A Day in the Life

If you get up every morning and go to work-I applaud you!

Most of my days start with work, but I don’t have to go farther than my own property to discharge my duties.

But today I had to get going extra early for a doctor’s appointment with a specialist about 50 miles away.  So I rushed through my morning chores, double-checked I had everything I needed and left home by 7:10.

I had to park in a parking garage-no easy feat when you drive a full-size pickup and the spaces are designed for mid-size cars.  The low roof, confined space and limited light make me feel trapped and uncomfortable.

Every time I have to fill out health paperwork there is always a question or two that makes me think of Dominic.  I shake off the beginnings of tears and wait to be called back.

My blood pressure is higher than it usually is and I’m a bit heavier than last time I was there-both things that make me feel like a failure and add to the voice in my head that says, “You aren’t good enough.  You are doing something wrong or this wouldn’t have happened to you.”  

My disease is progressing and although my doctor is kind, and patient, and fully aware of the fact that I’ve buried a child,  she broaches once again a treatment option that has more risk but potentially greater efficacy.

I’m just not ready to take the leap.

So my anxiety mounts as I think of both alternatives:  Submitting myself to a new treatment that may have grave consequences or giving in to the inevitable limitations that rheumatoid arthritis is imposing on my life.

She graciously puts off the decision for another three months but I know I won’t be in any better position to make it then either.  I’m paralyzed now when I have to decide these kinds of things-torn between “doing what’s best” and “what difference will it make?”

Bloodwork means waiting in a area next to the infusion clinic and hematology departments and I am surrounded by people that are in dire straits. Once more, between the waiting and the thinking, I’m ready to be out of there.

When I get back to my truck, what had looked like a pretty good place to park has become a nightmare.  Another truck beside me and two parked opposite have closed the space I should have had to get out to the bare minimum.  And someone is waiting for my spot.  

Oh, joy!

I try.

I really try to figure out how to get too much vehicle out of too little space.

Finally, in tears, I step out of my truck (now in what I think is an impossible position) and raise my hands in the air-I give up!  You win!

The kind man that was waiting steps out of his car and guides me backward and forward (4 turns!) until I am free from the awful predicament.  I thank him and keep going.

Before Dominic left us this day would have seemed like a tiny blip on the radar of life.  It certainly wouldn’t have brought me to tears.  

But the energy required to simply get up and get going in the wake of losing him means that I have so much less to spend on anything else.

I don’t suffer from anxiety.

I’m not depressed.  

But there are many moments throughout the day when I am anxious or sorrowful.

One minute I’m fine.  And then a series of events, phone calls or memories pile one atop the other until they become a load I can no longer bear.

It feels like I am always behind, always short on resources, always close to tears.

And no matter how hard I try, I am unable to simply “get better”.  No matter how much I organize or plan or work at it,  I always end up frazzled and frustrated and feeling like a failure.  

I wish it wasn’t like this-this added burden in addition to the missing and the sorrow. Maybe it’s part of the missing and the sorrow.  I don’t know.  

But I’m ready for a day, a single day, when I feel just a little bit victorious..

The Shadowlands

 

Isn’t God supposed to be good? Isn’t He supposed to love us? Does God want us to suffer? What if the answer to that question is, ‘Yes'”? I suggest to you that it is because God loves us that He makes us the gift of suffering.

I’m not sure that God wants us to be happy. I think He wants us to be able to love and be loved. He wants us to grow-up. We think our childish toys bring us all the happiness there is and our nursery is the whole wide world. But something must drive us out of the nursery to the world of others and that something is suffering.

You see, we are like blocks of stone out of which the sculptor carves forms of men. The blows of His chisel, which hurt so much, are what makes us perfect.

C.S. Lewis

Lewis referred to this life as “The Shadowlands”.  The place where we see the shape of the promise but not its substance.

I am caught between the world I live in and the world to come.  There is beauty in both, but only in Eternity will my heart be at home.

Right now, I am Living Between the Crucifixion and the Resurrection

not your best life

 

 

 

 

 

Safe Friends

I hope you have one.  

That one person who knows your greatest joys and deepest pain and keeps it locked in her heart as if the secrets were her own.  

She is a gift from God to me, that friend.  

She’s the one I call when I’m wracked with sobs and the words won’t come.  She knows it’s me and just waits on the line until I can speak. She gets my jokes, knows my weaknesses, my strengths and helps me steer a better path on this hard road called “Life”.

She is a safe friend.

listening is a postive act

A safe friend listens.  

Just listens.  

She isn’t formulating an answer while I am talking, she isn’t rounding up cliches or Bible verses or platitudes meant to make her sound wise and shush my sharing.  She hears my heart even when my words might not make sense.

A safe friend sees.  

Really sees.  

She looks in my eyes and pays attention to my expression. She notices when my smile doesn’t match the tone of my words or the silent language of my hands.

She won’t let me by with a quick, “I’m fine!” meant to brush off the real need to spill my guts.

A safe friend stays.  

As long as it takes.

She doesn’t leave in the middle of a hard conversation.  Even if life gets in the way, she will come back and pick it up.  She checks in with me and doesn’t let time unwind the threads that bind us together.  If I don’t contact HER, she contacts ME.

 

 

A safe friend walks with me.  

No matter how steep the path, no matter how rocky the road. We might be hobbling along, broken together, but she keeps going and she keeps me going.

 

 

A safe friend encourages me to look to Jesus.

She admits that she doesn’t have all the answers.  She agrees that there are many things we will have to wait to understand.  But she reminds me that for this, we have Jesus.  We have a High Priest Who was tempted in every way yet was without sin.  We can enter boldly into the Holy of Holies because by His blood the veil is rent.

She doesn’t issue spiritual ultimatums that undermine, instead of strengthen, my faith in Christ.

friends pick us up

 

A safe friend doesn’t cut me out of her life when my life is a mess.  

Even if the mess is of my own making.  She helps me untangle the knot, own up to the sin, reach out to Christ and make amends.

 

A safe friend doesn’t just “happen”.

She allows the grace and mercy and love of Jesus to mold her heart so that He can use her.

Everyone NEEDS a safe friend.

Anyone willing can BE that friend.

kindness

 

More Grieving Hearts-What Grieving Parents Want You to Know

Two weeks.

Two families added to the roll call of those who have lost a child-suddenly, without warning.  

Two more sets of parents, grandparents, siblings, cousins plunged beneath the sea of sorrow.

And those are only the ones I know about-the ones whose lives touch my own.

Every day we are shoulder-to-shoulder with people carrying a load that threatens to undo them.  If you haven’t experienced child loss you probably think you can imagine how it feels.

I know I did.

But I was wrong.

THIS is what it feels like:  What Grieving Parents Want Others to Know

hands and coffee

I am NOT Crazy!

It was just over a year after Dominic’s accident and a friend forwarded an article about odd behaviors of those who were “stuck’ in grief.  Along with the forward was a little tag, “Reminds me of you.”

It hurt my feelings.

And it was inappropriate.

Because not only had I not participated in any of the listed behaviors (most of which anyone would deem odd and some that were actually harmful) but as far as I could tell, I was doing pretty good, considering.

Considering I went to bed one night with four children alive and well and woke in the wee hours of the next day to the news that one was dead.

No warning.  No good-byes.

Just gone.

In the months since that day I had gotten up each morning and taken care of necessary tasks.  I was not abusing alcohol, drugs or food.  I was still exercising when I could.

And I was engaged with my family -working with them to put the pieces of our shattered lives and hearts back together again.

Yes, I cried.  A lot.  No, I didn’t like to be around crowds.  I stayed at home much more than before. I struggled with anxiety when anything out of the ordinary happened.  I found small talk hard to follow and forgot things (still do). And I was not participating in many “extra” activities.

I slept with Dominic’s pillows every night-it was a way to touch what was left of him.

But I was functioning.

My friend’s reaction to the fact that I was “still” grieving after a year is not all that unusual.

I speak to bereaved parents who are often made to feel by others as if they should “be over” the death of their child.

They are told to “move on”.

Or, in faith circles, to “be happy he is in heaven”.

Most mental health professionals agree that child loss is probably the most difficult loss anyone has to bear.  

A simple Google search will turn up dozens of articles that support this understanding of a parent’s heartache and lifelong struggle to embrace the pain of losing a child.

Yet most people are unaware of this fact.

So I’m here to tell you-grieving mama, grieving dad-you are NOT crazy!  

You are not overreacting to one of the most awful things that can happen to someone.  Out of order death is devastating!

When asked about his son years after he had died,  Gregory Peck replied:

every day

As I’ve written in a previous post Am I Normal?

No one thinks it strange that the ADDITION of a child is a life-long adjustment.

So, why, why, why is it strange that the SUBTRACTION of a child would also require accommodation for the rest of a mother’s life?

I understand that if you haven’t walked this path, you can’t REALLY know what it’s like-even if you try.

I don’t want you to know this pain by experience.

It’s awful and unrelenting.

What I do want you to know is I am NOT crazy for missing my son.  I am NOT crazy for wishing I could turn back the clock.

I am NOT crazy because this devastating, paradigm shifting, unbelievably painful event still impacts my everyday life.

Please don’t treat me like I am.

The best help a friend can offer is a listening ear-no judgement-and a hug that says, “I love you. And I’m sorry.”

changed for life

 

Ask Away!

I can’t tell you the number of times I’ve heard or read bereaved parents second-guessing themselves.  They say or write:  “I know you’re not supposed to ask ‘why?'”

Baloney!  The Psalms are FILLED with “Why God?”

Questions are where the rubber meets the road in the Christian life.  

Questions are where I learn to submit my heart to the lordship of a God Who loves me and Who has a perfect plan even when all I can see is pain.  

Questions are the way I weed my garden of faith-they force me to choose between trust and doubt.

“There are those who say faith means you never doubt.  Those who live by the creed, ‘Don’t ask questions!’

But I say faith is exactly what you cling to in the margins of doubt–when you have exhausted all the possibilities that exist in the physical, you-can-touch-it world and yet you KNOW there is MORE”

Read the rest of this post here:Debate and Faith

Inseparable!

In the first days and months after Dominic left us I copied this verse dozens of times-in my journal, on notecards, on posterboard to plaster across the refrigerator and stick on mirrors and doorposts.

I had to remind my heart that even death could not separate my son from Him.  

That even the most wily schemes of the enemy could not rip me from the hand of my Savior and that even my own doubts or fears or questions were not stronger than God’s love through Christ to hem me in and keep me safe within the confines of His protection from eternal damnation.  

God’s Word is living and active.  

It is part of my inheritance in Christ Jesus and I can appropriate it for my own life.  When I am afraid and when I doubt, I try to repeat truth until my heart can hear it:   

“If God is for [Melanie and Dominic] who can be against us?

32 He who did not spare his own Son, but gave him up for [Melanie and Dominic]—how will he not also, along with him, graciously give [Melanie and Dominic] all things?

33 Who will bring any charge against [Melanie and Dominic] whom God has chosen?

It is God who justifies. 34 Who then is the one who condemns? No one. Christ Jesus who died—more than that, who was raised to life—is at the right hand of God and is also interceding for us.

35 Who shall separate [Melanie or Dominic] from the love of Christ? Shall trouble or hardship or persecution or famine or nakedness or danger or sword? 

37 No, in all these things [Melanie and Dominic] are more than conquerors through him who loved us.

38 For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers,39 neither height nor depth, nor anything else in all creation, will be able to separate [Melanie or Dominic] from the love of God that is in Christ Jesus our Lord.”

Romans 8: 31b-35,37-39 NIV

nothing can separate1

Monday Musings

It’s my habit to watch the sun rise.

Even on Monday mornings.

Even when I might rather stay in bed.  

Because every time the sky lightens from black night to bright day I’m reminded of two things:  

loved by the one in control

 

 

I am not in control.  

But God IS.

I can’t stop the world turning and I can’t make the sun rise.  

 

But I don’t have to-I am not responsible for the big picture.  I am not in charge of making all the pieces fit just-so.

My duty is to be the piece I was made to be.  

To go where God sends me.  

To do what God has for me to do.

 And to leave the rest in His hands.  

There are times I want to be in control, but it doesn’t last long.  I quickly realize that I can barely keep myself in line, much less anyone else.

you are more

 

And when I let go, I am free.  

I am free to be the me God has made me to be.

I free those around me to be the persons God has made them to be.  

And that’s worth waking up to.

Broken Hearts, Beating Still

The events of this past week have thrown my body into a tailspin-like muscle memory acquired through repetitive action-I feel the terror of parents hearing the awful news that their child is gone.

It’s as if I am the one hearing the knock on the door.

As if I am the one absorbing the terrible blow.  

And I know what they don’t yet understand-there is no wonder drug or magic pill that can erase the pain.

There is no miraculous cure for a broken heart.  

I wrote this months ago, but this week has made it fresh again: 

When Dominic was born by c-section, they placed the epidural too high and I was unable to feel my chest rise and fall even though I continued to breathe.

It was a frightening experience. I WANTED to keep breathing-because I wanted to touch this new life coming into the world and into our family.

But when the deputy brought the news that Dominic had been killed, it felt like I stopped breathing and my heart stopped beating-and I would have welcomed both.

I wanted to escape the pain that filled my heart, my soul, my bones.

I think most bereaved mothers will tell you they have absolutely NO IDEA how their bodies continue to live and carry this heavy burden.

I do it for those still here and, having felt the pain of being left behind, my mama heart wants to spare the ones I love as long as I can.

But rest assured, it is a daily struggle to decide to go on.

heart_640

“Broken Hearts Still Beat”

BIRTH

I’m not breathing.
They assure me that I am.
My heartbeat thumps the truth for all to hear.
A welcome wail ushers his life into the spotlight of this wide world.

DEATH
I’m not breathing.
They assure me that I am.
My lungs draw air against my will and my better judgment.
An anguished cry marks the end of his earthly life.
I am breathing.
My body refusing to keep pace with my broken heart.

melanie desimone, november 7, 2014

My Cup Overflows

“You anoint my head with oil; my cup overflows.” Psalm 23:5b

I remember standing in our field with my husband at sundown one day, thankfulness and grace and mercy and wonder flooding my heart-and I whispered, “surely my cup overflows!”

Surely, God’s hand is in this, is on our lives-He has brought us to this place of blessing.

And that’s how I used to always think of that verse-the cup overflowing with goodness and blessing.

But what about when the cup overflows with sorrow?  

With pain?

With tragedy, trials and temptations?

jesus in the garden

Jesus knew about that cup.  That’s the cup He begged the Father to take from Him.

The cup that was bitter and hard to swallow.

He prayed three times, He sweat blood and He battled His flesh so that His spirit could conform to the Father’s will.

And in the end, He submitted Himself to the Father’s plan.

He was obedient, even to death, even to death that He did not deserve, did not HAVE to suffer, did not WANT to suffer.

I have buried a son.

And it is the most painful thing I have ever had to bear.

It’s a burden I never anticipated and it’s a burden of which I will not be free until I join him in Heaven.

There are some parents who have suffered the loss of multiple children. Or who have suffered child loss and other difficult life circumstances.

If my cup is full and overflowing, theirs is overflowing still more.

Where to take that full cup?

Where to find the strength to carry it, to drink it to the dregs?

When my heart screams, “No more!” and my body cries, “I can’t do this!”, I look to my Savior for the model of how to carry on.

Only in Christ, Who Himself bore the cup and Who drank its bitter fullness can I hope for strength and redemption.

The One Who knows my pain can carry my pain.

The One Who lives again will breathe life into my heart.  

The One Who redeems what the enemy has stolen will turn my mourning to dancing.  

cup of blessing

This cup will not always overflow with sorrow.  Around the banquet table at the wedding supper of the Lamb, it will once again be full of joy.

You make me know the path of life; in your presence is unbounded joy, in your right hand eternal delight.

Psalm 16:11 CJB