Vocabulary Lesson: Learning the Language of Grief and Loss

How do you speak of the unspeakable?

How do you constrain the earth-shattering reality of child loss to a few syllables?

How do you SAY what must be said?

I remember the first hour after the news.  I had to make phone calls.  Had to confirm my son’s identity and let family know what had happened.

I used the only words I had at the time, “I have to tell you something terrible. Dominic is dead.”

Over, and over, and over.

Until others could pick up the chant and spread it to the ends of the earth.

And then silence.

Such a deep wound requires silence.  Because there are no words for the ache inside a mother’s heart, the pain that burrows into her bones, the sorrow that sucks the breath from her body.

It was some months before I found a community of bereaved parents who began to give me a vocabulary for my experience.

And it was more than helpful, it was liberating!

break-the-chains

As I began to speak aloud what was hidden inside, it broke chains I didn’t realize held me hostage.

As long as my feelings are secret, they trap my heart and mind in an endless cycle of regret, fear, sorrow, pain and anxiety.  When I speak them aloud, I can recognize them and fight them and overpower them.  And when I share them,  I find that I am not alone.

Others come alongside and say, “Me too!”  Validation makes me stronger. Understanding makes me brave.

me too sharing the path

I hate the fact that my son is dead.

I hate the pain that his death has inflicted on me and on my family.

There are days I wish I could run away and hide, that I could pretend this never happened, that I could undo the broken that permeates my life.

But I can’t.

There’s no way through but through.  I have to face the awful truth, I have to consider the ways it is changing me and remaking who I am.

I need words to process the pain because that’s how I can disarm its power over me.

It’s tempting to try to ignore the hard parts of our stories thinking that we are getting away from them.

But we aren’t.

The harder the season, the more profound the wound or bitter the struggle the more time it takes to process.

The first step is learning the words and finding community in which to speak them.

healthy-heart

Here are links to three online communities for bereaved parents:

While We’re Waiting-Support for Bereaved Parents

Heartache and Hope: Life After Losing a Child

TCF-Loss of a Child (The Compassionate Friends)

If you have lost a child and are looking for a place to learn the language of grief and loss, a safe space to share your pain with others who understand it, see if one of these groups might be the place for you.

 

 

David and Goliath

Today is 35 months-almost three years since I was awakened to the news no parent wants to hear.

And, yes, I still count the months.

Every 12th rolls around and reminds me that while Dominic’s leaving was an event on the calendar to others, it is an ongoing experience for me and my family.

I don’t say this for pity’s sake.

Pity is a poor substitute for what I really want:  I want my son back; my family whole; my world unshattered and unshaken; my biggest problem to be how to get all my grown children together at the same place at the same time for holidays.

I can’t have what I really want.

So I hold on to what I have-the Truth that every promise of God in Christ is “yes” and “amen”.  And the memories-I hold onto the memories.

I have the first Bible we ever gave Dominic.  

It endured rough use-the corners chewed on, the pages bent and the covers full of creases where they’ve been folded back and forth.

We chose it because it is one of those children’s Bibles with pictures inserted every so often-old fashioned images taken from paintings no longer guarded by copyright or trusts.

His very favorite page was the illustration of David and Goliath-his most treasured story and his most requested reading.

We even had a “David and Goliath” themed birthday party way before Pinterest.  

I made a life-sized version of Goliath and hung him on the wall so the boys could stand next to it for a photo.

I was recently reminded of these memories when a video made it’s rounds on Facebook (you can watch it here ).

It’s easy to focus on the fact that David’s stone slew the giant.  But what my heart holds onto are David’s words, “All those gathered here will know that it is not by sword or spear that the Lord saves; for the battle is the Lord’s, and he will give all of you into our hands.” (I Samuel 17:47)

not-to-us-but-for-your-glory-and-name

David had little confidence in his own strength. He wasn’t certain that his skill in slinging rocks was what guaranteed victory.  No.  He was absolutely convinced that Jehovah would not allow His Name to be sullied.  He rested in the fact of God’s faithful covenantal love.

He bet his life on it.

If you read the Old Testament you will find example after example of God’s people begging Him for mercy-not because they deserve it-but because it reflects the truth of Who He is.

Abraham leads Isaac up the mountain and tells his servant, “We will return”.

Why?

Because he trusted that God’s promises were true, that God could not and would not lie.

Moses begs God to give the Israelites another chance because if they perished, it would desecrate His Name.

Daniel asks God to remember His covenant, not for the sake of the people, but for the sake of His reputation.

On and on and on.

So in this Valley of the Shadow of Death, I don’t beg for mercy and grace because I think  I DESERVE it.

I beg for mercy and grace because the character of God guarantees it.

God will finish what He started-not for me but for His kingdom.

His faithful love endures forever not because I am worthy but because He has claimed me for His own.

He will not allow His Name to be defamed.

I bet my life on it.

 

 

Which Weighs More?

Remember the childhood riddle, “Which is heavier, a ton of bricks or a ton of feathers?”

feathers

It was great fun to catch someone giving the wrong answer.

Because, of course, a ton is a ton is a ton.  Weight is an absolute measure.

But it takes fewer bricks to reach that quota although it takes just as much strength to lift the burden.

weights-dumbbells

One thing I’m learning in my grief journey is that there are so many people carrying a load.

I find my compassion radar has been fine-tuned to hear even the faintest whisper of hurt in someone’s voice, to see the tiniest gleam of a tear, to notice the smallest stoop of shoulders or the beginning of a frown.

And while some of us have had our ton of pain and sorrow delivered via bricks-suddenly, forcefully and overwhelmingly dumped-others have acquired their ton over a lifetime of disappointment, struggle and testing.

They both weigh a ton.  

And they both require great strength to carry.

It’s a challenge to resist the urge to rank my experience on a continuum of pain.

Although I bridle when people compare their loss of a pet or job to my loss of a child (as I wrote about here), I do try to extend grace when others expose their own wounds.

I want to comfort other people with the comfort I have received.  Not only the comfort from Christ-which is the ultimate comfort-but also the comfort I’ve received from wise friends and caring sisters-in-loss.

I want to be a listening ear, a compassionate heart and an outstretched hand.

Reaching Out to Help Someone in Despair

I want to be a witness, a fellow traveler on the journey, an encourager.

Grief

is grief

is grief.

A ton is a ton is a ton.

True That

In a family full of  young adults on the brink of life, of love, of making dreams come true, you never expect to hear these words, “It is what it is.”

But in a home where loss has taken its toll, I do.

Oh, how I long to restore the unmarred joy we used to know-when everything was possible, positive attitudes could overcome any challenge and the horizon beckoned with welcome instead of warning.

Our watchword used to be “Failure is not an option”.

failure-is-not-an-option

I even had a cute little magnet on the fridge that proclaimed, “Another day, another disaster”.

That was BEFORE.

Before the dawning sun brought real disaster to our doorstep.  Before the thing we had to face could not be overcome by more elbow grease, greater resolve or stronger faith.

Before death became very, very real to us.

We are not struck down in despair.  

We are not fatalists.  

But we do acknowledge the fact that this life is filled with things we cannot change.  We understand by experience that some things must simply be endured.  We embrace the truth that we depend on the mercy of God in every way.

So now we live this motto:  It is what it is.

ljs-228

And we take one another’s hand and walk on, through whatever it is.  We call courage to our hearts that no matter what happens, we will survive together.  

We keep loving and living and leaning.

Because that’s what we do.

I Want to Get It Right

There are lots and lots of things in life where the distance between “good enough” and “perfect” really doesn’t matter.

I don’t aim for hospital corners while making my bed.

I cook without recipes-adding this or that until the taste suits me.

If I walk 8,567 steps or 10,291 steps I am not going to stress about it.

BUT-there is one thing I absolutely MUST get right.

My understanding of God-Who He is, Who Jesus is-matters for ever and ever.

I want to get it right.

I want to hear from the Holy Spirit and understand God’s Word.  I need to figure out the basics even if I can’t fill in all the details because what I believe about Jesus Christ determines whether or not I will join my son in heaven.

I admit that I still struggle with reconciling God’s sovereignty and God’s goodness.  I haven’t come up with an easy answer for why bad things happen in the world-often to people who don’t seem to “deserve” it.

But I am absolutely convinced that God is in control.

He is the Creator and Sustainer of this world.  He rules and reigns from a place of power and glory and might.  He did not make us and then leave us to our own devices.  He is active, here and now.

I trust in God’s faithful, enduring love.

graphic-his-faithful-love-endures-forever

It certainly doesn’t always look like what I think love should look like.  It includes allowing pain and heartache, dark nights and deep valleys.

Some He saves from the fire and others He gives over to tyrants.

But He also pursues me,

woos me,

strengthens me,

and sustains me.

He does not leave me to my own devices nor abandon me to my sin.  He has provided a way where there was no way.  His own Son’s blood is the Perfect and Enduring Sacrifice that gives me access to the Throne of Grace.

And I am convinced that the work He began in me-the work He began in Dominic-He is faithful to complete it.

I don’t get to see the finished product yet.  

It’s frustrating, frightening and painful to wait for it to be revealed.

But I believe with my whole heart that it will be one day.

beauty-from-ashes-clothespin

 

Daily Battle: Tempted to Give Up

So many things raced through my mind in the first five minutes of hearing the news:

Oh, God!  Is it true? (I have to authenticate his identity);

How do I tell everyone? (I have to make phone calls);

What do you do when your child dies? (I have no idea how to plan a funeral);

and on

and on

and on.

Of course, that doesn’t touch the FEELINGS flooding my heart.

I don’t really have words for that, even now.

But as the days of crazy activity and people everywhere gave way to the weeks and months of silent sorrow, all I wanted to do was to give up and give in.

What was the point of carrying on if it meant carrying this weight of sadness until I was also in the grave?

At first, my motivation was to help my husband and children through these crisis moments.  My training gave me tools to give them words and ways to frame the pain. Hours of home “therapy” drained me but also gave me a sense of purpose and  direction.

It was a couple of months into this journey when  I faced my first test:  I suffer from a gastrointestinal condition that predisposes me to catastrophic GI bleeds.  Combined with the medications I take for RA, I woke one morning to find I was losing large amounts of blood.

It was nearly welcome news.

As weakness overtook my body, I could feel the lure of simply drifting away into eternity.  I was tempted to lie down on the bed and allow my heart rate to decrease, my blood pressure to dive and my soul to break free from this body of death.

But I didn’t-because I could not knowingly add to my family’s heartache.

No one was home so I drove myself to the emergency room and was admitted to the ICU. Several days and units of blood later I came home, restored to life but not unburdened of grief.

And so it goes.   Each day brings its own temptations.

I will be honest:  I am still motivated more strongly by love of my family than a sense of mission or purpose this side of burying Dominic.

Perhaps that is sin.  I don’t know.

But for right now, that’s enough.

Every day, even almost three years later, I wake up and must choose to go on.

I’m not suicidal!

I’m willing to stick around.  But I am no longer afraid to die.

I can say, like Paul,  “To live is Christ, to die is gain”.

doesnt-get-better-gets-different

 

 

 

 

Rearview Mirror

I talk about Dominic “running ahead” but it feels like Im leaving him behind.

I know he’s the first to Heaven and I know I’ll join him, but my daily experience is that I am the one moving forward and he is the one stuck somewhere, unable to catch up.

I absolutely HATE that his footprint on my life grows smaller with each passing day, each new memory made without him, each event at which his smiling face makes no entrance.

I can’t stop the accumulation of bits and pieces that make it harder to spot his unique contribution to the collage of my life.

I am in no danger of forgetting him.

That’s not what I fear.

But bringing what he still is to me into a conversation, into view for others to see and appreciate is getting more difficult.

When I mention him, people don’t know whether to be sad or happy, question my sanity or rush past hoping I’ll change the subject.

There’s just no natural seque between the living and the dead.

And it hurts my heart to watch the gap grow wider.

closure-door

 

 

 

 

 

 

 

 

 

True Love

It’s nice to get flowers or chocolate or balloons or cards that say, “I love you”.

But true love can’t be bought.

True love is marked by sacrifice, ongoing support, genuine compassion and willingness to do whatever it takes to “be there” for another person.

It means standing with someone even when walking beside them includes bearing the unbearable. 

So I have a radical suggestion for this Valentine’s Day-instead of lining the pockets of America’s merchandising gurus-take a moment to write a note to someone who has truly loved you.

Tell them how their love has changed your life.

How their patience gives you space to grow.

How their kindness sings hope to your heart.

How their refusal to envy, boast or brag allows you to rejoice in their blessings without feeling left out or less than.

How their humility and gentleness invites you to share the deepest things, certain your secrets are safe.

How their refusal to keep a tally of the ways you’ve disappointed them grants freedom to try again.

How their trust and hope shine light in your life and give your heart something to hold onto.

How their enduring love gives you a glimpse of heaven.

Let the ones who love you well know that what they do makes a difference.  

Every. Single. Day.

love is not what you say it is what you do pooh

 

Not-So-Random Acts of Kindness

I love the idea of Random Acts of Kindness-it’s a beautiful way to spread love and joy in our broken world.

With a few dollars or a few minutes, I have the opportunity to make someone’s day brighter, their burden lighter and remind them that not everyone is “out to get them”.

BUT-as I’ve written before here:  Relational Acts of Kindness, it’s relatively easy to do my good deed and walk away.

When I bless a stranger, my work is done.

I feel good, they feel good-it’s all good.

I find it much harder to purpose to be kind every day to the people I actually KNOW-the one who may have said cutting things in the past, the one who consistently rubs me the wrong way, the one I feel is lazy or subversive or just holds opinions with which I disagree.

How about the one I thought would show up to help but didn’t?  Or the one who has told tales about me or my family?  The one who lets her children run wild at church? The one who makes others uncomfortable with her dress, or language, or lack of social skill?

Being kind to THAT person is hard.

I want to turn the other way.  I want to make excuses.  I want to pretend that my kindness toward strangers balances my lack of kindness to those with whom I walk daily.

It doesn’t.

I am called to be kind at precisely that place where it is most difficult.  I am called to act in love toward just that person who is most unloveable.  I am called to lay down my life where it looks most likely to be unappreciated.

ephesians-4-31-32

Denying myself is the very method by which Christ builds His kingdom.

Offering my body as a living sacrifice is the pressure He applies to mold my flesh into His likeness

washing-feet-beauty

But Jesus called them to him and said, “You know that the rulers of the heathen lord it over them and that their great ones have absolute power? But it must not be so among you. No, whoever among you wants to be great must become the servant of you all, and if he wants to be first among you he must be your slave—just as the Son of Man has not come to be served but to serve, and to give his life to set many others free.”

Matthew 20:27-29 PHILLIPS

 

 

A Letter To My Living Children*

I never thought it possible to love you more than I already did.

But I do.

photo (20)

Your brother’s untimely departure has opened my heart in a whole new way to the glory that is your presence.  It has made me drink you in like water in the desert.

No more do I take even a moment for granted.  Never again will I be “too busy” to listen to you, to hug you, to greet you on the porch when you decide to make your way back home.

I promised you when that deputy came to the door we would survive.

And we have.

beach-and-family-better

I promised you that I would never raise Dominic onto a hallowed pedestal that obliterated his orneriness and only kept track of his laudable qualities.

I pray I have lived up to the promise.

We are changed-every one of us.

I am so very proud of you for continuing to live.  It would have been easy to give up.  It would have been easy to “live for the moment” and give in to hedonism.

You haven’t done that.

You have had to carry more weight than you should.  I am so very anxious to see how you take this awful  pain and weave it into your own stories-how this dark thread helps define who you become and how you choose to impact your world.

You have lent me your strength when mine was waning.

You have checked on me and loved me and borne patiently with me and with one another when it would have been easier to walk away and try to create a life outside this place of brokenness and vulnerability.

I am always cautious when ascribing feelings and words to our departed Dominic-it’s easy to make him say or feel whatever is most convenient since he’s not here to dispute it.  But I am certain of this:  while he would never, ever have wanted us to bear this awful burden, he would be so, so proud of the way we have supported one another in doing so.

Like always, our family has closed ranks and lifted together the weight that would have crushed us individually.

It’s who we are.

It’s who we have always been.

desimones uab family

*I am absolutely convinced that Dominic is very much ALIVE today in the presence of Jesus.  But for now, I’m denied his daily companionship.