Child Loss: Helpful Tips for Interacting With Bereaved Families

I firmly believe that our friends and extended family want to reach out, want to help, want to walk alongside as we grieve the death of our child

 I am also convinced that many of them don’t because they don’t know how.  

It may seem unfair that in addition to experiencing our loss, we also have to educate others on how to help us as we experience it, but that’s just how it is.

The alternative is to feel frustrated and abandoned or worse.  

So here’s a list of helpful tips (and a great infographic!) for interacting with bereaved families:  

Express condolences and show you care. Don’t avoid me, please!  You cannot make me any sadder.  I need to hear from you.

friends hugging

Refer to my child by name.  Dominic is STILL my son.  He is still part of my story.  But because he’s no longer visible, his name often goes unspoken.  Please talk to me about him, use his name, tell me a story of how he impacted your life or a memory that makes you smile.  It makes me smile too.

Actively listen and be supportive.  It’s hard to listen to someone tell you how much they are hurting and not offer advice or think of ways to “fix” them.  I can tell you from experience that what I need most on my darkest days is for someone to say, “It IS dark.  I’m so sorry.”  Silence is OK too.  Not every quiet moment needs to be filled with chatter.

listening is a postive act

Understand that each family and family member will grieve in different ways.  You may have observed child loss before but what you saw in one family may not translate to the next.  There are no hard and fast rules for this awful journey.  The age of the child, family background and structure, manner of death-all these impact grief.  In addition, mothers and fathers, sisters and brothers all bring their personalities, stage of life, beliefs and experiences to the journey.  There were five of us left behind when Dominic ran ahead.  We were each devastated but expressed it in very different ways.  Nearly five years later, those gaps have widened, not narrowed.

Fathers grieve too.  Sometimes support focuses almost exclusively on the mother.  In part because of a common notion that mothers are somehow emotionally closer to their children than dads.  In part because many men are less demonstrative and may do a good job hiding grief.  Whatever the reason, don’t assume one parent is dealing “better” with the loss than another (mother or father) just because he (or she) is not crying openly.  No one escapes this awful blow unscathed.

bereaved fathers

Don’t overlook siblings.  Surviving siblings are sometimes referred to as “forgotten grievers”.  If they are very young, people may think they are relatively unaffected by the death of a brother or sister. If they are grown and out of the home, people may figure that the siblings’ own, very full and very busy, lives keep them preoccupied.  While some of that may be true-to an extent-most surviving siblings are deeply impacted by the death of a brother or sister, regardless of age.  Not only have they lost a member of the family and changed birth order, they have also lost the family they knew, the parents they knew and a co-keeper of memories and secrets.  Bereaved parents are often overwhelmed with grief for their living children as well as the child that is missing. One of the best gifts anyone gave me was reaching out to my surviving children.  It helped my heart to know that they had friends who were supporting and loving them well.

kids cartoon

Be yourself.  People often feel awkward and stiff when approaching a bereaved parent or family member.  That’s perfectly understandable.  The bereaved seem so fragile (are so fragile!) that folks are afraid the wrong word or touch might shatter them into a thousand pieces.  But what your friend or family needs right now is the you they’ve always known and loved.  If you are a hugger, hug!  If you are a storyteller, tell stories (appropriate ones, ones of the missing child).  If you are a cook and cleaner, then cook and clean.  Our family was blessed by our friends doing exactly what they had always done-come alongside in their own special way.  So much had changed in our world that familiar touchstones, familiar routines and familiar faces were a real comfort.

Keep in mind words matter.  Now is not the time to try to satisfy your curiosity about exactly “what happened”.  Loud joking is rarely welcome.  Many bereaved families find it hard to laugh in the first days, weeks, months because it feels like betrayal.  Don’t offer platitudes intended to help them “look on the bright side” or consider that “it could be worse”.  There is nothing worse than burying your child.  Nothing.  Listen and take direction from the person you are comforting.  Follow his or her lead.  And if something less than helpful slips out, own it and apologize.

pencil-drawing-bereaved-mother

It’s never too late to reach out.  NEVER.  Sometimes people stay away at first for lots of reasons.  Or they show up for the memorial service and then fade into the background.  After a bit, even if they want to reach out, they may feel embarrassed by the long absence.  Don’t be.  So many people stop calling, visiting and texting within the first weeks that your outstretched hand of friendship will be a welcome beacon of hope.  If you need to, apologize for your absence.  Be honest.  Admit you were scared or whatever.

Then show up. 

Stick around.

You don’t have to be perfect.  

Just be present.  

bereaved families infographic

Repost: What is Safe?

I remember as a  young mother of four working hard to keep my kids safe. 

dominic and siblings little children at nannys

Next to fed and dry (two still in diapers!) that was each day’s goal:  No one got hurt.  

It never occurred to me THEN to add:  No one got killed.  

Because the most outlandish thing I could imagine was one of them falling or touching a hot stove and us having to rush to the emergency room.

Then I became a mother of teens and one by one they acquired a driver’s license and motored away from our home.  

That’s when I began to beg God to spare their lives.

Read the rest here:  What is Safe?

Child Loss: Good Days, Bad Days-All Part Of The Journey

Will today be a good day or a bad day?

Not sure yet.

Mainly because what usually determines THAT is something that happens (or doesn’t happen) at some point after my morning quiet time.

But whether it’s a good day, a bad day or somewhere in between, it is absolutely, completely, utterly NORMAL for my emotions to change as I make my way down the path called “Child Loss”.

As long as I am doing the work grief requires I will continue to have some better days.  

But grief still comes in waves in response to triggers or in response to nothing at all and it may be a bad day.  

waves-of-greif

How well did I sleep, rest, eat or exercise? My body affects my emotions in ways I don’t fully understand but absolutely experience.

Stress can bring tears to the surface.  Even GOOD stress can do it.  Looking forward to things, planning a party, large meal, trip or event is stressful, even if it isn’t sad.  All stress weakens my defenses and makes it harder to employ the techniques I’ve mastered for diverting my thoughts or controlling my tears.

Sunshine or rain? I have learned to count the number of recent cloudy days if I wake one morning feeling bluer than normal.  I often realize that a week or more has passed since I’ve seen the sun.

Too much interaction or too little interaction with other humans makes a BIG difference. My introvert self loves long afternoons alone, sitting in silence with a book or crochet, quiet walks in the woods and chore-filled days without music blaring.  But healthy solitude can turn to withdrawal if I let it and sometimes I realize my sudden sense of overwhelming grief is, in part, due to lack of human company.

The list is endless.  

Thankfully, at nearly five years, the better days outnumber the worse ones for me. 

But  no matter what kind of day it may be, I no longer worry if it’s normal. 

Because it’s ALL normal. 

you will have good days bad days keep showing up

 

 

 

 

How Terrible It Is To Love Something That Death Can Touch

I know as a believer in Jesus I’m supposed to be able to look beyond “this mortal veil” and treat death as a mere “address change”.

Well, I can’t.

Death is the enemy and I do not experience it as simply a transition from one state to another.

The last enemy to be abolished and put to an end is death.

~I Corinthians 15:26 AMP

Death is a reminder of all that is wrong with this earth.  It’s a reminder that sin is costly.  It’s a reminder that this world is not my true home.

find in ourselves a longing c s lewis

It’s just plain wrong!

I hated death long before I counted my own son among the casualties.

Living on a farm, we have buried everything from domestic livestock to random wildlife that wandered up, wounded and we tried to save.  I have hatched eggs found in disturbed nests,  loved on baby rabbits, squirrels, deer and woodchucks, nursed abandoned kittens, lambs and goat kids.  Many of them didn’t survive and every one took a bit of my heart when they breathed their last.

how terrible it is to love somthing that death can touch memorial stone

I have said “good-bye” to my 99 year old aunt, my grandmothers, my grandfathers and my own son.

There is nothing pretty about death.  It wasn’t in God’s original plan and I hate it.

Lately, I’ve been worrying about my “therapy” cat-Roosevelt.  He’s aging.  And all things being equal, he won’t last much longer.

r and christmas

 

He sat in my lap as I recovered from numerous surgeries and hospitalizations.

And he stayed with me as I received concerned family and friends when Dominic ran ahead to Heaven.  I don’t know what I would have done without his warm weight holding me in the chair when all I wanted to do was run away and hide.

hand-coffee-roosevelt

He has been a compassionate companion in many sad and lonely moments-never asking for a thing and giving so much with his presence and unconditional love.

Every night he sleeps beside me, snuggled down tight against my neck, purring peacefully.

But he’s getting old and I am becoming fearful that I don’t have too many more years left with him.  I hate that most nights I drift off to sleep thinking he won’t be here much longer.

And then I feel guilty.

Because the death of my cat (when it happens) can’t begin to touch the depth of pain of the death of my son.  It seems, though, that every death taps that wounded spot in my soul.

dominic at olive garden

But every death-whether a person or an animal I love-opens the floodgate of sadness I work so very hard to keep behind the dam.

I know I’m not supposed to borrow trouble from tomorrow and I work hard not to do that. 

I’m working hard to cherish each moment with everyone I love without worrying that it may be one of the last. 

It’s a fine line I walk every day.  

IMG_2089

 

 

Child Loss: A Letter to My Living Children

I never thought it possible to love you more than I already did.

But I do.

photo (20)

Your brother’s untimely departure has opened my heart in a whole new way to the glory that is your presence.  It has made me drink you in like water in the desert.

No more do I take even a moment for granted.  Never again will I be “too busy” to listen to you, to hug you, to greet you on the porch when you decide to make your way back home.

Read the rest here:  A Letter To My Living Children*

On The Struggle Bus

I weigh more today than I’ve weighed in ten years.  

Just before Dominic graduated high school in 2008, I decided that being “fluffy” was not good for my health, not good for my joints and for the first time in my married life I had the extra energy, time and attention to work on losing weight.  

I lost over fifty pounds.  

Still not skinny, but definitely a much smaller version of me than had existed since I started having children.

IMG_0744 (1)
June 2013

But after Dom left us,  a series of choices and out-of-my-control health issues combined to make it harder and harder to maintain the weight loss I had (fairly) effortlessly maintained for six years.

I’m scheduled to see my GP tomorrow and you know what makes me more nervous than all the bloodwork they will have to do?  Stepping on the scales!

Why is it more deplorable to be fat than to be mean?

Why is it considered a greater moral failure to lug around extra pounds than to lug around a hateful heart?

I feel more like a failure because I’ve allowed pounds to creep back up on my backside than for so many other things that are so much more important.  

Menopause, middle age and many sleepless nights which increase my cortisol levels have conspired to make it harder this time than last time to rid my body of excess weight.

family fionas grad (2)

I’m active, eat well and in limited amounts (no Twinkies or high fructose corn syrup!) but my hips refuse to get smaller.

I try hard not to blame everything on child loss. 

But I’m pretty sure a significant portion of responsibility sits squarely on the fact that my heart is broken.  I am exercising so much self-control every. single. day. that I don’t have any left over.

I rarely cry any more in public. 

Goodness!  I rarely cry any more in private.  

I can return a cheery, “Have a nice day!” to any and everyone I meet.  

But that means I am constantly running a tape in my head that goes something like this:  “Don’t take it out on her.  She has no idea. Keep smiling.  People don’t know that you were about to cry just a minute ago. Don’t let that person’s ugly attitude unleash the beast inside you.”  

Can I be honest here?  

I’m tired.  

I’m tired of everything being hard.  

please be aware i am trying

I don’t know if or when I’ll lose weight (please don’t inbox me with your latest, greatest sales pitch).

I’m trying most days.  

But sometimes I just don’t have it in me to try.  Sometimes I just want to be normal-whatever THAT is.  Sometimes I just want to have one corner of life where things are easy and don’t require constant vigilance or extreme restraint.  Sometimes I want to eat ALL the things and not give a hoot if it adds inches to my waist.

the struggle bus

I won’t do it.  

Because I know it’s not what’s best.  

But I want to.  

eat whatever you want

Child Loss: At Night, It’s Still Fresh

It happens most often as I am drifting off to sleep. 

There is this one spot on the bedroom bookshelf where my eyes landed that first night-one paperback spine that instantly transports me to the moment I had to close my eyes on the day I found out my son would never come home again.

And it is fresh.  

Absolutely, positively fresh.  

Like “just happened” fresh.  

missing-someone

You’d think that nearly five years of intervening experience, nearly five years of grief work, nearly five years of trying so darn hard to learn to tuck that feeling away deep down so it can’t escape would have worked whatever magic time is supposed to work.  

it has been said that time heals all wounds rose kennedy clock

But it hasn’t.  

Oh, most days I can lock that lid down tight.  I can distract my mind, busy my hands and keep my heart from wandering too close to despair.

Darkness though. 

Shadows and silence and stillness give room for the memory to rise to the surface.  

And it does.  

My son is never coming home again.  

Fresh.  

Absolutely, positively fresh.

“Just happened” fresh.  

sometimes cant believe you are gone

 

Child Loss: When It’s Been YEARS-How To Bless a Grieving Parent

Please hear me. 

I do NOT blame you that my son and my sorrow have drifted down your list of “things that need attention”.  Your life is as busy as mine once was and your calendar full of commitments and celebrations that require your attendance.

There is no way you would know it’s 69 days until the fifth anniversary of Dominic’s sudden absence. 

There is no reason for you to be aware that as the southern landscape turns to spring, my heart and mind turn to death.  

But it’s the truth. 

Read the rest here:  When It’s Been YEARS-How to Bless a Grieving Parent

Child Loss and Secondary Losses

While I certainly had no real idea in the first hours or even weeks what losing a child entailed, I understood plainly that it meant I would not have Dominic to see, hold or talk to.

I wouldn’t be able to hug his neck or telephone him.  

He wouldn’t be sitting at my table any more.

But the death of a child or other loved one has a ripple effect.  It impacts parts of life you might not expect.  As time went on, I was introduced to a whole list of losses commonly called “secondary losses”.

secondary losses

Here are just a few:

Loss of a large chunk of “self”.  Dominic possessed part of my heart and part of my life.  It was violently ripped away when he died.  There is part of me that was uniquely reflected from him-like a specialty mirror.  I can never access that part of me again.

Loss of identity.  Before Dominic died I was one kind of mother.  I was a mother of four living children who were making their way in the world as successful adults.  I was a mother looking forward with happy anticipation to the next years.  Now I am still a mother of four children but one whose heart has been changed by tragedy and sorrow. Tomorrow is still bright, but there’s a shadow just behind it.

desimones uab family

Loss of self-confidence.  I used to enter a room without a thought to how I’d be received or perceived.  That’s definitely not the case now.  I’m self-conscious-constantly wondering if I’m saying or doing the right thing.  I never know if a grief trigger will (at best) pull my attention away from conversation or (at worst) send me scurrying for the bathroom.

Loss of sense of security.  I think every parent has moments of fear over his or her child.  When they first go off someplace without us, when they get a driver’s license, travel abroad, go to college.  But all the awful things I imagined didn’t hold a candle to the reality of waking one morning to a knock on my door and the news that Dominic had been killed.  The bottom fell out of my (relatively) safe world.  Bad things, random things can and do happen.  Once it happened to ME, it changed how I processed everything.  The passing years have softened some of the anxiety but I will never be able to assume safety again.

Anxiety

Loss of faith.  I did not “lose” my faith.  I never once doubted that God was still working, was still loving and was still in control.  But I most certainly had to drag out every single thing I thought I knew about how I thought He worked, loved and superintended the world and examine it in light of my experience of burying my son.  It took a long time to work through all the pat answers I had been offered and myself doled out to others for years that didn’t fit with my new reality.  I am learning that doubt is not denial and that I have to live with unanswered questions.

Loss of family structure.  I’ve written before that a family is more than the arithmetic total of the number of members.  There were six of us.  But we were so much more than six when we were all together!  Our talents, personalities and energy were amplified in community.  When Dominic’s large presence was suddenly whisked away, every relationship got skewed.  We’ve fought our way back to a semblance of “whole” but still miss him terribly.  We can function, but we will never be the same.

empty chair

Loss of my past.  Memories are funny things.  They are plastic and subject to change.  And my recall of an event is limited to my own perspective.  For a memory to be rich and full, I need input from others who were there as well.  One vessel of family memories is no longer available to add his unique contribution.  Every time I pull out a photo or dig down deep in my heart to draw up a treasured moment, I realize I’ve lost something I can not recover.  The joke, the glance, the odd detail are all gone.

Loss of the future I anticipated.  I’m a planner by nature.  Not a detailed, OCD, got-everything-in-order kind of planner, but a “big picture” kind of planner.  When Dominic left us in 2014, things were going (pretty much) according to plan.  Each child was well on his or her way to the career path they had chosen.  I was easing into an empty nest and exploring options for life after homeschooling.  My husband was entering his last few years of a lengthy career.  It’s hard to explain to anyone who hasn’t experienced it, but when your world is shaken by child loss, everything gets scrambled.  You can’t just pick up where you left off and keep going with the pieces that remain. 

There’s a prolonged period of confusion and everyone is impacted differently and in ways you could never imagine.  All of us have changed dramatically in the years since Dominic left us.  He is not the only thing missing from the rest of our lives.  Holidays are altered.  Birthdays are different.  We have to plan special events around uncomfortable milestone dates that roll around every year whether we want them to or not.  It’s a constant readjustment to life as it IS instead of life as I thought it WOULD be.

Loss of ability to focus and function.  Oh, how this surprised me!  I was in some kind of zone for the first month after Dominic left.  My other children were home, we had to make it through planning his funeral, two graduations and cleaning out his apartment.  I also had to handle paperwork for my husband to take short-term disability due to grief.  I cried a lot, wrote down dozens of notes but managed to do what I had to do.  Then I crashed. I couldn’t remember a thing.  I couldn’t read more than a couple sentences at a time.  I hated the telephone.  I could barely stand to hear the television.  I had to make a list of the most basic things like brushing my teeth, feeding my animals, turning off all the lights before bed.  It was awful!  And it didn’t really get better for well over a year.

I still suffer from a very short attention span, low tolerance for noise and an inability to accommodate last minute changes.  I don’t schedule anything back to back.  I live in a rural area and sometimes shop in the nearby town.  I will start the day with a long list and shorten it repeatedly as I go along because driving in traffic, crowds and random sounds ramp up my anxiety and make me want to go home with or without what I came for.  I have changed the way I do so many things.  My pre-loss memory has never returned.  

griefbrain1

Loss of patience.  I am at once impatient and long-suffering.  I have zero patience for petty grievances, whining and complaining.  Yet I have compassion for other people living hard and unhappy stories.  I berate myself for not being “better” and, at the same time, extend grace to others who aren’t “better” either.  I want to shake people who bowl over weak, hurting, desperate souls.   I don’t have time for moaning about rain when you were planning a picnic but will listen for hours to a mama tell me about her missing child.

Loss of health.  I had a number of chronic health conditions before Dominic ran ahead.  Within the first year of his departure, I was hospitalized twice.  My experience is not unique.  Some parents suffer immediate health effects (heart attack, blood sugar spikes, anxiety/depression) and some see a slow decline over time.  In part because child loss, like any stressor, will negatively impact health and also because sometimes bereaved parents stop doing the things that help them stay healthy.  At almost five years, I’ve learned how to manage the stress better although some of my health issues continue to get worse.  It’s hard to tease apart what is age, what is disease and what is grief.

When your child leaves this life before you do, it changes everything.  

Not only things you might expect, but many you’d never imagine.  

It’s a constant balancing act, readjusting every day to new challenges.  

Struggling to keep my head above the waves.  

grief like the ocean learn to swim

 

 

Repost: Looking Up

All believers in Jesus are commanded to live as aliens in this world. But it is so easy to get comfortable here. So easy to think we were made for the earth we see instead of an eternity with God in heaven.

Kenny Chesney sings a song;

Everybody wants to go to heaven
Have a mansion high above the clouds
Everybody wants to go to heaven
But nobody wants to go now.

And if we are honest, even most folks in church on Sunday would agree.  Heaven is a great place to look forward to, but not somewhere you would plan to go this week.

Read the rest here:  Looking Up