authenticity – Page 66 – thelifeididntchoose

Healing Comes In Its Own Time

I’ve lived with invisible chronic disease for a decade.

From the outside looking in, you’d hardly know that I am often in great pain. I make daily choices about what I will do and what I won’t do based on what I can do and what my body refuses to do.

I take medication. I do all the things I’m supposed to do to help my body heal.

But I cannot MAKE the healing happen.

No matter how hard I wish it were different, no matter how carefully I manage my treatment, healing comes (or doesn’t) in its own time.

I’m pretty sure that most people have experienced something similar if they’ve broken a bone or had a bad bout of bronchitis or pneumonia.

Other than following the advice of your doctor and taking your meds on time, resting and eating well, there’s not much you can do to force your body to get well.

A broken heart is just the same.

All I can do is place myself in the path of healing. I can feed my soul with truth and drink living water from God’s Word.

I can lean in and rest in the promise that Jesus will redeem and restore.

I can do the work that grief requires.

And working on healing takes energy, effort and time–lots and lots of TIME.

I cannot hurry the healing.

Please understand that as inconvenient, uncomfortable and disconcerting it may be for YOU, it is immeasureably more so for ME.

Please be patient with my heart.

I’m really trying.

Christmas Cards-Yes? No? Maybe?

Getting Christmas cards out on time was always a challenge in my busy household.

So for the last years of kids at home, we transitioned to sending New Year’s greetings. It was easier to get a family photo with everyone home for Christmas, there was no artificial deadline to send them and we could include a “thank you” or respond to news in their Christmas letters.

I haven’t sent anything for three years.

What could I say?

And a family photo was out of the question.

But faithful friends and relatives keep sending us theirs.

As I was looking at them this past week, I decided to make a go of it one more time. I sat down and pecked away at the computer keys until I composed something that felt right.

HERE’S WHAT I WROTE:

“Hello from the DeSimones!

For anyone counting, it has been three years since our last Christmas/New Year’s update.

I just could not figure out how to send greetings when our hearts were so very wounded and sore. I’m still not sure how to do it-but am plunging ahead.

We are learning to live with the absence of Dominic. We are learning to carry the weight of grief and sorrow that burden our hearts. We are managing the necessary tasks of life. We are moving forward in careers and education. We live and love and even laugh.

It’s not the same.

It will never be the same.

And that’s a testimony to our enduring love for Dominic and his lasting impact on our lives.

We look forward to heaven, where everything that the enemy has stolen will be redeemed and restored.

I’ve been reading The Jesus Storybook Bible-it is a remarkable way to re-imagine and re-engage with God’s Story. My very favorite part is a paraphrase of Revelation 21:4:

‘And the King says, “Look! God and his children are together again. No more running away. Or hiding. No more crying or being lonely or afraid. No more being sick or dying. Because all those things are gone. Yes, they are gone forever. Everything sad has come untrue. And see-I have wiped every tear from every eye!”‘

[Here I inserted updates on each of us under the title “newsy bits”]

We are thankful for each one who has encouraged us, loved us and stuck with us in this journey.

It’s our prayer that this Christmas season the Saviour will fill your hearts-hurting or happy-to overflowing with His love, grace and mercy.”

You may not be ready to send Christmas cards. Maybe next year, or maybe never and that’s OK.

I’m sharing so that perhaps my words can help you find a way to tell your family’s story.

Christmas for those of us missing a child we love will always be different. It will always be tinged with sadness.

But we are stronger together.

We can hang on harder when others hang on with us.

I appreciate each person who reads this blog and takes time to comment.

Thank you for encouraging, loving and sticking with me in this journey.

May the God of all hope fill your hurting hearts with hope as we wait together for our faith to be made sight.

Not Giving Up-A Victory Worth Cheering

It’s hard to watch since winning a medal is off the table. They lost their place in front when they took that awful tumble.

But we cheer them on-the limping athletes that manage to cross the finish line.

And we should.

Because getting up and going on is a victory worth cheering.

And it’s a victory I strive for every day.

Just showing up with a broken heart is hard. Not giving in to despair is a daily decision that requires continued commitment to face the morning light.

On other days I can use the tools I’ve crafted over time to screw down the lid on the box of emotions I keep hidden inside.

But opening my eyes to Christmas Day takes extra effort.

It would be so much easier to sleep the hours away, safe and secure in the cocoon of my warm bed. Not because I don’t want to share in the food, fellowship and fun. But because every sight, sound and smell of Christmas pierces my heart and reminds me of the widening gap between when I saw Dominic last and right now.

So when you feel a little frustrated that I’m crying “again”, when you wonder when I’m going to “get over this” or “be back to my old self”-please picture that limping runner gunning for the goal.

Jump down from the comfort of the bleachers and take my hand.

Cheer me on.

Offer a cup of water or a chair so I can catch my breath.

Don’t turn away in your discomfort at my pain. Choose to be a witness.

Speak courage to my heart.

Help me make it to the finish line.

What Does Healing Look Like?

band aid and heart

As I continue to walk this Valley, my heart asks the question, “What does healing look like?”

Fewer tears? Check.

More laughter? Check.

Better able to function? Check.

I’m definitely not as fragile as I was in the days and weeks and first months after Dominic left us.

I can do what life requires without falling apart (most of the time).

If you run into me out and about, I make small talk and answer questions about my family without breaking down.

So, from the outside looking in it seems the gaping wound of loss has healed pretty well.

But if I lift the lid of my heart ever so slightly, I’m amazed at how much it still hurts. I’m astonished by the depth of pain and sorrow just under the facade of OK.

I cannot claim to have reached some higher plane of healing or restoration yet. I’m not sure I will this side of heaven.

And the pain of loss has tainted the joy I feel in what remains.

Instead of brilliant technicolor, my life is now lived in sepia tones that warn what joy I have could be stolen at any moment.

The lesson I’ve had stamped with fire on my heart is this: Love is the only thing that matters in the end.

Love God.

Love people.

So the path to healing means I lean in and love Him and love the people He has given me with everything I’ve got.

Because love endures forever.

graphic-his-faithful-love-endures-forever

Trying To Navigate at 90 Miles an Hour

washington-with-traffic

I will never forget it.

Our family was driving through Washington, D.C. at rush hour (poor planning, I know!) and got lost.

Not utterly, hopelessly lost-but definitely turned around.

Multiple lanes of traffic, unfamiliar signs, lots and lots of cars traveling way. too. fast.

My husband was driving and I was trying to read the map-trying to make sense of where we were and where we needed to be but I couldn’t do it fast enough to make a difference.

As soon as I determined which lane we should be in, which exit we should take, we had passed it.

In frustration, my husband finally just stopped–in the middle of the road on a small patch of no-man’s-land between two diverging lanes. I was scared to death.

police-car-lego

And then a police car pulled up behind us.

The officer got out and asked what was going on. We explained our dilemma and he led us out of the maze of confusing options to the right road and we were on our way.

So many days I feel just like I did those years ago-confused, frightened, trying desperately to figure out which way to go but never able to slow down enough to really get a good look at the map.

road maps.jpg

I feel like I’m trying to navigate strange streets going 90 MPH.

Hurry up!

Should I turn right or left?

Did I just miss my exit?

I have no idea.

The destination is sure: I will leave this place and join my son in Heaven. But the path is winding and challenging and hard to figure out.

I can’t get out of the car called “Life” and wait until I have a clear route marked before me.

Sometimes I manage to get where I want to go. Sometimes I don’t.

Some days and some events turn out resembling how I thought they should. Many don’t.

So I keep on keeping on.

I’m navigating with the tools at hand and hoping for the best.

world-doesnt-stop-for-your-grief

Slow Learner

I don’t like conflict.

My personality and life experience have molded me into a peacemaker.

And while Jesus said, “Blessed are the peacemakers” He also wasn’t afraid to make some noise when necessary to shake things up.

But unlike Jesus, I tend to be a peace-at-all-costs kind of person. And it’s just not healthy.

I recently ran across this quote:

not-required-set-yourself-on-fire-life-daily-quotes-sayings-pictures

This was me before Dominic left us.

But not anymore.

One thing grief is teaching me is to speak up for myself.

Not in an arrogant you-don’t-matter-I-matter-more way but in a way that is more authentic and expresses how I really feel and what I really need from friends and family.

I’m learning to let others to keep themselves warm.

I help when I can-offer a blanket or hot chocolate-but I will no longer sacrifice my heart to others on the altar of peacemaking at all costs.

Dom was always encouraging me in this regard.

I think he’d be proud.

Exploding the Myth: God Doesn’t Give You More Than You Can Handle

blessings-come-through-rain-drops

You know, I don’t expect those outside the Body of Christ to have good theology-that’s like expecting me to be able to explain thermodynamics.

Ain’t gonna happen-it’s outside my scope of understanding and practice.

I do expect those who have spent a lifetime reading Scripture, studying Sunday School lessons and listening to sermons to know better.

But many don’t.

“God doesn’t give you more than you can handle” is bandied about freely among those who, if they thought about it before they said it, know it isn’t true.

god-doesnt-give-you-more-than-you-can-handle

Usually it’s tossed at someone going through a tough time in an effort to encourage them.

Can I just let you in on a secret? It is NOT encouraging. At. all. Not one bit.

Because what’s implied is that I SHOULD be able to handle this.

But I can’t.

And it lets you off the hook.

It’s like I’m drowning and instead of diving in to rescue me, you’re giving swimming lessons from the safety of the shore.

It’d be much more helpful if you threw me a lifeline.

life-preserver

God routinely gives me more than I can handle.

It’s one tool He uses to turn my heart to Him. It’s one way He helps me understand (although He knows it already) that I absolutely cannot handle it by myself.

So instead of sending the message that I should be able to handle this-join me in the dark place, hold my hand as we walk together and help me feel God’s love through you.

presence best gift

Dealing With Anxious Thoughts

I no longer have to imagine the worst thing that could happen in the life of a mother-I know exactly how it feels.

And if I allow my heart to ponder that too often or too long, it consumes me.

So I am learning to take those anxious thoughts captive, learning to make them live in only a small corner of my mind instead of taking it over completely.

It takes effort and discipline, but it’s possible.

I don’t have to live the rest of my days a quivering mess- afraid of every sunrise, every phone call, every mile my family travels:

I confront my fear with facts: The absolute truth is that it is no more likely I will lose a child today than it was the day I lost Dominic. I’m not good at determining odds-if I toss a coin ten times and it lands on “heads”-I’m convinced that next time it HAS to be “tails”. But that’s just not true. EVERY time the coin is tossed, it has exactly a 50/50 chance of landing on “heads” or “tails” regardless of what happened last time. That’s not how it FEELS, but that’s how it IS.

coin_toss_11

I refuse to feed my fear: I don’t linger over news stories that play up danger or magnify the possibility of catching rare diseases. Do these things happen? ABSOLUTELY! But are they likely to happen to me or someone I love, probably not. I will not fuel the fire of fear that threatens to rage through my mind.
I take reasonable precautions: My family wears seatbelts. We take our vitamins and go to the doctor when we need to. We eat right and exercise. We don’t walk across streets without looking both ways. These were all things we did before Dominic’s accident and we continue to do them now. Not one of them would have made a diference that night but they help me feel better.

crosswalk

I limit my exposure to uncertainty: If I’m concerned about someone, I call or text. It’s that simple. I don’t have to live for hours wondering if they are OK. I’m careful not to infringe on my adult children’s lives by a never-ending series of contacts, but they understand my heart. We try to be mindful of letting each other know we arrive safely to our destination.

I exercise control in other areas of my life: Anxiety is a beast that grows stronger the more out of control I feel. I cannot keep my family absolutely safe-it’s not in my power to do so. BUT, I can control some aspects of life. So I do. Even cleaning out a messy junk drawer helps bolster my sense of control. Small, easy to complete projects feed the part of my brain that says, “You can do this!”

take-control-of-your-life

I limit caffeine and other stimulants: Increased heart rate, rapid breathing and sweaty palms are signs of anxiety. Caffeine can produce these effects even when I’m not anxious. If my body is feeling this way, my mind is quick to jump on board.

angry

I practice distraction: There are times when I find myself feeling anxious despite my best efforts. When that happens, I am learning to distract myself. I find something to touch, smell, hear or taste that can help me regain composure. I count backwards from ten or twenty. I hum a song or recite a Bible verse. I add numbers in my head or do multiplication tables.
I live in the present: I have no idea what tomorrow holds. If I allow my heart to dwell on what might happen, I will be useless for today. So while I make marks on the calendar for appointments, I wake each morning determined to live right now.

now

Because, really, that’s all any of us has.

The Power of Lament to Make Room for Thanksgiving

Thanksgiving was always my favorite holiday.

I loved everything about it: the color scheme, the food (I love, love, love to cook-it was never a burden), family and friends gathered around the table, and the wonderful slowness of the day as it lingered into nightfall.

It was more flexible than Christmas for including all sorts of folks who otherwise didn’t have someplace to go. Living near colleges meant that we welcomed students from around the world-we might have two or three dozen laughing faces milling about.

It was wonderful.

And I loved going around the circle, tummies bursting, to share what people were thankful for and why.

When Dominic left us everything changed.

Oh, I was (and still am) so very thankful for so very many things-my family, daily physical provision, ongoing care and love of friends, the enduring faithful mercy of God.

But there’s something else too: there is deep sorrow at the unavoidable FACT that when God COULD have stepped in and changed an outcome, He DIDN’T.

And I’m having to learn to open my heart to thankfulness while also bearing witness to this pain.

Praise and lament in the same breath.

I have plenty of company.

The world we live in is full of pain and suffering. Injustice reigns. We make our way through thorns and by the sweat of our brow.

It is just plain hard.

The psalmist acknowledges that. He doesn’t rush past the pain. He doesn’t gloss over the broken places.

He empties his heart of the feeling that God has forgotten. But he doesn’t stop there-he chooses to bring the emptiness back to the only One Who can fill it up again.

Like the psalmist, I’m learning that I must exhale before I can inhale.

I must admit the burden of hopelessness to make room for the blessing of hope.

“With my voice I cry out to the LORD: with my voice I plead for mercy to the LORD.”

I ADMIT I FEEL ABANDONED:

In the path where I walk
they have hidden a trap for me.
Look to the right and see:
there is none who takes notice of me;
no refuge remains to me;
no one cares for my soul.

AND YET I WILL CHOOSE TO TRUST:

I cry to you, O LORD;
I say, “You are my refuge,
my portion in the land of the living.”

IN THE HOPE THAT GOD HEARS:

Attend to my cry,
for I am brought very low!

SO THAT MY TESTIMONY MAY BE ONE OF PRAISE:

Bring me out of prison,
that I may give thanks to your name!

Psalm 142, selected

As I sit at the table, cherishing the companionship of those I love and missing the one I can no longer see, I will embrace thanksgiving and lament.

I will exhale and inhale.

I will beg for grace and mercy because I can no longer beg to be spared from sorrow.

I will ask for eyes to see and a faithful heart while I wait.

Plus Three

sunrise trees

Today I am 53–born one day after the assasination of JFK.

I always thought that would be the most signifcant marker of my otherwise quiet life.

But it isn’t.

I wrote this post last year and it still speaks for my heart: Jubilee

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this:

Share this: