One of the trickiest parts of life as a bereaved parent is navigating the space between our surviving children and the giant hole left by the one (or more) who have run ahead to Heaven.
There are so many ways I might cling too hard to what’s lost and not lean hard enough into what continues to bring blessing and beauty to everyday life.
I’ve learned it’s best to find quiet moments in which I can journal the feelings that might be unhelpful or downright hurtful to express to others.
❤ Melanie
One of the commitments I made out loud and in my heart the day Dominic left us was this: I was not going to let his death tear my family apart.
I was not going to let him become the sainted brother that stood apart and above his siblings.
I was going to continue to give as much of my time, effort, love and presence to each of the three I had left as I had done when there were four on earth beside me.
I’ve been more or less successful in keeping this promise.
I have no doubt that if you asked my living children, they could give you examples when I’ve failed. Some days are just too much. Some events are too hard to attend.
Some moments I am overwhelmed
and undone
and there’s no way to hide it.
But I’ve learned a few things that help me be present, attentive and joyful for the beautiful things that are happening around me.
One of those is to set aside time whenever possible to “pre-grieve” an upcoming celebration or gathering.
I allow my heart to feel all the things it needs to feel. I journal the questions and comments and (sometimes) anger that would otherwise overflow and ruin a moment. I write to Dominic and tell him how much I miss him, how much I wish he were here and how very hard it is to mark another happy occasion without him.
I mentally rehearse walking in, greeting people, making small talk.
I think ahead to any big moments that might tap emotions I need to hold in check. I even plan an “escape route” should I need it. Just knowing it exists has always been enough so far.
Sometimes I find a song that suits my mood.
I cry.
And then I choose a token I can wear or slip in my pocket to remind me that I’ve got this.
I can show up and smile (honestly) because I’ve already loosed the dam of grief and let the stored up torrent flow over the spillway.
I’ve learned the hard way that memories are precious. I don’t want the ones I’m making now to always be tainted by sorrow and loss.
Dominic is never far from my thoughts and always in my heart.
Often there are random or unusual physical symptoms that show up days, weeks or even years after a child has gone to Heaven.
An important and necessary part of grief work is learning to recognize the physical manifestations of grief and advocating for care from professionals who may not be able to make the connection unless the bereaved speak up and speak out.
❤ Melanie
It’s a well known fact that stress plays a role in many health conditions.
And I think most of us would agree that child loss is one of (if not THE) most stressful events a heart might endure.
So it’s unsurprising that bereaved parents find themselves battling a variety of physical problems in the wake of burying a child.
What may be surprising is how uninformed medical and even psychological professionals are with respect to the very real ways child loss intersects with chronic conditions and often creates new symptoms.
Here is a list of only SOMEof the physical manifestations of grief (via What’s Your Grief?) with my own comments :
Fatigue. If you’ve always been an energetic sort, you might find this aspect of grief particularly disconcerting. This kind of fatigue doesn’t get better with rest. I’ve written about that here.
Some days I can barely make myself get out of bed and when I do, I struggle to do any but the most necessary tasks. Don’t automatically dismiss this symptom as ONLY grief (although it most certainly could be!) get a thorough check-up to rule out other causes such as low thyroid, diabetes, heart disease, major depressive disorder or a number of conditions that can be treated effectively with medicine. Don’t beat yourself up if the doctor decides “nothing is wrong” with you. You are grieving and grief is work! I know this symptom has improved for me over time as I’ve established boundaries, admitted limitations and learned to rest when necessary.
Aches and Pains. Our bodies and minds are connected in ways not well understood. Mental and emotional distress can make any underlying pain condition that much worse. When I’m feeling especially lonely, desperate or sad my autoimmune disease flares AND my perception of the very real pain that causes is heightened. Pain and heartache can lead to a downward spiral that is hard to undo. Get help and treatment for the physical and give yourself grace and space to endure the emotional causes of body aches. Don’t self-medicate with drugs, alcohol or other self-destructive coping strategies. Reach out to a safe person and let them help you find a better way.
Headaches. Needless to say, stress makes tension headaches more likely. Sometimes, though, a headache can be a symptom of something more serious. Don’t dismiss an especially sudden, intense or long-lasting headache as “just grief”. It could be previously undiagnosed high blood pressure, stroke or migraine. Those being ruled out, various relaxation techniques, cold or warm compresses, over-the-counter analgesics and gentle stretches might help.
Sometimes grief headaches can be alleviated by the simple act of telling our stories. Bottling up emotions and thoughts adds to the ongoing stress and tension of my child loss burden. When I spill them-either on paper in a journal, in a closed online bereaved parents’ group or in person to a safe friend or family member-often I feel the band around my head relax and the pain fade away.
Tightness in Chest, Shortness of Breath. The day I got the awful news, I remember asking friends who came to sit with me over and over, ” Am I still breathing?” My world was spinning out of control and my body responded. Anxiety after child loss is real. Broken Heart Syndrome is real. Heart attacks are not uncommon. Don’t ignore these symptoms. But don’t be surprised if they persist despite all tests to the contrary. When I feel trapped and overwhelmed, a walk outside or even to another room can help. Deep breathing exercises and grounding exercises can often interrupt an episode.
Forgetfulness. I wrote this post on Grief Brain: It’s a Real Thing! a couple years ago and am always surprised to see it shared repeatedly. But I think it strikes a chord with any heart walking through grief. You are not crazy! You are not experiencing early onset dementia (most likely). Like other symptoms, get checked out if they persist or worsen. But odds are, your experience falls within the range of normal for anyone whose life has been shattered by child loss. Losing things, forgetting things, getting lost in familiar places, missing appointments or bill payments, inability to remember names of people you know well-all of these are common after loss. In time, the symptoms usually diminish. They have for me. I still have to rely on lists and reminders much more often, though. And that’s OK.
Inability to Focus. Like grief brain, this is another cognitive manifestation that’s not only annoying, it can impact life in significant ways. Before Dominic ran ahead to Heaven, I was an avid reader. I often had three or four books going at the same time. I could spend hours focused on a single project. Not anymore. I sometimes find it difficult to read a recipe.
I have to take frequent breaks when working on something because my mind gets fuzzy and I just can’t pay attention for more than a few minutes at a time. Some bereaved parents have to change jobs or careers because they are not able to perform necessary tasks anymore. This particular symptom has not improved very much for me although I’ve found ways around it. I use lists to keep an external record of what I should be doing and when. I mix up mindless chores with ones that require more attention to give my brain a break. I try to dissect larger jobs into smaller, manageable chunks. And sometimes I just have to admit that today a particular thing just isn’t happening.
Appetite or Digestive Issues. Stress has long been linked to gut problems. I suspect we’ve all had that “rumbling in our tummy” from time to time even before child loss. For many of us it’s exponentially worse after. Some bereaved parents try to stuff emotions by stuffing themselves with food. Others can’t eat at all. Still others experience stomach ulcers or bowel disease ranging from acute to chronic. I was hospitalized twice in the first year after my son’s death for serious colon issues.
Again, don’t ignore sudden or persistent symptoms. Try to eat well and avoid self-medicating with food. Added pounds rarely add up to better emotional or mental health. I let pounds I’d lost ten years ago find me again. Get help if you need to from someone willing to act as an accountability partner. I’ve recently joined a friend in setting goals for ourselves and sharing recipes and meal prep. Try to treat food as another aspect of grief work and manage it the best you can.
Getting Sick More Often. Stress lowers the immune system. That’s a fact. So when bereaved parents encounter germs (as we all do from time to time) it may well be our bodies don’t have the energy or resources to combat them. Colds, flu, strep throat, skin infections may all be more likely this side of child loss. Don’t be discouraged to seek treatment. There is so much we can’t control in life, but getting antibiotics for an infection is pretty easy.
It’s not in your head, mom or dad!
Grief has real physical manifestations.
Don’t be dismissed or denied the care you need.
Educate your healthcare providers and insist on being heard.
*photo credit: The Weight of Grief Scupture ~ Celeste Roberge*
This is a common question in bereaved parent groups.
We hear the term “grief work” bandied around and while it means different things to different people, I use the phrase to encompass the mental, physical, psychological, emotional and relational work (and it is work!) a grieving heart must do in order to process and learn to carry sorrow and missing.
I won’t pretend to be an expert (except on my own experience) I do have a lot to say about what has helped, what has hurt and what I’ve learned over the eleven years since Dominic left us.
Some of these posts have been shared before, some will be brand new because I’m always growing and learning new ways grief impacts my life and the life of my family.
I’d love to hear from YOU in the comments-let me know what you’re struggling with, what has helped your own heart and what questions still keep you up at night.
Together we are stronger.
❤ Melanie
I have used the term for years and only recently has someone asked me to define it.
I guess I never realized that in all the writing about it, I’d never really explained what it meant.
So here goes.
The term was coined by psychiatrist Erich Lindemann in the 1940s. He worked with survivors of the Cocoanut Grove tragedy and observed that grievers experienced common symptoms, feelings and faced similar challenges. Through his work, he developed a theory of grief incorporating his observations and his technique for walking grievers through these common issues.
Today the term has been expanded and is used widely to describe almost any approach to grief that includes specific techniques for helping someone walk the path of loss.
I use “grief work” to mean all the ways I (and others) must actively seek to identify, face, process, and ultimately incorporate the feelings, trauma and changes loss force upon us.
Grief work (in no particular order) can include but is not limited to:
Attending sessions with a professional, spiritual or lay counselor. Some people find it helpful to have a safe person outside the immediate grief circle to discuss feelings, concerns and relationship challenges that are generated by loss or exacerbated by loss. It’s best to find a counselor who specializes in grief, preferably child loss and/or traumatic loss (all child loss can be classed as traumatic loss). Other counselors may be too quick to label a bereaved parent’s grief as “abnormal” or “too lengthy” or “complicated” when it is, in fact, closely following observed timelines for dealing with child loss. If the first counselor you find isn’t a fit, try another. It’s OK to insist that you are heard, your feelings respected and your loss recognized for the life-shattering event that it is.
Finding, joining and participating in online or in person support groups. There are literally dozens of online support groups for bereaved parents. Some are designed to meet the needs surrounding specific types of loss such as sudden death, suicide, drug overdoses or loss to cancer or another disease or condition. Some are organized around certain faiths. Others may be rooted in geographic proximity and the online group might have a monthly or quarterly face-to-face meeting in the area. While it can sometimes be overwhelming to see the number of parents in such a group, it’s also extremely helpful to have a safe space to share things only another bereaved parent can understand.
Setting aside quiet time to think, process and possibly journal feelings. So much grief work must be done alone. Counselors can equip me with tools, support groups can give me real-life examples and encouragement but only I can do the nitty-gritty labor of teasing apart all the feelings and change grief brings with it. Journaling has been very helpful for me in putting words to what can sometimes be rather nebulous thoughts swirling around in my head. When I name what I’m feeling or experiencing, I can better construct a strategy for processing and living with it.
Walking back through memories, noting regrets, forgiving yourself and making peace with the past. We ALL have things we would have done differently. Death, being final, forces a heart to face that there is no chance to atone for past behavior. Words unsaid, things undone, opportunities missed are carved in the stone of yesterday. I spent many nights recounting my shortcomings as a mother, berating myself for what I didn’t do. Eventually I was able to rest on the simple fact that one thing I DID do was make sure Dominic knew he was loved.
Setting boundaries to give yourself and your family space and time to do grief work as well as to conserve emotional, relational and physical energy that’s in limited supply after child loss. So many of us live with few or no boundaries-responding to every request with a “yes”, adding things to the calendar without a thought to how exhausted we might be at the end of a day or week. Some of us are overtaxed at work or school. Some of us are hyper-involved in our churches, civic organizations or local politics. There are dozens of ways to be extended and just as many ways to live with that constant drain. Child loss forced me to recognize that I could no longer BE that person. I couldn’t afford the time, energy, mental space and emotional burden of saying “yes” anymore. I learned that “NO” is a complete sentence and began using it.
Practical considerations regarding your child’s belongings and other personal property. Many people might not consider this part of grief but it is. So many details to take care of, so many times I had to repeat the words, “My son was killed in an accident. I need to close this account.” So many copies of his death certificate mailed out to different agencies or companies, documenting the awful reality that he was never coming home again. Then there are questions of what to keep, what to store, what to give away. Should a room remain untouched if your child still lived at home? We had to clean out Dominic’s apartment only a few days after his funeral. It felt like I was boxing up everything beautiful about my boy.
Learning how to do holidays, birthdays, family gatherings, vacations and other gatherings. The empty chair looms larger when all the others are filled. If you have been the primary organizer of such events, it might surprise you to find the rest of the family still expecting you to be that person. Even if you aren’t the host for holidays, you will need to communicate to others if or how you feel comfortable participating.
Maintaining or regaining health after loss. Stress is one of the greatest contributors to so many health issues. Child loss is an unbelievably stressful experience. So it’s no wonder that many parents find themselves post loss with new or aggravated health problems. I had an appointment with my rheumatologist just one month after Dominic ran ahead to Heaven. It was critical that I tell her of my loss because in addition to whatever medical interventions she was prepared to prescribe, she needed to know I would be experiencing an extended period of intense stress that might necessitate closer observation and follow-up. As difficult as it may be to talk about, it’s important to inform your healthcare providers of your loss and to be absolutely honest about changes you’ve noticed in your body as a result.
There are probably a dozen or more subcategories of grief work I could list and some of you might think of ones I wouldn’t.
Grief IS work.
It is important, necessary and exhaustingWORK.
It requires time, resources, effort and energy and cannot be hurried along.
But it is the only way a heart can begin to put the pieces back together.
It’s not uncommon for clients to be asked by their counselor, “What does happiness look like for you?”.
Because, let’s face it, few of us seek counseling unless we are unhappy or dissatisfied with our current life.
Unlike physical healing, mental, spiritual and emotional healing are rather subjective and it’s important to know what we’re aiming for when seeking help in moving our hearts toward wholeness (or at least, “less brokenness”).
So it’s not surprising that another bereaved parent was asked this question during a session recently. She brought it to the greater community because she felt that she didn’t have a good answer or, really, any answer at all.
I get it.
Child loss is devasting.
In the early days after Dominic ran ahead to Heaven, the idea of “happiness” was as foreign to me as living on Mars. Possible, maybe, but highly improbable and not something I wanted to pursue.
Before death walked through my door, I didn’t find it necessary to parse the difference between happiness, contentment and joy.
Now, I find it absolutely critical.
Happiness is a feeling that everything is going my way-sunshine and roses, no uncomfortable circumstances, no insurmountable challenges. If I’m honest, even before child loss, I wasn’t always happy. It’s easy to idolize my “before” life into somethin it was not.
Contentment, on the other hand, is a settled trust in God’s goodness, mercy and love regardless of my current circumstances. I, like Paul, can LEARN to be content when I focus on the eternal story the Lord is writing that will proclaim His glory for ever and ever. I have to remind my heart every day of truth-even when it doesn’t want to hear it.
Joy is a burst of sweetness and delight-like biting into a perfect strawberry or being greeted with a slobbery kiss from a toddler who has stood by the window, waiting for your arrival. I can choose to make much of these moments or overlook them.
Eleven years on this road, while I find happiness elusive and contentment a work-in-progress, I find looking for joy rewarding.
I live on acreage that is mostly native grasses and weeds. Sometimes when I look out at the rough, uncut vista all I see is a raggedy mess. It is so unlike the tidy, mowed, landscaped lawns I grew up with as a child.
But when I WALK through the fields and look closely, there are dozens of different wildflowers tucked amid the weeds.
That’s how I’ve come to think of life after my son ran ahead to Heaven.
Life itself isn’t what I want or how I thought it would be- not predictable or beautiful (by my earlier standards of beauty). But there are STILL beautiful moments, relationships and events that I can treasure.
I’ve learned to focus on those and hold them close.
Most days are pretty good now but this habit continues to feed my soul.
When a particularly hard day comes, it helps me from falling so far down the rabbit hole of despair that I can’t climb back out.
May the Lord help all of us find the beauty and blessing that remains even as we miss our children and look forward to seeing them again in Heaven.
Another bereaved parent shared this “Litany of Trust” in one of our closed groups the other day.
It reminded me of the many quotes, verses and choruses I typed or wrote out and taped all over my house in the early days after Dominic ran ahead to Heaven.
My own head and heart were filled with doubt, sorrow and pain and I knew that if I didn’t keep truth in front of my eyes, those lies would take over and squeeze out any hope hiding in the corner.
I STILL have several of these reminders tacked up because there are days…
So I wanted to share this beautiful catalog of all the ways Jesus, our Great Shepherd King, delivers us from futile and unfruitful fear:
Many of us who grew up in non-liturgical churches (myself included), might be dismissive of repetitious prayers. But there is both beauty and power in repeating truth to our hearts and souls.
Paul said, “But how can they call to him for help if they have not believed? And how can they believe if they have not heard the message? And how can they hear if the message is not proclaimed?” (GNT).
He was speaking specifically about the gospel but isn’t the whole Bible full of Good News?
When we proclaim it aloud and anew, we are literally strengthening the inner man (or woman!).
May we take hold of the truth and every tool that helps our hearts cling to Hope.
I’m ending Bereaved Parents Month by sharing this post because I still have moments when I marvel that I’ve survived.
❤
It was the question I asked the bereaved mother that came to my son’s funeral.
It was the question a mother asked me as we stood by her granddaughter’s casket, surrounded by family and flowers.
And it is the right question.
Because when the breath leaves the body of your child, and you look down at the shell that used to be the home of a vibrant, living soul, you simply can. not. breathe.
My life is filled with lots of different kinds of people.
Because of this ministry, I message or talk to bereaved parents every day but I also message and talk to friends and family who have no clue what living with child loss looks like.
I learn something from all of them.
I try to be open to support and encouragement even when it comes from unlikely sources.
I remember the first early, very tender, very emotional days, weeks and months when I felt like a walking nerve. Any stray word or look was likely to bring tears to my eyes and drive me into seclusion for hours.
I couldn’t imagine that anything anyone who hadn’t walked this path could say would be helpful.
How could it be when they just. didn’t. know?????
And yet…over time, my heart softened by pain and sorrow and I realized that while others may not know my particular brand of suffering, they are often carrying a burden as well.
Even if the size and shape of their load is different than mine, they are learning from the journey and some of their wisdom might help me just as some of mine might help them.
Self-care, good boundaries, safe friends who allow us to share openly when we are struggling, grace, helpful, healthy habits-all those things are useful regardless of what we are going through.
If I close myself off and refuse to share life with anyone who isn’t situated precisely as I am in this life I didn’t choose I will miss oh, so very much!
I love, love, love the deep friendships I’ve formed with other bereaved parents (although I hate, hate, hate the way we found one another).
Online groups, the community around this blog, at retreats and through book and Bible studies, these parents form the foundation of strength and encouragement that has helped my heart hold on to hope.
But I also have beautiful nonbereaved friends who listen to my stories, share my tears and fears and who have walked and continue to walk beside me on this rocky road.
So don’t overlook or undervalue support regardless of where it comes from.
Look around.
Listen closely.
You might just be blessed more than you think.
If your heart is struggling and longing for companionship, here are some online communities that might be just what you’re looking for:
Heartache and Hope: Life After Losing a Child (closed group)
When days become months and months become years it’s hard to explain to others how grief is both always present but not always in focus.
I’ve struggled to help those outside the loss community understand that the absolute weight of the burden is precisely the same as when it fell on me without warning that dark morning.
Dominic’s absence, if anything, has seeped into more places, changed more relationships and influences more choices than it did eleven years ago when I was only just beginning to comprehend what a world without him would look like.
Sometimes I’m envious of folks hobbling along in those plastic boots designed to support an injured leg or ankle and aid healing.
Not because of the injury–I’m thankful I’ve never broken a bone-but because it’s an outward warning to anyone who might otherwise be impatient or insensitive that they just can’t go any faster.
I think there ought to be a t-shirt, pin or banner that gives the same kind of warning for those of us walking around with broken hearts and broken lives.
thelifeididntchoose 