A Day in the Life

If you get up every morning and go to work-I applaud you!

Most of my days start with work, but I don’t have to go farther than my own property to discharge my duties.

But today I had to get going extra early for a doctor’s appointment with a specialist about 50 miles away.  So I rushed through my morning chores, double-checked I had everything I needed and left home by 7:10.

I had to park in a parking garage-no easy feat when you drive a full-size pickup and the spaces are designed for mid-size cars.  The low roof, confined space and limited light make me feel trapped and uncomfortable.

Every time I have to fill out health paperwork there is always a question or two that makes me think of Dominic.  I shake off the beginnings of tears and wait to be called back.

My blood pressure is higher than it usually is and I’m a bit heavier than last time I was there-both things that make me feel like a failure and add to the voice in my head that says, “You aren’t good enough.  You are doing something wrong or this wouldn’t have happened to you.”  

My disease is progressing and although my doctor is kind, and patient, and fully aware of the fact that I’ve buried a child,  she broaches once again a treatment option that has more risk but potentially greater efficacy.

I’m just not ready to take the leap.

So my anxiety mounts as I think of both alternatives:  Submitting myself to a new treatment that may have grave consequences or giving in to the inevitable limitations that rheumatoid arthritis is imposing on my life.

She graciously puts off the decision for another three months but I know I won’t be in any better position to make it then either.  I’m paralyzed now when I have to decide these kinds of things-torn between “doing what’s best” and “what difference will it make?”

Bloodwork means waiting in a area next to the infusion clinic and hematology departments and I am surrounded by people that are in dire straits. Once more, between the waiting and the thinking, I’m ready to be out of there.

When I get back to my truck, what had looked like a pretty good place to park has become a nightmare.  Another truck beside me and two parked opposite have closed the space I should have had to get out to the bare minimum.  And someone is waiting for my spot.  

Oh, joy!

I try.

I really try to figure out how to get too much vehicle out of too little space.

Finally, in tears, I step out of my truck (now in what I think is an impossible position) and raise my hands in the air-I give up!  You win!

The kind man that was waiting steps out of his car and guides me backward and forward (4 turns!) until I am free from the awful predicament.  I thank him and keep going.

Before Dominic left us this day would have seemed like a tiny blip on the radar of life.  It certainly wouldn’t have brought me to tears.  

But the energy required to simply get up and get going in the wake of losing him means that I have so much less to spend on anything else.

I don’t suffer from anxiety.

I’m not depressed.  

But there are many moments throughout the day when I am anxious or sorrowful.

One minute I’m fine.  And then a series of events, phone calls or memories pile one atop the other until they become a load I can no longer bear.

It feels like I am always behind, always short on resources, always close to tears.

And no matter how hard I try, I am unable to simply “get better”.  No matter how much I organize or plan or work at it,  I always end up frazzled and frustrated and feeling like a failure.  

I wish it wasn’t like this-this added burden in addition to the missing and the sorrow. Maybe it’s part of the missing and the sorrow.  I don’t know.  

But I’m ready for a day, a single day, when I feel just a little bit victorious..

The Shadowlands

 

Isn’t God supposed to be good? Isn’t He supposed to love us? Does God want us to suffer? What if the answer to that question is, ‘Yes'”? I suggest to you that it is because God loves us that He makes us the gift of suffering.

I’m not sure that God wants us to be happy. I think He wants us to be able to love and be loved. He wants us to grow-up. We think our childish toys bring us all the happiness there is and our nursery is the whole wide world. But something must drive us out of the nursery to the world of others and that something is suffering.

You see, we are like blocks of stone out of which the sculptor carves forms of men. The blows of His chisel, which hurt so much, are what makes us perfect.

C.S. Lewis

Lewis referred to this life as “The Shadowlands”.  The place where we see the shape of the promise but not its substance.

I am caught between the world I live in and the world to come.  There is beauty in both, but only in Eternity will my heart be at home.

Right now, I am Living Between the Crucifixion and the Resurrection

not your best life

 

 

 

 

 

How Do You Breathe?

It was the question I asked the bereaved mother that came to my son’s funeral.

It was the question a mother asked me as we stood by her granddaughter’s casket, surrounded by family and flowers.

And it is the right question.

Because when the breath leaves the body of your child, and you look down at the shell that used to be the home of a vibrant, living soul, you simply can. not. breathe.

What should be an autonomic, automatic, don’t-even-think-about-it bodily function escapes you.

When your lungs finally scream for oxygen, your body takes over, against your will.

And even more than two years later, it’s where I still live-between the conscious world of aching loss that drains me of the will to go on and the unconcious biology of a body still functioning without my permission.

I live in a no-man’s-land with one foot in the HERE AND NOW and one foot in FOREVER.

But there are no bright flags to mark its borders, no crossing guards to give warning to the people I mingle with every day that they are over there- outside my world of hurt-and I am stuck in here.

And so they wave from across the way, cheerful and unburdened by the weight of sorrow I drag around.  They give me odd looks now and then, vaguely unsettled by my inability to plunge unrestrained into their fun.

Memory escapes them-what happened? how long has it been? shouldn’t she be over that by now?

They can’t understand, and I’m thankful for that.

“How do you breathe?”

Only the ones who share the secret knowledge know the answer to that question.

You learn to will your heart to keep beating and your lungs to keep filling because there are others who depend on you and who need you to stay.

You can’t hold your breath forever, even if you want to.  

You lean harder on the hope you have in Christ.

You recite verses and hymns and fill your mind with the promises of Jesus.

And you beg the Spirit of God to fill you to fullness with His breath, His life and His hope.

I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him. Then you will overflow with confident hope through the power of the Holy Spirit.

Romans 15:13 NLT

 

 

 

Safe Friends

I hope you have one.  

That one person who knows your greatest joys and deepest pain and keeps it locked in her heart as if the secrets were her own.  

She is a gift from God to me, that friend.  

She’s the one I call when I’m wracked with sobs and the words won’t come.  She knows it’s me and just waits on the line until I can speak. She gets my jokes, knows my weaknesses, my strengths and helps me steer a better path on this hard road called “Life”.

She is a safe friend.

listening is a postive act

A safe friend listens.  

Just listens.  

She isn’t formulating an answer while I am talking, she isn’t rounding up cliches or Bible verses or platitudes meant to make her sound wise and shush my sharing.  She hears my heart even when my words might not make sense.

A safe friend sees.  

Really sees.  

She looks in my eyes and pays attention to my expression. She notices when my smile doesn’t match the tone of my words or the silent language of my hands.

She won’t let me by with a quick, “I’m fine!” meant to brush off the real need to spill my guts.

A safe friend stays.  

As long as it takes.

She doesn’t leave in the middle of a hard conversation.  Even if life gets in the way, she will come back and pick it up.  She checks in with me and doesn’t let time unwind the threads that bind us together.  If I don’t contact HER, she contacts ME.

 

 

A safe friend walks with me.  

No matter how steep the path, no matter how rocky the road. We might be hobbling along, broken together, but she keeps going and she keeps me going.

 

 

A safe friend encourages me to look to Jesus.

She admits that she doesn’t have all the answers.  She agrees that there are many things we will have to wait to understand.  But she reminds me that for this, we have Jesus.  We have a High Priest Who was tempted in every way yet was without sin.  We can enter boldly into the Holy of Holies because by His blood the veil is rent.

She doesn’t issue spiritual ultimatums that undermine, instead of strengthen, my faith in Christ.

friends pick us up

 

A safe friend doesn’t cut me out of her life when my life is a mess.  

Even if the mess is of my own making.  She helps me untangle the knot, own up to the sin, reach out to Christ and make amends.

 

A safe friend doesn’t just “happen”.

She allows the grace and mercy and love of Jesus to mold her heart so that He can use her.

Everyone NEEDS a safe friend.

Anyone willing can BE that friend.

kindness

 

More Grieving Hearts-What Grieving Parents Want You to Know

Two weeks.

Two families added to the roll call of those who have lost a child-suddenly, without warning.  

Two more sets of parents, grandparents, siblings, cousins plunged beneath the sea of sorrow.

And those are only the ones I know about-the ones whose lives touch my own.

Every day we are shoulder-to-shoulder with people carrying a load that threatens to undo them.  If you haven’t experienced child loss you probably think you can imagine how it feels.

I know I did.

But I was wrong.

THIS is what it feels like:  What Grieving Parents Want Others to Know

hands and coffee

I am NOT Crazy!

It was just over a year after Dominic’s accident and a friend forwarded an article about odd behaviors of those who were “stuck’ in grief.  Along with the forward was a little tag, “Reminds me of you.”

It hurt my feelings.

And it was inappropriate.

Because not only had I not participated in any of the listed behaviors (most of which anyone would deem odd and some that were actually harmful) but as far as I could tell, I was doing pretty good, considering.

Considering I went to bed one night with four children alive and well and woke in the wee hours of the next day to the news that one was dead.

No warning.  No good-byes.

Just gone.

In the months since that day I had gotten up each morning and taken care of necessary tasks.  I was not abusing alcohol, drugs or food.  I was still exercising when I could.

And I was engaged with my family -working with them to put the pieces of our shattered lives and hearts back together again.

Yes, I cried.  A lot.  No, I didn’t like to be around crowds.  I stayed at home much more than before. I struggled with anxiety when anything out of the ordinary happened.  I found small talk hard to follow and forgot things (still do). And I was not participating in many “extra” activities.

I slept with Dominic’s pillows every night-it was a way to touch what was left of him.

But I was functioning.

My friend’s reaction to the fact that I was “still” grieving after a year is not all that unusual.

I speak to bereaved parents who are often made to feel by others as if they should “be over” the death of their child.

They are told to “move on”.

Or, in faith circles, to “be happy he is in heaven”.

Most mental health professionals agree that child loss is probably the most difficult loss anyone has to bear.  

A simple Google search will turn up dozens of articles that support this understanding of a parent’s heartache and lifelong struggle to embrace the pain of losing a child.

Yet most people are unaware of this fact.

So I’m here to tell you-grieving mama, grieving dad-you are NOT crazy!  

You are not overreacting to one of the most awful things that can happen to someone.  Out of order death is devastating!

When asked about his son years after he had died,  Gregory Peck replied:

every day

As I’ve written in a previous post Am I Normal?

No one thinks it strange that the ADDITION of a child is a life-long adjustment.

So, why, why, why is it strange that the SUBTRACTION of a child would also require accommodation for the rest of a mother’s life?

I understand that if you haven’t walked this path, you can’t REALLY know what it’s like-even if you try.

I don’t want you to know this pain by experience.

It’s awful and unrelenting.

What I do want you to know is I am NOT crazy for missing my son.  I am NOT crazy for wishing I could turn back the clock.

I am NOT crazy because this devastating, paradigm shifting, unbelievably painful event still impacts my everyday life.

Please don’t treat me like I am.

The best help a friend can offer is a listening ear-no judgement-and a hug that says, “I love you. And I’m sorry.”

changed for life

 

The Wrecking Ball of Grace

In the aftermath of loss, relationships suffer.

Sometimes it’s because of harsh words exchanged in the heat of emotional moments.

Sometimes it’s due to disagreements about how to deal with ongoing issues.  Often, it’s because most people just don’t know what to say and don’t know what to do in the presence of great pain and suffering.

Days and weeks and months pass and one day we wake up and realize that a previously close relationship is now distant and strained.

I know that in my grief I have felt abandoned by people I felt sure would stand with me, would never leave me, would be my most stalwart encouragers.

And I know, too, that I have shut some people out.  Some were too chipper or too quick to offer platitudes and others just seemed intolerant of my ongoing pain and sorrow.

Walls have been erected.

My heart sectioned off and my world divided into “us” and “them”.

I’m sorry for that.  That’s not the way I want it to be.

Walls between people are built brick by brick.

A word spoken or not spoken.  A call,  text  or message misinterpreted or mistimed.

But they can be brought down with one blow.

wrecking ball

Grace is a wrecking ball that breaks through walls and stone cold hearts.

Grace given and grace received.  

A call, a text, an email or message that says, “I’m thinking of you.  I’m sorry I haven’t been in touch.”

Or a card sent the old fashioned way filled with love to assure a wounded heart that it is not abandoned or forgotten.

Image result for image letter

“”I’m sorry.”

“I miss you.”

“I love you.”

It may not be easy and it might take several attempts.

 

 

 

But in the end, who can refuse extended arms and an open heart?

 

 

 

 

 

 

 

 

Faith

Part of our homeschooling routine was Bible reading.

I’ll never forget the first time I came to Hebrews chapter 11, often referred to as the “Hall of Faith”.  

It begins:

Now faith means putting our full confidence in the things we hope for, it means being certain of things we cannot see. It was this kind of faith that won their reputation for the saints of old. And it is after all only by faith that our minds accept as fact that the whole scheme of time and space was created by God’s command—that the world which we can see has come into being through principles which are invisible.

Hebrews 11:1-3 PHILLIP

From there the writer lists those who followed God even when the path was dark, even when the promise was beyond sight and even when it cost them their lives.  

I cried.

I remember thinking that maybe one day the children looking at me around that table might face a crisis of faith and I prayed that they would always choose to believe.

I never dreamed that it would be ME that had to wake up each morning and make that choice over and over again.

I’m not talking about the single, life-changing commitment to receive forgiveness through Christ’s blood.

But rather obedience to keep following His lead and strength to walk in His footsteps day after day regardless of how I feel or what I can or cannot see.

The choice I have to make is whether or not to turn my heart toward His, to open my ears to His voice, and to bend my will to accept whatever storms He allows in my life.

Suffering is NOT a choice, but faith is.

The End of the Story?

I have to keep telling myself that no matter how it looks right now, this is not the end of the story.  

Every morning I’m reminded by the “Cock-a-doodle-doo!” of my early rising roosters, that the light is coming….

Read the rest here:  Crowing in the Dark

Keep On Keeping On

The months roll by, the calendar pages turn, soon school will be back in session and you are still not here.

Sometimes I think I have figured out how to do these days that remain between now and when we will be together again.  

And sometimes I realize that I haven’t.

Today is one of those days.

IMG_2637

 

 

I miss you.

I love you.

 

 

I can’t round a corner without thinking of you and wishing this was not my life.

But it is.  

So I’ll keep on keeping on.  Just like you would want me to.

Just like you would do.

Even when it’s hard.  

And some days it is so very hard.