Child Loss and SAD: Seasonal Affective Disorder

Most people are familiar with SAD-Seasonal Affective Disorder-a cluster of symptoms mimicking depression that develop in otherwise healthy folks when the shorter days and longer nights of winter limit sunshine exposure. 

Fewer folks know that nearly every bereaved parent has his or her own version of SAD which has nothing to do with daylight/darkness cycles and everything to do with the calendar. 

For me, it starts in February and runs through May. 

The last time all my children were together was mid-February 2014 as we celebrated the youngest’s birthday.  I remember sitting outside on the unusually warm day and chatting about random things.  There were two upcoming graduations and my oldest son’s wedding.

Someone said, “Hey, we should get a picture.”  Someone else said, “Nah-we’ll be making lots of pictures this spring.”  

So we didn’t take one.  

Every year that’s the day my heart marks the beginning of the end.  

The beginning of a march toward the most awful thing that has ever happened to our family.  

family never gets over the death of a loved one

Then there’s the day Dominic came out to the farm to fix a friend’s car.  They needed the tools and shed to do the job.  We joked and talked and shared a meal.

Then I hugged him and he went on his way.

That grease-stained jacket is still hanging on a peg in the downstairs bathroom.

Spring Break.  I thought I’d see him again before classes resumed but a trip that lasted a day longer than it was going to meant he drove directly to his apartment.  So a couple of weeks passed before he was able to plan another weekend trek out to the house.

I had just exchanged a series of messages with him, sharing photos of the heavy rains that ran our creek out of the banks and almost into the elevated roadway.

julian and creek in 2014

We ended our texts with “I love you.  See you Saturday!”

My heart still accuses me for neglecting the days between the last time I saw Dominic and the last time he drew breath.  If I had known then what I know now…

But we don’t, do we?

So on my season goes. 

From February and all the “lasts” to April twelfth and the devastating news that my son would never come home again.

Then my heart marks the funeral, cleaning out his apartment and the first family celebration of which one of my children was not a part.

A few weeks later is Dominic’s birthday on May twenty-eighth when he doesn’t get any older but I get further away from the last time I hugged his neck.

A long sad season indeed.  

Every parent who is missing a child has their own.  A time when he or she wishes the world would both stop to take notice and spin faster to make the days pass.

My heart and body respond even if my mind tries to pretend these weeks are really no different than the rest of the year.

My son is still missing.  

My heart is still yearning.  

This is still the life I didn’t choose.  

dominic at olive garden

 

Background Music

Another bereaved mom wrote that she was better able to cope now than she had been a year ago.

And thanks to Facebook memories she had proof.

Several comments down a second mom wrote something that got me thinking-when, exactly, did Dominic’s loss move from the forefront to the background?

I’m not sure I can pinpoint a day or moment when I realized that sorrow was no longer ALL I feel and Dominic’s absence no longer ALL I see.

I remember when more experienced loss moms posted and talked about grief being gentler and quieter I thought that they were out of their minds.

How in the world would this breath-robbing, heart-stopping, crippling pain ever be anything close to “gentle”?

How could the pulsating, blasting, all-consuming noise of loss become softer?

In the first days, months and even years, everything about loss was so loud it was all I could hear.

Rock concert, standing-next-to-the-giant-speakers-loud.

So loud it shook my body and made me want to cover my ears.  There was no way to block the sound, no silent corner where I could retreat and hide.  Just relentless pounding noise and pain.

But little by little, in imperceptible increments the volume decreased.

Now, missing Dominic is the background music to everything.  A quiet tune I hum in my head that keeps me company all day and invades my dreams at night.

If I take a moment and pay attention or when other things quiet down, it moves again to the forefront.

My head and heart are never free of the music Dominic brings to my life.  He is the soundtrack to my days, the lullaby as I fall asleep.

dominic at gray haven

No longer an ear-piercing scream demanding attention, grief is now mostly a quiet song in a minor key.  

Never silent.  

Always playing.  

music from dandelion

 

Repost: “Why Am I Robbed, And Who Is Benefited?” Mark Twain on Child Loss

I only recently came across this quote by Mark Twain.   

It’s from a letter he wrote to a close friend after his favorite daughter, Susy, aged 24, died of meningitis while her parents were abroad. 

It is heartbreaking and utterly perfect. 

Read the rest here:  “Why Am I Robbed, And Who is Benefited?” Mark Twain on Child Loss

Child Loss: Setting Aside Time To Grieve Helps My Heart Hold On

One of the commitments I made out loud and in my heart the day Dominic left us was this:  I was not going to let his death tear my family apart.  

I was not going to let him become the sainted brother that stood apart and above his siblings.  

I was going to continue to give as much of my time, effort, love and presence to each of the three I had left as I had done when there were four on earth beside me.

I’ve been more or less successful in keeping this promise.

I have no doubt that if you asked my living children, they could give you examples when I’ve failed.  Some days are just too much.  Some events are too hard to attend.

Some moments I am overwhelmed

and undone

and there’s no way to hide it.  

But I’ve learned a few things that help me be present, attentive and joyful for the beautiful things that are happening around me.

One of those is to set aside time whenever possible to “pre-grieve” an upcoming celebration or gathering.

hand-coffee-roosevelt

I allow my heart to feel all the things it needs to feel.  I journal the questions and comments and (sometimes) anger that would otherwise overflow and ruin a moment.  I write to Dominic and tell him how much I miss him, how much I wish he were here and how very hard it is to mark another happy occasion without him.

I mentally rehearse walking in, greeting people, making small talk. 

I think ahead to any big moments that might tap emotions I need to hold in check.  I even plan an “escape route” should I need it. Just knowing it exists has always been enough so far. 

Sometimes I find a song that suits my mood.  

I cry.  

And then I choose a token I can wear or slip in my pocket to remind me that I’ve got this.

I can show up and smile (honestly) because I’ve already loosed the dam of grief and let the stored up torrent flow over the spillway.

I’ve learned the hard way that memories are precious.  I don’t want the ones I’m making now to always be tainted by sorrow and loss.  

Dominic is never far from my thoughts and always in my heart.  

I’m not abandoning nor forgetting him.

I honor him by honoring his siblings.  

Love lives.  

happy birthday balloons no words

Repost: Is My Son My “Guardian Angel”?

It’s really hard to wrap my mind around what exactly Dominic is doing now that he’s not here with me.  Sometimes I try to create a narrative or a scene or a story line that gives me something to hold on to.

It’s not easy though.  

So I absolutely understand why some parents think of their missing child as their “guardian angel”.  But that just doesn’t correspond to what Scripture tells me about what happens after death.

I firmly believe that there is a heaven and that my son is there, in the presence of Jesus and the saints that have gone before.

Read the rest here:  Is My Son My “Guardian Angel”?

Grief Lasts As Long As Love Does

I know that before Dominic ran ahead to Heaven I didn’t really think a lot about grief.  

I had lost grandparents and other relatives, but no one so close to me that the thought of how I was supposed to relate to them after death made a daily difference.  

I realized when Dominic left, that all the love I ever felt for him I still felt. 

All the parts of me that belonged to him still belonged to him and the parts of him that belonged to me still belonged to me.  

grief is the last act of love angel and candle

Love doesn’t die.  Love lives as long as the person doing the loving has breath.  

Grief doesn’t replace love. 

It IS love.  

all acts of grief are normal

Worse For Wear, I Don’t Care

I have never been one of those women who lied about her age.

My weight…well, you will have to threaten me with something that matters to get THAT number out of my lips.

But I’ve noticed this year more than others since Dominic left us that the wear and tear of years and tears and life and loss are showing up on my face as well as my hips.

I am definitely the worse for wear.

My daughter is getting married in May and for the first time in my life I am religious about applying under eye cream and moisturizing lotion to my face each morning and night.

who wants to look young

I don’t want to be the sore thumb in the family pictures!

I’m not sure it’s working.  I’m not sure anything can erase or roll back the marks that life and love and loss have etched on my face.

I’m not sure I want to.

Because each wrinkle, each line, each saggy, baggy skin flap says, “I loved, I lived and I am surviving-even though it’s hard.”

Before Dom left I was camera shy.  I still am, a bit.  But I’m trying hard to suck up my pride and my insecurity and let those flashes pop.  Memories are made one day at a time and photos help preserve them.

engagement party group shot (2)

So whether I’m at my best, at my worst or somewhere in between, I won’t say no to a Kodak moment.

I wish I had more of them from “before”.

Dominic and family at PRSSA banquet

I wish I hadn’t’ been so darned particular about what I looked like, what I was wearing and whether or not my wrinkles or big butt showed.

Worse for wear?

Who cares?

This one wasn’t made to last.  

For instance, we know that when these bodies of ours are taken down like tents and folded away, they will be replaced by resurrection bodies in heaven—God-made, not handmade—and we’ll never have to relocate our “tents” again. Sometimes we can hardly wait to move—and so we cry out in frustration. Compared to what’s coming, living conditions around here seem like a stopover in an unfurnished shack, and we’re tired of it! We’ve been given a glimpse of the real thing, our true home, our resurrection bodies! The Spirit of God whets our appetite by giving us a taste of what’s ahead. He puts a little of heaven in our hearts so that we’ll never settle for less.

2 Corinthians 5:1-5 MSG

A Whole Series of “Lasts”

One of the things even the most uninformed person understands about loss is that the first birthday, the first Thanksgiving, the first Christmas and all the “firsts” after loss will be hard.

But one of the things no one tells you about is that a heart will mark the “lasts” just as much.

The last time I saw him.

The last time I spoke to him.

The last time I hugged his neck and smelled the unique fragrance that was my son.

missing child from arms

 

Every year as I approach the anniversary of the day Dominic left this life and stepped into Heaven, I also remember all the last times.

It’s hard on a heart to think about and wish that somehow I had made more of those moments.  I long to have just one more opportunity to say what needs to be said, to see his smile, hear his voice, and hug his neck.

But there’s no going back.

So part of the pain of marking the milestones is knowing there is no way to change a thing.  Not only the FACT that my son is gone, gone, gone.  But also the FACT that whatever I said or did or left unsaid or undone is utterly and undeniably carved in stone.

I don’t know why this anniversary is hitting my heart harder than last year.  Maybe it’s because I recognize how much life has happened since Dominic left us.  Maybe it’s because I think in terms of decades.  Maybe it’s because there are so many exciting family celebrations that he won’t be part of.

I have no idea.

But it’s nearly five long years since my son crossed the threshold of his family home.  It’s nearly five years since I heard that familiar deep “Hey!”.  It’s nearly five years since I waved him down the driveway and hollered, “Be careful!” as he drove back to his apartment.

I am thankful for the faithful love of my God and my family.  I am thankful for the compassionate companionship of friends.  I am thankful that I am still standing after the awful blow that I was sure would knock me so far down I’d never get up again.

But I miss him.  I miss him.  I miss him.

I will never be able to watch the early spring flowers bloom again without also remembering that it was those blossoms that heralded the good weather that lured him to take his motorcycle that night.

I will never hear Spring Break plans without counting the days between his last Spring Break trip and the day he met Jesus.

dom and julian spring break

I cannot step outside and smell the grass growing, feel the breeze blowing and hear the birds singing without my heart skipping beats and doing the math.  Today marks less than two months before the day he left us.

I understand that for others-if they remember at all-Dominic’s departure is a day circled on the calendar.

For me, it’s an entire season.

I mark every single day that led up to that day.  I remember every single conversation, meeting, text and phone call.  I remember all the things I did and regret all the things I didn’t do.

While the world is celebrating new life, I’m remembering a life that ended.

miss-you-every-day

Child Loss: Helpful Tips for Interacting With Bereaved Families

I firmly believe that our friends and extended family want to reach out, want to help, want to walk alongside as we grieve the death of our child

 I am also convinced that many of them don’t because they don’t know how.  

It may seem unfair that in addition to experiencing our loss, we also have to educate others on how to help us as we experience it, but that’s just how it is.

The alternative is to feel frustrated and abandoned or worse.  

So here’s a list of helpful tips (and a great infographic!) for interacting with bereaved families:  

Express condolences and show you care. Don’t avoid me, please!  You cannot make me any sadder.  I need to hear from you.

friends hugging

Refer to my child by name.  Dominic is STILL my son.  He is still part of my story.  But because he’s no longer visible, his name often goes unspoken.  Please talk to me about him, use his name, tell me a story of how he impacted your life or a memory that makes you smile.  It makes me smile too.

Actively listen and be supportive.  It’s hard to listen to someone tell you how much they are hurting and not offer advice or think of ways to “fix” them.  I can tell you from experience that what I need most on my darkest days is for someone to say, “It IS dark.  I’m so sorry.”  Silence is OK too.  Not every quiet moment needs to be filled with chatter.

listening is a postive act

Understand that each family and family member will grieve in different ways.  You may have observed child loss before but what you saw in one family may not translate to the next.  There are no hard and fast rules for this awful journey.  The age of the child, family background and structure, manner of death-all these impact grief.  In addition, mothers and fathers, sisters and brothers all bring their personalities, stage of life, beliefs and experiences to the journey.  There were five of us left behind when Dominic ran ahead.  We were each devastated but expressed it in very different ways.  Nearly five years later, those gaps have widened, not narrowed.

Fathers grieve too.  Sometimes support focuses almost exclusively on the mother.  In part because of a common notion that mothers are somehow emotionally closer to their children than dads.  In part because many men are less demonstrative and may do a good job hiding grief.  Whatever the reason, don’t assume one parent is dealing “better” with the loss than another (mother or father) just because he (or she) is not crying openly.  No one escapes this awful blow unscathed.

bereaved fathers

Don’t overlook siblings.  Surviving siblings are sometimes referred to as “forgotten grievers”.  If they are very young, people may think they are relatively unaffected by the death of a brother or sister. If they are grown and out of the home, people may figure that the siblings’ own, very full and very busy, lives keep them preoccupied.  While some of that may be true-to an extent-most surviving siblings are deeply impacted by the death of a brother or sister, regardless of age.  Not only have they lost a member of the family and changed birth order, they have also lost the family they knew, the parents they knew and a co-keeper of memories and secrets.  Bereaved parents are often overwhelmed with grief for their living children as well as the child that is missing. One of the best gifts anyone gave me was reaching out to my surviving children.  It helped my heart to know that they had friends who were supporting and loving them well.

kids cartoon

Be yourself.  People often feel awkward and stiff when approaching a bereaved parent or family member.  That’s perfectly understandable.  The bereaved seem so fragile (are so fragile!) that folks are afraid the wrong word or touch might shatter them into a thousand pieces.  But what your friend or family needs right now is the you they’ve always known and loved.  If you are a hugger, hug!  If you are a storyteller, tell stories (appropriate ones, ones of the missing child).  If you are a cook and cleaner, then cook and clean.  Our family was blessed by our friends doing exactly what they had always done-come alongside in their own special way.  So much had changed in our world that familiar touchstones, familiar routines and familiar faces were a real comfort.

Keep in mind words matter.  Now is not the time to try to satisfy your curiosity about exactly “what happened”.  Loud joking is rarely welcome.  Many bereaved families find it hard to laugh in the first days, weeks, months because it feels like betrayal.  Don’t offer platitudes intended to help them “look on the bright side” or consider that “it could be worse”.  There is nothing worse than burying your child.  Nothing.  Listen and take direction from the person you are comforting.  Follow his or her lead.  And if something less than helpful slips out, own it and apologize.

pencil-drawing-bereaved-mother

It’s never too late to reach out.  NEVER.  Sometimes people stay away at first for lots of reasons.  Or they show up for the memorial service and then fade into the background.  After a bit, even if they want to reach out, they may feel embarrassed by the long absence.  Don’t be.  So many people stop calling, visiting and texting within the first weeks that your outstretched hand of friendship will be a welcome beacon of hope.  If you need to, apologize for your absence.  Be honest.  Admit you were scared or whatever.

Then show up. 

Stick around.

You don’t have to be perfect.  

Just be present.  

bereaved families infographic

Repost: What is Safe?

I remember as a  young mother of four working hard to keep my kids safe. 

dominic and siblings little children at nannys

Next to fed and dry (two still in diapers!) that was each day’s goal:  No one got hurt.  

It never occurred to me THEN to add:  No one got killed.  

Because the most outlandish thing I could imagine was one of them falling or touching a hot stove and us having to rush to the emergency room.

Then I became a mother of teens and one by one they acquired a driver’s license and motored away from our home.  

That’s when I began to beg God to spare their lives.

Read the rest here:  What is Safe?