On The Struggle Bus

I weigh more today than I’ve weighed in ten years.  

Just before Dominic graduated high school in 2008, I decided that being “fluffy” was not good for my health, not good for my joints and for the first time in my married life I had the extra energy, time and attention to work on losing weight.  

I lost over fifty pounds.  

Still not skinny, but definitely a much smaller version of me than had existed since I started having children.

IMG_0744 (1)
June 2013

But after Dom left us,  a series of choices and out-of-my-control health issues combined to make it harder and harder to maintain the weight loss I had (fairly) effortlessly maintained for six years.

I’m scheduled to see my GP tomorrow and you know what makes me more nervous than all the bloodwork they will have to do?  Stepping on the scales!

Why is it more deplorable to be fat than to be mean?

Why is it considered a greater moral failure to lug around extra pounds than to lug around a hateful heart?

I feel more like a failure because I’ve allowed pounds to creep back up on my backside than for so many other things that are so much more important.  

Menopause, middle age and many sleepless nights which increase my cortisol levels have conspired to make it harder this time than last time to rid my body of excess weight.

family fionas grad (2)

I’m active, eat well and in limited amounts (no Twinkies or high fructose corn syrup!) but my hips refuse to get smaller.

I try hard not to blame everything on child loss. 

But I’m pretty sure a significant portion of responsibility sits squarely on the fact that my heart is broken.  I am exercising so much self-control every. single. day. that I don’t have any left over.

I rarely cry any more in public. 

Goodness!  I rarely cry any more in private.  

I can return a cheery, “Have a nice day!” to any and everyone I meet.  

But that means I am constantly running a tape in my head that goes something like this:  “Don’t take it out on her.  She has no idea. Keep smiling.  People don’t know that you were about to cry just a minute ago. Don’t let that person’s ugly attitude unleash the beast inside you.”  

Can I be honest here?  

I’m tired.  

I’m tired of everything being hard.  

please be aware i am trying

I don’t know if or when I’ll lose weight (please don’t inbox me with your latest, greatest sales pitch).

I’m trying most days.  

But sometimes I just don’t have it in me to try.  Sometimes I just want to be normal-whatever THAT is.  Sometimes I just want to have one corner of life where things are easy and don’t require constant vigilance or extreme restraint.  Sometimes I want to eat ALL the things and not give a hoot if it adds inches to my waist.

the struggle bus

I won’t do it.  

Because I know it’s not what’s best.  

But I want to.  

eat whatever you want

Refuse to Hide: Lament As Worship

We usually think of worship as songs of joy and happiness extolling the virtues of God and Christ.  

While that is most certainly a form of worship, it is absolutely not the only one.  

Biblical lament is an honest, vulnerable expression of pain, a crying out to God in faith as we are suffering.
― Cindee Snider Re

Worship is also the broken whimper of a scared and wounded child, crawling into the lap of her Abba Father.  

There is no less adoration in this ultimate act of confident trust than in the most eloquent declaration of theological truth in word or song.  

Lament is worship.  

Christian lament is not simply complaint. Yes, it stares clear-eyed at awfulness and even wonders if God has gone…Yet at its fullest, biblical lament expresses sorrow over losing a world that was once good alongside a belief that it can be made good again. Lament isn’t giving up, it’s giving over. When we lift up our sorrow and our pain, we turn it over to the only one who can meet it: our God.”
― Josh Larsen

Bringing my brokenness to God as an offering, trusting Him to receive it, to keep it and to begin to weave even this into the tapestry of my life is perhaps the ultimate act of worship.  

you keep track of all my tears

When I refuse to pretend, refuse to hide, refuse to run away and look for an answer somewhere else, I affirm that He is my God, and there is no other beside Him.  

A lament is an act of worship, a faith statement of trust, in the face of difficulty. It’s a wonderfully honest way to acknowledge our trouble to God as we also acknowledge our hope is in him.
― Linda Evans Shepherd

lamenting is a painful process

 

God is not only the God of the sufferers but the God who suffers. … It is said of God that no one can behold his face and live. I always thought this meant that no one could see his splendor and live. A friend said perhaps it meant that no one could see his sorrow and live. Or perhaps his sorrow is splendor. … Instead of explaining our suffering God shares it.
― Nicholas Wolterstorff

Child Loss: Marking the Milestones

When your child is born you take notes.

You plan to mark this day as a special milestone for the rest of your life.

You absolutely, positively NEVER think you will have to mark another one:  the day he or she leaves this life and leaves you behind.

But some parents have to mark both.  The dash in the middle is shorter than we anticipated, and our child’s life ends before ours.

grieving mother at grave

So how do you do it?  How in the world do you observe the polar opposite of a birthday?

Here are some ideas (shared with permission) that parents shared recently in an online discussion sparked by one mom’s very honest admission that she just didn’t have it in her to create another video montage from the same old photos to mark yet another year without the earthly companionship of her precious son:

Don’t do anything.  That is an option. We do not have to draw a red circle around THAT day on the calendar, gather folks as if  it’s a celebration.  As one mama said, “Yes, the day they left us does not need to be ‘remembered’.”  For some parents, going to work like it’s a regular day, engaging in whatever normal activities are required, ticking the hours off on the clock until night falls and the earth turns to the next day may be the very best choice.  Another mama wrote this:  “I have friends who celebrate a ‘heaven day’ for their son.  I can’t.  I just can’t.  If it were up to me, I would probably go camp somewhere all alone, and not move a muscle for the entire day.”

Do something big (or small).  Some parents choose this day to hold an annual “Celebration of Life”.  It might take the form of a balloon release, or lantern release at home, at a park or other outdoor venue or at the cemetery.  It might be lunch or dinner out at your child’s favorite restaurant or at home with your child’s favorite menu.  Invite friends and family to join you and ask that they bring a photograph or memory and share.  One mom said that such an event kind of happened organically and spontaneously when contacted by her son’s widow:  “We went to one of [his] favorite restaurants.  Told funny stories about him, talked about how missed he is, then went o his grave and put fresh flowers.”

balloon release

Serve others.  Did your child have a special interest in a particular charity or community organization?  Maybe you can spend this day volunteering or raising awareness/money for that group.  Often having something to do helps a heart from sinking into despair.  If the group allows, maybe put up a sign saying, “Volunteering today in honor of __________” and attach appropriate photos of your child.  Some parents whose child died from cancer or suicide or violence participate in walks or fundraisers that highlight those causes.

Encourage Random Acts of Kindness (RAK).  I plan to do this one in April.  It will be seven years (!) and I can barely stand it.  But so many of the comments from Dominic’s friends after he left for Heaven went something like this one, “He was always doing something for someone else.  Fixing their car or showing up when they needed an encouraging word.”  He was known for his many acts of generosity and kindness and I feel like he lives on in the hearts of others because of that.  I had cards printed ( I intentionally let his “dates” off) which I will distribute well in advance of April 12th for friends and family to leave behind when they do a RAK in memory of Dom.  Vistaprint and other online publishing companies offer reasonable prices and will guide you through the process step-by-step.

random act of kindness

Escape.  Lots of us find being at home (alone or in the company of others) too hard to bear.  Many received word of their child’s death at home and as the day creeps closer, the memories crowd every corner of mental and physical space and are inescapable.  So sometimes parents plan a trip around this time.  Go somewhere your child would have loved to go or go somewhere he or she enjoyed visiting.  Take photos and post them in honor of your child if you want to.

Focus on family.  You may not want to be alone, but the thought of being with anyone outside your closest grief circle is overwhelming.  That’s OK.  Spend time with the people who, like you, are most affected by your child’s absence.  You don’t have to do anything special.  You can make room for them to speak or not speak about their grief as they choose.  Sometimes just having another warm body in the room is enough to ward of the chill of despondency.

grieving dad

Flip the script.  For those of us who believe that this life is not all there is, the day can be one of celebration.  Our children have escaped life full of sorrow and trouble and are safe forever in the arms of Jesus, where we will also be one day.  Waiting is hard, but waiting is not forever.

Simply allow yourself to feel the full force of missing and grief.  “As far as his death day, for me, that is a day when I allow myself to fully feel and express the pain of my loss.  It is a way to (temporarily) empty myself of all this pain, so I can breathe again to face another day.  I will sit in his sweatshirt, listen to reflective music, cry a lot, talk to him, pray to God, and just allow myself to feel all the pain and emotion that everyday responsibilities cause me to stuff away.”  If you can manage it, taking the day off work and giving yourself grace and space to grieve in ways that are denied so often may be the very best way to experience the day.

Here’s a list of ways some parents honor their child on this day:  

  • Giving away stuffed toys with a card or note explaining why.
  • Taking goodies to first responders and/or nurses who were served their family during an accident or illness.
  • Handing out Bibles or books in memory of their child.
  • Making memory baskets for parent whose child will be born straight into heaven.
  • Adding to a scholarship fund or other charitable fund in honor of their child.
  • Placing balloons, flowers or other special decorations on their child’s final resting place.
  • Lighting candles, releasing butterflies, balloons or lanterns.
  • Placing a memorial advertisement in a local paper.

Do or don’t do whatever helps you make it through those twenty-four hours that represent another year of sorrow, another year of missing.  

missing child from arms

There is NO wrong way to mark or not mark this day. 

It’s up to you and your heart.  

And absolutely does not require anyone else’s permission or approval.  

dont trade authenticity for approval

Sometimes I Just Want To Be Me!

Even in the very first hours after the news, my brain began instructing my heart, “Now, try to be brave.  Try not to disappoint people.  Try to say the right thing, do the right thing and be the example you should be.”

Whatever that meant.

As I made phone calls and received concerned friends and family members I was so aware that they would take a cue from me-how much can I say, how hard can I cry, should I hug or stand back, should I talk about him or be silent lest it make the tears fall harder?

And here-almost five years later-I still feel like I need to lead the way in conversations and social encounters.

Read the rest here:  Can I Just Be Me?

I Don’t Have to Choose Between Sorrow and Celebration

Our family is looking forward to Spring and also dreading it.  

This year we will welcome a new baby (my first grandchild) and also celebrate my daughter’s wedding to a wonderful man. 

Our family is growing again!

brandon and fiona engagement

But we will also mark the fifth year anniversary of Dominic leaving for Heaven and another birthday that he won’t be here to greet.

dom on mountaintop

I’m pretty sure tears will be shed on each of these days and they will be salty-sweet, sad and happy, sorrowful and celebratory-all at once.  

There are no more hard lines in my life that separate events into distinct categories where only a single set of emotions is appropriate.  Instead my heart’s a watercolor mosaic where one feeling washes into another, darker colors make the lighter ones brighter.

My daughter recently wrote her own blog post, Guest Books & Memory Tables: A Sibling’s Perspective on Love and Loss.

Here’s an excerpt:

“Even Hobby Lobby reminds me that if I’m remembering anyone at my wedding it should be the family legends of generations past, not current. Somewhere in my carefully- packed boxes of wedding decorations, sits frames and mementos for mine and my fiance’s grandparents and my forever-frozen-in-time 23 year old brother.

I highly recommend you read the whole thing.  She’s done a beautiful job sharing from a sibling’s perspective.

Her wedding day will be full of great joy and celebration and also some sorrow as we take pictures of the whole family minus one.

 

you should be here

I might be laughing one minute and crying the next.  

And that’s OK.  

No need to fake it.  

It’s ALL part of life. 

sorrow and celebration can coexist authentically

Speak, Don’t Stuff

As a counterweight to yesterday’s post, I wanted to share this one.

While I am a huge advocate for not flying off the handle (I repeat that here), I am also an advocate for speaking aloud things that need to be said.

I want to create a safe space where friends and family can share what’s on their hearts without fear of my reaction or recrimination.  ❤

Someone commented the other day on my post, Shadows and Celebrations, that they thought my child’s remark was selfish.

I countered that I didn’t think so. 

Instead, I thought it was honest.

Of course my heart hurts any time I’m unable to meet my family’s expectations, but that doesn’t mean they should refrain from sharing them with me.

One of the things I’m learning in this Valley is that I must make room for observations, for sharing, for venting and for genuine conversation.  It’s the only way any of us are going to survive.

courage starts with showing up and letting ourselves be seen brene brown

I can’t pass judgement on every word spoken.

I needn’t assume responsibility for every unmet expectation.

I don’t have to fix every situation. 

I can’t.

Sometimes we just need to give voice to something.  Because when we name it, when we share it, when we speak it aloud, it often ceases to have power over us.

Secrets drive hearts apart.

Sharing draws them together.

Even when what’s shared is painful.

connection brene brown

Feedback Loops and Grief

I wasn’t there when Dominic left the road but I’ve imagined it in detail hundreds of times since that night nearly five years ago.

I can’t help it.

I wonder what he thought, what he felt, whether he knew…

It’s not the only tape that plays over and over in my head.

I think about his childhood and the times I probably overlooked my third of four children as I hurried to get this or that done.  I think about the arguments we had, the laughter we shared, the disappointments and challenges we faced together.

I replay birthdays and holidays and ordinary days.

Sometimes I get in a cycle that makes me smile:  Dominic playing drums in church and subtly shaking his head and sharing an eye roll with me as the congregation claps in awkward rhythm to a song-dozens of different beats, none of which were the right one.

dominic at gray haven

Sometimes I get in a cycle that draws sobs from a place I thought I had sealed off after the first two years of his absence. 

My thoughts fall into an emotional feedback loop that, like the sound wave counterpart, is all screeching, mind-numbing and painful noise.

Like a microphone too close to a speaker, the only way out of the loop is to back away and keep backing away until the cycle is broken.

Most days I can shepherd my thoughts down safe paths.  Those are the ones I share with others when they ask me to tell them about my son.

But when I’m alone and everything is quiet and my mind is left to its own devices or cued up by a random sight, sound or smell I can find my thoughts running places I’d rather they not go.

And the loop begins again.  

 

Will It Ever Get Better?

I know that when I first stumbled onto a bereaved parent group, it was one of the things I was looking for: evidence that the overwhelming pain of child loss would not last forever.  

Some days I was encouraged as those who had traveled farther down this path posted comments affirming that they could feel something other than sorrow.

Some days I was devastated to read comments from parents who buried a child decades ago asserting that “it never gets better”.

Who is right?  

What’s the difference?

Do I have any control over whether or not this burden gets lighter?

It will be eight years in April since Dominic ran ahead to Heaven and I’ve learned a few things since then.

letting-go

Time, by itself, heals nothing.  But time, plus the work grief requires, brings a measure of healing.  

If I cling with both hands to my loss, I can’t take hold of the good things life still has in store for me.  

Longing for the past all the time only brings sorrow.  I cannot turn back time.  Days, weeks, years will keep coming whether or not I choose to participate in them.  I will rob my heart of potential joy by focusing exclusively on the sorrow I can’t undo.

Daily choices add up.  When I lean into the small things required each day, I build confidence that I can do the bigger things that might still frighten me.  Making phone calls eventually helps me show up to a meeting or to church.  I strengthen my “can do” muscle every time I use it.

Doubt doesn’t disappear. Facing my doubt forces me to explore the edges of my faith.  It does no good for me to stuff questions in a drawer and hope they go away.  They won’t.  I have to drag them into the light and examine them.  Doubt is not denial.  If God is God (and I believe that He is!) then my puny queries don’t diminish His glory.  He knows I’m made of dust and He invites me to bring my heart to Him-questions and all.

My mental diet matters more than I might think.  I have to be very careful what I feed my mind.  If I focus on sadness, tragic stories, hateful speech and media that feeds my fears and despair then those feelings grow stronger.  If instead I focus on hopeful stories, good conversation with faithful friends and inspiring quotes, verses and articles I feed the part of my heart that helps me hold onto hope.

I need a space where I can be completely honest about what this journey is like.  Bereaved parents’ groups have been that space for me and have been an important component of my healing.  But even there I must be cautious about how much time I spend reading other parents’ stories if I notice that I’m absorbing too much pain and not enough encouragement.

me too sharing the path

Grief is hard.  

It’s work. 

And that work is made up of dozens of daily choices that are also often difficult.  

I don’t expect to be healed and whole this side of eternity.  But I do know that if I consistently do the work grief requires I will be stronger, more whole and better able to lean into the life I have left than if I don’t.

I want to live. 

I want to honor my son by living a life that’s more than just limping along, barely making it, struggling for each step.  

So I do the work grief asks of me.  

Even when it’s hard.  

give yourself space to do the work grief requires

Why Some Friends Abandon Grievers

Often a new year means taking stock of the previous twelve months and making adjustments for the next twelve. 

When I comb back through my memories I try to notice where I struggled and where I soared.  I want to learn from the things that worked and the things that didn’t.  And I almost always find relationships top the list of where I need to make changes.

Grief is tough on friendships.  

Not everyone can or will stick around while broken hearts work hard to put the pieces back together.

I miss some of the people I thought would still be here and, if I allow myself to do it, can invest too much of the precious and limited emotional energy I have left this side of child loss in being angry, bitter or just plain disappointed.

But that is unhelpful. 

So instead I began to think about WHY some friends abandon grievers.  

Here’s what I think:  Why Friends Abandon Grievers

Emotional Overload and T.M.I.

There are so many ways child loss impacts relationships!

Some of the people you think will stand beside you for the long haul either never show up or disappear right after the funeral.

Some people you never expected to hang around not only come running but choose to stay.

And every. single. relationship. gets more complicated.  

When your heart is shattered, there are lots of sharp edges that end up cutting you and everyone around you.  It’s pretty much inevitable that one or more relationships will need mending at some point.

I know I said (still say!) things that wound others.  Most of the time it’s because I’m distracted or hurting myself and my mouth begins speaking before my brain is fully engaged.  Sometimes, though, it’s because I’m in pain and (frankly!) I want to transfer some of that pain to someone else.

Misery DOES love company!

Often other people in my life will say or do things that wound me.  Some of the folks are part of my inner grief circle and I know that it’s unintentional or they are having a pain-filled day like I am.

A few are extended family members who are either blissfully unaware of the ongoing pain and drama of child loss or are too caught up in their own lives to give it a thought.

Some of them are friends who think by now I should have toughened up and are no longer willing to extend extra grace and try harder to be tender.

Sometimes it’s acquaintances or strangers who don’t have a clue.

Whenever someone pierces my armor and inflicts pain, I have a choice:  Do I suck it up and take it or do I say something and try to reconcile?

There are days when I feel strong enough to just overlook it.  But I know if it represents a pattern, sooner or later the pressure will build and I’m going to blow.  And that’s not good for either one of us.

couple fighting

There are days when I absolutely, positively have to address it.  That’s when I need to be careful of overloading another heart with too much information (TMI).  See, it’s easy to make one person the target for all my strong feelings.  It’s easy to do an emotional and informational “dump” on whoever happens to be handy or whoever is the least intimidating.

That’s unfair and unhelpful-for them and for me.  

So when I decide to open my mouth and address a specific situation with a specific person, I need to keep my margins clean and only say the things that pertain to THAT instance.  I can’t bring up every single thing the person has done in the past or things that they haven’t said or done but which have made me more sensitive to certain words or actions.  I don’t need to burden them with all the details of MY bad day or week or month.

Instead I should talk about my own feelings in relationship to them and their actions or words. 

“I feel like _________when you say________” gives vent to my emotion without accusing another heart.  I need to leave room for them to share what they were/are thinking and feeling too.  It can’t be one-way conversation if I hope to have a two-way relationship.  

i statments graphic

Any stressful life circumstance makes us all more vulnerable to offense.  And child loss is certainly stressful.  It’s stressful in ways others can’t see or comprehend.  It alters the way a parent sees and experiences the world.

It makes everything harder.  

Relationships included.  

I want to be full of love, grace and mercy, not overrun with bitterness, anger and offense. 

So I have to be mindful of what I say, how much I say and when I choose to say it.

young man thought bubble