Spoon Theory Applied to Bereavement

I thought I would follow up yesterday’s post with another one to help folks recognize when they NEED to rest.

I don’t know about you but I have a hard time figuring that out sometimes.

One approach that has helped me is something called “Spoon Theory”.

Spoon Theory was first described (as far as I know) by Christine Miserandino of butyoudontlooksick.com.

The original article pertains to chronic illness.  But when I stumbled across it a couple years ago it really clicked with me.

The basic idea is that everyone starts with a finite number of “spoons” representing the energy, attention and stamina that can be accessed for any given day. When you do something, you remove a spoon (or two or three) based on the effort required.  When you have used up all your spoons, you are operating at a deficit. 

Like a budget, you can only do that so long before you are in big trouble.

The only change I would make is to say that in the first months and years, most bereaved parents have far fewer than 12 spoons. 

Grief uses at least half of them by itself.

But it’s helpful for me to recognize that I do not have an infinite supply of energy and stamina regardless of what I think has to be done or how many more hours there are in a day.  I’ve written about that in this earlier post:   Emotional Bankruptcy: I Can’t Spend the Same Energy Twice

And I think it’s a great graphic to show to family and friends so they can understand why we simply CAN’T do everything we used to do.

spoon theory

 

Receiving Rest

It’s hard sometimes to admit that I’ve reached the end of my physical strength. 

I’m much more adept at finding the edges of my emotional limits.  I’m even half-way good at understanding that my brain just isn’t what it used to be.

But giving up on getting up?  That feels like defeat to me.

But it’s not.

I am a fragile human being and just like all human beings have limits.  My body can only take so much.  If I push too far past the boundary of exhaustion it will take more than rest to bring it back to working order.

tired

So today, after six weeks of stress, mental strain and travel, I’m resting.

Not just sitting down for a few minutes between chores but curling up with a book and glass of tea and not moving all day.

rest renew and reconnect

At least that’s my plan.

We’ll see how it goes.

I really need to rest.

I hope I can.

we all need a break ordained sabbath

Commanded to be Hospitable

the answer is still and again love

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Lord, when one of us hungers, make it our instinct to feed.

When one of us is displaced, make it our instinct to share our home.

– Common Prayer

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longer table

The TRULY Beautiful People

I’ve spent the last three days with over a hundred bereaved parents.

And they are all beautiful.  

Beautiful in their bravery and their brokenness. 

It was probably the most diverse and HONEST “church service” I’ve ever been to-and it had nothing to do with the facility.  It had everything to do with hearts.  

These are hearts desperately longing to beat to the rhythm of the heart of God.  Hearts that are too shattered to pretend when there is an altar call.  Hearts that don’t care if sobs escape or tears stream down.

And hearts that receive other hearts with open arms no matter if the body that carries them looks familiar or proper or fashionable or is the same color as their own.

It was hard to be surrounded by so many hearts carrying so much pain. 

But it was also beautiful. 

I wrote this last year and was reminded of it yesterday:

We spend so much time, money and effort trying to make our decaying frame look less like the temporary shelter it’s intended to be and more like an eternal monument to beauty.

But try as we might, we are impotent against the forces that will eventually drag us to the grave.

What if, instead, I worked as diligently to exercise my inner woman as I do my too-generous bottom?

Read the rest here:  Beauty That Lasts

Being There: No Substitute For Showing Up

I totally get itwe are ALL so busy.

Calendars crammed weeks and months in advance and no white space left over to pencil in lunch with a friend even though we desperately NEED it.

It seems impossible to make that call, write that note or stop by and visit a few minutes.

How can I meet my obligations if I use precious time doing the optional?

But when the unexpected, unimaginable and awful happens, suddenly that calendar and all those appointments don’t matter.  Balls drop everywhere and I don’t care.

Because when your family or best friend needs you, you come-no questions asked.

You toss a few necessities in your carry-on, lock the door, unplug the coffee pot and RUN.

You connect that phone to the car charger and dial away as you drive down the road.

And you show up.

Because when someone needs you, REALLY needs you, there is NO SUBSTITUTE for presence.

And the world keeps spinning.

All those “important” commitments cluttering my calendar are still there.  But a few phone calls later and they are easily rearranged. Medicine refills can be sent almost anywhere.  Church responsibilities can be shouldered by someone else.  Social dates can be rescheduled.

The only thing that matters is being exactly where your heart tells you it needs to be for exactly as long as you need to be there.

But you don’t have to wait until it’s an emergency to show up.

If it can wait if it HAD to, then it can wait.

You will not be going over a “to do” list with your last breath.

Choose to make people a priority right now-you might not get a second chance,

cant change the beginning but can change the ending

 

 

 

Nope, Not Crazy. It’s Just Grief Brain.

Oh, my goodness!!!

If grief brain is my constant state of mind, adding stress upon stress (like your mama being life-flighted to the hospital!) and it gets even worse.

These last weeks I’ve had to ask for grace repeatedly as I fumbled for words, fumbled for keys and made stupid mistake after stupid mistake.

But I’m not crazy, just can’t access my brain like I used to.

So for those who are feeling the same way, here’s a reposting of a blog that sheds some light on how our brains change because of grief.

I’m looking right at her.

know her.  In fact, I’ve known her for years.  But please don’t ask me her name.

I have no idea.

Read the rest here:  Grief Brain: It’s a Real Thing!

Out of the Depths I Cry

So many times I feel like this violet, clinging to a tiny foothold in a treacherous world-only enough strength for today, only enough bravery for today, only enough mental and emotional reserve for today.

But I know as surely as the sun rises, that tomorrow God will be present to give me what I need for THAT day too.

violet in crevice of rock

Out of the depths I cry to You, O LORD,
O LORD, hear my voice,
Let Your ears be attentive to my cry for mercy.
I wait for the LORD, my soul waits,
and in His word I put my hope. 
My soul waits for the LORD more than watchmen wait for the morning,
more than watchmen wait for the morning.

~Psalm 130-selected NIV

Sympathy or Compassion? Los Vegas and the 24 Hour News Cycle

It’s not enough to shake my head and say aloud, “How awful!”

It’s hardly a challenge to agree with every voice that decries tragedy and calls for justice.  

But it’s something else again to move my body, give my time, put my money where my mouth is.

Sympathy says and does what makes ME feel better.

Compassion requires that I do what makes SOMEONE ELSE feel better, even when it makes me feel worse.

Sympathy is easy and short-lived-that’s why even this awful Los Vegas shooting incident will be old news by the end of next week.

Reporters are already scrambling to find obscure but interesting tidbits to hold their audience’s attention and maintain ratings.  Sympathy lasts only as long as it takes to make a Facebook post, send a card, shoot a text or grab a tissue to dab a few tears.

Compassion doesn’t need salicious details to keep its interest.  

Compassion (to suffer with) cannot be ignored.  It accompanies every waking moment and follows my heart into dreams.  Compassion forces me to do what I would not otherwise do because the pain won’t let me rest.

Compassion is in it for the long haul.

So I’m going to turn off the TV, the radio, stop searching the Web for news and tune in to what my heart says I need to DO.  

I refuse to participate in a culture of HYPE but am committed to work toward a culture of HOPE.

Violence doesn’t spring from nowhere. 

Hate isn’t grown in a day.  

questions just as important as answers mr rogers

NOBODY Does it Alone

Even if you think you are the Lone Ranger-riding the hills and vanquishing enemies all by yourself, you aren’t.  Heck, HE wasn’t alone either (thus my confusion over his name).

Lone_ranger_silver_1965

Every single one of us has people in the background making life as we know it possible.

And when life as we know it takes a sudden left turn, all those “invisible” people become oh, so important.

It happened when Dominic ran ahead to heaven.  The eleven days between the knock on the door and his funeral were filled with friends, family and even strangers who came by, brought meals, cleaned my house, made phone calls, and did all the things I just. couldn’t. do.

These last weeks have been the hardest season since Dom left us.  When I got the phone call Mama was being life-flighted my heart dropped to the floor.  Having been there once before, I was not at all ready to revisit the awful pain of loss.

So I gathered what I needed, made a few phone calls of my own and my children and I raced down to be with her and my father.

Thankfully, the ending to THIS story, though hard, isn’t tragic.

After the first eleven days in hospital and only a few at home before a second hospital admission, Mama is back at home getting stronger.

mama and me at beauty shop

Things are different.  Changes are required. 

But she is smiling and beautiful.  Still with us. 

Hallelujah!

But in order for me to stay with my folks for 27 of the past 31 days I have had to call on and depend on the help of others.

For me to leave MY responsibilities at home, someone else had to pick them up.  Horses and goats and dogs and chickens don’t feed themselves.  The church deposit has to be made each week.

My husband has graciously accepted that our communication is limited and sporadic.  What used to be long phone calls every day turned into short bursts and quick texts that let him know I was OK and still breathing.

My youngest son, Julian, laid aside his own project of remodeling his first home to pick up all the things I normally do around the farm-no complaints and no questions asked.  He is patient with me when my tired brain can’t think of words while trying to give him yet another chore that needs done.

My daughter, Fiona, finishing a tough last semester in RN school, as well as working and putting in required clinical hours, has called to check on me and her grandmother, offered excellent medical tips and helped me ask for the things we need for Mama.  She shoots me funny memes and encouraging texts that provide laughs to boost my immune system and bolster my courage.

My eldest son, James Michael, has squeezed in a weekend visit to my parents’ house in between helping his AF base recover from Hurricane Irma and a hundred other responsibilities as the Public Health Officer for a large command.  He drove the tractor and helped bale hay.  He brought flowers for Mama and BBQ ribs and sweet tea for me. 

My friends at church have graciously given me space and taken up slack so that I didn’t have to worry about my duties as treasurer.  No pressure and no tacky comments-only love and understanding from folks who KNOW how important family is.

My very special friend, Laura, sent me back from my brief three day stint at home a couple weeks ago with helpful herbal tinctures to brace my body for stress and hard work.  And she always listens without trying to fix me.

Dominic’s example as a strong advocate gave me the backbone to stand and insist that Mama get the care she needed when in hospital and at home.  I could hear him say, “Don’t let them get by with that!” to my often trembling heart.

And many, many of my parents’ friends and our extended family have phoned, sent notes and stopped by to encourage my heart and theirs.

People keep saying, “You are doing a good thing for your parents”.

I appreciate that.  But I want them to know that I am not doing it alone.  It goes back in a long chain to those who choose to take up the slack I leave behind when I drive out my lane.

I would not be free to help if others didn’t choose to help ME be free.

So I want to give a loud and public shout out to each one that has done this hard and necessary work in the shadows.

You are amazing.

I love you.

heart stone

 

Zero Points for Pretending: You Can’t Hide Your Heart

Oh, sometimes I think I’m clever enough to do it.

I edit my words, costume my body and fix my face so  I can act the part.  But truth is, I never manage to fool anyone who looks closer than my plastic smile.

I can’t hide my heart.

And I don’t know why I try-I don’t get points for pretending.

There’s no prize at the end of this long road for the one who makes it with fewest tears.

No one offers me any token for the months or years or decades I make it without breaking down or cracking up.

exhausted-over-trying-to-be-stronger-than-i-feel

But I damage my own soul by shoving the feelings deep.  I clog my arteries by swallowing every angry word.  Sorrow turns to despair which turns to hopelessness if I never let it out.

And like it or not, it leaks out somewhere.

So I’m learning to speak my truth, to name my feelings and express them in healthy ways: 

  • I journal.
  • I share in safe spaces like bereavement groups and my church small group.
  • I exercise-which helps to burn off “steam” or just that awful sense of discomfort when darker feelings overwhelm my heart.
  • I build rest into my day along with silence so my mind and heart get a break from constant self-restraint and editing needed during conversation.
  • I read helpful articles and books.
  • I write this blog.
  • And when I need to, I talk to someone who is making my journey more difficult and try to work it out.

All of this takes energy and effort when I have the least of either to spare.  But the alternative is too grim to consider.  

I don’t want to walk the rest of my years carrying more heartache than that of child loss-which is heavier than I could ever have imagined. 

I choose to shed the extra pounds of emotional baggage I can leave by the roadside.

I won’t hide my heart.  

feel deal heal