Twelve Things I Love to Remember

It rolls around every month-the twelfth-that glaring reminder that on this day “x” number of months ago, I woke to the news Dominic was never coming home again.

This month is 28.  Twenty-eight months-more than 28 moon cycles-over two years.

I don’t cry all day on this monthly reminder anymore-although I used to. And I have tried various ways to redeem it.

This month I decided to share twelve things I love to remember about Dominic. Maybe some things even his good friends didn’t know:

  • Dominic HATED to lose.  When he was a little boy we participated in a monthly skate session at a local roller rink.  At the end of the skating time (to encourage kids to quickly take off and return their skates) there were foot races broken up by age and gender. Poor Dom-he was built like a gymnast not a runner and he. just. couldn’t. win.  EVERY TIME, he’d come stomping off the floor, nearly in tears because he didn’t win.  So many things came easily to him but this didn’t and it frustrated him.
  • Dominic finished his undergraduate degree in three and a half years-double major-graduated Magna Cum Laude and delivered the undergraduate address for his graduation ceremony. I love that he was so goal-oriented and persevered even when it was really hard.

IMG_1811

  • He could subsist on rice and broiled chicken breasts when he was trying to work on muscle definition (he rarely missed a day at the gym) but when he was a little kid he hid candy along the side of his mattress.  He remained a sucker for a good sugar binge, especially when stressed during finals.
  • Dominic was scared of needles.  His PCP finally shamed him into getting a needed tetanus shot but he hated it!

IMG_2533

  • He had a weakness for puppies, kittens and kids.

IMG_1816

  • If it had strings, Dominic could play it-mandolin, guitar, bass, banjo.  And if you could coax rhythm out of it, he could make it sing.  Never silent, never still-always making some kind of music. Boy do I miss that!

IMG_1882

  • Dominic never took “no” for an answer.  He would doggedly pursue anything and anyone if he thought it was a valid case or course of action.  He had an entire university policy overturned because he was able to demonstrate to the administration that its application was faulty.  That’s part of what would have made him a great lawyer…
  • He was an adrenaline junkie.  He was the one that wanted to jump out of an airplane so he did.

IMG_1977

 

  • As an undergraduate he had a part-time job as a  lifeguard at the student recreation center.  He loved the job  but hated swimming. He was an amazing athlete.
  • Although he was an excellent orator, he didn’t really talk until he was almost three and had a speech impediment until he was into second grade.  You would never have known it if you met him as an older teen or adult.

IMG_1890

  • Oh!  Dominic was stubborn!  I remember one afternoon when I had given an assignment to draw a leaf in his nature journal.  He sat, without drawing, for over an hour because he insisted he couldn’t draw, wouldn’t draw and didn’t see the point in the assignment.  I finally caved and said he could trace the leaf.  I still have that picture as a testimony to his mulish side.
  • Dominic had a great sense of humor and nothing was out of bounds if it made someone laugh.

IMG_1797

I am so thankful God made me his mama.  I love every memory I have.  I really wish we could make more…

 

 

A Day in the Life

If you get up every morning and go to work-I applaud you!

Most of my days start with work, but I don’t have to go farther than my own property to discharge my duties.

But today I had to get going extra early for a doctor’s appointment with a specialist about 50 miles away.  So I rushed through my morning chores, double-checked I had everything I needed and left home by 7:10.

I had to park in a parking garage-no easy feat when you drive a full-size pickup and the spaces are designed for mid-size cars.  The low roof, confined space and limited light make me feel trapped and uncomfortable.

Every time I have to fill out health paperwork there is always a question or two that makes me think of Dominic.  I shake off the beginnings of tears and wait to be called back.

My blood pressure is higher than it usually is and I’m a bit heavier than last time I was there-both things that make me feel like a failure and add to the voice in my head that says, “You aren’t good enough.  You are doing something wrong or this wouldn’t have happened to you.”  

My disease is progressing and although my doctor is kind, and patient, and fully aware of the fact that I’ve buried a child,  she broaches once again a treatment option that has more risk but potentially greater efficacy.

I’m just not ready to take the leap.

So my anxiety mounts as I think of both alternatives:  Submitting myself to a new treatment that may have grave consequences or giving in to the inevitable limitations that rheumatoid arthritis is imposing on my life.

She graciously puts off the decision for another three months but I know I won’t be in any better position to make it then either.  I’m paralyzed now when I have to decide these kinds of things-torn between “doing what’s best” and “what difference will it make?”

Bloodwork means waiting in a area next to the infusion clinic and hematology departments and I am surrounded by people that are in dire straits. Once more, between the waiting and the thinking, I’m ready to be out of there.

When I get back to my truck, what had looked like a pretty good place to park has become a nightmare.  Another truck beside me and two parked opposite have closed the space I should have had to get out to the bare minimum.  And someone is waiting for my spot.  

Oh, joy!

I try.

I really try to figure out how to get too much vehicle out of too little space.

Finally, in tears, I step out of my truck (now in what I think is an impossible position) and raise my hands in the air-I give up!  You win!

The kind man that was waiting steps out of his car and guides me backward and forward (4 turns!) until I am free from the awful predicament.  I thank him and keep going.

Before Dominic left us this day would have seemed like a tiny blip on the radar of life.  It certainly wouldn’t have brought me to tears.  

But the energy required to simply get up and get going in the wake of losing him means that I have so much less to spend on anything else.

I don’t suffer from anxiety.

I’m not depressed.  

But there are many moments throughout the day when I am anxious or sorrowful.

One minute I’m fine.  And then a series of events, phone calls or memories pile one atop the other until they become a load I can no longer bear.

It feels like I am always behind, always short on resources, always close to tears.

And no matter how hard I try, I am unable to simply “get better”.  No matter how much I organize or plan or work at it,  I always end up frazzled and frustrated and feeling like a failure.  

I wish it wasn’t like this-this added burden in addition to the missing and the sorrow. Maybe it’s part of the missing and the sorrow.  I don’t know.  

But I’m ready for a day, a single day, when I feel just a little bit victorious..

Resurrection Power

I’m uncomfortable here in this world.

This world where children die and people hurt one another and justice is denied and babies go hungry.

I long for the day prophesied in Isaiah when the lion will lie down with the lamb, swords will be ploughshares and death will be banished forever.

Paul wrote:

All I want is to know Christ and to experience the power of his resurrection, to share in his sufferings and become like him in his death, in the hope that I myself will be raised from death to life.

Philippians 3:10-11 GNT

He wasn’t only talking about the final resurrection, when all in Christ shall rise and reign forever with their Savior.

He was also talking about the earthly resurrection-of life breathed into who we are and what we do by the Spirit of God living in us.

It’s exciting to think about the life of Christ residing in me.  It’s not so exciting to consider the death of self that must precede that life.

But

Without death, there is no resurrection.  

Without destruction, there is no restoration.

Without surrender, there is no victory.

My heart rebels against this.

I want life without death.  I want resurrection power without the grave.  I want to know Jesus more intimately without being stripped bare and standing naked before Him.

But that is impossible.  

To be a follower of the Crucified means , sooner or later, a personal encounter with the cross. And the cross always entails loss. The great symbol of Christianity means sacrifice and no one who calls himself a Christian can evade this stark fact.

Elisabeth Elliot

I realized very soon after the news of Dominic’s death reached my ears that the last vestige of pride had been ripped from my heart by force.

I was, and am, in the dust.

I cannot raise myself from this prostrate position.  I cannot breathe life into this dead body. I cannot, by force of will, pick up and keep going.

I am fully reliant on the God Who made me to give me life.

But Thou, O Lord, art a shield for me, my glory and the lifter up of mine head.

Psalm 3:3 KJV21

This isn’t news to God, it’s always been true.  

But He has opened my eyes.

Forced to face the darkness of the grave, I can more fully appreciate the light of His promise.

victory over death

 

Memorial Day

Dominic was born on Memorial Day, May 28, 1990.  I had spent the weekend working in the yard without a thought that my son would soon be appearing.  He wasn’t due for ten more days and so far, none of my children had been born “early”.

I wasn’t ready!

But he was determined to make his entrance on his own terms.  And that’s pretty much how he did everything.

And then he left us-“early”.

I wasn’t ready for that either.

We celebrate Memorial Day with cookouts and fun family gatherings.  But that isn’t what this day is for.  This day has been set aside to remember those who died serving our country.

In war after war, families across America have been devastated by the deaths of their sons and daughters, many  taken in the prime of life, at the dawn of adulthood.

Almost every family and community has a story of  burying a promising young soul that was sure to make a difference but who never got that chance.

My father served and my son is now serving.

And to all the mothers and fathers whose sons and daughters gave the last full measure for their home and country, I say:

“Thank you for your sacrifice.  Thank you for the love poured into the child that became the brave man or brave woman who would put his or her life on the line for what they believed in. Your toil bore much fruit that continues to bless others today.”  

You have given up what no one has the right to ask of you.

You live with both the honor of your child’s legacy and the horror of your child’s absence.  

memorial day soldiers

And if your child survived the battlefield but could not survive the scars of war, I am so very sorry.

I understand the pain of missing the child you love,  I hear your heart and I am praying for you.

As we gather with our families and enjoy freedom purchased with the blood of sons and daughters, may we REMEMBER.

memorial day how much did all this cost

May we honor the ones who gave everything they had to secure our liberty.

And may we remember the families left behind who can never forget.  

 

The strongest love anyone can have is this. He will die to save his friends.

John 15:13 WE

Do They Have Birthdays in Heaven?

Today would have been Dominic’s twenty-sixth birthday.

He should have been a little over a year out of law school and one year into a career.

Instead, he’s not here.  And he will never be HERE again.

I’m getting pretty good at shifting my focus from the giant hole that is where Dominic is supposed to be to the fullness of the life that still surrounds me.  Not today.

Today the absence of his presence is especially keen.

IMG_2637

 

 

 

 

I miss him.

I miss his smile.

 

I miss his harsh logic that would slice through a conversation like a knife. I miss his noisy descent down the stairs-always snapping his fingers to a rhythm in his head.

I miss his sense of humor.

IMG_2344

I miss his fearlessness.

IMG_1795

I miss his hugs.

IMG_1814

I miss how even though he claimed to “hate” kids, he melted every time one crawled into his lap.

IMG_1798

I miss how he used to launch himself, back first, on my bed to announce he was there to talk for a bit.

I miss how he found special tools to help me in the kitchen when my arthritis kept me from being able to do something I loved.

I miss how he could combine tough talk and smooth BS into cajoling a complaint department to not only fix the problem but throw in a gift card as well “to keep his business”.

I miss being able to call him with my stupid tech questions and have him walk me slowly through the solution (even though I know it frustrated him).

I miss his texts, his calls, his FB messages. I miss his tweets.

IMG_2546

 

I know I’ll see him again someday and that we will never have to say good-bye again.

But until then,  I really, really miss him.  

and so it was that she having waited long

 

A Good Day

 

jm captain

 

Last Friday, my oldest son received his USAF captain’s bars.  True to form, his path to this new achievement was unique and memorable. I’m so very proud of him and of his commitment to excellence.

And that meant that he was leaving San Antonio and headed to Maxwell AFB for Commissioned Officer Training. So he was able to swing by home on Sunday!

 

photo (24)

Sunday afternoon, my kids presented me with this beautiful “Family of Love” necklace for Mother’s Day.  It has all their names and birthstones so I can wear them close to my heart.  I love it!

photo (22)

James Michael brought me flowers-lots of purple, my favorite color.

photo (21)

 

And then we were joined by Joe and Seve, two of Dominic’s good friends from Law School. Joe surprised me with this amazing handmade plate from his recent travels to Turkey. I appreciate the love and support of these fellows and their ongoing commitment to remember Dominic and honor our family.

 

We had Robbie and Jonica over for supper with their new daughter.  I got to cuddle this sweet baby and be reminded that love still lives and life goes on.

photo (19)

 

And no DeSimone adventure would be complete without an “emergency”.  While getting food ready and on the table, we discovered a minor plumbing problem that flooded the downstairs bathroom, the laundry area and into the garage (all downhill-literally and figuratively).

photo (23)

 

So while we girls ate supper, the men worked at repairs.

Just like old times-one boy went in one direction, another went the other way and Julian manned the homefront.  Thankfully, they were able to get things back in working order sooner rather than later.  But not before I exhausted our supply of 24 full-sized “clean-up” towels that were washed in bleach the next day!

 

photo (20)

The evening ended with lots of laughter and plenty of carbs.

And a rare opportunity for a group photo that had me surrounded by all my children within reach. (Thank you, Alison, for snapping the picture!)

We miss you, Dominic.

And we can never stand close enough to squeeze out the giant hole you’ve left.

But we are living like you lived-making the most of the moments-and loving each other.

boys

 

It Ain’t Over Til It’s Over

I hear you, mama.  That baby toddling away from the security of your arms-you miss those close snuggles and slobbery kisses.  But he’s not really LEAVING, he’s just growing.

cartoon baby

I know, I know.

First day of school blues.

Where did the time go?  How can you drop that little girl off at the front door and trust that her teacher will take care of her as well as mom?  She’s getting older, but she isn’t outside your influence.

cartoon male graduate

Oh my goodness!! Already graduating high school?  Moving out and going to college!  No more daily chats face-to-face across the kitchen table.  No more late night confession sessions.

He’s a young man, pulling away, making big decisions without you, but he’ll be home for Christmas and summer vacation.

 

 

For all you mamas lamenting the passage of time and the upheavals it brings I have a word: It’s NOT over.

Your child is still within reach.  You can call or text or visit.  You can touch his face, hug her neck, hear his voice.

Life is changing but it is still LIFE.

Feeling a little nostalgic for what WAS is perfectly normal.  Most of us humans aren’t that fond of change.

But children are ours for a season, not forever.  

They are given to us as gifts, not possessions.

For some mamas, like me, it really IS over.

The son I brought home from the hospital, the boy I watched grow and mature into a young man, the confident college graduate I saw drive away to start law school-he is gone.

I can’t call or text or visit him.

I can’t forge a different kind of  relationship across the miles or make special arrangements for him to travel home for the holidays.

I can’t make new memories or take new photographs.  I can’t hug his neck or hear his voice.

So it’s OK to feel a little sad that things are changing.  It’s like moving furniture around in the room-you stub your toe in the dark because things aren’t where they used to be.  

But for me, it’s like the house has burned down.

I felt a pinch in my heart every now and then as my children grew and more and more of their lives were spent away from me.  But I also celebrated each milestone, made much (and still do) of each achievement.

I didn’t want them to be frozen in time, stuck on a shelf, kept “small”.

Enjoy the time you have with your babies, with your children, with your teens-embrace the growing independent persons they are becoming.  

As long as they are walking the earth with you, nothing is OVER,  it’s just the beginning of something new.   

caterpillar thought it was over

 

 

 

 

It’s Complicated

One of the things I’ve been forced to embrace in the wake of child loss is that there are very few questions, experiences or feelings that are simple anymore.

“How many children do you have?”

A common, get-to-know-you question lobbed across tables, down pews and in the check-out line at the grocery store.  But for many bereaved parents, it can be a complex question that gets a different answer depending on who is asking and where we are.

I decided from the beginning that I would say, “four” in answer to that query.

But that doesn’t always get me off the hook.  A follow-up of, “Oh, what do they do?” means that I have to make a decision:  do I go down the line, including Dominic in any kind of detail or do I gloss over the fact that one of my children now lives in heaven?

I try to gauge whether or not the person is deeply interested or just being polite. No sense making them feel uncomfortable if they are really only making chitchat.

All of these calculations flash through my mind in an instant but they are distracting and draining.

“Want to go to a movie?”

Maybe.  

First I have to look up the plot (something I never did before because I didn’t want to ruin it).  I can’t be stuck in a dark theater in the middle of a row full of people with no way out if larger-than-life there will be anything that sends me back to Dominic’s accident.

Same standards for television shows or books-but it’s easier to turn those off or set them down.

Sitting in church can be excruciating.  

A hymn or chorus, a Bible text, a random statement from the pulpit-any or all of those things can lead my thoughts down a path that takes me to a dark place where sorrow is overwhelming.

No matter how much I long to listen and participate, I find myself literally biting my tongue so that I don’t burst into loud sobs.

It doesn’t happen every Sunday, but I never know when it might.

Social media is an emotional minefield.  

first world problems

 

I confess that in the first days after Dominic left us, I had to limit the posts that showed up in my Facebook newsfeed.  It was too difficult to see complaints about children growing up or graduating and how hard it was to “let them go”. I could not take whiny status updates that included having to wait in line for the new iPhone.

It’s easier now that my grief isn’t so raw but there are days…

Making a meal, I reach for his favorite ingredient or leave something out because “Dominic doesn’t like it that way” and then I remember he won’t be here to eat it.

waves of grief

 

Music can transport me to a moment of joy or pain with a single note.

Sometimes I walk in a store and smell coffee-he loved coffee-and I have to turn around and leave.  Other times the fragrance draws my mind to sweet memories of shared Starbucks runs for a caffeine infusion.

 

If you ask me to do something next week or next month, I might say, “yes” and then find on that day I just. can’t. go.  

I used to be a woman who lived by her calendar and commitments, but now I’m someone who never knows what a day will bring.

Learning to live with this changed me is an ongoing process and exhausting at times.

So much energy is used up negotiating what used to be simple things that there’s not enough left for pursuing new interests or delving deeper into old ones.

I’m trying to reach equilibrium.  

I long for a time when simple things are simple again.

But I don’t think it will be today.

courage doesn't always roar

 

 

 

 

God Uses Broken Things

It is a hard lesson to learn:  that my brokenness is more useful for God’s purposes than my strength.

When I feel strong, I’m like the Israelites who, being full of good things, forgot the One Who gave them.  I carry on, giving God a nod, but feeling quite capable of accomplishing things on my own.

Sure, it’s nice if He blesses me here and there-but the blessings are icing on a very thick cake.

I’ve got resources.

But when I’m broken, in the dust on my face, begging for the touch of His hand, pleading for His Presence, I am open to what He wants to say to me.

“Pain insists upon being attended to. God whispers to us in our pleasures, speaks in our consciences, but shouts in our pains. It is his megaphone to rouse a deaf world.”
― C.S. Lewis

My brokenness allows the life and light of Christ to shine through the cracked veneer of self-assured independence.

It makes me useful in God’s Kingdom.

What I see as ruin, God views as the seed of victory:

Jar of Clay

 

 

 

Then and Now: Open Hands, Open Heart

April 19, 2014

One week ago today my world was torn asunder, my eyes opened to the reality of what I said I believed-that any day, any moment, can be the last.  I was forced to face the test-second only to my own death should I have time to think before I die-of whether or not Scripture tells the truth or a tale:

Whether the loving God I claim to serve is for me or against me.

Whether this earthly existence is a path leading to the eternal life Christ promised or just a fleeting moment leading to eternal nothingness.

Will I define the rest of my days by what I have lost, always staring down the hole of emptiness left by Dominic’s breathing, vital absence or will I lift my eyes to the Eternal God and define my life by the very real connection I now have in Heaven?

Will I let grace, mercy and love fill me to overflowing and spill out into the lives of those around me or will I embrace bitterness and defeat and shrivel up so that my story dishonors the generous life Dominic lived?

By God’s grace, I choose love.

If my hands are open to the blessing, then they must be open to the pain.

If my heart is open to the memories and love, then it must be open to the grief and sorrow.

Oh LORD!  You have bruised me so that I will always be tender!

To walk with kindness and mercy and grace toward everyone-make that the legacy of my precious boy!

May 2, 2016

I continue to make the daily choice to hold out my empty hands to the God I serve.

Some days, it’s a greater challenge than others.

Sometimes I want to clinch my fists and cry, “No more!”

I would like to think that burying my son had filled up the quota of pain and hurt for a lifetime.  I want to believe that since I’ve been wounded so grievously, God would spare me further struggle.

But that’s not true.

Life goes on.  

I still face problems, I still face disappointment, I still face hardships and sorrow.

That is when I have to decide:  Will I close my heart and hands to the One Who can fill them with life and hope as well as grief and pain?

Where would I go?

I, like Peter, proclaim:

“Master, to whom would [I] go? You have the words of real life, eternal life. [I’ve] already committed [myself], confident that you are the Holy One of God.”

John 6:68 MSG