It Ain’t Over Til It’s Over

I hear you, mama.  That baby toddling away from the security of your arms-you miss those close snuggles and slobbery kisses.  But he’s not really LEAVING, he’s just growing.

cartoon baby

I know, I know.

First day of school blues.

Where did the time go?  How can you drop that little girl off at the front door and trust that her teacher will take care of her as well as mom?  She’s getting older, but she isn’t outside your influence.

cartoon male graduate

Oh my goodness!! Already graduating high school?  Moving out and going to college!  No more daily chats face-to-face across the kitchen table.  No more late night confession sessions.

He’s a young man, pulling away, making big decisions without you, but he’ll be home for Christmas and summer vacation.

 

 

For all you mamas lamenting the passage of time and the upheavals it brings I have a word: It’s NOT over.

Your child is still within reach.  You can call or text or visit.  You can touch his face, hug her neck, hear his voice.

Life is changing but it is still LIFE.

Feeling a little nostalgic for what WAS is perfectly normal.  Most of us humans aren’t that fond of change.

But children are ours for a season, not forever.  

They are given to us as gifts, not possessions.

For some mamas, like me, it really IS over.

The son I brought home from the hospital, the boy I watched grow and mature into a young man, the confident college graduate I saw drive away to start law school-he is gone.

I can’t call or text or visit him.

I can’t forge a different kind of  relationship across the miles or make special arrangements for him to travel home for the holidays.

I can’t make new memories or take new photographs.  I can’t hug his neck or hear his voice.

So it’s OK to feel a little sad that things are changing.  It’s like moving furniture around in the room-you stub your toe in the dark because things aren’t where they used to be.  

But for me, it’s like the house has burned down.

I felt a pinch in my heart every now and then as my children grew and more and more of their lives were spent away from me.  But I also celebrated each milestone, made much (and still do) of each achievement.

I didn’t want them to be frozen in time, stuck on a shelf, kept “small”.

Enjoy the time you have with your babies, with your children, with your teens-embrace the growing independent persons they are becoming.  

As long as they are walking the earth with you, nothing is OVER,  it’s just the beginning of something new.   

caterpillar thought it was over

 

 

 

 

Bill of Rights for Grieving Mamas

One of our family’s inside jokes comes from a movie about the Civil War.  A young soldier questioned about why he’s fighting declares, “I’m fightin’ for my rights!”-except is sounds like he’s saying, “I’m fightin’ for my rats!”

So we often laugh back and forth when faced with combative situations by using that line.

You wouldn’t think that grieving would be one of them.  But it can be.

I’m kind of a touchy-feely person. One who will hug strangers, pat puppies and offer a hand whenever I see someone struggling.

So it has been a bit of a surprise to find out that some people really want me to keep my grief in the closet.  

They would rather I  hide my tears.  They have decided on an appropriate number of days, weeks, months for my grief to run its course and then it should be “over”.

Now, let me just say that I do not think I have the right to ruin someone else’s day.  

I make appropriate arrangements when asked to participate in special events.  If I can go and be certain I won’t draw attention away from the celebration, I do.  If I can’t, then I’m honest about it and find another way to contribute.

But I can’t spend my life in a bubble.

I’m inevitably going to be around others when a wave of grief hits me. Sometimes I will not be able to control my reaction.

And that’s OK…

So here’s what I believe to be my rights as a grieving mom (other grieving parents may disagree-and that’s o.k.):

mr rogers and feelings

I have a right to my feelings. I am open to someone who has demonstrated sincere compassion to help me work through them  or to share their concerns if they see me heading toward destructive expression of them.  But it is not up to someone else to validate my feelings about burying my son.

I have a right to draw boundaries.  So much of my energy is being sapped by working through grief that I just do not have the resources to deal with everyday drama.  I care deeply about the other people in my life and I will absolutely be there for them when they really need me.  But I can’t be a sounding board for every little thing.

I have a right to talk about my son.  He is still my child.  He is still part of my life and my family’s life.  Most mamas talk about their children all the time.  I talk about my living children and I will continue to talk about the child I miss.

I have a right to cry.  Tears make most folks a little uncomfortable.  I acknowledge that and believe me, I try to hold them back.  But when they fall-I won’t hide them as if it’s shameful.  I won’t draw attention to myself, but I won’t always slink away either.

memories tears

I have a right to laugh.  Humor still moves me. And a belly laugh is good medicine.  But don’t mistake a moment of laughter as a signal that I’m “better”.  I am healing, slowly, but I am not whole.

I have a right to NOT talk about how I feel.  Life still happens and every emotion I experience is not necessarily tied to missing my son.   I don’t always need to “talk about it”. Sometimes, like everyone, I just need time to process and get over something.

I have a right to celebrate or not celebrate, participate or not participate in holidays, birthdays, remembrance days or any other special day or occasion however I am able-even if it means changing long-standing traditions or routines.  I do my very best to live up to the expectations and needs of the people that are close to me.  I want to have birthday parties, exchange gifts, celebrate graduations and weddings and other major milestones.  But sometimes I might have to attack these gatherings in a slightly different way.  I’m not the same person I was before Dominic left us and I can’t always do things the way I used to.

I have a right to be heard.  I don’t expect nor do I want to be the center of every decision or every event.  But I have a right to express my opinion, I’m not invisible.  And no one knows what is best for me except ME.  It’s easiest if people just ask me what will be most helpful instead of assuming that I would or wouldn’t like this or that.

Navigating the death of a child is a treacherous journey.  I understand that those who have not travelled this path may not think about how hard it is and some of the little things that can make it easier or harder.

I am so thankful for the ones who try.

friends pick us up

 

 

 

 

 

Who’s Holding on to Whom?

I have three surviving children.

And every time I don’t hear from one of them when I expect to or I can’t reach them on their cell phone I have to take a deep breath and speak truth to my heart.

God began to do a good work in you. And I am sure that he will keep on doing it until he has finished it. He will keep on until the day Jesus Christ comes again. Philippians 1:6 WE

 

I have to talk myself out of plunging headlong off the precipice of dark “What ifs” that is always at the edge of my concious thought.

 I have to remember that even when I am right there with them, I am not in control.

I am not the one who orders their days and determines their steps.

You see all things; You saw me growing, changing in my mother’s womb; Every detail of my life was already written in Your book; You established the length of my life before I ever tasted the sweetness of it. Psalm 139:16 VOICE

all my days written

Losing Dominic suddenly, unexpectedly and violently has shaken my faith. All the verses I recited and underlined and “claimed” now bear witness against my doubting heart.

So I remind myself that God had a plan, He has a plan and that He worked His plan through Dominic and is now working it through me.

“Now when David had served God’s purpose in his own generation, he fell asleep; [and] he was buried with his ancestors” Acts 13:36 NIV

Here I am, a bit more than two years later, and I can say this:

If my grip on Jesus was the determining factor in staying connected, I would have fallen into the pit long ago.  If MY hold on hope decided whether or not the rope slipped through my hands, I would be lost.

But while I can muster the strength (sometimes) to grab desperately at a thread of His garment, I am not the one who holds Him.  He is the One who holds ME.

no one can snatch them

Jesus said:

“I give them eternal life, and they shall never lose it or perish throughout the ages. [To all eternity they shall never by any means be destroyed.] And no one is able to snatch them out of My hand.”

John 10:28 AMPC

I still have work to do, and I don’t want to be immobilized by fear of what might happen.  I don’t want to waste the days that I am given by worrying about the ones that might be taken away.

gods workmanship good works

For we are God’s [own] handiwork (His workmanship), recreated in Christ Jesus, [born anew] that we may do those good works which God predestined (planned beforehand) for us [taking paths which He prepared ahead of time], that we should walk in them [living the good life which He prearranged and made ready for us to live]. Ephesians 2:10 AMPC

So I recite truth to my heart.  

I sing courage to my spirit.

I remind myself that while  I am not in control, but I am loved by the One Who is.

loved by the one in control

 

Where is Victory in Death?

I first learned my son had been killed in the dark hours of morning.

I made phone calls.

I had to be certain there was no mistake in identifying the accident victim.  I assured the officer on the other end of the phone I was not in denial, I was just confirming what I knew was true.

That was a lie-my ears heard it as true.

Some part of my brain was acting as if it were true.  

And I was passing the information along as true, but it was not until I saw his body that my heart embraced as absolutely undeniable what I had been told.

He was gone, gone, gone.  No coming back.

That’s when I knew:  Death is awful.

It is hard to have patience with people who say, ‘There is no death’ or ‘Death doesn’t matter.’ There is death. And whatever is matters. And whatever happens has consequences, and it and they are irrevocable and irreversible. You might as well say that birth doesn’t matter. ~C.S.Lewis

Death was not part of God’s perfect plan for the people He made and the world He created.

But sin marred that perfection and we are left to walk this wounded world in bodies that, at best, wear out, and at worst, plunge headlong into darkness due to illness, accident or violence.

Where is the victory in this defeat?

Where is the happy ending to this sad chapter of life?

Victory is declared when I trust in Jehovah-Nissi-the LORD my Banner-to uproot the evil that the enemy seeks to sow into my life.

desimones uab family

Victory is displayed in my surviving children who have chosen to lean in and labor on and love and laugh even while grieving the loss of their brother.

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Victory is demonstrated when my marriage does not crumble under the heavy weight of sorrow, when my family is made stronger- not weaker-and when our story breathes courage into the hearts and lives of others facing devastating trials.

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The ultimate and eternal victory lies in the finished work of Christ.

 I need to emphasize, friends, that our natural, earthy lives don’t in themselves lead us by their very nature into the kingdom of God. Their very “nature” is to die, so how could they “naturally” end up in the Life kingdom?

But let me tell you something wonderful, a mystery I’ll probably never fully understand. We’re not all going to die—but we are all going to be changed. You hear a blast to end all blasts from a trumpet, and in the time that you look up and blink your eyes—it’s over. On signal from that trumpet from heaven, the dead will be up and out of their graves, beyond the reach of death, never to die again. At the same moment and in the same way, we’ll all be changed. In the resurrection scheme of things, this has to happen: everything perishable taken off the shelves and replaced by the imperishable, this mortal replaced by the immortal. Then the saying will come true:

Death swallowed by triumphant Life!
Who got the last word, oh, Death?
Oh, Death, who’s afraid of you now?

It was sin that made death so frightening and law-code guilt that gave sin its leverage, its destructive power. But now in a single victorious stroke of Life, all three—sin, guilt, death—are gone, the gift of our Master, Jesus Christ. Thank God!

With all this going for us, my dear, dear friends, stand your ground. And don’t hold back. Throw yourselves into the work of the Master, confident that nothing you do for him is a waste of time or effort.

I Corinthians 15:50-58 MSG

Jesus has redeemed and restored what the enemy has stolen.

I will not enjoy the fullness of this victory until I embrace Dominic in heaven.

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But I can live confidently in the promise that it has already been decided.  

I can walk through the Valley of the Shadow of Death without fear, because Jehovah-Nissi-the LORD my Banner (my Victory) is with me.  (Psalm 23:4)

I am not alone. 

 

Choosing Brokenness

From the world’s perspective there are only two potential responses to trials-better or bitter.

I can either use the struggle to strengthen my resolve to take charge of my life or I can give up and give in, wallowing in self pity.  

If I embrace popular culture as my guide, the best outcome I can hope for is that I grow as a result of sorrow, pain, conflict, tragedy and hardship.

But Scripture tells me that there is a third option:  I can choose brokenness.  

I can choose to submit my heart and my life to God and His purpose.  

I can lie prostrate, unprotected, impotent and trust that the One Who made me will ultimately remake these shattered pieces of what’s left of my life into a masterpiece, declaring His faithfulness and goodness.

“But enduring deep pain and unchangeable circumstances requires continued commitment to face the fork in the road over and over, and to choose well each time.”

It is A Daily Struggle

 

Why Not?

I cannot bring Dominic back-I cannot have my child once again in my arms.  I cannot undo the damage death has wrought and the great gash loss has made in my heart.  

And so I am left with my pain and my questions.

“Why?” is not a particularly fruitful question (although I ask it still).

 “Why not?” is probably more helpful.

If I consider the lives of all the people God chose as examples of His faithfulness and grace there is not one who escapes heartache.

Not even one was allowed to walk this sod untouched by suffering that forced them to lean hard into the only Hope that lasts for eternity.

Adam and Eve reaped the consequences of their sin, were cast from the Garden and buried one son murdered by the other.

Noah watched the world descend into unbelievable wickedness around him and then witnessed the destruction of all flesh on earth.

Abraham left the familiar, trudged for years in a land promised but not given, had a son that he loved but had to send away because he was begotten outside the plan and will of God. He finally received the son of promise but was aked to sacrifice him.

He grew old without the blessing of possessing much of what God had promised him.

Jacob reaped the reward of his deception but lived a complicated and heartbreaking life.

Joseph enjoys a happy ending,  but it was a long lonely path that led him there.

David, Moses, Paul, the apostles, Elizabeth, Hannah, Mary, Esther, Ruth-all were called to walk in sorrow as vessels of God’s glory.

Only recently in human history have we been able, in small pockets of abundance, to mistakenly assume this mortal life is as wonderful (or, dare I say it?) MORE wonderful than the promised eternal life provided by God through the ultimate and complete suffering and sacrifice of Jesus.

I want victory without war.  

I want harvest without planting and working the fields.

I want to be happy and satisfied here yet still have a heart for heaven.

It is impossible to have both.

Only in light of eternity am I free to live a life set apart for God’s use in the here and now.

Only as a recipient of God’s grace can I be a conduit of that grace to others.

Only in deep sorrow can I find the true value of Christ’s promise that He will never leave me nor forsake me.

Only alone can I fully appreciate the gift of God’s constant companionship.

Only when I am truly hungry can I taste the bread that satisfies my soul.

Simon Peter answered, “Lord, to whom shall we go? You [alone] have the words of eternal life [you are our only hope].

John 6:68 AMP

Displaying Our Scars

What if, instead of hiding my pain, I allowed others to see it and offer it as a testimony of the power and grace of God in my life?

What if, instead of pretending that “everything is alright”, I admit that it’s not, but that God is still on the throne?

What if, instead of creating a gulf between myself and others by walling off parts of my life that I deem too messy, I throw open the door and invite folks inside-mess and all?

My scars make me who I am.  My struggles are part of who I am becoming.  And my messy life is the only one I’m likely to have this side of Heaven.

As I’ve written before:

If the people I meet think that I have it all together all the time, they are going to be much less likely to admit that they don’t.  And let’s be real, none of us have it all together.

We all have at least one place in our lives that hurts and that needs healing.

Everyone has scars.

Authenticity is the key to opening doors and creating communities where one person can reach out to another and where genuine healing can begin.

You can read more here:  Dropping the Mask

 

Graduations and Weddings and Trips, Oh My!

Almost anyone you ask anticipates that Thanksgiving and Christmas, two family-centered holidays, are difficult days and seasons  for bereaved parents.

And they are.  

Especially for families that enjoyed special times around the table, unhurried visits reminiscing about years past and traditions that reinforce the unique heritage of their shared history.

But this time of year is also challenging for me and many other parents who have lost a child.

The mailbox is flooded with graduation and wedding announcements. Social media newsfeeds are packed full of smiling parents surrounding relieved and grinning kids proudly displaying the culmination of their educational efforts.

Pretty soon photos will be rolling in as folks head to their personal “happy place” for family fun in the sun, mountains or amusement park.

Our own family participated in two graduations and a wedding within weeks of Dominic’s accident.

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My youngest child, Julian, graduated from UAB on April 26th-five days after we buried Dominic.

He walked the same stage where his brother had given the undergraduate commencement speech  a few years prior.

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Less than two more weeks and we were celebrating Dr. James Michael DeSimone as he graduated from Auburn University School of Veterinary Medicine.

Six weeks later-James Michael married his bride, Lillie, on June 21, two days shy of my thirtieth anniversary.

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Close to a year later in May, Dominic’s University of Alabama School of Law class graduated.

Some of his friends graciously arranged for me to receive his Juris Doctorate degree posthumously.

I sat, both proud and stricken, as his name was announced at the end of the graduating class and his photo flashed on the giant screen above my head.

So please bear with me and all the other mamas whose children aren’t here.  

While I rejoice with those that rejoice, I am also reminded, again, of what I have lost.

If it takes a little longer for me to send a graduation card, if I don’t “like” your status or post a sweet comment-it’s really NOT you, it’s ME.

lifetime

It’s Complicated

One of the things I’ve been forced to embrace in the wake of child loss is that there are very few questions, experiences or feelings that are simple anymore.

“How many children do you have?”

A common, get-to-know-you question lobbed across tables, down pews and in the check-out line at the grocery store.  But for many bereaved parents, it can be a complex question that gets a different answer depending on who is asking and where we are.

I decided from the beginning that I would say, “four” in answer to that query.

But that doesn’t always get me off the hook.  A follow-up of, “Oh, what do they do?” means that I have to make a decision:  do I go down the line, including Dominic in any kind of detail or do I gloss over the fact that one of my children now lives in heaven?

I try to gauge whether or not the person is deeply interested or just being polite. No sense making them feel uncomfortable if they are really only making chitchat.

All of these calculations flash through my mind in an instant but they are distracting and draining.

“Want to go to a movie?”

Maybe.  

First I have to look up the plot (something I never did before because I didn’t want to ruin it).  I can’t be stuck in a dark theater in the middle of a row full of people with no way out if larger-than-life there will be anything that sends me back to Dominic’s accident.

Same standards for television shows or books-but it’s easier to turn those off or set them down.

Sitting in church can be excruciating.  

A hymn or chorus, a Bible text, a random statement from the pulpit-any or all of those things can lead my thoughts down a path that takes me to a dark place where sorrow is overwhelming.

No matter how much I long to listen and participate, I find myself literally biting my tongue so that I don’t burst into loud sobs.

It doesn’t happen every Sunday, but I never know when it might.

Social media is an emotional minefield.  

first world problems

 

I confess that in the first days after Dominic left us, I had to limit the posts that showed up in my Facebook newsfeed.  It was too difficult to see complaints about children growing up or graduating and how hard it was to “let them go”. I could not take whiny status updates that included having to wait in line for the new iPhone.

It’s easier now that my grief isn’t so raw but there are days…

Making a meal, I reach for his favorite ingredient or leave something out because “Dominic doesn’t like it that way” and then I remember he won’t be here to eat it.

waves of grief

 

Music can transport me to a moment of joy or pain with a single note.

Sometimes I walk in a store and smell coffee-he loved coffee-and I have to turn around and leave.  Other times the fragrance draws my mind to sweet memories of shared Starbucks runs for a caffeine infusion.

 

If you ask me to do something next week or next month, I might say, “yes” and then find on that day I just. can’t. go.  

I used to be a woman who lived by her calendar and commitments, but now I’m someone who never knows what a day will bring.

Learning to live with this changed me is an ongoing process and exhausting at times.

So much energy is used up negotiating what used to be simple things that there’s not enough left for pursuing new interests or delving deeper into old ones.

I’m trying to reach equilibrium.  

I long for a time when simple things are simple again.

But I don’t think it will be today.

courage doesn't always roar

 

 

 

 

Mother’s Day as a Bereaved Mother

In recent years I’ve noticed more awareness of how hard it can be for women who struggle with infertility to walk into church on Mother’s Day and I am glad.

Pews filled with other women’s children and bulletin announcements, public recognition of “oldest mother”, “youngest mother”, “mother with the most children” along with the obligatory sermon based on Proverbs 31 conspire in a litany of accusation against the barren womb.

Some of these women choose to stay home.  Others may be silently lifting a prayer for grace or may, like Hannah, be begging God for a child.

As a bereaved mother, this is a complicated holiday for me too.

I am so, so thankful for all my children.

I received each as a gift from God and treasure them in my heart.

Being a mother has been and continues to be the most demanding and most rewarding thing I have ever done or ever hope to do.

I used to look forward to Mother’s Day.

Not so much because it celebrated me as a mom, but because it was a moment to pause, reflect and remember how wonderful it is to be surrounded by my children.

But there’s no train from here to Heaven, no telephone line that can bridge the gap between where I am and where Dominic is.

I will never again be able to gather my children around our earthly table, see each of their faces, hug their necks.

So bear with me.

  • Let me be happy for the children I can see and sad for the one I can’t.
  • I might join in with singing, or I might just close my eyes and remember Sundays past when we were sitting in the same pew, together and strong.
  • If you see me rush out of the sanctuary at the end of service, please don’t stop me.  Let me go-I may have held back sobs during the closing prayer and need to escape and let them loose.

And if you think of me and other mothers who have buried children, pray for me and for them.

Pray that we finish strong, that we persevere and that we continue to cling to the One Who can carry us through the rest of our days with hope and courage.

May the God of hope fill you with all joy and peace in believing [through the experience of your faith] that by the power of the Holy Spirit you will abound in hope and overflow with confidence in His promises.

Romans 15:13 AMP