Repost: Dealing With Anxious Thoughts

As a follow up to the repost a couple days ago:  Why is Anxiety Part of Child Loss?, I wanted to share this entry.

Here are some practical ways to deal with anxious thoughts, take them captive or redirect my focus so that they don’t rule my heart.

Please feel free to add any helpful tips in the comments section below.  We learn best from those that share our journey.  You may have the very words that will encourage another parent’s broken heart!

I no longer have to imagine the worst thing that could happen in the life of a mother-I know exactly how it feels. 

And if I allow my heart to ponder that too often or too long, it consumes me.

So I am learning to take those anxious thoughts captive, learning to make them live in only a small corner of my mind instead of taking it over completely.

It takes effort and discipline, but it’s possible.  

I don’t have to live the rest of my days a quivering mess-

Read the rest here:  Dealing With Anxious Thoughts

Repost: Why is Anxiety Part of Child Loss?

It surprised me when I felt anxious after Dominic ran ahead to Heaven.

Not that the doorbell startled me, or that passing the place of the accident was hard nor that hearing motorcycles made my skin crawl.

But that every single day for many, many months anxiety crept up my backbone and made a knot in my neck.

It surprised me that I felt like I was literally going to explode.

Read the rest here:  Why is Anxiety Part of Child Loss?

Be Free to Celebrate [or Not!]

One of the most challenging things that faced me immediately after Dominic’s funeral was that we had two college graduations, Mother’s Day, Father’s Day, his birthday, a wedding and my own thirtieth wedding anniversary within two months.

Thankfully we had some amazing friends and family that stepped up and filled in the gaps.

How do you celebrate when your heart is broken?  

How do you make merry when you can barely make it out of bed?

How do you NOT cheat your living children when you’ve buried their sibling?

In the three years since Dominic ran ahead to heaven we have marked the occasions above as well as Christmases, Thanksgivings, my father’s 80th birthday, my husband’s 65th birthday, my daughter’s graduation with a master’s degree and receiving Dominic’s posthumous diploma from the University of Alabama School of Law.

In between these mountain tops were multiple hills of accomplishment that required more or less recognition and affirmation.

So the question comes up:  “How should I celebrate [fill in the blank] now that my child is gone?”

The short answer is:  However best suits your broken heart, the wishes of your immediate grieving circle and your circumstances.  

And you owe no one else an explanation of why you make that choice.

Now, I’ll warn you that not all the choices you make will be received well by others who might be impacted by your decision.  Extended family, no matter how much they may want to understand, often won’t.

I get that-traditions are hard to turn loose.  Family habits are hard to change.  If everyone is used to getting together to open Christmas presents it can seem selfish when one person says they just can’t do it.

But no one but a grieving parent can truly understand that the most random things can trigger uncontrollable anxiety and overwhelming sorrow.  And no one but a grieving parent can know how much energy it takes to JUST SHOW UP.

Every single time my son SHOULD be here with us but ISN’T, is another stark and undeniable reminder that he is gone, gone, gone.

So this is how I make the decision about how to celebrate [or not!] any particular holiday or occasion:  I ask my husband and children first what will best meet their needs, feed their souls, help them face the day with minimal stress and/or sorrow.

Then I stack that against the expectations of others that may be involved.

Where they overlap, we join in.  Where they don’t, we politely decline.  And if there is a way to bend standing traditions to accommodate our grief, I will often propose a compromise.

I try to be thoughtful and plan ahead.  

I try to let anyone else involved know as far in advance that we will either be participating (or not) so they can make their own plans. But I reserve the right to back out last minute if I wake up and find out I simply can. not. face. the. day.

So far I’ve realized that having a plan takes a great deal of stress out of the system.  Being honest with extended family and friends is so much better than trying to fake it and finding out halfway through the meal I just can’t.

Choosing to stay home is kinder than making a scene and ruining the gathering for everyone.

Sometimes my suggestions have been met with resistance.

That’s just going to be part of this life.  

I’m learning to stand up and speak my truth even when others don’t understand or like it.  I work at being kind but I won’t be bowled over by someone else’s lack of compassion.

So much of life this side of loss is outside our control.  We do not have to live up to others’ expectations of how or when or where we celebrate [or don’t!] birthdays, holidays or other special occasions.

None of us chose to be bereaved parents.

No one but us has to carry this heavy burden.

If we are going to do it well, we will have to make choices about the battles we fight and the additional burdens we allow others to place upon us.

It’s OK to say, “No.”  It’s OK to do things differently.  It’s OK to not do them at all.  

Be free!

authenticity brene

 

 

Worn Slap Out

The best remedy for my heart on the days when grief rolls in like morning fog and refuses to burn off with sunshine is hard work.

If weather permits I go outside and move hay bales, pick up limbs, cut weeds or do anything that requires large muscles to accomplish the task.  The goal is exhaustion so I can sleep.

If the weather doesn’t cooperate, I’ll try to tackle jobs inside that I otherwise tend to ignore.  If you ever see me cleaning the bathroom or kitchen sink fixtures with a toothbrush, just leave me alone-I’m working something out.

So these past days leading up to Dominic’s birthday, that’s what I’ve done.

I sheared sheep, raked out a hay shed, moved hay, medicated horses, dogs and goats, picked up limbs brought down by rain and high winds, vacuumed, washed clothes, cleaned bathrooms and organized (sort of) my closet.

The ungrateful sheep and the silly cat kneading his paws while I’m bent over shearing her. 

photo (44)

Skinks are some of the happier surprises when moving hay.  Snakes and ants not so much.

 

The good thing about so many critters that eat grass is that I rarely cut it.

Now I’m worn slap out!

I think I’ll hit the sack.

fatigue is the best pillow

Repost: Grief Brain: It’s a Real Thing!

You are not going crazy because you can’t remember your best friend’s name.

You haven’t lost your mind because you can’t find your car keys, or the purse you put them in, or get lost in a store.

It’s grief brain.

And it’s a real thing….

Read the rest here:  Grief Brain: It’s a Real Thing!

Help! I Need Somebody!

So, more than twenty years on a farm and I can NOT back a trailer.  Nope.  Can’t do it.

One day I spent hours trying to teach myself how to do it.  Never was able to do anything other than manage to jackknife the trailer, go unhook it and start over.

When I go somewhere with a trailer I do one of two things:  (1) I find a space where I can drive in and be able to just make a loop or (2) I find the nearest person who CAN back a trailer, hand them my keys and ask them to do it.

I feel NO shame.

But that’s not the case with other things I can’t do.  So many times I try to avoid admitting that I am unable to meet certain people’s expectations or do certain things that I either used to be able to do or feel I SHOULD be able to do.

I think the reason I don’t mind outing myself on trailers is because that confession usually gets a laugh or a knowing look from the person who helps me or an admission from someone standing near at the feed store that they also have trouble backing up a trailer.

But when I say, “I just don’t think I’m up to teaching VBS” or “I’d love to come to that event but I’ve reached my social quota this week” or “I’m still struggling with driving by that spot or eating at that restaurant” it’s often met with (at best) a quizzical look or (at worst) a comment about how I should be “better” by now.

And then I DO feel shamed.  I feel like I don’t measure up, like I’m not as valuable as the next person or that I have failed some cosmic test.

shame-is-the-intensely-painful-feeling-we-are-unloveable-brene-brown

You know what though?  That’s a reflection on other people’s lack of compassion and experience or their personal insecurity NOT a reflection of my worth.

It is really just fine for me to admit my limitations because EVERYONE has limitations.

I can’t lift a 250 lb barbell.  But I can whip up dinner for fifty people.  I can’t read Chinese but I can read Dr. Seuss with an accent and hit all the rhymes on cue.  I can’t run a marathon but I can work all day without complaining (most of the time).

I’m human (surprise!).    So are you.

brene brown vulnerablity sounds like truth

I have some limitations as a result of burying a child. You may have limitations because of age or disease or something else I don’t know about or can’t see.

That’s OK.

Let’s make a pact:  I’ll take you as you are and you can take me as I am.  I’ll help you when you need help and you can help me when I need help.

We will extend grace and receive grace as needed to make life work.

Isn’t that really the essence of human community?

brene brown we dont have to do it alone

Tomorrow, Tomorrow

It took me nearly two years to hang a wall calendar again.  It took that long, plus some, to add anything to it besides close family birthdays and doctor’s appointments.

I would record what I did AFTER the fact, but I just couldn’t let my heart make plans.

Because I had made planslots and lots of plans-before Dominic ran ahead to heaven unexpectedly and wrecked them all.

There’s another reason looking forward is hard on my heart:

No matter how wonderful the event, no matter how anticipated the birth, or wedding, or graduation, or party-there will always, always, always be one person missing.

I still find making plans difficult.  

I don’t make many and the ones I do make I hold lightly.  I warn friends that I may get up the “morning of” and decide that I just cannot do it.  The closest ones (the only ones I really have left) totally understand and never pressure me otherwise.

But as I have rounded the corner of three years, I am beginning to be able to look a little bit further in the distance.  

I am able to pencil in some fun things more than a week in advance.  I’ve even started looking up ideas on Pinterest again-ideas for birthday gifts months in advance, for dinner table decorations and for craft projects to occupy the hottest parts of summer days.

And I’m learning to take Dominic WITH me as I walk into tomorrow after tomorrow without his physical presence.  I’m finding ways to keep him close, to have him near, to share him with others so that the vibrant man he was (and still IS-in heaven) is remembered and honored.

The fact is that tomorrow comes whether I am dragged kicking and screaming into the new day or whether I go willingly, with purpose and with grace.

I am trying to choose purpose and grace.

Sometimes it’s really, really hard.

But when I do-it’s worth it.

sometimes helps me wake up brene brown

 

Bluebirds and Hard Work

So, what keeps my heart tied to this weary world when what it really wants is to go Home and be free of pain and sorrow?  What anchors me to the sod when my soul longs to float away?  What compels me to stay?

Last week it was bluebirds and hard work.

Washing up dishes from a morning cooking frenzy, I raised my eyes to look out the window and there-looking down the chimney of our smoker-was a bluebird.

bluebird

Unconcerned with me he rested for some minutes where I could drink in the vibrant hue of his feathers. There’s just nothing like that blue anywhere but on the back of those beautiful birds-no matter how long I look at one, I always feel it’s not long enough.  Then off he flew to join another on a branch.

It was a gift.

And I tucked it in my heart to pull out later when I needed a reminder that there is still beauty and life in a world that also includes pain and death.

About an hour later I joined my youngest son at his house just a few miles from the farm. It’s an older home on main street in our little town and needs some work before he moves in.

It was carpet day.

So for the next few hours we worked together and by the end of the day we had done it! Carpet laid.  No major mistakes.

carpet-installers

Success was sweet!

I was really just a go-fer and cheerleader but it felt oh, so good to have something work out just as planned.

It felt absolutely victorious!

We sat in the finished room and drank it in.

Someone else may have just moved on to the next task in the long list of tasks needed to finish the house.  But when life has gone terribly wrong, you learn to relish those moments when it goes right.

THIS is what I hold on to.

These slices of beauty and victory are treasures I tuck inside.

collect beautiful moments

 

Yes, I AM a Cat Lady

I confess:  I AM a cat lady.

Not the one with the dozens living in the house and stinking up the place but the one who relies on her furry pal to get her through hard days.

I raised Roosevelt from the day he was born.  

His mom was a sickly outdoor cat that had never made it through a successful pregnancy and was not a candidate for being spayed because she wouldn’t have survived the anesthesia.

So the day I heard a tiny “mew” outside my window I hardly expected the sight I beheld. Here was mama kitty utterly amazed that she had birthed a baby, walking off the edge of the porch with a tiny black something still attached by the umbilical cord.

She could have cared less.

I grabbed scissors and a towel and rescued the little darling without much hope of his surviving.

But he did.

That was seven hospitalizations, two surgeries and one giant heartache ago.

He has become my comfort companion, my purring pal, the one who knows before I do that my RA is flaring, my heart breaking.

I am thankful for this oasis of comfort in a desert of hurt.

I am thankful that the God Who made me also made animals to bring healing in the midst of heartache.  Oh, so thankful for a husband that puts up with my crazy “save everything that breathes” personality and doesn’t mind if a cat sneaks up the side of the bed in the middle of the night to get cozy in the covers..

When Dominic died, I remember sitting in my chair as the parade of sweet friends and family came over to cry with us.  Roosevelt sat with me the entire time.  His warm body reminded me that I was still here even when my limbs seemed to float away into the ether and my mind wasn’t entirely certain that what I saw or heard was real.

I have learned to count my blessings.

And while the majority of them walk on two legs, at least one has four.

IMG_1012

 

Limping Along

Those of you who follow the blog regularly know I have rheumatoid arthritis.

It’s something I’ve been living with three times as long as the years I’ve lived without Dominic and I find strange parallels in the twin journey of chronic disease and chronic heartache.

Both are crippling in their own way, both force me to work around the pain.  Both have changed me in ways I could not have imagined and certainly wouldn’t have wished on myself or my family.

Both have taught me to endure.

Both have taught me many other things as well:  

I have learned to be more compassionate.  With pain as my constant companion, it reminds me this life is hard and that it’s hard for others too.

I have learned not to take a good day for granted.  I never know when I will wake to an RA flare, I am constantly surprised by random heavy grief days and I can’t tell when I go to bed at night what tomorrow will bring.  So when a day is good, I grab hold of every moment.  I laugh, I move, I do things that make my heart sing.  And I store the memory for days that aren’t so good.

I have learned to be gentle to myself.  I can only do what I can do.  And what I can’t do today will just have to wait for tomorrow-or maybe wait for forever-and that’s OK.

I have learned to say, “no” graciously, without making excuses.  I try very hard to live up to commitments so I am selective in taking on new ones.  I know that if I take on too many, I’m sure to have to let someone down in the end.  I can’t make others outside my disease or my grief understand so I’m learning to not try.  Their disappointment or disapproval is something they have to carry, not me. (I wrote more about this here:  No. It’s a Complete Sentence.)

I have learned to create “work arounds” for the things that I have to do but are very hard to do. For my RA that means unloading the dishwasher two plates at a time instead of lifting the whole stack at once.  For my grieving heart that means spreading out the hard things over a week instead of a few hours.  It means not feeling compelled to answer every message, phone call or text right away if my mind is unclear or my heart too heavy.

I’ve learned to wear what’s comfortable.  Whether that is shoes that accommodate my crooked toes or refusing to put on a “happy face” mask in public-I am who I am.  I certainly don’t mope around or try to draw attention to myself.  But I’m just not responsible for making other people feel comfortable with my disease or my grief.

I have learned to plan “rest stops” on my daily journey.  It may be a moment to sit down or a moment to do something creative or a moment to watch a funny video-but each thing is designed to help me recharge for the next few hours.  If I try to soldier on I end up too tired and emotionally spent to do anything.  One day of that and I may lose a whole week.  So I pace myself.

I have learned that appropriate medical intervention and treatment is not a crutch, it’s a pathway to a more productive life.  I resisted taking medication for my RA for a long time-the potential side effects are frightening.  But when the swelling, pain and joint deformity became too much to bear, I gave in.  I shouldn’t have waited so long.  It was foolish. I will never be free of the disease, but my life can be better with appropriate intervention.  It’s the same with grief.  Anti-depressants and anxiety medicine do not remove the pain of grief but they can make space in a heart and mind to do the work grief requires.  There is NO SHAME in using whatever tools are available to make it through.

I have learned to ask for help. There are a number of things I just can’t do alone.  I used to be able to do them.  But not anymore.  Asking for help is not defeat.  I have to remind myself of that.  At the end of the day what matters is that what matters gets done-I don’t get “extra credit” for struggling through alone.

I have learned to speak my truth.  (This is one I’m still working on!)  If I am having a bad pain day or a bad grief day, I don’t try to hide it.  I just tell those who ask and those closest to me the truth. The energy I have to expend to keep it covered up means less energy to work on the underlying factors contributing to the bad day.  It’s just NOT worth it.  And I’m not good at hiding it anyway.

I have learned that walking (literally or figuratively) with a limp is not a defect.  It’s simply my life.  I won’t apologize for it.  If someone asks, I’ll share.  But if not, I just go limping along, making my way forward.  I might be slow, but I’m moving.

And that’s what counts in the end.

I will walk with an emotional limp for the rest of my life … But I don’t want it to just remind me of the struggle and the pain; I want it to remind me of a place of surrender, a place where God met me and blessed me. Otherwise, it is just wasted pain.

~Nancy Guthrie, The One Year Book of Hope, p. 332