consume (stay away from toxic people, topics and television)
  • What type of food I eat (healthy, appropriate amounts)
  • How often I exercise (a walk, gentle yoga, online video routines)
  • How many risks I take (not just physical ones, but also emotional and relational risks)
  • How kind I am to others (being wounded does not give me the right to wound)
  • How I interpret situations (do I assume the best or the worst?)
  • How kind I am to myself (extending the same grace to ME that I extend to others)
  • How often and to whom I say, “I love you”
  • How often and to whom I say, “Thank you”
  • How I express my feelings (I can learn healthy ways to speak my truth)
  • Whether or not I ask for help (no one gets “points” for playing the martyr)
  • How many times I smile in a day (smiling, by itself, lifts mood-even a “fake” smile)
  • The amount of effort I choose to put forth
  • How I spend my money
  • How much time I spend worrying (or praying or complaining)
  • How often I spend moments blaming myself or others for past actions
  • Whether or not I judge other people
  • Whether or not I try again when I suffer a setback or disappointment (success is getting up one more time than I fall down)
  • How much I appreciate the people and things in my life

Exercising control over the parts of my life where I CAN exercise control helps me deal more effectively with the many parts over which I have no control

It does not undo the sorrow and pain of child loss, but it does work to balance the emotional scales. 

It makes it easier to face a new day.  

It helps me hold onto hope.  

And that is a good thing.  ❤

whenyoucan27tcontrolthewindadjustyoursails

 

 

Child Loss and Secondary Losses

While I certainly had no real idea in the first hours or even weeks what losing a child entailed, I understood plainly that it meant I would not have Dominic to see, hold or talk to.

I wouldn’t be able to hug his neck or telephone him.  

He wouldn’t be sitting at my table any more.

But the death of a child or other loved one has a ripple effect.  It impacts parts of life you might not expect.  As time went on, I was introduced to a whole list of losses commonly called “secondary losses”.

secondary losses

Here are just a few:

Loss of a large chunk of “self”.  Dominic possessed part of my heart and part of my life.  It was violently ripped away when he died.  There is part of me that was uniquely reflected from him-like a specialty mirror.  I can never access that part of me again.

Loss of identity.  Before Dominic died I was one kind of mother.  I was a mother of four living children who were making their way in the world as successful adults.  I was a mother looking forward with happy anticipation to the next years.  Now I am still a mother of four children but one whose heart has been changed by tragedy and sorrow. Tomorrow is still bright, but there’s a shadow just behind it.

desimones uab family

Loss of self-confidence.  I used to enter a room without a thought to how I’d be received or perceived.  That’s definitely not the case now.  I’m self-conscious-constantly wondering if I’m saying or doing the right thing.  I never know if a grief trigger will (at best) pull my attention away from conversation or (at worst) send me scurrying for the bathroom.

Loss of sense of security.  I think every parent has moments of fear over his or her child.  When they first go off someplace without us, when they get a driver’s license, travel abroad, go to college.  But all the awful things I imagined didn’t hold a candle to the reality of waking one morning to a knock on my door and the news that Dominic had been killed.  The bottom fell out of my (relatively) safe world.  Bad things, random things can and do happen.  Once it happened to ME, it changed how I processed everything.  The passing years have softened some of the anxiety but I will never be able to assume safety again.

Anxiety

Loss of faith.  I did not “lose” my faith.  I never once doubted that God was still working, was still loving and was still in control.  But I most certainly had to drag out every single thing I thought I knew about how I thought He worked, loved and superintended the world and examine it in light of my experience of burying my son.  It took a long time to work through all the pat answers I had been offered and myself doled out to others for years that didn’t fit with my new reality.  I am learning that doubt is not denial and that I have to live with unanswered questions.

Loss of family structure.  I’ve written before that a family is more than the arithmetic total of the number of members.  There were six of us.  But we were so much more than six when we were all together!  Our talents, personalities and energy were amplified in community.  When Dominic’s large presence was suddenly whisked away, every relationship got skewed.  We’ve fought our way back to a semblance of “whole” but still miss him terribly.  We can function, but we will never be the same.

empty chair

Loss of my past.  Memories are funny things.  They are plastic and subject to change.  And my recall of an event is limited to my own perspective.  For a memory to be rich and full, I need input from others who were there as well.  One vessel of family memories is no longer available to add his unique contribution.  Every time I pull out a photo or dig down deep in my heart to draw up a treasured moment, I realize I’ve lost something I can not recover.  The joke, the glance, the odd detail are all gone.

Loss of the future I anticipated.  I’m a planner by nature.  Not a detailed, OCD, got-everything-in-order kind of planner, but a “big picture” kind of planner.  When Dominic left us in 2014, things were going (pretty much) according to plan.  Each child was well on his or her way to the career path they had chosen.  I was easing into an empty nest and exploring options for life after homeschooling.  My husband was entering his last few years of a lengthy career.  It’s hard to explain to anyone who hasn’t experienced it, but when your world is shaken by child loss, everything gets scrambled.  You can’t just pick up where you left off and keep going with the pieces that remain. 

There’s a prolonged period of confusion and everyone is impacted differently and in ways you could never imagine.  All of us have changed dramatically in the years since Dominic left us.  He is not the only thing missing from the rest of our lives.  Holidays are altered.  Birthdays are different.  We have to plan special events around uncomfortable milestone dates that roll around every year whether we want them to or not.  It’s a constant readjustment to life as it IS instead of life as I thought it WOULD be.

Loss of ability to focus and function.  Oh, how this surprised me!  I was in some kind of zone for the first month after Dominic left.  My other children were home, we had to make it through planning his funeral, two graduations and cleaning out his apartment.  I also had to handle paperwork for my husband to take short-term disability due to grief.  I cried a lot, wrote down dozens of notes but managed to do what I had to do.  Then I crashed. I couldn’t remember a thing.  I couldn’t read more than a couple sentences at a time.  I hated the telephone.  I could barely stand to hear the television.  I had to make a list of the most basic things like brushing my teeth, feeding my animals, turning off all the lights before bed.  It was awful!  And it didn’t really get better for well over a year.

I still suffer from a very short attention span, low tolerance for noise and an inability to accommodate last minute changes.  I don’t schedule anything back to back.  I live in a rural area and sometimes shop in the nearby town.  I will start the day with a long list and shorten it repeatedly as I go along because driving in traffic, crowds and random sounds ramp up my anxiety and make me want to go home with or without what I came for.  I have changed the way I do so many things.  My pre-loss memory has never returned.  

griefbrain1

Loss of patience.  I am at once impatient and long-suffering.  I have zero patience for petty grievances, whining and complaining.  Yet I have compassion for other people living hard and unhappy stories.  I berate myself for not being “better” and, at the same time, extend grace to others who aren’t “better” either.  I want to shake people who bowl over weak, hurting, desperate souls.   I don’t have time for moaning about rain when you were planning a picnic but will listen for hours to a mama tell me about her missing child.

Loss of health.  I had a number of chronic health conditions before Dominic ran ahead.  Within the first year of his departure, I was hospitalized twice.  My experience is not unique.  Some parents suffer immediate health effects (heart attack, blood sugar spikes, anxiety/depression) and some see a slow decline over time.  In part because child loss, like any stressor, will negatively impact health and also because sometimes bereaved parents stop doing the things that help them stay healthy.  At almost five years, I’ve learned how to manage the stress better although some of my health issues continue to get worse.  It’s hard to tease apart what is age, what is disease and what is grief.

When your child leaves this life before you do, it changes everything.  

Not only things you might expect, but many you’d never imagine.  

It’s a constant balancing act, readjusting every day to new challenges.  

Struggling to keep my head above the waves.  

grief like the ocean learn to swim

 

 

Repost: Looking Up

All believers in Jesus are commanded to live as aliens in this world. But it is so easy to get comfortable here. So easy to think we were made for the earth we see instead of an eternity with God in heaven.

Kenny Chesney sings a song;

Everybody wants to go to heaven
Have a mansion high above the clouds
Everybody wants to go to heaven
But nobody wants to go now.

And if we are honest, even most folks in church on Sunday would agree.  Heaven is a great place to look forward to, but not somewhere you would plan to go this week.

Read the rest here:  Looking Up

Child Loss: Marking the Milestones

When your child is born you take notes.

You plan to mark this day as a special milestone for the rest of your life.

You absolutely, positively NEVER think you will have to mark another one:  the day he or she leaves this life and leaves you behind.

But some parents have to mark both.  The dash in the middle is shorter than we anticipated, and our child’s life ends before ours.

grieving mother at grave

So how do you do it?  How in the world do you observe the polar opposite of a birthday?

Here are some ideas (shared with permission) that parents shared recently in an online discussion sparked by one mom’s very honest admission that she just didn’t have it in her to create another video montage from the same old photos to mark yet another year without the earthly companionship of her precious son:

Don’t do anything.  That is an option. We do not have to draw a red circle around THAT day on the calendar, gather folks as if  it’s a celebration.  As one mama said, “Yes, the day they left us does not need to be ‘remembered’.”  For some parents, going to work like it’s a regular day, engaging in whatever normal activities are required, ticking the hours off on the clock until night falls and the earth turns to the next day may be the very best choice.  Another mama wrote this:  “I have friends who celebrate a ‘heaven day’ for their son.  I can’t.  I just can’t.  If it were up to me, I would probably go camp somewhere all alone, and not move a muscle for the entire day.”

Do something big (or small).  Some parents choose this day to hold an annual “Celebration of Life”.  It might take the form of a balloon release, or lantern release at home, at a park or other outdoor venue or at the cemetery.  It might be lunch or dinner out at your child’s favorite restaurant or at home with your child’s favorite menu.  Invite friends and family to join you and ask that they bring a photograph or memory and share.  One mom said that such an event kind of happened organically and spontaneously when contacted by her son’s widow:  “We went to one of [his] favorite restaurants.  Told funny stories about him, talked about how missed he is, then went o his grave and put fresh flowers.”

balloon release

Serve others.  Did your child have a special interest in a particular charity or community organization?  Maybe you can spend this day volunteering or raising awareness/money for that group.  Often having something to do helps a heart from sinking into despair.  If the group allows, maybe put up a sign saying, “Volunteering today in honor of __________” and attach appropriate photos of your child.  Some parents whose child died from cancer or suicide or violence participate in walks or fundraisers that highlight those causes.

Encourage Random Acts of Kindness (RAK).  I plan to do this one in April.  It will be seven years (!) and I can barely stand it.  But so many of the comments from Dominic’s friends after he left for Heaven went something like this one, “He was always doing something for someone else.  Fixing their car or showing up when they needed an encouraging word.”  He was known for his many acts of generosity and kindness and I feel like he lives on in the hearts of others because of that.  I had cards printed ( I intentionally let his “dates” off) which I will distribute well in advance of April 12th for friends and family to leave behind when they do a RAK in memory of Dom.  Vistaprint and other online publishing companies offer reasonable prices and will guide you through the process step-by-step.

random act of kindness

Escape.  Lots of us find being at home (alone or in the company of others) too hard to bear.  Many received word of their child’s death at home and as the day creeps closer, the memories crowd every corner of mental and physical space and are inescapable.  So sometimes parents plan a trip around this time.  Go somewhere your child would have loved to go or go somewhere he or she enjoyed visiting.  Take photos and post them in honor of your child if you want to.

Focus on family.  You may not want to be alone, but the thought of being with anyone outside your closest grief circle is overwhelming.  That’s OK.  Spend time with the people who, like you, are most affected by your child’s absence.  You don’t have to do anything special.  You can make room for them to speak or not speak about their grief as they choose.  Sometimes just having another warm body in the room is enough to ward of the chill of despondency.

grieving dad

Flip the script.  For those of us who believe that this life is not all there is, the day can be one of celebration.  Our children have escaped life full of sorrow and trouble and are safe forever in the arms of Jesus, where we will also be one day.  Waiting is hard, but waiting is not forever.

Simply allow yourself to feel the full force of missing and grief.  “As far as his death day, for me, that is a day when I allow myself to fully feel and express the pain of my loss.  It is a way to (temporarily) empty myself of all this pain, so I can breathe again to face another day.  I will sit in his sweatshirt, listen to reflective music, cry a lot, talk to him, pray to God, and just allow myself to feel all the pain and emotion that everyday responsibilities cause me to stuff away.”  If you can manage it, taking the day off work and giving yourself grace and space to grieve in ways that are denied so often may be the very best way to experience the day.

Here’s a list of ways some parents honor their child on this day:  

  • Giving away stuffed toys with a card or note explaining why.
  • Taking goodies to first responders and/or nurses who were served their family during an accident or illness.
  • Handing out Bibles or books in memory of their child.
  • Making memory baskets for parent whose child will be born straight into heaven.
  • Adding to a scholarship fund or other charitable fund in honor of their child.
  • Placing balloons, flowers or other special decorations on their child’s final resting place.
  • Lighting candles, releasing butterflies, balloons or lanterns.
  • Placing a memorial advertisement in a local paper.

Do or don’t do whatever helps you make it through those twenty-four hours that represent another year of sorrow, another year of missing.  

missing child from arms

There is NO wrong way to mark or not mark this day. 

It’s up to you and your heart.  

And absolutely does not require anyone else’s permission or approval.  

dont trade authenticity for approval