Stressed: Why Doesn’t My Head Just Explode?

No days are easy when you are this side of child loss.

There is the constant burden of sorrow and pain bearing down on my heart and mind 24/7.  Then there are the little (and not so little!) everyday bumps along the road of life.

But sometimes it’s not a bump, but a mountain that looms large.  Or it may be a sinkhole that opens up and swallows days and weeks before you even realize how much time has passed since you last drew a calm breath.

These past weeks have been like that.

From the night my mother was lifeflighted to the hospital until today, we spent a week and a half in hospital plus these past few days at home trying to get her stable, better and transitioned to a new regimen that will hopefully keep her reasonably well.

While every medical professional gave great care, the majority of responsibility is falling on my dad and myself.  And it’s a huge adjustment for everyone.  No more in and out to the field on the tractor.  No more quick trips into town-at 2 litres of oxygen per hour it will take one portable tank just for the round trip.

Doctor appointments need to be carefully scheduled and routed to minimize time away from home where there is an unlimited supply of oxygen.

I am learning that elder care is a huge challenge-one I thought I knew (in principle, though not by experience).

I was dreadfully wrong.

Just like child loss, until a single call or event takes your world from “I’m in control” to “I have lost all control”, it’s impossible to understand.

There is so much to keep track of, to manage, to watch for, and to do that I honestly feel like my head is about to pop off.

Add random phone calls, doctor appointments, home health visits and (oh yes!) Hurricane Irma-well, you get the picture.

So here’s to all my fellow sandwich generation peers.

And here’s a special shout-out to the ones whose broken hearts already limp along because they are missing a child they love and are now caring for ailing parents as well.

May we all reach out to the only One Who can strengthen us for this journey.

May we speak courage to one another.  

May we extend grace to ourselves because no matter how hard we try to pretend otherwise, we are human.

shame for being human

 

 

Time (and Life!) Marches On

I’ve probaby heard the question a half-dozen times in the past three weeks as doctors or nurses were checking my mom’s mental function during her hospital stay:  What year is it?

And every single time-even though I know full well that it is 2017-the answer makes me suck in my breath.  Because, really, how has the world kept turning since Dominic left us?

How, how, how can it be nearly three and a half years since I talked to him, hugged him, heard his voice?

But it is.  

And the further we get from that point in time when the world as I knew it came crashing down, the harder it is for people around me to remember that I continue to carry this load.

I’ve gotten stronger.  I’ve developed ways to work around the grief most days and in most situations.

Still, I find daily tasks more challenging than before.  Sadness sneaks up on me and tears leak from my eyes.  Anxiety stalks my heart and sometimes catches it.

I get tired-so, so tired-because there is just no reserve.

I wish I could press the “pause” button and give myself a little break.

But time (and life!) marches on.  

 

Anger or Sadness? Or Both?

We live in an angry society.

Social media is full of rants about this and that.  Television blares raised voices shouting over one another in what passes for news coverage.  T-shirts are emblazoned with one-liners intended to provoke others.

We tolerate and even embrace anger as a legitimate emotion.

Yet we rarely make room for mourning.  We hide our tears.  We shame those who don’t hide theirs as “weak” and “soft” and “cowardly” or worse.

But many times what we think is anger, is really sadness.

anger authentic

I’ve discovered that sometimes in this Valley of the Shadow of Death,  deep sorrow masquerades as anger.  And I’ve become sensitive to that truth in other people as well.

Sadness over loss of any kind can be spewed out as anger:

Sorrow over declining health.

Despair over lost opportunities with loved ones.

Heartache that life has not turned out the way one had hoped.

The problem with anger is that it pushes people away.  It creates an impenetrable circle that isolates a heart just when it needs to be loved, cared for and comforted.

Very few are brave enough to battle through another’s angry front to find the sorrow hidden underneath.

So I challenge myself to be more authentic in expressing what I actually feel and not dig a moat around my heart by acting angry when I’m really devastated by grief.

Because I don’t want to push people away, I want them to come close.  

I need them to take my hand and remind me that I’m not alone. 

band-aid-and-heart

Give What You’ve Got

If you had asked me four years ago where I’d be and what I’d be doing in life, I can guarantee you that writing a blog and ministering to bereaved parents wouldn’t have been in the top 1000 answers I might have given.

But here I am.  

Because it is where I have been sent.

Not where I would have gone-oh, no!-I would have taken a ship in the opposite direction like Jonah if God had given me a heads up.  Instead I was whisked away on the waves of grief right out to sea.  

Gasping for breath and trying to keep my head above water, I realized that what I had needed early on were two things:  (1) assurance that what I was experiencing/feeling/thinking was normal; and (2) encouragement from others farther along in this journey that I could endure this awful pain.

So I stepped out in faith hoping that being authentic, transparent and sharing MY journey might help another heart desperate to know she wasn’t alone.

I decided that even if others misunderstood or took issue with or didn’t like what I wrote,  I would not pull any punches.  

It was going to be the good, the bad and the ugly.  

No holds barred.

Emotional nakedness-even if it meant embarrassment.  

And I pray every single time I hit “publish” that what I send into cyberspace is what at least one heart needs for THAT day.

It’s all I’ve got, and I’m giving it away.

go where sent stay where put give what youve got

Kim Nolywaika at You Can Trust Him was kind enough to nominate thelifeididntchoose for a Liebster Award. What a surprise!

Thanks, Kim.

Liebster-award-ribbon

As per the (alternative, Set #2) Rules, I would also like to nominate the following blogs that I follow and which bless me:

Boxx Banter

Cause Me to Hear

Finding Joy in Him

Kathleen B. Duncan

Shattered Dreams and Shattered Faith

 

 

 

To My Fellow Grievers-Love Brave

I was unprepared for the many traveling companions grief brought with it.  I knew to expect sadness and despairbut what about anxiety and guilt?

I had no idea how large a space guilt would soon occupy in my thoughts and heart-guilt over what I did or didn’t do when Dominic was still with us, guilt over what I do or don’t do now.

I can do nothing to change what happened in years past.  

There is no magic time machine that will allow me to go back and linger long over his jokes or cling harder when he hugged me.

But I can choose to approach today in a way that frees me of foolish guilt and unnecessary regrets.

I can’t do everything but I can do something.

I can love big and brave and refuse to waste the days I have with the people that mean the most to me.

do what you can with what you have where you are

[#unblessed] If You Don’t Laugh, You’ll Cry

So my regular followers know by now my mom was lifeflighted over a week ago from her VERY rural home to the nearest large hospital due to a heart attack and complications from preexisting heart/lung disease.  (If you didn’t, you do now 🙂 )

I’ve been here with her since Thursday morning-taking night shift at the hospital so my dad can go home to the farm, get some rest and do what needs to be done.

You’d think a body might catch a break when some giant life-altering event like this happens.  But NOOOOOOO!

when i asked if life could get worse was rhetorical

In the week plus a day since Mama has been hospitalized we have had (not really, but sorta) funny one [#unblessed] moment after another.

Last Friday morning, following my dad to the hospital, he did the same sliding “stop” at a stop sign turning right onto an access road that he’s done every time he goes this way for 20 years.  But this time-you guessed it!– a very enthusiastic and attentive LEO saw him and pulled his old red farm truck over.

Following behind, I’ll just be honest, more than one salty word slipped out as I anticipated the worst possible outcome in case fatigue and stress prompted Papa to tell the officer what’s what.  Thankfully, it didn’t come to that and after running the plates and license the cop let him go.  [#unblessed]

Sunday I came to the farm by myself for the first time and left Papa at the hospital.  He had remembered to give me a house key and I had carefully put it in my purse.

Perfect.

Got inside-no problem.

I needed to add clothes to a load in the washer and stepped out on the porch to toss them in.  Being the well-trained daughter I am, I shut the house door behind me.  Locked myself out of the house.  

No phone.  

No shoes.

No car keys.

NOTHING.

locked out of house

Everyone down this way was in church.

So I did the only thing I could do.  I put on an old pair of Papa’s boat shoes (after checking for spiders) and hoofed it the two miles to my uncle’s house so he could give me the spare key.  At midday.  In the Florida sun.  No one stopped to ask if I needed a ride.  [#unblessed]

Tuesday I thought I was being very innovative in getting my critical daily medicine prescriptions filled at the local pharmacy HERE since I didn’t bring a sufficient supply from home.  Called CVS and it was a breeze except for one hiccup. A single script was out of refills so I had to call my doctor and ask for an emergency 14 day supply to be sent. Nurse took the message, said she’d get it done.  That was at 11:15.  I head to the pharmacy about 3:00 to pick everything up.  Two are ready but the one from the doctor isn’t.

Thinking that there had been a snafu-they might have called it in without thinking to my pharmacy back home-I telephone the office only to be told that the doctor was going to do it this time, but that because he wanted me to do a follow-up appointment (which I had cancelled but forgot to reschedule), he was basically doing it under duress.  (Even though this is a “don’t you dare stop it suddenly” medicine and I told the nurse my mom was lifeflighted to the hospital with a heart attack).

All the fight was out of me.  I “yes ma’amed” my way through that phone call and said “thank you so much”.  The nurse waited until the minute before their office closed to fax the script just because she could.  [#unblessed]

They are trying to move the fluid off my mom’s heart and lungs with aggressive IV diuretics.  She had one round Tuesday but by Wednesday morning her potassium was so low we had to bring that back up before the next round.  Well, the next round started at 6:30 Wednesday night.  (For those of you who don’t know about these things, IV diuretics mean trips to the bathroom about every 20-30 minutes.)  Yep!  All night long, me and Mama made that three foot trek from the bed to the potty-unhooking oxygen, unplugging the IV pole (it won’t hold a battery charge) and carefully moving her fragile self twice an hour until about 3:30 in the morning.  Apparently cardiologists figure that if they are on 24 hour call, patients should be too.  [#unblessed]

of course i sleep its exhausting keeping you up all night

Heading home Thursday morning after little sleep on Wednesday night, I see blue lights behind me.  I check my speed.  Within the limit.  I’m talking on the cell but not texting. I have no idea why I’m being pulled over.

License and registration.  He tells me that the tag I have on my truck comes back to the Toyota Camry we own.

Now, you have to understand our family has many vehicles and they issued new tags this year.  I didn’t pay close enough attention when taking them outside to put them on and got them mixed up. But “switching” tags is a serious offense.  And then, OF COURSE, I had not put the new insurance card in the glove compartment-it was floating in my purse.  (Thankfully I found it.)  For about 10 minutes my heart was racing although I had already decided that if I got off with a ticket I’d pay it without blinking an eye.  He did let me go but I’m convinced he thought I was a crazy woman who should have known better  [#unblessed]

heres another ticket for giving me imaginary id.png

Today, I tried to get my injectable RA medicine shipped to the same pharmacy since my shot is due tomorrow.  Went through the whole routine of getting the shipment set up and find out the earliest they can get it here is NEXT Thursday.  When I probably won’t be here at all.  [#unblessed]

I’m sitting here in my parents’ home, typing and taking a break.  Because my oldest son may be here tomorrow.  See, the largest, strongest and potentially deadliest hurricane is headed either for his home on the east side of Florida or for us here in the western panhandle-but we are further inland.  My truck is stocked with bottled water and other supplies “just in case”.  We don’t know if Mama will be released before Irma gets here or not but we’ll be OK. Who would have thought?  It figures.  [#unblessed]

Each incident adds stress to the system but none are really all that traumatic.

Because when you’ve buried a child, nothing short of death really rocks your world very much.

And I’ve learned to laugh (once the adrenaline wears off)-because if I don’t, I’ll just cry.

always find a reason to laugh

 

It ALL Matters

I hate to admit it but I not only like to prioritize tasks I often prioritize people.

I divide them into two columns “Matters”  and “Doesn’t Matter” and give different weight and time and effort to each one depending on which side of the paper they are listed.

While that’s just fine for inanimate objects or household chores, it’s just plain wrong for relationships and people.

Because when I’m approaching another human being bearing the likeness of the God Who made him or her, I don’t get to decide how valuable they are.

That’s already been decided by Jesus Christ.

you are worth more than many sparrows

So my responsibility is to do precisely that task I have been sent to do at that moment-whether it is offering a smile, taking a meal, lending a helping hand or writing a note or making a phone call to encourage a tired heart.

Because it ALL matters.

 

Repost: Practical Ideas for Dealing With the Holidays After Child Loss

It cannot be overstated:  holidays are extremely hard after loss.  Every family gathering highlights the hole where my son SHOULD be, but ISN’T.

There is no “right way” or “wrong way” to handle the holidays after losing a child.

For many, there is only survival-especially the very first year.

These days also stir great internal conflict:  I want to enjoy and celebrate my living children and my family still here while missing my son that isn’t. Emotions run high and are, oh so difficult to manage.

Read the rest here:  Practical Ideas for Dealing with the Holidays after Child Loss

Revised Post: Grief and Holidays:What the Bereaved Need From Friends and Family

Thank you to each one who is praying for my Mama.  She is improving each day and we are hopeful that maybe in a few days we will escape the hospital 🙂

I am so, so thankful for the wonderful medical care available in our nation and to the medical professionals who are helping her heal.

As all my bereaved friends know, life doesn’t stop for grief-it keeps going.  Things happen.  So we keep on keeping on-it’s the best we can do.  ❤

I know it is hard.  I know you don’t truly understand how I feel.  You can’t.  It wasn’t your child.

I know I may look and act like I’m “better”.  I know that you would love for things to be like they were:  BEFORE.  But they aren’t.

I know my grief interferes with your plans.  I know it is uncomfortable to make changes in traditions we have observed for years.  But I can’t help it I didn’t ask for this to be my life.

I know that every year I seem to need something different.  I know that’s confusing and may be frustrating.  But I’m working this out as I go.  I didn’t get a “how to” manual when I buried my son.  It’s new for me every year too.

So I’m trying to make it easier on all of us.  

Read the rest here:  Grief and Holidays:What the Bereaved Need From Friends and Family