The Absence of His Presence is Everywhere

Something I’ve been learning in this grief journey is that loss is an ongoing event.

It’s not confined to the moment of death, the funeral, the burial or even the boxing up of belongings.  

I suffer loss every time there is a moment when Dominic would have been present, should have been present and isn’t here.

It happens when I need to ask him a question, get his opinion, long for his help or just want to hear his voice.   

It happens when I look at myself in the mirror and realize that the living mirror that was Dominic is gone.

There is so much more to his absence than just the hole in my heart.

I shared some of these feelings a few months ago:

A family isn’t just the sum of its parts.  It isn’t a simple equation that can be worked out on a chalkboard or around a dinner table-this person plus that person equals two persons.

A family is an organic mixture of personalities, relationships, strengths and weaknesses that exponentially influence one another. I always joked that our family was a ready-made committee.  Wherever we went we brought a fully staffed, action-ready army of six that spread out and triumphed over whatever challenge we faced.

You can read the rest here:  Minus More Than One

Some Days, Getting Out of Bed is Courageous

We walk past them every Sunday.  

Those people who almost didn’t come to church.  The ones who spent thirty minutes just talking themselves into getting out of bed.

And we never know.

Life is hard.  Suffering abounds.  

Since losing Dominic I have become ever more aware of how very many people are hurting. And how very many people are truly brave.  Every. single. day.

It’s one thing to act in an instant-when adrenaline rushes through your veins and pumps extraordinary strength to your muscles and grants clarity to your mind to gather all your nerve and power to jump in and DO SOMETHING.

It is quite another when, without aid of chemical courage, you wake each day to a long list of “to do” items knowing all the while you will be dragging the heavy weight of grief and sorrow everywhere you go.

Read the rest here:  Brave

 

Slow Fade

It would be easier, in a way, if it happened all at once.

If the vivid memories of his voice, his laugh, his body language, his sense of humor just disappeared-POOF!-now-you-see-it-now-you-don’t. Then I could make a single adjustment.

But that’s not how it is.  Instead, the living proof of his existence recedes like a wave from the shoreline, only there’s no returning surge to remind me of the force that was Dominic.

Each new day marks one more rotation of the earth, one more sunrise and sunset that places me further from the last time I saw him, the last time I heard his voice, the last time I hugged his neck.

And there is no cure for time marching on.  There is no “pause” button that I can push to let me catch my breath and allow my heart to comprehend the reality my body and mind must embrace.

Small mementos that are insignificant to those around me crumble to dust between my fingers.  Eventually I’m forced to sweep them up and put them away forever.

His friends find jobs, get married, have children-wonderful life events, things I celebrate with them-but they also remind me that he will never do those things.  I will never hold his child, relieved the labor is over, thrilled to see his eyes or nose in a tiny face looking back at me.

The subtle and constant change keeps me off-balance.  As soon as I think I have found my footing on this new plateau of loss, the earth moves beneath me and I’m stumbling once again.  

I came across this quote not long after Dominic left us.  When I first read it, I didn’t really understand.

But now I do.

“When someone you love dies, and you’re not expecting it, you don’t lose her all at once; you lose her in pieces over a long time—the way the mail stops coming, and her scent fades from the pillows and even from the clothes in her closet and drawers. Gradually, you accumulate the parts of her that are gone. Just when the day comes—when there’s a particular missing part that overwhelms you with the feeling that she’s gone, forever—there comes another day, and another specifically missing part.”

John Irving, A Prayer for Owen Meany

 

 

Searching for the Rhythm

Counselors tell the bereaved that grief will change them.

They readily acknowledge that life after loss will never be the same as it was before death entered our world.  But they encourage us that there will be a “new normal”–different, yes,  but some kind of settled pattern that we can count on.

I’m not sure when this is supposed to happen.

Every day I feel out out of balance, off-kilter and have to scramble to catch up to the clock ticking off the hours.  I can’t find the pattern, the beat…

Grief sways to a rhythm of its own.

Hard to follow, impossible to second guess.

I step on my own toes trying to keep up and find that often I fall flat on my face.

When Dominic applied to the University of Alabama Law School, he had to submit a personal statement.  The idea was to give the selection committee insight into intangibles that might make a prospective student a good candidate for the program.

Dominic wrote about being a drummer.

He made the case that percussion is the heartbeat of music.  It marks the pace, leads the way.  If a drummer misses a beat, it can throw the whole band into confusion.

My life as a bereaved mother feels like music that can’t find its way.

There is melody and harmony and sometimes sweet singing–but I can’t discern a rhythm and I don’t know where it’s going. Discord clangs loudly in the background.

These years were supposed to be the ones where I swayed instinctively in well-worn paths to familiar tunes.

Not ones in which I had to learn a brand new step to a song I don’t even like.

I don’t have the option to request a different tune, so I do my best to keep moving to this broken beat.

Dragging Grief into the Light

During the course of my lifetime I have seen many topics dragged from behind closed doors out onto the stage and under the public spotlight.

Frankly, some of them could have remained in darkness as far as I’m concerned.

But there is something still taboo in polite conversation–something hushed with awkward silence should it ever be spoken aloud in a crowded room–mention GRIEF and eyes drop to the floor or someone hastily throws an arm around you and says, “There, there–it’s going to be alright.”

I don’t blame them.

In my growing up years I don’t remember anyone speaking about death and grief for longer than the time it took to go to a funeral home visitation and stand by the grave as the casket was lowered in the ground.  People were designated by their loss:  He was a widower; she lost a child; her mother died when she was young.

But what came AFTER the loss–not a word.

We need to talk about it.  We need to educate ourselves about it.  Because, like my EMT son says, “No one gets out of here alive.”

You WILL experience grief in your lifetime.

I pray that the people you lose are full of years and ready to go–that you get to say “good-bye” and that all the important things have been said and done so that you aren’t left with extra emotional baggage in addition to the sorrow and missing.

But you never know.  Neither you nor I are in control.

And even in the one place where it would seem most natural to talk about life and death and grief and pain–our churches–it still makes those who are not experiencing it uncomfortable.

Yes, there are grief support groups.  And, yes, they are helpful in ways that only a group made up of people who understand by experience what you are going through can be.

But much of life is spent rubbing elbows with folks unlike ourselves, with parents who know the fear of losing a child but not the awful reality.  And just a little bit of openness, a little bit of education and a little bit of understanding would make such a difference.

So for the next few days I am going to be posting about the grief process itself.  About what grieving parents experience and how friends, family, co-workers and churches can support them.

If you are a grieving parent, I hope these posts will serve as a launchpad for you to have conversations with your own friends and extended family.  If you aren’t a bereaved parent, please commit just the few minutes it takes and consider how you might support someone in your circle of influence who has lost a child.

We don’t want pity.

We aren’t looking for special accomodations that single us out and mark us as “needy”.  But we long for understanding and compassion and the opportunity to tell our stories.

 

 

grief and sleep

Boy, do I envy my cats’ ability to fall asleep any place, any time.

I’ve lived with chronic physical pain for over a decade and there are nights when it is hard to go to sleep-when it is impossible to ignore the pain.  But I have never thought of myself as having trouble sleeping.

Until now.

When grieving a child, you are oh, so very tired.  Yet often sleep eludes you.

“He who learns must suffer.  And even in our sleep pain that cannot forget falls drop by drop upon the heart, and in our own despair, against our will, comes wisdom to us by the awful grace of God.”

Aeschylus

Lying in bed, in the dark, my mind kicks in to hyper-drive.  With no external stimulation to provide distraction, images come unbidden and unwelcome to taunt me.  I work hard to guide the train of thought to a less tortuous route.

So I thought I would share some ways that help me make it through the long nights:

  • Only lie down when you are tired enough to expect that you can fall asleep.  I am physically active each day so that at least my body is ready for rest.
  • Don’t drink caffeinated beverages after 12 noon and don’t eat heavy foods past mid-afternoon.
  • Be selective about what you listen to, watch or read in the hours leading up to bedtime.  I try to feed my mind images and information that will help me focus on more positive themes when I close my eyes.
  • Keep a pad and pencil next to the bed to jot down last minute reminders of things you might need to remember tomorrow.  I try to think ahead and have a rough plan of action for the next day so that my mind can rest.
  • Make sure you are physically comfortable–room temperature and bed clothes appropriate to the season, pajamas in soft fabrics, well-hydrated, take analgesics as needed for physical pain, etc.
  • Make whatever concessions are needed to hold anxiety at bay.  I have a nightlight in my bathroom that casts a soft glow into my bedroom.  I keep my cell phone and home phone next to me because once you get “that call” you feel like you must be instantly accessible to loved ones.  My cat sleeps with me–purring is a great comforter.
  • When I turn out the light and turn over, I purposely focus my mind’s attention and heart’s affection on trusting God to help me drift off to sleep.

“I can lie down and go to sleep, and I will wake up again, because the Lord ·gives me strength [sustains/upholds me].”

Psalm 3:5 EXB

  • If you wake up in the middle of the night, try reciting Scripture, poems, humming hymns or other music to lull yourself back to sleep. I will sometimes do mental work like planning a project or trying to recall a childhood memory–anything that might make me tired.
  • If  you can’t go back to sleep in 30 minutes or so, get up and get on with the new day–even if it is only hours old.  There’s no use lying in bed and tossing and turning. While I may be exhausted for that day, I’m almost certain to be able to sleep better the next night.

Sleep is important.

If you find that you are unable to get more than a few hours sleep for longer than two weeks–talk to your doctor.  There is NO SHAME in asking for help. And there are many products available that are non-habit forming and suitable for short-term use.

It is impossible to do the work grief requires if you are worn out from lack of sleep in addition to carrying the pain of losing your child.

“We sleep, but the loom of life never stops, and the pattern which was weaving when the sun went down is weaving when it comes up in the morning.”

Henry Ward Beecher

If we can help ourselves get the rest we need, we are better able to face the challenge of each new day.

Worn

I used to think the expression, “the straw that broke the camel’s back” was an exaggeration meant to paint a comical picture of someone who didn’t have sense enough to remove pounds of heavy bricks but buckled under the tiniest extra weight of a single straw.

Now I think it accurately describes those of us with no control over the baggage we have to carry and who find that it really is the small things that force us to the ground.

Just when I’m convinced I have this grief load well-balanced so that the weight, though heavy, is bearable, along comes LIFE and throws the whole rig out of kilter.

Grieving my son means that while I can usually get through the day, I have no extra emotional, psychological, physical or spiritual energy to draw on when things get just a little more challenging:

  • I mean to encourage, but miscommunicate my heart to a friend and hurt her feelings.
  • Family members have needs I can’t meet.
  • People I expected to lend a listening ear spend our time together unloading on me instead.
  • My rheumatoid arthritis flares and moving around just plain hurts.

And I realize that the load I thought I was managing is much too heavy and threatens to crush the wind right out of my lungs.

With my strength gone, the sorrow and the missing and the unanswerable questions dog-pile on my prostrate spirit.

The song “Worn” by Tenth Avenue North describes perfectly how I felt last night:

I’m tired
I’m worn
My heart is heavy
From the work it takes to keep on breathing

I’ve made mistakes
I’ve let my hope fail
My soul feels crushed
By the weight of this world
And I know that you can give me rest
So I cry out with all that I have left

Let me see redemption win…Let me know the struggle ends…That you can mend a heart that’s frail and torn.

I want to know a song can rise…From the ashes of a broken life…And all that’s dead inside can be reborn…‘Cause I’m worn…

I know I need
To lift my eyes up
But I’m too weak
Life just won’t let up
And I know that You can give me rest
So I cry out with all that I have left

Let me see redemption win…Let me know the struggle ends…That you can mend a heart that’s frail and torn

I want to know a song can rise…From the ashes of a broken life…And all that’s dead inside can be reborn…Cause I’m worn…

And my prayers are wearing thin, I’m worn even before the day begins.
I’m worn I’ve lost my will to fight, I’m worn so heaven so come and flood my eyes.

Let me see redemption win… Let me know the struggle ends…That you can mend a heart that’s frail and torn.

I want to know a song can rise…From the ashes of a broken life…And all that’s dead inside can be reborn…

curating grief

Most of us have taken a class or two in literature–we read other people’s writing and sit around discussing “what it really means”.  My husband has always scoffed at the notion that anyone but the author knows that.

Me–I love books, plays and poetry so I’ve spent a lifetime reading and trying to interpret the meaning of others’ words.

But now I find I’m leaning more toward my husband’s point of view.

One of the challenges I face as a grieving parent is finding that other people want to interpret my experience for me.

They want to curate my mourning like a museum exhibit–arrange and highlight and sift through the days before and after burying my child and lay my experience out in some way that makes sense to them.

Sometimes it is subtle and involves mentioning memories that cast the missing child in a positive light–extolling his virtues and highlighting his achievements–as if noting how wonderful he was when walking this earth makes it easier to let him go.

Other times it is direct and forceful–“Everything happens for a reason.” Or, “He wouldn’t want you to be sad.”  Or, my personal favorite, “You know he’s safe with Jesus and you will be together again one day.”

While my theology rests firmly on the finished work of Christ, my heart longs for the physical presence of my son.  So none of these platitudes are helpful and they only draw a sharper contrast between my hope and my experience.

Let me just be blunt:  unless you have buried a child, you do not know how it feels. 

Full stop.

No debate.

I am grateful for your support, for your prayers, for your kindness, compassion and love.

But please do not tell me how this all makes sense or fits together in God’s plan or will someday “make a difference”.

I  invite you to travel with me, to share stories (good and bad) of my son with me, to sit with me and look at the memories, feel the sorrow and experience the missing.

And, if you are brave, you can ask me what it means.

 

 

Not as Strong as I Look

 

No matter how tightly I strap on my armor, grief sends arrows through the tiniest unprotected chink and pierces my heart.

There is no defense against the sound, the smell, the wayward memory that sends me back in time to when Dominic was alive and with me.

And once there, to drag myself forward to today—where he is neither—is torture. 

Sometimes the process can be a matter of seconds, the only evidence a blank stare or a single tear.  Other times the memories and the forceful return to the here and now unleashes a flood from my eyes and ends my usefulness for that day.

Either way, it’s exhausting. 

I think that might be one of the most surprising aspects of grief for me.  When it strikes hard (as it still does sometimes) it robs me of energy and the desire to do anything.

I am a “get-it-done” kind of person.

But there’s no way to get grief “done”. 

It works itself out in its own time and in its own way.

I can position my mind and my heart to heal by focusing on the promises of God in Scripture.  But I cannot hurry along the healing.

And healing, when it comes, will always be incomplete this side of heaven.

Please don’t mistake the fact that I can stand straight and look strong as proof that I am recovered. 

I am often frightened and sometimes I want to hide.

But vulnerable and wounded, I remain until God calls me home.

In His feathers He shall deliver you and under His wings you shall have refuge; His truth shall surround you as a supply of armor.

Psalm 91:4

What Grieving Parents Want Others to Know

People say, “I can’t imagine.

But then they do.

They think that missing a dead child is like missing your kid at college or on the mission field but harder and longer.

That’s not it at all.

It isn’t nostalgia for a time when things were different or better or you talked more: it’s a gut-wrenching, breath-robbing, knee-buckling, aching groan that lives inside you begging to be released.

There is no smooth transition up the ladder of grief recovery so that you emerge at the top, better for the experience and able to put it behind you.

We’ve all heard the much touted theory that grief proceeds in the following stages:

  • denial
  • anger
  • bargaining
  • depression
  • acceptance

And people (who haven’t experienced grief) tend to think it’s a straight line from one stage to another, gradually going from bottom to top and then on with life.

But it just isn’t true.

Reality is, these “stages” coexist and fluctuate back and forth from day to day and even hour to hour.

Grief remakes you from the inside out.

Losing a child has made me rethink everything I believe and everything I am.  It has changed and is changing my relationship with myself and with others in ways I couldn’t imagine and often don’t anticipate.

And it is hard, hard work.

Life around us doesn’t stop.  Grieving parents return to work, continue to nurture their surviving children, keep getting up in the morning and taking care of daily details.

We are doing all the things others do, but we are doing them with an added weight of sorrow and pain that makes each step feel like wading through quicksand.

We want you to know we are doing the best we can.

Life without my child is like having a leg amputated–I am forced to learn to manage without it, but everything will always be harder and different.

And it will be this way for the rest of my life.

The one thing a grieving parent DOESN’T want you to know is how it feels to bury your child.

I don’t want anyone else to know what it means to leave part of your heart and a chunk of your life beneath the ground.

“But please: Don’t say it’s not really so bad. Because it is. Death is awful, demonic. If you think your task as a comforter is to tell me that really, all things considered, it’s not so bad, you do not sit with me in my grief but place yourself off in the distance away from me. Over there, you are of no help. What I need to hear from you is that you recognize how painful it is. I need to hear from you that you are with me in my desperation. To comfort me, you have to come close. Come sit beside me on my mourning bench.”

Nicholas Wolterstorff   LAMENT FOR A SON