Thanks for Listening!

One year ago today I began sharing my grief journey publicly on this blog.

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You can read that first post here.

 

It was (and still is) scary to expose my thoughts and feelings to a wider audience than just the pages of my personal journal.

I’m never certain that what is helpful for me is necessarily helpful for anyone else.  But in writing it down I find that I am able to sort through things better than when I leave it bouncing around in my own head space.

I decided upfront that I would be as honest as possible about what I felt and how I was coping.  I wasn’t sure if I would post only a few times or a lot, if it would turn into a day-by-day diary or a more sweeping revelation of deeper things.

I think it’s kind of been both at times.

And here we are, 366 days (it was a leap year) and  355 posts later and I’m still here and you’re still listening.

I don’t claim to have any special gifting or knowledge or ability.  I am simply one mama whose love for both her child in heaven and her children still here demands that I speak out.

My heart is full of  love and pain.

thank you

And my heart has been blessed beyond measure by those who read and share what I have written.  I’ve met-in person and virtually-many bereaved parents who are helping me as I continue down this road.

I am so very thankful for each one.

I pray that for those who read these words and know the pain of burying a child, I am speaking things you may think or feel but are not willing or able to express.

And I pray that in hearing them spoken aloud, you are affirmed and encouraged that you. are. not. alone.

Dominic matters.  

Your child matters.  

It’s not only OK but absolutely necessary to admit that life after child loss is a struggle.  It is also just fine to take your time working through the pain and sorrow and overwhelming changes child loss brings.

For those who read my posts and do not share this pain, I pray you gain insight into what bereaved parents feel and how burying a child changes EVERYTHING.

I hope you are better equipped to offer the ongoing support we need and crave.  I hope you learn that this is not something we have chosen, it is something that happened to us. 

And I pray that all of us will be more willing to extend grace, mercy and love to one another.

Words are not neutral.  

They bring life or death.

They wound or heal.

May each of us be an instrument of healing for someone’s hurting heart.   

its hurting again

 

 

 

 

 

 

 

 

 

Grief and Holidays:What the Bereaved Need From Friends and Family

I know it is hard.  I know you don’t truly understand how I feel.  You can’t.  It wasn’t your child.

I know I may look and act like I’m “better”.  I know that you would love for things to be like they were:  BEFORE.  But they aren’t.

I know my grief interferes with your plans.  I know it is uncomfortable to make changes in traditions we have observed for years.  But I can’t help it.  I didn’t ask for this to be my life.

I know that every year I seem to need something different.  I know that’s confusing and may be frustrating.  But I’m working this out as I go.  I didn’t get a “how to” manual when I buried my son.  It’s new for me every year too.

So I’m trying to make it easier on all of us.  

I’m trying to be brave and think ahead and offer up what I can to help you understand.

I’m not asking you to stuff your feelings.  But I am asking you to weigh your disappointment in things being different against my unfathomable sorrow in burying my child.

And this is what I need from YOU:

Acknowledge my loss.  It doesn’t matter if it has been a few months, a few years or even decades-every single time the whole family gets together, the hole where my child SHOULD be is highlighted.  Other people may have moved on, and I am stronger now than I was, but the missing is as hard today as it was the day he left.  I need you to acknowledge that even if you don’t understand it.

Be flexible.  Every day is different for me.  And even if we did a certain thing last year, it may not be something I want to repeat.  Life circumstances continue to evolve-living children grow and marry, grandchildren make their appearance, health issues may emerge and change physical capabilities-life keeps on regardless of loss.  So this year is DIFFERENT than last year.  For everyone.  If we all embrace flexibility, there’s less opportunity for breakage.  Rubber bounces.  Glass shatters.  I don’t want my loss to be the central focus, but it’s a huge part of my experience and I can’t ignore it.  Help me, please.

Give me space.  Grant space in the larger picture-don’t make showing up to every family event a “mandatory option”.  Understand that even with planning and the best intentions, I may wake up and realize that I. just. can’t. do. it.  Or I may come, but leave early.  And grant space in the details-if I walk out of a room, let me go.  It may be helpful for one person to check on me after a few minutes but don’t send the calvary to drag me back.  I don’t always want to detract from a gathering and I may need to cry, or gather myself, or just sit silently remembering my son.

Give me time.  Time by itself does not heal anything.  But time is a critical component of healing.  If this is the first holiday season after loss, don’t pressure me with artificial deadlines about what I want to do or whether or not I’m going to participate in this or that. And even if it’s not the first season, I still need time.  It will be the third set of holidays after my son’s departure and I’m still feeling my way in the dark.  Don’t force me to decide if I can’t.  Just go on with your plans.  If I can join in, I will.  If I can’t, then I won’t.  That’s the best I can do.  It’s how I have to live every single day right now.

Grant mercy.  I will mess up.  I will say things in the passion of loss that I regret.  Overlook it.  Don’t lash out or hit back.  My emotional tank is so empty sometimes that it’s a wonder I can still feel anything.  I am truly trying. Grant mercy.

Extend grace.  Grace is lavishing love on the unlovely. Forgiving when someone doesn’t ask for it.  Doing something for someone and not expecting anything in return.  Step up and step out in faith that loving me will help me heal.  Even when you can’t see that it makes a difference. Don’t stop.  Don’t withdraw.

Know that this is not what I would have chosen.

Child loss happened TO me.

It is out of my control.

And the calendar pages keep turning.  Every holiday season means another year gone without the companionship of the child I miss.

I want to continue to embrace life, to enjoy my loved ones, to make new memories.  But I need your help to make it happen.

Don’t abandon me now.

compassion is a choice

A Few of My Favorite Things

When I had a child, suddenly I cared about everything. When I lost a child, suddenly I cared about nothing.

~ a bereaved mother

When I read this comment, I thought about it for a moment to see if it was true for me.

And I realized that, yes, it WAS true at the very beginning.

Mind-numbing pain and soul-crushing agony pressed down so heavily that I couldn’t care about anything other than reminding myself to

BREATHE.

In. 

Out.

Repeat.

A bit over twenty-eight months have passed and my body, mind and spirit are stronger.

The pain is still great, but I am better able to bear it now.  

My heart is bigger because I suffer and it is softer toward those who also suffer.

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Trials make great room for consolation. There is nothing that makes man have a big heart like a great trial. I have found that those people who have no sympathy for their fellows, who never weep for the sorrows of others very seldom have any of their own. Great hearts could be made only by great troubles.

Charles Spurgeon

Now I care much more deeply about a few, select “things”.

The ones I can take with me into eternity:

People

And love

And grace

Forever in heaven with Jesus.

Priorities

Browsing a book store (a favorite pasttime) I came on this selection in a collection of poems by Robert Frost:

A Time to Talk

When a friend calls to me from the road

And slows his horse to a meaning walk,

I don’t stand still and look around

On all the hills I haven’t hoed,

And shout from where I am, What is it?

No, not as there is a time to talk.

I thrust my hoe in the mellow ground,

Blade-end up and five feet tall,

And plod:  I go up to the stone wall

For a friendly visit.

It pierced my heart.

How many times have I chosen to ignore a friend’s need for companionship-brushing past importantly as I pursued the day’s tasks?

I’ll get around to it when I have more time,” I think to myself.

And then one day there is no more time.  The friend I kept putting off has left this world for the next and I can’t retrieve the missed opportunities.

Nothing stings like words unsaid, hugs not given or love left bound in a heart instead of set free to bless another.

C.S. Lewis said:

“There are no ordinary people. You have never talked to a mere mortal. Nations, cultures, arts, civilizations – these are mortal, and their life is to ours as the life of a gnat. But it is immortals whom we joke with, work with, marry, snub and exploit – immortal horrors or everlasting splendors. This does not mean that we are to be perpetually solemn. We must play. But our merriment must be of that kind (and it is, in fact, the merriest kind) which exists between people who have, from the outset, taken each other seriously – no flippancy, no superiority, no presumption.”

And I think I don’t have time?

Of all the souls born on this planet, Jesus had the most important work to do.

Yet He purposed to include people at every turn.

He healed the sick.  He spoke hope to the woman at the well and the woman caught in adultery.  He rebuked religious leaders who were more interested in burdening the faithful than guiding them to God.

Jesus walked everywhere-surely it would have been more EFFICIENT to let the Holy Spirit whisk Him from place to place as He did Phillip after speaking to the Ethiopian.

In walking, the Light of the World  was building relationship-He was speaking truth to the twelve who would be the foundation of His church.

And relationship takes time.  There is nothing instant about it.

It is clear from the life of Christ that after His Father, people were His priority.

Few of us will be called to great public tasks or lofty visionary ministry.  But each of us has been called to carry the light and life of our Saviour to every person we meet.

If we are to follow in the footsteps of our Master, then people must be our priority too.

So I will set aside my “to do” list when someone comes calling.  I will cross the street to meet that person I remember from school or church.  I’ll send a card to the sick relative and remind her that I love her and will pray for her recovery.

I won’t lock love in my heart and hoard it like gold.

I’ll shed it abroad so that it speaks courage to everyone I meet.

“Imagine what our real neighborhoods would be like if each of us offered, as a matter of course, just one kind word to another person.”
– Mr. Rogers

A Little Extra Grace

Each day I am reminded by sights, smells, sounds and memories that Dominic is in Heaven and not here.  

But there are moments and seasons when his absence is particularly strong-when I can’t breathe in without also breathing a prayer, “Father, let me make it through this minute, this hour, this day.”

And that’s when I need grace-from family, friends and strangers.

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Anyone who knows ANYONE that lives with loss knows that Thanksgiving, Christmas, birthdays and remembrance days are sure to be especially hard for those left behind.

What some may not know is that there are other, hidden, pitfalls on this journey through the Valley of the Shadow of Death.

For many bereaved parents the beginning of the school year is one of them.

Even though my son  was long past school age when he left, that shiny penny newness and promise of another year of school, another step toward maturity and the rest of life, another marker on the road to what every parent hopes will be a beautiful future is a painful reminder that my child won’t be doing anything new here on earth.

And a little extra grace goes a long way toward making this season easier to endure.  

  • A bit more patience as I walk slowly across the parking lot, lost in thought and unaware you are behind me trying to get on with life or park your car.
  • A smile when I accidentally bump my cart into yours in the grocery aisle-having just passed his favorite food or smelled coffee and been instantly transported to his finicky passion for all things caffeine
  • Calm responses when I jump to conclusions, cut you off mid-sentence or answer a query with a less-than-kind tone of voice.

Want to be especially encouraging to a parent missing their child in heaven?

  • A text or message or a “thinking of you” card can turn a dismal day into one full of sunshine.
  • Do you have a special memory or memento you could share?  What a gift!

If you see us in these next few days and weeks as thoughts and hearts turn from summer to a new semester, be patient-we are once again reminded that our child’s earthly story has ended.

It’s a hard truth to embrace. 

Every. time.

Move On Already!

How long has it been?  A year, two, eighteen or twenty-five?

When. are. you. going. to. move on?  

Aren’t you over talking about their birth story, their childhood, their school years, their spouse, children, moves and career?  How many funny stories or sad recollections do I have to listen to?????

I mean, really-it’s been soooooooooo00 long since they were BORN!

Sound’s ridiculous, doesn’t it? It IS ridiculous.

We don’t expect parents to “move on” or “get over” their living children.

Why, why, why do we expect parents to move on or get over the ones they’ve had to bury?

My love for each of my children, on earth or in heaven, is life-long.  

I wrote about it here: Love: The Reason I Grieve

Can’t Hide the Ugly

Yesterday I was impatient and ugly with someone I love.

When you are hurting, physically or emotionally or physically AND emotionally, you just don’t have the energy to hide the ugly.

But the pain didn’t create the ugly-it just revealed it.

And I am sorry to say that even burying a child did not cleanse me of some ugliness I wish I didn’t have in my heart.

I keep asking God to fill me with His love, mercy and grace.  And I am more full of those things than before.

But there is still plenty of (if not hate then) less-than-love, judgement and impatience. Trials don’t automatically lead to refinement or stronger faith.

Tribulation can drive someone away from God as easily as it can drive them to their knees.

If I’m not careful-if I’m not very careful-I can use my pain as an excuse for all kinds of bad behavior.

So I’m here to confess:  I am so, so sorry.

I’m sorry that when my glass gets tipped, anger and bitterness spills out. I’m sorry that I’m not more faithful to extend grace when I hope grace will be extended to me.  I’m sorry that speaking truth so that I prove my point and wound a heart is sometimes more satisfying than speaking truth in love.

I wish every  deed I did  and every word I spoke was full of life and never full of death.

I hate death.  I. HATE. death.

It has taken enough from me. And I want no part of it.

Father, I want to be a beacon of light and life.  Lord, make me so.  Fill me to overflowing with YOUR love, YOUR life, YOUR grace, YOUR mercy.  Left to myself I have no hope.  But by Your Spirit, it can be so.

When all kinds of trials and temptations crowd into your lives my brothers, don’t resent them as intruders, but welcome them as friends! Realise that they come to test your faith and to produce in you the quality of endurance. But let the process go on until that endurance is fully developed, and you will find you have become men of mature character with the right sort of independence. And if, in the process, any of you does not know how to meet any particular problem he has only to ask God—who gives generously to all men without making them feel foolish or guilty—and he may be quite sure that the necessary wisdom will be given him.

James 1:2-5 PHILLIPS

 

What Helps and What Hurts

I am committed to continue to trust Jesus and to look to the Word of God for my hope and direction in this life and in the one to come.

I speak truth to my heart through Scripture, worship songs, testimonies of others who have gone before and remaining in community with other believers.

But I’ve yet to reach the place where I can plan on most days being better days rather than hard ones.

I’m trying.

And I’m working to tease out the influences that make a difference-both the ones that help and the ones that hurt.

So here’s the list so far:

WHAT HELPS

  • Starting the day with Bible reading
  • Writing out a verse or two that speaks hope to my heart
  • Listening to worship music
  • Feeling well-less physical pain translates to an overall sense of well-being
  • Having a plan for the day-even if it is simple and created in broad strokes, knowing what I plan to do gives me a reason to get up and get going
  • Seeking companionship with other believers either via Facebook groups, telephone calls, in person get togethers or messaging.
  • Allowing myself a set time to grieve-cry, pray, lament, or whatever-then moving on with the day
  • Mixing up physical activity with rest-changing my body position often reorients my attitude.
  • Striving to get proper sleep, eating good food (not junk and not mindlessly), exercising and stretching.
  • Crying-if I need to cry I’ve found allowing the tears to fall is much better than fighting them off all day.
  • Retreating when necessary-if I find a situation is too much for me to handle, I give myself permission to retreat.  Most things can be done another day.  Sometimes just granting myself permission means I have the courage to press on and face it.
  • Planning for hard things.  If I know I’m going to have to face a hard thing, then I try to plan it.  I prepare myself by thinking through (as much as possible) various outcomes.  I’m more prepared and usually it goes better than I anticpated.
  • Not overscheduling my days/weeks-it is harder than it used to be to get going in the mornings so I take that into consideration when making appointments.  If I have a busy day on Monday, I will try to make Tuesday open and relaxed.  Having space between commitments gives me time to recoup and minimizes anxiety.
  • Doing as many things via Internet and telephone as possible-I can do needful things even if I’m having a bad day if I don’t have to get dressed and go out to do them.

WHAT HURTS

  • Neglecting my spiritual life-if I don’t read Scripture, don’t engage with other believers and refuse to acknowledge and thank God for the blessings He still bestows-I can quickly succumb to the dark whispers of the enemy of my soul.
  • Ignoring physical needs-when I don’t prioritize sleep, good nutrition, adequate exercise and appropriate pain control (for my RA) then sadness is multiplied and it is so much harder to climb out of the pit of despair.
  • Carrying unnecessary burdens-I cannot MAKE anyone understand the pain and ongoing challenge of child loss.  So when people outside my immediate grief circle question my feelings or try to make me conform to their expectations of what grief should look like and how long it should last, I have to shake it off. If it’s an important and ongoing relationship, I try to help them understand but if they choose not to or if it is a tangential relationship, I let it go.  I refuse to carry the burden of others’ expectations in addition to the burden of burying my child.
  • Being ignored-it hurts to be ignored.  It hurts when someone asks how I am yet doesn’t allow the space and time for me to answer.  It hurts when I answer and they ignore my pain or dismiss it with a story or platitude or Bible verse or just don’t say anything.
  • Being shamed-it hurts for others to shame me by implying that I am not strong in my faith or not trusting Jesus or not hoping hard enough for heaven when I admit I still struggle in grief and still miss my son.
  • Disregarding my triggers:  There are certain situations that I know will guarantee a breakdown, panic or a crying fit.  I avoid them when I can.  If I can’t-then I make a plan of escape (just in case).
  • Being “on display” for others-I am one woman doing the best I can to walk faithfully with Jesus through an unbelievably painful experience.  I am not the Author and Finisher of your faith-Jesus is.  It hurts when I feel like others are watching to see if I’ll make it, if I’ll say the “wrong” thing, if I’ll admit that I doubt.  I want the same freedom others have to grow in my faith and to make mistakes and learn from them.  I don’t want to be a “poster child” for anything.
  • Friends staying away.  I know it is hard to be my friend right now.  You never know what you might get when you call.  But if you ARE my friend, please don’t stay away.  Please reach out even when it makes you uncomfortable.  A good word at the right moment is often the difference between a very bad and very lonely day and a pretty good and generally hopeful one.
  • Hiding my sorrow-when I try to pretend I am stronger than I really am or when I try to hide my tears it takes so much energy and makes me so less capable to do the other things life requires.

These are just some of the things that help/hurt me in my journey.  I would love to have others share what helps/hurts them in theirs.  There’s strength in community.

Leave your thoughts in the COMMENTS below!

 

 

 

Prayers I Still Pray, Part II

As I mentioned yesterday, prayer after loss is complicated for me.  I wrote a post months ago The Problem of [Un]Answered Prayer that addressed this.

But I AM able to pray Scripture-especially the prayers of Paul, which are centered on asking God to strengthen others and to expand their understanding of His love, compassion, power and grace.

Here are two more that I find helpful:

Philippians 1:9-11

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I pray

  • that ___’s love may abound more and more in knowledge and depth of insight,
  • that___may be able to discern what is best, and
  • that____may be pure and blameless until the day of Christ,
  • that___will be filled with the fruit of righteousness through Jesus Christ-to the glory and praise of God.

 

Colossians 1:9-12

Father, I pray

  • that You will fill___with the knowledge of Your will through all spiritual wisdom and understanding,
  • that___may live a life worthy of You, Lord,
  • that____may please You in every way,
  • that___will bear fruit in every good work,
  • that___will grow in the knowledge of You,
  • that___will be strengthened with all power according to Your glorious might,
  • that___may have great endurance and patience,
  • that___will joyfully give thanks to You, Father, who has qualiied them to share in the inheritance of the saints in the kingdom of light.

Today by Your Spirit make real all their inheritance in Christ Jesus.

col 1_9

Prayers I Still Pray

Prayer has been difficult for me since burying a child-I’ve written about that struggle in a previous post.

I have yet to find a comprehensible way to think about both the sovereignty of God and His goodness, free will and predestination.

So I find myself incapable of praying for things like safety for my children, freedom from disease or specific outcomes in difficult circumstances.

Instead I pray the prayers of Paul, straight from Scripture-prayers that focus on expanding a person’s understanding of Who God is, how much he or she is loved by God and the development of godly fruit in his or her life.

THESE are prayers I can still pray, I hope they are helpful for others in similar circumstances.

Ephesians 1:17-23

Glorious Father, I thank you for_______, and I bless them. I ask You to give _____the Spirit of wisdom and revelation, so that ______may know You better.  Enlighten the eyes of ______’s heart, so that they may know

  • the hope to which You have called them,
  • the riches of Your glorious inheritance in the saints,
  • And Your incomparably great power for them because they believe, the power of the resurrection and the ascension which seated Jesus at Your right hand where He is above all rule and authority, and power and dominion in this world, and all things are under His feet.

Fill ____with all the fullness of Jesus in every way today.

ephesians 1_17

Ephesians 3:15-20

I call You Father, and I pray

  • that from Your glorious riches You will strengthen______with power through Your Spirit in their inner being,
  • that Christ may dwell in ______’s heart through faith,
  • that ____will be rooted and established in love,
  • that____may have power, with all the saints, to grasp how wide and long and high and deep is the love of Christ,
  • that ____will know this love that surpasses knowledge,
  • that___will be filled to the measure of the fullness of God.

I give You all the glory, for You are able to do immeasurably more than all I ask or imagine, according to Your power that is working within us.

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