Child Loss: Marking the Milestones

When your child is born you take notes.

You plan to mark this day as a special milestone for the rest of your life.

You absolutely, positively NEVER think you will have to mark another one:  the day he or she leaves this life and leaves you behind.

But some parents have to mark both.  The dash in the middle is shorter than we anticipated, and our child’s life ends before ours.

grieving mother at grave

So how do you do it?  How in the world do you observe the polar opposite of a birthday?

Here are some ideas (shared with permission) that parents shared recently in an online discussion sparked by one mom’s very honest admission that she just didn’t have it in her to create another video montage from the same old photos to mark yet another year without the earthly companionship of her precious son:

Don’t do anything.  That is an option. We do not have to draw a red circle around THAT day on the calendar, gather folks as if  it’s a celebration.  As one mama said, “Yes, the day they left us does not need to be ‘remembered’.”  For some parents, going to work like it’s a regular day, engaging in whatever normal activities are required, ticking the hours off on the clock until night falls and the earth turns to the next day may be the very best choice.  Another mama wrote this:  “I have friends who celebrate a ‘heaven day’ for their son.  I can’t.  I just can’t.  If it were up to me, I would probably go camp somewhere all alone, and not move a muscle for the entire day.”

Do something big (or small).  Some parents choose this day to hold an annual “Celebration of Life”.  It might take the form of a balloon release, or lantern release at home, at a park or other outdoor venue or at the cemetery.  It might be lunch or dinner out at your child’s favorite restaurant or at home with your child’s favorite menu.  Invite friends and family to join you and ask that they bring a photograph or memory and share.  One mom said that such an event kind of happened organically and spontaneously when contacted by her son’s widow:  “We went to one of [his] favorite restaurants.  Told funny stories about him, talked about how missed he is, then went o his grave and put fresh flowers.”

balloon release

Serve others.  Did your child have a special interest in a particular charity or community organization?  Maybe you can spend this day volunteering or raising awareness/money for that group.  Often having something to do helps a heart from sinking into despair.  If the group allows, maybe put up a sign saying, “Volunteering today in honor of __________” and attach appropriate photos of your child.  Some parents whose child died from cancer or suicide or violence participate in walks or fundraisers that highlight those causes.

Encourage Random Acts of Kindness (RAK).  I plan to do this one in April.  It will be seven years (!) and I can barely stand it.  But so many of the comments from Dominic’s friends after he left for Heaven went something like this one, “He was always doing something for someone else.  Fixing their car or showing up when they needed an encouraging word.”  He was known for his many acts of generosity and kindness and I feel like he lives on in the hearts of others because of that.  I had cards printed ( I intentionally let his “dates” off) which I will distribute well in advance of April 12th for friends and family to leave behind when they do a RAK in memory of Dom.  Vistaprint and other online publishing companies offer reasonable prices and will guide you through the process step-by-step.

random act of kindness

Escape.  Lots of us find being at home (alone or in the company of others) too hard to bear.  Many received word of their child’s death at home and as the day creeps closer, the memories crowd every corner of mental and physical space and are inescapable.  So sometimes parents plan a trip around this time.  Go somewhere your child would have loved to go or go somewhere he or she enjoyed visiting.  Take photos and post them in honor of your child if you want to.

Focus on family.  You may not want to be alone, but the thought of being with anyone outside your closest grief circle is overwhelming.  That’s OK.  Spend time with the people who, like you, are most affected by your child’s absence.  You don’t have to do anything special.  You can make room for them to speak or not speak about their grief as they choose.  Sometimes just having another warm body in the room is enough to ward of the chill of despondency.

grieving dad

Flip the script.  For those of us who believe that this life is not all there is, the day can be one of celebration.  Our children have escaped life full of sorrow and trouble and are safe forever in the arms of Jesus, where we will also be one day.  Waiting is hard, but waiting is not forever.

Simply allow yourself to feel the full force of missing and grief.  “As far as his death day, for me, that is a day when I allow myself to fully feel and express the pain of my loss.  It is a way to (temporarily) empty myself of all this pain, so I can breathe again to face another day.  I will sit in his sweatshirt, listen to reflective music, cry a lot, talk to him, pray to God, and just allow myself to feel all the pain and emotion that everyday responsibilities cause me to stuff away.”  If you can manage it, taking the day off work and giving yourself grace and space to grieve in ways that are denied so often may be the very best way to experience the day.

Here’s a list of ways some parents honor their child on this day:  

  • Giving away stuffed toys with a card or note explaining why.
  • Taking goodies to first responders and/or nurses who were served their family during an accident or illness.
  • Handing out Bibles or books in memory of their child.
  • Making memory baskets for parent whose child will be born straight into heaven.
  • Adding to a scholarship fund or other charitable fund in honor of their child.
  • Placing balloons, flowers or other special decorations on their child’s final resting place.
  • Lighting candles, releasing butterflies, balloons or lanterns.
  • Placing a memorial advertisement in a local paper.

Do or don’t do whatever helps you make it through those twenty-four hours that represent another year of sorrow, another year of missing.  

missing child from arms

There is NO wrong way to mark or not mark this day. 

It’s up to you and your heart.  

And absolutely does not require anyone else’s permission or approval.  

dont trade authenticity for approval

Baby Steps Count

When my daughter was learning to walk, I would hover near-ready to catch her if she fell.

I covered sharp corners or moved furniture so that the chance of injury was minimized. I clapped and cooed each time she made a little progress-pulling up, cruising around the edge of the sofa and coffee table-those tentative moments when she was brave enough to let go and then plop on her bottom.

And finally, when she made her first unassisted steps between the security of holding on and my waiting arms.

It was a judgement free zone.  

I wasn’t looking for technical perfection or measuring progress according to any external metric.

crawling walking baby huff post

I didn’t rush the process. I couldn’t do it for her.  I could only support her own efforts toward the goal we both had in our hearts.  I never despised her baby steps.  

They were a beginning.  

And everything has a beginning.

When Dominic ran ahead to heaven, I felt like I was physically, mentally, emotionally and spiritually knocked to the floor.  I had no idea how I was going to make a life after this great blow.   I could barely get dressed, much less do anything that took more thought or energy than that.

I was overwhelmed.   I had to learn to walk all over again.

And I did it with baby steps, in a judgement free-zone I created for myself where I refused to gauge my progress against anyone else’s.

its all about the baby steps

Because baby steps count.

Here are some of the baby steps I’ve taken and am still taking:

  • Got up, got dressed, bought groceries.
  • Cooked dinner.
  • Cleaned the bathrooms.
  • Went to church.
  • Remembered a birthday and sent a card.
  • Drove to an unfamiliar place to meet someone for lunch.
  • Exercised.
  • Made phone calls.
  • Went to work.
  • Volunteered.
  • Slept through a whole night.
  • Organized a party.
  • Showed up to graduations, a couple funerals and a wedding.
  • Kept doctor’s appointments.
  • Laughed.

I have yet to hit my stride and I don’t think running is in my near future, but I am moving forward.  I’m making progress.  I don’t have to meet a timetable or get anyone else’s approval.  

It’s my journey.

And baby steps count.  ❤

feet on path

 

 

 

Sometimes I Just Want To Be Me!

Even in the very first hours after the news, my brain began instructing my heart, “Now, try to be brave.  Try not to disappoint people.  Try to say the right thing, do the right thing and be the example you should be.”

Whatever that meant.

As I made phone calls and received concerned friends and family members I was so aware that they would take a cue from me-how much can I say, how hard can I cry, should I hug or stand back, should I talk about him or be silent lest it make the tears fall harder?

And here-almost five years later-I still feel like I need to lead the way in conversations and social encounters.

Read the rest here:  Can I Just Be Me?

How To Be Fierce Without Being Fractious

It’s funny how child loss has, at the same time, made me more yielding and more steadfast.

I give in without a moment’s hesitation to other people’s choice in where to go for lunch, what to do for birthdays, how to arrange this or that at church.  My brain simply doesn’t have the capacity any more to argue over trifles.

But I will stand up to a lion for the sake of love or to protect a hurting heart.

wounded_heart-960x600

I can be a little reactionary when that happens-snapping and biting the heads off those who might have said or done something in ignorance and not intentionally.

So I’m learning to think a minute before I launch into a tirade and try to discern just what will be most helpful.

I want to challenge and educate folks, not send them running for cover every time they see me coming around a corner.

I want to be fierce without being fractious.

I ask myself, “How can I communicate truth in love?” and I try to follow these precepts:

Don’t attack the person.  Quite often people speak without thinking and speak about things they haven’t experienced.  They may just be parroting something they’ve heard and not even actually believe it themselves.

Ask questions.  Try to suss out WHY they said or did what they said or did.  Again, without thinking?  Or is there a motive behind it?  Fear is a frequent motivator for pushing hurting hearts away.  People are afraid of how much they might have to invest in a relationship or they are afraid that what happened to me can happen to them and they just don’t want the reminder.

Many People Thinking of Questions

Educate.  I often start by saying something like, “If you haven’t buried a child, you would have no way to know this but…” and follow up with whatever I think they might need to hear.  No one can argue with my experience.  I’ve never had a single person walk away angry when I share this way.  Some have come back and thanked me for the insight.

schoolhouse

Extend grace.  I know child loss but I don’t know everything or even a tenth of everything.  So while my friend may have stepped on MY toes by saying or doing something today, I’ve probably stepped on HERS another day.  I try to assume that the person in front of me is doing the best he or she can and not aiming to inflict pain on my heart.

grace tree

Choose to end fruitless discussions.  If I realize that the person I’m speaking to is defensive, resistant and unyielding, then I find an opportune moment to end the conversation.  We’ve all been there-someone itching for a fight decides that now is the moment to have one.  I’m not interested in debating anyone over my experience so I just don’t.

calvin-cartoon_debate

As long as I walk in this world there will be others with whom I disagree.  some who actively seek to wound and many who are just ignorant of situations they have never experienced. 

I don’t want to bludgeon them with words, forcing them to agree with me.  

I want to be a light that opens eyes, a gentle breeze that blows away the fog and helps them see clearly.  

a candle loses nothing by lighting another candle

Should I Let My Young Children See Me Cry?

This was not my experience-all my children were adults when Dominic ran ahead to Heaven-but so many grieving parents want to know:  Should I let my younger children see me cry?

How much is too much for them to witness, process and hear?

Do I need to shield them from the awful truth of how much this hurts?  CAN I shield them?

It depends.

May I first say that there is NO way to shield even an infant from the overflowing emotions, stress and strain of child loss in his or her family.  If we stop and think about it, we know this.  And older children may look like they aren’t paying attention, but they are.

mother and child painting

So the question is not really, “Can I shield them” but is instead, “How do I help them understand what’s happening”?

Grief in this life is inevitable. 

Allowing our children to watch us grieve helps them understand how it’s done.  When we share openly, we give them tools and models for sharing too.

I think it’s important to be honest with even the youngest among us. 

When a parent speaks of the deep pain of loss, expresses love for the missing ones and looks longingly at photos and mementos, he or she is saying to the watching child: “Love lives.  Love is important.  Love lasts even when our bodies don’t.  I will always love you just like I love your brother (or sister).”

grief only exists where love lived first

Young children will create their own script if adults don’t help them write one.

Because their minds are not fully developed, they will often connect odd bits into an unhealthy whole.  Just as some children decide they are responsible for their parents’ divorce, some surviving siblings think that a random act of disobedience resulted in the death of a sister or brother.

And if a parent is modeling secrecy or a stiff upper lip, that child may never reveal her dark and weighty secret.

We can help our children by providing a safe space where they can express themselves freely without fear of correction or being silenced.  It might get ugly.  Our grief gets ugly.  It’s part of the process.

But children should never become the burden bearers for adults.

Crying in front of your child is OK.  Screaming, yelling, blaming and violence is not. 

No child should feel threatened or unsafe in his own home.  If you are out of control, THAT is the time to go to a room and close the door.  Or call a friend to come get the kids so you have a few hours alone.  Or send them outside to play.  It is NOT the time to unload on your surviving child(ren).

I wish that grief was not part of life.

But it is.  

How I deal with it, what I say about it, when and how I express it will impact my children for good or ill.  

I want to offer them tools they can use and build resilience for what they may face in the future.  

Letting them see me-especially the grieving me-is an important part of that process.  

ann voskamp love will always cost you grief

 

Repost: I Get It-I Really DO Get It

I write a lot about what bereaved parents (me!) wish others knew or understood about child loss and this Valley we are walking.  And I am thankful for every person outside the child loss community who chooses to read and heed what I write.

But I want to take a minute to tell those of you who are not part of this awful “club” that I get it-I really do get itwhen you need to put distance between yourself and me or other people walking a broken road.

We all love to think that life is a never-ending ascent toward bigger, better and more enjoyable moments.

Our children are born and we think only of their future, not their future deaths.

Read the rest here:  I Get It-I Really DO Get It.

Sudden and Unwelcome Change

I woke up just past midnight to notice my bedside clock flashing off and on, indicating the power had gone out for at least a few minutes at some point after I fell asleep. 

“No worries, ” I thought as I rolled over and drifted off.  

An hour or so later and the cold woke me again.  No power.  This time for several hours.

I snuggled deeper under the warm covers and decided to go back to sleep.  Surely it’d be on by morning.

And it was.  

But it set my mind thinking as I got up, turned on the light in the kitchen and plugged up the coffee pot:  My morning routine would be utterly disrupted if electricity hadn’t begun flowing again.  

hands and coffee

No warm house, no warm shower, no hot coffee, no way to get online and post the blog (cell service is unavailable at my home), no handy portable phones to make necessary calls should the power also be out at our church just a mile down the road.

I could go on and on.

Of course each of these difficulties could be surmounted.

It would take extra effort and be frustrating, but I could manage to get by without coffee and plug up the old phone to make phone calls.  The blog could wait.  And it’s unlikely that the outage would last more than a few hours or a day and then things would be back to normal.

Imagine, though, being used to the modern convenience of electricity at the flip of a switch and then being suddenly plunged into darkness and disconnection.

Unprepared-no matches, no alternative fuel sources, no extra warm clothes for winter days and nights-just plucked from the world you knew and dropped into a world you didn’t.

That’s what it felt like when Dominic ran ahead to Heaven.  No warning, no chance to think through what life might be like, what changes I would have to accommodate, how I would need to face the days, weeks, months and years of his absence.  

family never gets over the death of a loved one

I went to bed and expected to wake to the world I knew.  

Instead I woke to a world I could never have imagined.  

And just like I rarely consider the dozens and dozens of ways electricity impacts my life-makes it easier, brighter, better-until it’s unavailable;  I had NO IDEA how Dominic’s leaving would touch every corner of every moment of every day.

Last night I slept through the power outage.  Other than resetting my blinking clocks it will require no adjustments this morning.

I can’t sleep through child loss.  

When I wake, I face it anew each day.  

And it continues to require adjustments, even now.  

homesick huff post

Repost: Step Back, Don’t React

It is possible not to react to every single thing someone says or does.  It is possible to scroll past social media posts that get under your skin and not look back.  It is possible to ignore a snarky comment or an unhelpful piece of advice from someone who ACTS like they know what you’re going through but really has. no. idea.  

Now if you are new on this journey, you will read these first few lines and think, “Is this woman crazy????” 

I felt EXACTLY the same way in the first months and even through the first couple years in this Valley.

Read the rest here:  Step Back, Don’t React

Feedback Loops and Grief

I wasn’t there when Dominic left the road but I’ve imagined it in detail hundreds of times since that night nearly five years ago.

I can’t help it.

I wonder what he thought, what he felt, whether he knew…

It’s not the only tape that plays over and over in my head.

I think about his childhood and the times I probably overlooked my third of four children as I hurried to get this or that done.  I think about the arguments we had, the laughter we shared, the disappointments and challenges we faced together.

I replay birthdays and holidays and ordinary days.

Sometimes I get in a cycle that makes me smile:  Dominic playing drums in church and subtly shaking his head and sharing an eye roll with me as the congregation claps in awkward rhythm to a song-dozens of different beats, none of which were the right one.

dominic at gray haven

Sometimes I get in a cycle that draws sobs from a place I thought I had sealed off after the first two years of his absence. 

My thoughts fall into an emotional feedback loop that, like the sound wave counterpart, is all screeching, mind-numbing and painful noise.

Like a microphone too close to a speaker, the only way out of the loop is to back away and keep backing away until the cycle is broken.

Most days I can shepherd my thoughts down safe paths.  Those are the ones I share with others when they ask me to tell them about my son.

But when I’m alone and everything is quiet and my mind is left to its own devices or cued up by a random sight, sound or smell I can find my thoughts running places I’d rather they not go.

And the loop begins again.  

 

Is God Punishing Me?

I’ve heard it from more than one bereaved parent.  

I’ve thought it myself.  

“Is God punishing me?”  

Have I done something so terrible that it falls outside the grace and mercy of the God Who sent His Son and so I must pay for it with my own child?

My heart strains to make sense of things that don’t make sense and I sometimes reach for any explanation no matter how far-fetched or theologically inaccurate.

Because truly, child loss is sometimes only the beginning of the pain and sorrow and ongoing drama and trial.   Since Dominic ran ahead to Heaven, many, many things have gone wrong.

Many,  many things have been hard.  

After Dominic left, life just piled on like that childhood game where one person held the ball and everyone else tried to get it.

I woke up every day expecting another blow and it nearly always came.

I remember begging God to simply make it stop!

He didn’t.

So I began to wonder if I was being punished.  What other explanation could there be?  If God was allowing all these hard things, it must be because I owed Him something.  I hadn’t done enough or wasn’t doing enough.  My spiritual discipline was lagging behind.

Somewhere, somehow I was falling down in my faith.  

But those thoughts weren’t placed in my head by God.  They were fiery darts of the enemy of my soul trying his best to make me doubt and turn away from the Source of my hope.  

God is not punishing me.  

He made provision for all the punishment required when He sent His Son as a complete, perfect and sufficient sacrifice for sin.

My Heavenly Father is a good and loving God Who did not leave it to me (or you, or anyone else) to square that debt.  Because it is impossible for us to do it.  Even all the pain I’ve borne is insufficient to pay it.

Jesus paid it ALL.  The debt is no longer outstanding.  

john3-16-17

Now, I may very well (and often do!) have to reap the natural consequences of my own or other peoples’ sin. 

But that is very different than thinking God is doing me harm for the purpose of punishment.  

We live in a fallen world where things do not work as God originally intended.  Human hearts are callous at best and evil at worst and we do things to one another that should never be done.  Sickness, disease and accidents happen.

Sometimes all these things happen at once.  

God can and does intervene.  Sometimes He doesn’t.  I don’t know why in one case and not in another.  That is His wisdom and purpose and beyond my understanding.

But I know that He is not punishing me nor is He punishing you.  

Jesus Himself suffered greatly in His earthly life, yet never sinned.  

That made His sacrifice the perfect, complete and utterly final payment for my own sin debt.   Having received the gift of redemption by His blood, my life is free to be offered back to God as a sacrifice of worship, reverence and faithful obedience.  

But it is not required as payment for sin.  

Neither was my son’s.  

i made you and i will carry you